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1.
Qual Health Res ; 29(6): 809-819, 2019 05.
Artigo em Inglês | MEDLINE | ID: mdl-30296924

RESUMO

The diagnostic process promises a label that validates patients' embodied experiences and a road map for living with and treating illness. Drawing on 31 qualitative interviews with women and men in Canada and the United Kingdom who have been diagnosed with fibromyalgia (FM), in this article, I examine the participants' experiences of the diagnostic process and how they feel about receiving this label. The interviews reflect that the FM label is plagued by uncertainty because the diagnosis is based on the absence of verifiable pathology. The respondents' narratives also reveal that FM is a vague diagnosis that includes a multitude of symptoms, overlaps with several other diagnoses, and results in feelings of doubt regarding whether it is the correct label. Thus, the participants' narratives reflect that the FM diagnosis is largely an empty promise because it fails to provide definitive answers or confer meaning and legitimacy to their illness experiences.


Assuntos
Atitude Frente a Saúde , Fibromialgia/diagnóstico , Fibromialgia/psicologia , Adulto , Idoso , Canadá , Diagnóstico Diferencial , Feminino , Humanos , Entrevistas como Assunto , Masculino , Sintomas Inexplicáveis , Pessoa de Meia-Idade , Narração , Incerteza , Reino Unido , Adulto Jovem
2.
Qual Health Res ; 27(8): 1146-1159, 2017 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-27179018

RESUMO

Distributed cognition occurs when cognitive and affective schemas are shared between two or more people during interpersonal discussion. Although extant research focuses on distributed cognition in decision making between health care providers and patients, studies show that caregivers are also highly influential in the treatment decisions of patients. However, there are little empirical data describing how and when families exert influence. The current article addresses this gap by examining decisional support in the context of cancer randomized clinical trial (RCT) decision making. Data are drawn from in-depth interviews with rural, Appalachian cancer patients ( N = 46). Analysis of transcript data yielded empirical support for four distinct models of health decision making. The implications of these findings for developing interventions to improve the quality of treatment decision making and overall well-being are discussed.


Assuntos
Tomada de Decisões , Técnicas de Apoio para a Decisão , Modelos Psicológicos , Neoplasias/terapia , Ensaios Clínicos Controlados Aleatórios como Assunto/psicologia , Sujeitos da Pesquisa/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Região dos Apalaches , Cuidadores/psicologia , Cognição , Feminino , Humanos , Entrevistas como Assunto , Masculino , Pessoa de Meia-Idade , Participação do Paciente/psicologia , Autonomia Pessoal , Relações Profissional-Paciente , População Rural , Apoio Social
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