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1.
Glob Public Health ; 18(1): 2257771, 2023 01.
Artigo em Inglês | MEDLINE | ID: mdl-37750434

RESUMO

This article traces the origin, sustenance and implications of a persistent rumour that is responsible for low measles mumps and rubella (MMR) vaccination uptake in the Somali diaspora in a number of countries across the globe. The rumour stipulates that the MMR vaccine - the silent shot - causes autism spectrum disorder (ASD). Although the association between MMR and ASD is non-causal, and various public health initiatives have promoted health information campaigns, the rumour continues to circulate in the Somali diaspora in many countries, including Sweden. This paper shows that there are valid reasons for this. The findings from this paper draw on a systematic scoping review and qualitative interview data from Sweden. The results show that the Somali community experiences higher than average rates of ASD compared to the general population. Moreover, ASD does not exist in the Somali language or their home country, is considered a Western disease that only affects Somali children in the diaspora, and is a highly stigmatised disease. Also, the Somali diaspora has had negative experiences with ASD diagnosis and care. The rumour has been sustained by the absence of an answer to their ASD fear and through active diaspora networks on social media. The network that surrounds the rumour has arguably further helped to create an epistemic community for a community whose concerns have been silenced.


Assuntos
Transtorno do Espectro Autista , Transtorno Autístico , Vacina contra Sarampo-Caxumba-Rubéola , Criança , Humanos , Transtorno do Espectro Autista/etiologia , Transtorno Autístico/epidemiologia , Transtorno Autístico/etiologia , Migração Humana , Idioma , Vacina contra Sarampo-Caxumba-Rubéola/efeitos adversos , Somália , Sustento , Suécia/epidemiologia
2.
Disasters ; 47(1): 163-180, 2023 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-34694034

RESUMO

This study, based on data collected from a representative sample of adults in the United States, explores the social cognitive variables that motivated Americans to validate rumours on social media about Hurricanes Harvey and Irma, both of which struck in August/September 2017. The results indicate that risk perception and negative emotions are positively related to systematic processing of relevant risk information, and that systematic processing is significantly related to rumour validation through search engines such as Google. In contrast, trust in information about the hurricane is significantly related to validation through official sources, such as FEMA (Federal Emergency Management Agency), and major news outlets such as The New York Times. Trust in information is also significantly related to systematic processing of risk information. The findings of this study suggest that ordinary citizens may be motivated to validate rumours on social media, which is an increasingly important issue in contemporary societies.


Assuntos
Mídias Sociais , Humanos , Órgãos Governamentais , New York
3.
Front Reprod Health ; 4: 960089, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-36406890

RESUMO

Background: Rumours, myths, and misperceptions about contraceptives are a barrier to contraceptive use in general, but more so among adolescent girls and young women (AGYW). As rumours and misinformation disseminate easily, it is important to explore how they affect the uptake of contraceptives among AGYW at risk of unintended pregnancies. This study used qualitative methods to explore whether rumours, myths, and misperceptions about contraceptives remain barriers to modern contraceptive use among AGYW who were beneficiaries of a combination HIV prevention intervention in South Africa. Methods: Four (4) once-off in-depth interviews, 53 serial in-depth interviews, and 19 focus group discussions (FGDs) with 185 AGYW aged 15-24 years living in 5 of the 10 intervention districts were conducted as part of the HERStory 1 Study. Interviews and FGDs were audio recorded and data were analysed thematically, aided by Nvivo 12 software. Results: Rumours, myths, and misperceptions about contraceptives, as well as sociocultural norms regarding contraception seriously hinder AGYWs' use of modern contraceptives. Peer/friends' disapproval and parents' and boyfriend's lack of support for AGYWs' use of contraceptives, based on rumours and perceived side effects, also impede AGYWs' access and use of contraceptives. Conclusion: Sexual and reproductive health programmes could address social norms that disapprove of contraception and target rumours, myths, and misperceptions regarding modern contraceptive methods through educational campaigns and community engagements. Promoting the use of contraception in the community and men's acceptance of contraceptive use, in particular, may increase their understanding of modern contraceptives and, subsequently, their approval for their partners to use them.

