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1.
Semin Pediatr Neurol ; 36: 100854, 2020 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-33308518

RESUMO

Inadequate preparation for transition to adult-oriented systems of care leads to gaps in treatment and can result in poor health outcomes for youth with special healthcare needs. Coordination between primary care and specialists must occur at multiple levels of organizations to improve transition for youth with neurological disorders. This review focuses on the transition process from the pediatrician's perspective, highlights common obstacles, addresses the unique needs of youth with intellectual disabilities, reviews relevant guidelines, and discusses emerging transition strategies. Key recommendations include defining the roles of the different healthcare providers and using multidisciplinary collaboration to overcome limited resources.


Assuntos
Guias como Assunto , Acessibilidade aos Serviços de Saúde , Deficiência Intelectual/terapia , Doenças do Sistema Nervoso/terapia , Pediatras , Transição para Assistência do Adulto , Adolescente , Adulto , Humanos , Adulto Jovem
2.
Pediatr Clin North Am ; 67(4): 629-634, 2020 08.
Artigo em Inglês | MEDLINE | ID: mdl-32650859

RESUMO

A team of providers, researchers, patients, and families created a novel telehealth tool to improve communication across a variety of systems involved in pediatric epilepsy care. This tool facilitates in-home telemedicine appointments and saves costs for patients and hospital systems alike within the context of a population highly affected by health care disparities.


Assuntos
Epilepsia/terapia , Telemedicina/métodos , Adolescente , Criança , Comunicação , Epilepsia/economia , Disparidades em Assistência à Saúde , Humanos , Assistência Centrada no Paciente , Telemedicina/economia , Comunicação por Videoconferência
4.
J Dev Behav Pediatr ; 38 Suppl 1: S47-S48, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28141720

RESUMO

CASE: Amad is a wonderful 16-year-old young man from Syria who has recently relocated to the United States from his war-torn native country. In his last few years in Syria, he was primarily at home with his mother, and they sought refuge with a maternal aunt in the United States seeking asylum and treatment of Amad's disability.At 8 years of age, he had intelligence testing in the United Arab Emirates, which showed a verbal intelligence score on the Wechsler intelligence scale for children (WISC) of 68 and a performance of 64. His working memory was 67 and his processing speed was 65. On arrival in the United States, his achievement was roughly at a third-grade level in Arabic. In the year and a half that he has been in the United States, he quickly improved his English skills, which he learned as a toddler. His father remains in Syria unable to safely immigrate and his mother is raising him alone in the United States with the help of her sister.They come to you for an urgent care visit because Amad recently was accused of sexual harassment by two girls at his high school. He is in a substantially separate program but is included for lunch and technology. While in the computer laboratory, he repeatedly approached the girls and asks them to "date" him, and on 1 occasion sat behind 1 girl and repeatedly reached out to stroke her long blonde hair.His mother is distraught because she recently found out that Amad also has a Facebook page and had been attempting to contact the same two girls on social media. The girls' parents recently threatened to file criminal harassment charges and Amad's mother comes to you asking for help with making Amad stop this activity. What would you do next?


Assuntos
Comportamento do Adolescente/psicologia , Deficiência Intelectual/psicologia , Assédio Sexual/psicologia , Adolescente , Humanos , Masculino
5.
J Dev Behav Pediatr ; 36(8): 651-2, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-26375803

RESUMO

CASE: Amad is a wonderful 16-year-old young man from Syria who has recently relocated to the United States from his war-torn native country. In his last few years in Syria, he was primarily at home with his mother, and they sought refuge with a maternal aunt in the United States seeking asylum and treatment of Amad's disability. At 8 years of age, he had intelligence testing in the United Arab Emirates, which showed a verbal intelligence score on the Wechsler intelligence scale for children (WISC) of 68 and a performance of 64. His working memory was 67 and his processing speed was 65. On arrival in the United States, his achievement was roughly at a third-grade level in Arabic. In the year and a half that he has been in the United States, he quickly improved his English skills, which he learned as a toddler. His father remains in Syria unable to safely immigrate and his mother is raising him alone in the United States with the help of her sister. They come to you for an urgent care visit because Amad recently was accused of sexual harassment by two girls at his high school. He is in a substantially separate program but is included for lunch and technology. While in the computer laboratory, he repeatedly approached the girls and asks them to "date" him, and on 1 occasion sat behind 1 girl and repeatedly reached out to stroke her long blonde hair. His mother is distraught because she recently found out that Amad also has a Facebook page and had been attempting to contact the same two girls on social media. The girls' parents recently threatened to file criminal harassment charges and Amad's mother comes to you asking for help with making Amad stop this activity. What would you do next?


