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1.
Am J Occup Ther ; 78(6)2024 Nov 01.
Artigo em Inglês | MEDLINE | ID: mdl-39418650

RESUMO

IMPORTANCE: The scope of early intervention (EI) programs, which mostly focus on motor skills, needs to be expanded. OBJECTIVE: To examine the effects of an EI on developmental domains and parent-child interactions. DESIGN: Randomized controlled study. PARTICIPANTS: Children ages 24-36 mo with developmental delay (DD; intervention group, n = 30; control group, n = 40). SETTING: Pediatric occupational therapy unit of Hacettepe University. INTERVENTION: The intervention group received an intervention that used the Goal Activity and Motor Enrichment (GAME) approach and a home program, whereas the control group received a home program only. Both groups received the same intervention dosage. OUTCOMES AND MEASURES: Developmental domains were assessed using the Bayley Scales of Infant and Toddler Development Third Edition (Bayley III) and the Ages and Stages Questionnaires (ASQ). Sensory processing was assessed with the Infant/Toddler Sensory Profile 2 (ITSP-2), social-emotional development with the ASQ:Social-Emotional (ASQ:SE), and parent-child interaction with the Parenting Interactions with Children: Checklist of Observations Linked to Outcomes (PICCOLO™). A compliance checklist was used to determine compliance with the home program. RESULTS: A significant between-groups difference was found on all Bayley III and PICCOLO subscales and on the Gross Motor, Fine Motor, Problem-Solving, and Social-Emotional domains of the ASQ and ASQ:SE in favor of the intervention group (p < .05). The intervention group showed more typification (normal sensory processing) in sensory quadrants and general processing. Both groups were 100% compliant with the home program. CONCLUSIONS AND RELEVANCE: The GAME-based intervention for children with DD, including sensory and cognitive activities, is effective in improving developmental domains and parent-child interactions. Plain-Language Summary: The scope of early intervention programs mostly focuses on motor skills and needs to be expanded to include the essential roles of children's sensory and cognitive abilities. This study provides important insights into early interventions by occupational therapists and the impact on children with developmental delay and parent-child interactions. We found that the Goal Activity and Motor Enrichment (GAME) intervention for children with developmental delay, which includes sensory and cognitive activities, is effective in improving developmental domains and parent-child interactions.


Assuntos
Desenvolvimento Infantil , Deficiências do Desenvolvimento , Terapia Ocupacional , Relações Pais-Filho , Humanos , Pré-Escolar , Masculino , Deficiências do Desenvolvimento/reabilitação , Feminino , Terapia Ocupacional/métodos , Intervenção Educacional Precoce , Destreza Motora , Lactente
2.
BMC Pediatr ; 24(1): 659, 2024 Oct 14.
Artigo em Inglês | MEDLINE | ID: mdl-39402501

RESUMO

BACKGROUND: The role of, and impact on, mothers caring for children with neuro-developmental delay (NDD) is well documented. However, the role of fathers and siblings in families of children with NDD remains significantly understudied, particularly in low- and middle-income countries (LMICs). There has been an increased call for holistic rehabilitation of children with NDD at the family level. This study aimed to explore the involvement of fathers and siblings in the home rehabilitation programmes of children with NDD. METHODS: A scoping review was conducted using the Joanna Briggs Institute (JBI) Peters et al.'s methodology and reported according to Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) guidelines. Articles were retrieved from PUBMED, ScienceDirect, PsycINFO, SCOPUS, PEDro, and Google Scholar. Reference lists of relevant studies were also manually searched. RESULTS: Thirty research articles were identified. Father and sibling participation in home-based rehabilitation and caregiving is low in LMICs compared to high-income countries due to economic factors and cultural beliefs. Reduced participation stresses mothers and reduces developmental outcomes in children with NDD. CONCLUSIONS: This review highlights the need for rehabilitation professionals to encourage father and sibling participation in caregiving for children with NDD in home rehabilitation programmes.


