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1.
Qual Health Res ; 34(5): 458-472, 2024 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-38038335

RESUMO

After the unexpected death of a child, bereaved parents require prompt access to helpful support systems. Online therapeutic writing courses can make such support accessible. Because few studies have included bereaved fathers as participants, we explored the experiences of fathers whose children died unexpectedly and who were part of an online course of therapeutic writing in Norway. We piloted two courses (group 1, six weeks, n = 9; group 2, 5 weeks, n = 5). We describe our methodological considerations for using poetic representations in qualitative health research and present four poetic representations based on fieldwork notes written by the principal investigator. Then, we triangulate and narratively analyze them together with two collective poems written by participants from each group; excerpts of the writings from two fathers, one per group; evaluation surveys (n = 4; n = 3); and, anonymous check-out journaling from the second group (n = 3). Resistance was a salient feature of our participants' grief, and writing enabled them to both be in contact with their emotional world and process difficult emotions as they looked for meaning despite the death of their children. Those who attended the most classes perceived the course as transformative, being part of an ongoing self-exploration, and a possibility to continue and strengthen the bond with their children. Our findings mirror the complexities of the grief experiences of fathers, giving account of their need to find a rhythm to dive into their emotional world, the importance of peer support, and the value of diversifying intervention techniques to meet individual needs and preferences.


Assuntos
Luto , Pesar , Criança , Humanos , Masculino , Pais/psicologia , Redação , Noruega , Pai/psicologia
2.
Front Sociol ; 8: 1177411, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37415873

RESUMO

Drawing from a networked perspective of migration and from the concept of "transnational education," this paper investigates the education-related topics discussed in Facebook groups among Brazilian migrants in Germany. The paper examines the "latent ties" activated in migrant Facebook groups as part of networks that can be used to collect information about migratory pathways involving educational opportunities. A qualitative content analysis was conducted with 2.297 posts retrieved from six Facebook groups divided into location, vocational education and training (VET), and professional groups. The outcomes point out that there is a demand for transnational education beyond university degrees. Additionally, the paper highlights that latent ties can be used to collect and cross-check information in migratory contexts involving education.

3.
Interact J Med Res ; 12: e43783, 2023 Jun 20.
Artigo em Inglês | MEDLINE | ID: mdl-37338971

RESUMO

BACKGROUND: The outbreak of the COVID-19 pandemic required the transition of health-related face-to-face group interventions to an online setting. While it seems that group outcomes can be realized in an online setting, less is known about resulting potential challenges (and advantages) and how these can be overcome. OBJECTIVE: The aim of this article is to explore what challenges and advantages may arise when providing health-related small group interventions in an online setting and how to overcome these challenges. METHODS: Scopus and Google Scholar databases were searched for relevant literature. Effect studies, meta-analyses, literature reviews, theoretical frameworks, and research reports relating to synchronous, face-to-face, health-related small group interventions, online group interventions, and video teleconferencing group interventions were identified and screened. Findings relating to potential challenges and corresponding strategies are described. In addition, potential advantages of online group settings were explored. Relevant insights were gathered until saturation of results relating to the research questions was reached. RESULTS: The literature indicated several aspects that require extra attention and preparation in the online group setting. These include the delivery of nonverbal communication and affect regulation, as well as the build-up of group cohesion and therapeutic alliance, which seem more challenging online. Yet there are strategies to overcome these challenges, such as metacommunication, collecting participant feedback, and providing guidance concerning technical accessibility. In addition, the online setting provides opportunities to reinforce group identity, such as by allowing independence and the ability to create homogeneous groups. CONCLUSIONS: While online, health-related small group interventions offer a considerable number of possibilities and benefits compared to face-to-face groups, there are also potential drawbacks to consider, which, if anticipated, can be to a great extent overcome.