4.
BMC Med Ethics ; 22(1): 160, 2021 12 03.
Artigo em Inglês | MEDLINE | ID: mdl-34861869

RESUMO

BACKGROUND: The participant recruitment process is a key ethical pivot point when conducting robust research. There is a need to continuously review and improve recruitment processes in research trials and to build fair and effective partnerships between researchers and participants as an important core element in ensuring the ethical delivery of high-quality research. When participants make a fair, informed, and voluntary decision to enroll in a study, they agree to fulfill their roles. However, supporting study participants to fulfill study requirements is an important ethical obligation for researchers, yet evidenced as challenging to achieve. This paper reports on participants' motivations to volunteer and remain part of a dietary study conducted in Kasungu District, Malawi. METHODS: We conducted twenty in-depth interviews (with chiefs, religious leaders, trial participants, and health surveillance assistants), five systematic ethnographic observations, and fourteen focus group discussions with trial participants and their partners. Interviews were audio-recorded and transcribed verbatim. We used a grounded theory methodology to analyse data that included coding, detailed memo writing, and data interpretation. FINDINGS: The findings reveal that many participants had concerns during the trial. Thematically, experiences included anxieties, mistrust of researchers, rumours, fears of exploitation, and misconceptions. Anonymous concerns collected from the participants were reported to the trial team which enabled the researchers to appropriately support participants. Despite initial concerns, participants described being supported and expressed motivation to take up their role. CONCLUSION: These findings highlight a diverse map of multiple notions of what is ethically relevant and what can impact participation and retention within a study. The study has revealed how embedding a responsive approach to address participants' concerns and ethical issues can support trust relationships. We argue for the need to employ embedded ethics strategies that enhance informed consent, focus on participants' needs and positive experiences, and support researchers to fulfill their roles. This work highlights the need for research ethics committees to focus on the risks of undue influence and prevent exploitation especially in settings with a high asymmetry in resources and power between researcher and participant groups. TRIAL REGISTRATION: The Addressing Hidden Hunger with Agronomy (Malawi) trial was registered on 5th March 2019 (ISCRTN85899451).


Assuntos
Comitês de Ética em Pesquisa , Consentimento Livre e Esclarecido , Humanos , Malaui , Motivação , Pesquisa Qualitativa , Pesquisadores
5.
Proc Assoc Inf Sci Technol ; 58(1): 842-844, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34901405

RESUMO

The COVID-19 pandemic has underscored the importance of curbing harmful misinformation and prompted legislation against fake news. Based on the case of the COVID-19 pandemic in Singapore, this study investigated motivations behind college students' decisions not to share rumours on WhatsApp. Responses from 75 participants were collected through an anonymous online survey in July 2020. The findings suggest that during an infectious disease outbreak, students' decisions not to share rumours were motivated by concerns related to information quality rather than the fear of regulatory punishment.

6.
BMC Health Serv Res ; 21(1): 1061, 2021 Oct 07.
Artigo em Inglês | MEDLINE | ID: mdl-34620175

RESUMO

BACKGROUND: In many places, health workers at the sub-national level are on the frontlines of disseminating information about coronavirus (COVID-19) to communities. To ensure communities are receiving timely and accurate information, it is vital health workers are kept abreast of the most recent recommendations, and guidance. METHODS: An electronic survey was implemented to provide insights about the dissemination and utilisation of information and evidence related to the COVID-19 pandemic by health workers engaged at sub-national levels of the Ugandan health system. The aim of this survey was to provide insights about the dissemination and utilisation of information and evidence related to the coronavirus (COVID-19) pandemic by individuals engaged at sub-national levels of the health system. RESULTS: Mass media and public health campaigns and outreach activities were deemed the most suitable means to reach communities with COVID-19 information. Given the reported disruption to public outreach campaigns, this is a particularly important consideration for the provision of information to communities. All materials should be adapted to the local context. The need for information on homecare of COVID-19 patients was highlighted, along with the need for updated local statistics as to COVID-19 cases to be relayed for health workers at sub-national levels. CONCLUSIONS: Understanding the sources of information used by health workers can facilitate the transfer of relevant and timely information, which in turn increases the use of such information by the Ugandan population. It is vital that these issues are continued to be monitored, and communication modes and content are actively responsive to the time- and place-specific needs of health workers and community members.