Assuntos
Deficiências do Desenvolvimento , Pai , Irmãos , Humanos , Criança , Pai/psicologia , Deficiências do Desenvolvimento/reabilitação , Irmãos/psicologia , Cuidadores/psicologia , Serviços de Assistência Domiciliar
3.
Dev Neurorehabil ; 27(7): 268-272, 2024 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-39217464

RESUMO

Pica is a life-threatening behavior that is relatively common among individuals with intellectual and developmental disabilities. Pica can be conceptualized as a response chain in which the pica item acts as a discriminative stimulus for the next response (i.e. picking up the pica item), which itself acts as a discriminative stimulus for the final response (i.e. consumption). Interventions that disrupt this response chain and alter the discriminative properties of the pica stimulus may be clinically indicated. Preliminary research supports response-interruption and redirection (RIRD) with differential reinforcement of alternative behavior (DRA) as an effective intervention for pica. We evaluated this procedure in an inpatient unit with a young boy with who engaged in pica. Our outcomes provide additional support for DRA with RIRD as an effective pica treatment.


Assuntos
Terapia Comportamental , Pica , Humanos , Masculino , Terapia Comportamental/métodos , Criança , Reforço Psicológico , Deficiência Intelectual , Deficiências do Desenvolvimento/reabilitação
5.
Child Care Health Dev ; 50(5): e13321, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-39169646

RESUMO

BACKGROUND: Attitudes toward childhood disability have historically focused on biomedical efforts on 'fixing'. The introduction of WHO's ICF framework for health and Canadian researchers' 'F-words' (functioning, fitness, fun, friends, family and future) have significantly changed the field. To explore whether the F-words ideas influenced parents' perspectives on their child's abilities and rehabilitation goals, this qualitative pilot study introduced the F-words to Iranian parents with a child with a developmental disability. METHODS: This study was conducted in Tabriz, Iran, in 2023, using Iranian educational F-words materials built on ideas available on the CanChild F-words Knowledge Hub. Data were collected through semistructured interviews with five mothers of children <5 years old with a developmental disability before and after attending an 'F-words Awareness Session' and analysed using thematic analysis. RESULTS: In the preinterviews, six themes (and 20 subthemes) were identified: (i) routines (5); (ii) challenges (4); (iii) parental concerns (3); (iv) child's needs and priorities (3); (v) the role of parents in satisfying needs and challenges (2); and (vi) expectations of rehabilitation (3). In the postinterview, the same six themes and four additional subthemes emerged. CONCLUSION: Findings from the pilot study showed that the intervention had an impact on the attitudes and behaviours of participants. Specifically, teaching about the F-words reduced parents' emphasis on the concept of 'normality'. Families' positive response to the 'F-words Awareness Session' indicates their openness to incorporating this approach into their daily lives. These findings highlight the potential benefits of utilizing the F-words in rehabilitation in Iran. Studies like these can serve as a foundation for developing effective strategies for integrating the F-words into existing rehabilitation practices in Iran.


Assuntos
Deficiências do Desenvolvimento , Estudos de Viabilidade , Pesquisa Qualitativa , Humanos , Irã (Geográfico) , Projetos Piloto , Deficiências do Desenvolvimento/reabilitação , Deficiências do Desenvolvimento/psicologia , Feminino , Pré-Escolar , Masculino , Pais/psicologia , Adulto , Desenvolvimento Infantil , Conhecimentos, Atitudes e Prática em Saúde , Crianças com Deficiência/reabilitação , Crianças com Deficiência/psicologia
6.
J Intellect Disabil Res ; 68(11): 1221-1252, 2024 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-39210565

RESUMO

BACKGROUND: Individuals (i.e. children/young adults) with developmental disabilities (DDs) and intellectual disabilities (IDs) often display a variety of physical and motor impairments. It is well known that participation in motor activities can positively impact the development of children's cognitive and social skills. Recently, virtual and digital technologies (e.g. video conferencing applications, virtual reality and video gaming) have been increasingly used to promote better physical/motor outcomes. The efficacy of digital technologies in improving motor outcomes for those with DD/ID varies depending on the technology and population, and the comparative effects of various technologies are unknown. The aim of our study is to conduct a systematic review to comprehensively examine the quantitative and qualitative results of current studies reporting the efficacy of digitally based motor interventions on motor outcomes in individuals with DD/ID. METHODS: Literature published from 1900 to 2024 was searched in four health sciences databases: PubMed, PsycINFO, Scopus and CINAHL. Articles that examined the effects of gross motor/physical activity training using technologies such as exergaming (i.e. exercise through video gaming such as the Wii and Xbox Kinect), virtual reality or telehealth video conferencing applications (i.e. Zoom, Webex or mobile health apps) on the standardised or game-specific gross motor performance of individuals with DD/ID diagnoses that do not typically experience significant walking challenges using experimental or quasi-experimental study designs were included. Thirty relevant articles were retrieved from a search of the databases PubMed (914), PsycINFO (1201), Scopus (1910) and CINAHL (948). RESULTS: Our quantitative synthesis of this published literature suggests strong and consistent evidence of small-to-large improvements in motor skill performance following digital movement interventions. CONCLUSIONS: Our review supports the use of digital motor interventions to support motor skill performance in individuals with DD without ID. Digital technologies can provide a more engaging option for therapists to promote motor skill development in individuals with DD or for caregivers to use as an adjunct to skilled therapy.