4.
Int J Disaster Risk Reduct ; 76: 103043, 2022 Jun 15.
Artigo em Inglês | MEDLINE | ID: mdl-35601394

RESUMO

At the onset of the COVID-19 pandemic, thousands of mutual aid groups were established on social media and operated as platforms through which people could offer or request social support. Considering the importance of Facebook mutual aid groups during the early stages of the COVID-19 pandemic in the United Kingdom but also the lack of empirical research regarding the trajectories and types of social support rendered available through the groups, our aims in this paper are threefold; first, to examine the trajectory of social support-related activity during the period between March-December 2020; second, to compare offers and requests of support during the peaks of the first and second waves; third to provide a rich analysis of the types of social support that were offered or requested through the online mutual aid groups. Quantitative findings suggest that online social support activity declined soon after the peak of the first pandemic wave and, at least in Facebook mutual aid groups, did not reach the levels observed during the first wave. Also, the number of offers of support during the first wave was higher compared to offers during the second wave, and similar was the case for requests for support. Additionally, offers for support were higher compared to requests for support during both the first and second waves. Finally, qualitative analysis showed that people used the Facebook mutual aid groups to offer and request various types of practical, emotional, and informational support. Limitations as well as implications of our study are considered.

5.
Front Sociol ; 7: 932908, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-36698753

RESUMO

Based on the heuristics proposed by Helen Nissenbaum to assess ethical issues surrounding research using new technologies, this paper discusses the ethics of the collection and analysis of migrants' digital traces for academic research purposes. Concretely, this paper is grounded on an empirical research that applies a topic modeling approach to a large dataset of migrants' posts written on Facebook groups. After discussing the nine aspects proposed by Nissenbaum, the paper contends that while researchers strive to comply with ethical measures by, for instance, asking adequate questions and protecting the collected data, the lack of transparency of social networking sites is harmful to critical social sciences and can hamper findings that contribute to understanding migratory patterns and decisions.

6.
Integr Cancer Ther ; 20: 15347354211052520, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34663123

RESUMO

BACKGROUND: The goal of this pilot randomized controlled trial was to examine the feasibility and acceptability of delivering group-based psychosocial care via videoconference (ie, Zoom) to women with lung cancer undergoing treatment. METHODS: At baseline, women indicated their typical computer and internet use and were then randomized to a group-based intervention that either focused on mindfulness training or psychoeducation. Participants completed 1 Zoom "practice run" prior to starting the 5 group sessions (1 per week). After the last session, they evaluated their experiences with the intervention and its delivery. RESULTS: With a consent rate of 68%, 54 women (mean age = 66 years; 69% non-Hispanic White; 48% with stage IV disease) were equally randomized. Attendance was high in both arms (session mean, mindfulness = 4.38; education = 4.75; 85% attended all sessions). Across arms, all women rated the program as useful; most preferred group-based delivery (67%) and remote delivery (50%) or had no preference. Although the sample's typical computer use was relatively low (eg, 19% said that they rarely or never use a computer), most women (76%) indicated that Zoom was "very easy" or "easy" to use. After only 0 to 1 attempts, 56% felt comfortable but 26% stated that they never felt comfortable with the technology. CONCLUSIONS: It seems to be feasible to deliver group-based psychosocial interventions via videoconference in women with lung cancer undergoing treatment. Challenges regarding scheduling the group sessions and familiarizing older rather than infrequent computer users with the technology were encountered but resolved over the course of the trial.


Assuntos
Carcinoma Pulmonar de Células não Pequenas , Neoplasias Pulmonares , Reabilitação Psiquiátrica , Idoso , Carcinoma Pulmonar de Células não Pequenas/terapia , Estudos de Viabilidade , Feminino , Humanos , Neoplasias Pulmonares/terapia , Projetos Piloto , Comunicação por Videoconferência
7.
Am J Psychother ; 74(2): 83-88, 2021 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-33525914