Assuntos
COVID-19 , Disseminação de Informação , Humanos , Pandemias , SARS-CoV-2 , Uganda/epidemiologia
7.
Vaccine ; 39(33): 4700-4704, 2021 07 30.
Artigo em Inglês | MEDLINE | ID: mdl-34229891

RESUMO

Maternal immunization is key to protecting maternal and newborn health. We interviewed pregnant women in Brazil to identify barriers to and enablers of maternal immunization in the country. In-depth interviews and focus groups were conducted in Brazil with 60 pregnant women from São Paulo and Rio de Janeiro at different stages of their pregnancies. Participants were encouraged to discuss views on safety, efficacy and importance of maternal vaccines, access to vaccines, interactions with healthcare professionals, and sources of information on vaccine-related matters. There was generally a positive regard for maternal immunization among the interviewed women, many of whom associated vaccination with protection of their unborn child. The interviewees cited several reasons for adherence to immunization guidelines, including recommendations from healthcare professionals, targeted communication campaigns, and active use of a vaccination card or booklet. There were no reported barriers for maternal vaccines. Some women using private healthcare services reported not having been asked about vaccines at check-ups, which could adversely affect vaccination rates. A rumour that vaccines caused microcephaly which emerged during the Zika outbreak was the most commonly cited reason for choosing not to vaccinate among the interviewees. This study identified important vaccine confidence builders. Many of the interviewees critically reflected upon information received, placing themselves as the decision makers over their health choices. A prominent barrier to maternal immunization was a rumour linking vaccines to microcephaly. To the best of our knowledge, this has not been previously reported in the literature and requires further investigation into the extent of this issue and how it can be mitigated.


Assuntos
Vacinas , Infecção por Zika virus , Zika virus , Brasil , Criança , Surtos de Doenças , Feminino , Humanos , Recém-Nascido , Gravidez , Vacinação , Infecção por Zika virus/epidemiologia , Infecção por Zika virus/prevenção & controle
8.
BMC Public Health ; 21(1): 1170, 2021 06 18.
Artigo em Inglês | MEDLINE | ID: mdl-34144703

RESUMO

BACKGROUND: Maternal vaccination is key to decreasing maternal and infant mortality globally. Yet perceptions about maternal vaccines and immunization among pregnant women are often understudied, particularly in low- and middle- income countries. This qualitative study explored trust, views, and attitudes towards maternal immunization among pregnant women in Mexico. A total of 54 women from Mexico City and Toluca participated in the in-depth interviews and focus groups. We explored participants' experiences with maternal vaccination, as well as how they navigated the health system, searched for information, and made decisions around maternal immunization. RESULTS: Our findings point to issues around access and quality of maternal healthcare, including immunizations services. While healthcare professionals were recognized for their expertise, participants reported not receiving enough information to make informed decisions and used online search engines and digital media to obtain more information about maternal healthcare. Some participants held strong doubts over the benefits of vaccination and were hesitant about the safety and efficacy of maternal vaccines. These concerns were also shared by pregnant women who had been vaccinated. Some participants disclosed low levels of trust in government and vaccination campaigns. CONCLUSION: Pregnant women, soon to be parents and making vaccination decisions for their child, constitute an important target group for policymakers seeking optimal maternal as well as childhood immunization coverage. Our findings highlight the importance of targeted communication, trust-building and engagement strategies to strengthen confidence in immunization amongst this group.


