RESUMO
Down Syndrome diagnosis communication has got serious ethical implications, since the aim thereof can be either eugenic or therapeutic. The purpose of this paper is, on the one hand, to highlight the fundamental role which sanitary proffesionals play in diagnosis communication and the subsequent decission of the mother. On the other, recommendations on the way to communicate a diagnosis are set out. Finally, in order to analize the state of play in Spain the results of a cross-sectional descriptive study with a sample of 352 mothers are exposed. In this study the mothers express, by means of a survey, their personal experiencies of how they have received the news. It is concluded that the communication of Down syndrome diagnosis can be improved in many aspects.
Assuntos
Síndrome de Down/diagnóstico , Mães/psicologia , Diagnóstico Pré-Natal/ética , Revelação da Verdade/ética , Aborto Eugênico/ética , Adulto , Atitude , Estudos Transversais , Tomada de Decisões , Síndrome de Down/embriologia , Síndrome de Down/prevenção & controle , Síndrome de Down/psicologia , Emoções , Feminino , Humanos , Recém-Nascido , Relações Médico-Paciente , Gravidez , Diagnóstico Pré-Natal/psicologia , Distância Psicológica , Espanha , Valor da VidaRESUMO
The article studies the way in which health professionals communicate the diagnosis of Down syndrome to parents. For that the personal stories of the mothers collected in the answers given by them to the open questions of a questionnaire on â³communication of the diagnosisâ³ are analyzed. The results show the mothers' dissatisfaction with the information received during the prenatal and postnatal diagnosis of Down síndrome.