RESUMO

Although telepsychiatry is not new, the COVID-19 pandemic has dramatically boosted and legitimized it, especially in the field of group therapy. Group therapists have been forced to move online without enough training in leading online groups. Online groups are not the same as meeting in person and present specific obstacles and challenges that should either be compensated for or acknowledged as losses. In this article, the author summarizes these obstacles, identifying factors in group therapy, such as body-to-body interaction, that are absent online and suggesting ways to compensate for other differences, such as the therapist's reduced control over the setting. Surprisingly, some group members may benefit from online groups more than from in-person ones, but the online format is not for everyone. Research on online therapy has already shown this format's effectiveness, and the therapeutic alliance that is positively correlated with outcome seems to be achievable online as well. However, more research is needed, especially on cohesion in online groups, which seems to develop slower online.


Assuntos
COVID-19 , Psicoterapia de Grupo , Humanos , Pandemias , Relações Profissional-Paciente , Psicoterapia , SARS-CoV-2
8.
Int J Pediatr Otorhinolaryngol ; 138: 110301, 2020 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-32838996

RESUMO

OBJECTIVE: An increasing number of patients use social media for health-related information and social support. This study's objective was to describe the content posted on Facebook groups for individuals with microtia and/or craniofacial microsomia (CFM) and their families in order for providers to gain insight into patient and family needs and experiences to inform clinical care. METHODS: Two months of posts, images, comments, and "like" responses from two Facebook groups in the US and the UK were recorded and analyzed using content analysis. A secondary analysis identified statements of emotion. RESULTS: Posts (N = 254) had a total of 7912 "like" responses, 2245 comments, and 153 images. There were three categories of posts: seeking guidance (43%; 9 themes), promoting events/news (33%; 5 themes), and sharing experiences (24%; 3 themes). Across categories, 16% of posts had emotional content. Most comments were responding to posts seeking guidance, including medical care (20%), surgical care (9%), and hearing aids (5%). Promotional posts often aimed to increase CFM awareness. Posts sharing experiences were generally positive, with the highest number of "likes". CONCLUSIONS: Facebook groups members frequently exchanged health-related information, suggesting value placed on input from other families and the convenience of seeking information online. Posts also promoted awareness and shared experiences. Clinical care implications include the need for easily accessible accurate and tailored CFM-related health education. Additionally, providers should demonstrate awareness of health information on social media and may address the potential emotional impact of CFM by facilitating access to resources for social support.


Assuntos
Microtia Congênita , Síndrome de Goldenhar , Mídias Sociais , Emoções , Humanos , Apoio Social
9.
Addict Behav ; 98: 106028, 2019 11.
Artigo em Inglês | MEDLINE | ID: mdl-31302313

RESUMO

BACKGROUND: Peer support is widely acknowledged to be an important factor in recovery from problem drinking. Many seek this from support groups, including those online. Whilst Alcoholics Anonymous (AA) and other 12-step groups have provided help to many people, some individuals do not find them useful. This paper aims to contribute to the current limited knowledge on non-12-step groups, i.e., those that do not follow the approach of AA. METHODS: Twenty-five semi-structured interviews were carried out with users of five non-12-step alcohol online support groups (AOSGs) which differed in approach to recovery from problem drinking, size and location. The study was publicised via the groups, and interviewees self-selected. Data were analysed using thematic and template analysis. RESULTS: The most important benefit of the groups, according to most interviewees was finding 'someone like me': something that many did not feel they could do elsewhere, including in AA. Another key perceived difference from 12-step groups was that their groups provided support without requiring them to follow a set programme for recovery. The groups respected individuals' rights to choose their own goal for sobriety (e.g., abstinence, moderate drinking) and to choose how they achieved it. Other key benefits included seeing that recovery is possible and sharing experiential information. Some disadvantages of using the forums are also discussed. CONCLUSION: The findings report the experiences and perceptions of twenty-five users of non-12-step AOSGs. These are groups that have received little research attention so the findings offer a rare insight into users' opinions on these sources of peer support.


Assuntos
Alcoolismo/psicologia , Internet , Grupo Associado , Identificação Social , Apoio Social , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
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