Assuntos
Internet , Confiança , Criança , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Lactente , México , Aceitação pelo Paciente de Cuidados de Saúde , Gravidez , Vacinação
9.
Front Psychol ; 12: 782313, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-35111105

RESUMO

Social networks are widely used as a fast and ubiquitous information-sharing medium. The mass spread of food rumours has seriously invaded public's healthy life and impacted food production. It can be argued that the government, companies, and the media have the responsibility to send true anti-rumour messages to reduce panic, and the risks involved in different forms of communication to the public have not been properly assessed. The manuscript develops an empirical analysis model from 683 food anti-rumour cases and 7,967 data of the users with top comments to test the influence of the strength of rumour/anti-rumour on rumour control. Furthermore, dividing the users into three categories, Leaders, Chatters, and General Public, and study the influence of human characteristics on the relationship between the strength of rumour/anti-rumour and rumour control by considering the different human characteristics as moderator variables. The results showed that anti-rumours have a significant positive impact on the control of rumours; the ambiguity of rumours has a significant negative impact on the Positive Comment Index (PCI) in rumour control. Further, the Leaders increased the overall level of PCI, but negatively adjusted the relationship between evidence and PCI; the Chatters and the General Public reduced the overall level of PCI, and Chatters weakened the relationship between the specific type of anti-rumour form and PCI while the General Public enhanced the relationship between the specific type of anti-rumour form and PCI. In the long run, the role of Leaders needs to be further improved, and the importance of the General Public is growing in the food rumour control process.

10.
Artigo em Inglês | MEDLINE | ID: mdl-32911826

RESUMO

Due to discrimination and media literacy, middle-aged and elderly individuals have been easily reduced to marginalized groups in the identification of rumours during a public health crisis and can easily spread rumours repeatedly, which has a negative impact on pandemic prevention and social psychology. To further clarify the factors influencing their behaviours, this study used a questionnaire to survey a sample of 556 individuals in China and used multiple linear regression and analysis of variance to explore influencing factors during the coronavirus disease 2019 (COVID-19) pandemic. We found that, first, in the COVID-19 pandemic, middle-aged and elderly adults' willingness to re-spread rumours is positively related to their degree of believing rumours and to personal anxiety and is negatively related to their rumour-discrimination ability and to their perception of serious consequences to rumour spreading. Second, the degree of believing rumours plays an intermediary role in the willingness to re-spread rumours. It plays a partial mediating role in the path of anxiety's influence on behaviour, suggesting that an anxious person will spread a rumour even if he or she does not have a strong belief in the rumour. Third, interpersonal communication has a greater credibility and a greater willingness to re-spread than does mass communication. This suggests the importance of increasing public knowledge expertise and of reducing public panic. This also has important implications for the future design of public health policies.


Assuntos
Ansiedade/psicologia , Betacoronavirus , Infecções por Coronavirus/psicologia , Enganação , Disseminação de Informação , Pneumonia Viral/psicologia , Idoso , COVID-19 , China/epidemiologia , Infecções por Coronavirus/epidemiologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pandemias , Pneumonia Viral/epidemiologia , Propaganda , Saúde Pública , SARS-CoV-2
11.
Evol Hum Sci ; 2: e49, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-37588393

RESUMO

People often attribute rumours to an individual in a knowledgeable position two steps removed from them (a credible friend of a friend), such as 'my friend's father, who's a cop, told me about a serial killer in town'. Little is known about the influence of such attributions on rumour propagation, or how they are maintained when the rumour is transmitted. In four studies (N = 1824) participants exposed to a rumour and asked to transmit it overwhelmingly attributed it either to a credible friend of a friend, or to a generic friend (e.g. 'a friend told me about a serial killer in town'). In both cases, participants engaged in source shortening: e.g. when told by a friend that 'a friend told me …' they shared the rumour as coming from 'a friend' instead of 'a friend of friend'. Source shortening and reliance on credible sources boosted rumour propagation by increasing the rumours' perceived plausibility and participants' willingness to share them. Models show that, in linear transmission chains, the generic friend attribution dominates, but that allowing each individual to be exposed to the rumour from several sources enables the maintenance of the credible friend of a friend attribution.