Assuntos
Deficiências do Desenvolvimento , Adolescente , Criança , Humanos , Adulto Jovem , Deficiências do Desenvolvimento/fisiopatologia , Deficiências do Desenvolvimento/reabilitação , Terapia por Exercício/métodos , Deficiência Intelectual/fisiopatologia , Deficiência Intelectual/reabilitação , Destreza Motora/fisiologia , Jogos de Vídeo
7.
Intellect Dev Disabil ; 62(4): 306-322, 2024 Aug 01.
Artigo em Inglês | MEDLINE | ID: mdl-39069301

RESUMO

Youth with intellectual and developmental disabilities (IDD) aspire to participate in a variety of activities after high school, such as attaining paid employment, enrolling in postsecondary education, being involved in their communities, living independently, and building friendships. However, complex and longstanding transition barriers require comprehensive solutions that are tailored to a local community's unique needs and available resources so that local youth with IDD may achieve their desired outcomes. This article presents "virtual community conversations" as a promising approach for bringing together local communities to tackle barriers to good outcomes for residents with IDD. Attendees were able to effectively generate innovative recommendations for addressing issues in their local communities. We offer recommendations for enhancing and extending implementation of this approach.


Assuntos
Deficiências do Desenvolvimento , Deficiência Intelectual , Humanos , Deficiência Intelectual/reabilitação , Deficiências do Desenvolvimento/reabilitação , Adolescente , Adulto Jovem
8.
J Appl Res Intellect Disabil ; 37(5): e13272, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-38966968

RESUMO

BACKGROUND: Tailored sexuality education for adolescents with intellectual and developmental disabilities is a crucial, yet unmet, need as this population is particularly at risk for sexual abuse and victimisation. However, there are no evidence-based interventions to specifically address this need. This paper presents the development of an intervention framework to address equity in sexuality education and support adolescents with intellectual and developmental disabilities to understand and provide sexual consent, a foundational aspect of sexuality education and sexual health. METHODS: The Sexual Health Equity Project team used a Community-Based Participatory Research approach to develop a four-module sexual consent intervention for adolescents with intellectual and developmental disabilities. We leveraged a diverse, interdisciplinary team in a suburban Midwestern school district, and used Backward Design to create objectives and assessments which were rooted in findings from qualitative data by special education teachers. RESULTS: The resulting sexual consent intervention, Ask Me First-Choices, is comprised of four modules covering topics including definition of sexual consent; decision-making strategies and practice; communicating consent and refusal, identifying situations of consent and non-consent; and legal issues surrounding consent. Each module is divided into five components for content delivery: (1) introduction, (2) lecture, (3) supplemental activity, (4) assessment, and (5) conclusion. We detail the intervention's unique aspects, emphasising areas where we used Universal Design for Learning principles to support teachers' instruction and students' learning. CONCLUSION: Our efforts to create a sexual consent intervention directly address sexuality education equity issues. We offer commentary on our design process and decisions, as well as recommendations for future groups who want to develop sexual health interventions in similar contexts for students with intellectual and developmental disabilities. Next steps include further testing and validation of the sexual consent intervention to build the evidence-base of sexuality education for adolescents with intellectual and developmental disabilities.


