For better or for worse: a longitudinal study on dyadic coping and quality of life among couples with a partner suffering from COPD.

In chronic obstructive pulmonary disease, impairments of dyadic coping are associated with reduced quality of life. However, existing studies have a cross-sectional design. The present study explores changes in dyadic coping over time and its long-term effects on quality of life of both patients suffering from COPD and their partners. Dyadic coping, psychological distress, health-related quality of life, and exercise capacity were assessed in 63 patients suffering from COPD with their partners, at baseline and 3-year-follow-up. Correlation analyses and actor-partner interdependence models (APIMs) were conducted. Patients' delegated dyadic coping (taking over tasks) and common dyadic coping (mutual coping efforts when both partners are stressed) rated by the spouses decreased. Correlation analyses showed that patients' quality of life at follow-up was positively influenced by partners' stress communication (signaling stress). Partners' quality of life at follow-up was negatively influenced by patients' negative dyadic coping (reacting superficially, ambivalently or hostilely) and positively influenced by partners' delegated dyadic coping rated by patients (taking over tasks). APIMs mostly supported these results. It seems important that both partners communicate about stress and provide appropriate instrumental and emotional support to maintain quality of life.

[Chronic obstructive pulmonary disease (COPD): spouses' quality of life and burden during the course of disease]. / Chronisch obstruktive Lungenerkrankung (COPD): Lebensqualität und Belastung der Partner im Krankheitsverlauf.

Little is known about the effect of chronic diseases like COPD on the well-being of caring partners. The aim of the present study was the prospective longitudinal evaluation of quality of life as well as psychological distress with consideration to further psychosocial variables. Therefore a group of 143 consecutive COPD-outpatients and their spouses (n=105) were followed-up over a period of 3 years to assess changes in quality of life (EuroQol), psychological distress (SCL-90-R) and social support (F-SozU). Complete data were available in 64 couples. Spouses showed reduced quality of life and nearly one out of four reported increased psychological distress. Among others, initial social distress predicted quality of life and psychological distress. Given the results, it is time to take action in order to prevent caring spouses to become dependent on care themselves.