Assuntos
Deficiência Intelectual/psicologia , Comportamento Sexual/psicologia , Adolescente , Humanos , Masculino
6.
Pediatr Emerg Care ; 29(11): 1210-2, 2013 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-24196092

RESUMO

Scabies is commonly seen worldwide, in its usual classic form when afflicting older children and adults. However, neonatal scabies is described as its own entity in the literature. We present a case of a 4-week-old infant with a generalized papulopustular, vesicular, and crusted rash who was diagnosed with scabies. We contrast the differing clinical features of neonatal and classic scabies, describe possible mimickers of this diagnostic dilemma, and review current treatment options available for scabies in this very young age group.


Assuntos
Exantema/parasitologia , Escabiose/diagnóstico , Acaricidas/administração & dosagem , Acaricidas/uso terapêutico , Administração Cutânea , Emergências , Saúde da Família , Feminino , Humanos , Recém-Nascido , Permetrina/administração & dosagem , Permetrina/uso terapêutico , Escabiose/tratamento farmacológico , Escabiose/transmissão , Avaliação de Sintomas
8.
Pediatr Dermatol ; 23(6): 546-55, 2006.
Artigo em Inglês | MEDLINE | ID: mdl-17155996

RESUMO

Mycoplasma pneumoniae is an important and highly relevant cause of bullous erythema multiforme, isolated mucositis, and Stevens-Johnson syndrome in children. In this article, we present two children with respiratory Mycoplasma pneumoniae infection and associated cutaneous findings within the spectrum of erythema multiforme. We review the literature associating these three entities with Mycoplasma pneumoniae infection and discuss controversies regarding the classification of erythema multiforme, as well as update reported infectious causes of the bullous form. Many understand the erythema multiforme spectrum to include bullous erythema multiforme, mucositis, and Stevens-Johnson syndrome in the order of increasing severity. We feel that this relationship should be reconsidered to help better understand the prognosis and outcomes. It is our opinion that bullous erythema multiforme is a separate, yet related condition that can occur in the context of Mycoplasma pneumoniae infection. With many similarities to mucositis and Stevens-Johnson syndrome, bullous erythema multiforme can be considered part of a spectrum of disease that includes Stevens-Johnson syndrome. Unlike mucositis and Stevens-Johnson syndrome, bullous erythema multiforme caused by Mycoplasma pneumoniae infection has low morbidity for the child. Mycoplasma pneumoniae-associated mucositis and Stevens-Johnson syndrome seem to occur along a spectrum with separate prognosis and potential pathogenesis compared with bullous erythema multiforme. Making the distinction between these conditions is valuable for predicting the child's prognosis. Patients who develop symptoms consistent with these conditions should be appropriately evaluated for Mycoplasma pneumoniae infection and closely monitored.


Assuntos
Eritema Multiforme/diagnóstico , Eritema Multiforme/microbiologia , Infecções por Mycoplasma/diagnóstico , Infecções por Mycoplasma/microbiologia , Mycoplasma pneumoniae , Adolescente , Adulto , Criança , Eritema Multiforme/tratamento farmacológico , Eritema Multiforme/virologia , Humanos , Masculino , Infecções por Mycoplasma/tratamento farmacológico , Infecções por Mycoplasma/virologia , Pneumonia por Mycoplasma/diagnóstico , Pneumonia por Mycoplasma/tratamento farmacológico , Pneumonia por Mycoplasma/microbiologia , Pneumonia Viral/diagnóstico , Pneumonia Viral/tratamento farmacológico , Pneumonia Viral/microbiologia
9.
Pediatr Emerg Care ; 21(9): 589-93, 2005 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-16160663

RESUMO

Lemierre syndrome is characterized by pharyngitis followed by Fusobacterium necrobacillosis sepsis complicated by internal jugular vein thrombosis and infectious metastatic abscesses. It has been considered to be a rare disease until the last decade when a larger number of cases have been reported. We discuss a case of Lemierre syndrome in a 17-year-old girl and review the pathophysiology of Fusobacterium necrobacillosis and diagnosis and treatment of Lemierre syndrome.


Assuntos
Abscesso/diagnóstico , Infecções por Fusobacterium/diagnóstico , Veias Jugulares , Faringite/diagnóstico , Trombose Venosa/diagnóstico , Abscesso/terapia , Adolescente , Antibacterianos/uso terapêutico , Medicina de Emergência/métodos , Feminino , Infecções por Fusobacterium/terapia , Humanos , Faringite/terapia , Síndrome , Resultado do Tratamento , Trombose Venosa/terapia
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