12.
Cult Health Sex ; 21(11): 1209-1224, 2019 11.
Artigo em Inglês | MEDLINE | ID: mdl-30657023

RESUMO

Rumours may influence health-related behaviours, including the uptake of and adherence to HIV prevention products. This study assessed the safety and effectiveness of a vaginal ring delivering the antiretroviral dapivirine for HIV prevention in Africa. We explored negative rumours about study participation and the vaginal ring amongst study participants and their communities in Malawi, Uganda, South Africa and Zimbabwe. In total 214 women participated in either single or serial in-depth interviews, or a focus group discussion. Three key findings emerged in the data. Firstly, rumours reflected fears concerning the ring and trial participation. Given the historical-political context of the countries in which the trial was conducted, the ring's investigational nature and its foreign origin, ring use was rumoured to cause negative health outcomes such as cancer and infertility and to be associated with practices such as witchcraft or Satanism. The salience of these rumours varied by country. Secondly, rumours reportedly affected participants' adherence to the ring, and other women's willingness to participate in the study. Finally, participants reported that participant engagement activities helped address rumours, resulting in enhanced trust and rapport between staff and participants.


Assuntos
Antirretrovirais/uso terapêutico , Dispositivos Anticoncepcionais Femininos , Enganação , Infecções por HIV , Aceitação pelo Paciente de Cuidados de Saúde , Pirimidinas/uso terapêutico , Adulto , Feminino , Grupos Focais , Infecções por HIV/tratamento farmacológico , Infecções por HIV/prevenção & controle , HIV-1/isolamento & purificação , Humanos , Entrevistas como Assunto , Malaui , África do Sul , Zimbábue
13.
Proc Biol Sci ; 285(1875)2018 03 28.
Artigo em Inglês | MEDLINE | ID: mdl-29563268

RESUMO

Information is a crucial currency for living organisms as it allows them to adjust their behaviour to environmental fluctuations. Thus, natural selection should have favoured the capacity of collecting information from different sources, including social interactions whereby individuals could quickly gain reliable information. However, such conditions may also favour the gathering of potentially detrimental information, such as false or misinterpreted accounts of environmental and social phenomena such as rumours, which may spread via informational cascades. We applied ecological and evolutionary principles to investigate how the propagation of social information at a populational level affects the propensity to assimilate it, here defined as the gullibilty. Our results show that the evolution of an individual's susceptibility to assimilate information strongly depends on eco-evolutionary feedbacks, in particular when both useful and detrimental information circulate. We discuss our results regarding the different information transmission mechanisms involved with particular attention to specific cases of social learning.


Assuntos
Evolução Biológica , Ecossistema , Disseminação de Informação , Relações Interpessoais , Dinâmica Populacional , Animais , Humanos , Modelos Teóricos , População , Densidade Demográfica , Pontuação de Propensão , Comportamento Social
15.
Disasters ; 38 Suppl 2: S190-205, 2014 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-24905815

RESUMO

This study examines how well disaster myths were rooted in Japanese people after the Great East Japan Disaster, as well as the effects of information sources on these misconceptions. Five common disaster myths are covered (panic, psychological shock, looting, increases in the crime rate, and material convergence), and information sources were divided into two types: public and private. Three hundred participants were asked how much credit they would give the five myths and which information sources they would rely on in post-disaster situations. The results found that, as in Western societies, these disaster myths do exist among Japanese people. Also, only public sources of disaster information, such as television and Internet news websites, had some effect on the degree of belief in disaster myths, while private sources, such as one's family, friends, and social networking sites, did not. Factors affecting the degree to which people believe in disaster myths are also discussed.


Assuntos
Desastres , Terremotos , Conhecimentos, Atitudes e Prática em Saúde , Disseminação de Informação/métodos , Tsunamis , Família/psicologia , Feminino , Amigos/psicologia , Humanos , Internet , Relações Interpessoais , Japão , Masculino , Rede Social , Televisão
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