Assuntos
Pesquisa Participativa Baseada na Comunidade , Deficiências do Desenvolvimento , Deficiência Intelectual , Educação Sexual , Humanos , Adolescente , Deficiência Intelectual/reabilitação , Deficiências do Desenvolvimento/reabilitação , Feminino , Masculino , Comportamento Sexual
9.
Indian Pediatr ; 61(10): 935-940, 2024 Oct 15.
Artigo em Inglês | MEDLINE | ID: mdl-39051312

RESUMO

OBJECTIVE: To evaluate the change in the neurodevelopmental status of children (1-30-months-old) with severe acute malnutrition (SAM) following nutritional rehabilitation. METHODS: A prospective study was conducted in the Severe Malnutrition Therapeutic Unit (SMTU) of a tertiary hospital in Central India, between April 2021 and October 2022. Children with primary neurological conditions like cerebral palsy and epilepsy were excluded. Neurodevelopment was assessed using the Developmental Assessment Scale of Indian Infants (DASII) at admission and following nutritional rehabilitation as per the National Health Mission (NHM) guidelines at the time of discharge, 2 months and 4 months follow-up. Developmental quotient (DQ) ≤ 70 was considered delayed. RESULTS: 114 children with SAM were included; 4 were lost to follow-up. There was an increase in Motor Developmental Quotient (MoDQ) and Mental Developmental Quotient (MeDQ) at discharge, 2 months, and 4 months. The improvement in MoDQ and MeDQ was greater in children with adequate weight gain. Poor weight gain, higher age of presentation and lower MeDQ and MoDQ at admission were associated with persistent developmental delay at 4 months follow-up. CONCLUSION: There was a consistent improvement in DQ with improvement in nutritional status.


Assuntos
Desnutrição Aguda Grave , Humanos , Lactente , Pré-Escolar , Desnutrição Aguda Grave/reabilitação , Desnutrição Aguda Grave/epidemiologia , Estudos Prospectivos , Masculino , Feminino , Índia/epidemiologia , Desenvolvimento Infantil/fisiologia , Estado Nutricional/fisiologia , Transtornos do Neurodesenvolvimento/reabilitação , Transtornos do Neurodesenvolvimento/epidemiologia , Deficiências do Desenvolvimento/reabilitação
10.
J Appl Behav Anal ; 57(3): 615-634, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38825878

RESUMO

Extinction bursts, or temporary increases in rates and intensities of behavior during extinction, can preclude the inclusion of extinction in intervention packages meant to suppress severe challenging behavior. To identify underlying behavioral mechanisms responsible for response persistence and bursting, 69 adults with developmental disabilities completed a low-stakes translational investigation employing a 2 × 2 factorial, crossed, and randomized matched blocks design, with batched randomization logic. In each of the four test groups, we made distinct antecedent manipulations with two value parameters commonly studied through behavioral economics (i.e., demand intensity, Pmax) and evaluated the extent to which each of these manipulations influenced target responding during extinction. Although we found statistically significant differences attributable to both parameters, variations in reinforcer consumption relative to demand intensity were most influential across all dependent variables. This outcome implicates consumption relative to demand intensity as both a mitigating and exacerbating preextinction factor that influences the prevalence of adverse collateral extinction effects (e.g., bursts).


Assuntos
Extinção Psicológica , Reforço Psicológico , Humanos , Masculino , Feminino , Adulto , Deficiências do Desenvolvimento/psicologia , Deficiências do Desenvolvimento/reabilitação , Adulto Jovem , Pessoa de Meia-Idade , Adolescente
11.
PLoS One ; 19(6): e0305968, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38917177

RESUMO

AIMS: To analyze needs and requirements of Pediatric Physical Therapists (PPTs), parents, children and adolescents with and without developmental disabilities in the future use of an activity monitor prototype (AM-p) in everyday clinical practice. METHODS: Qualitative exploratory study with a thematic analysis approach, based on Braun and Clarke's six steps. Codes derived from the analysis and central themes were collated, based on Fleuren et al.'s groupings of determinants. RESULTS: We interviewed 25 PPTs, 12 parents, and 12 children and adolescents. Within four groupings of determinants, we found nine themes: 1) development of information materials; 2) application: output visualization and ease of use; 3) design; 4) relevance and acceptance; 5) shared decision-making; 6) compatibility in daily living; 7) finances, 8) time, and 9) legislation and regulations. CONCLUSIONS: End-users have similar basic needs, with individual fine-tuning to be addressed during further development of the AM-p. A child-friendly design, information material, and an easy-to-use application to read and interpret results, need to be developed. Efficient training for PPTs is important for the use of the AM-p and analysis of results. Communication between PPTs and children as well as parents enhances shared decision-making. We recommend involving diverse end-users to enable maximum customization of the AM-p.


Assuntos
Exercício Físico , Pesquisa Qualitativa , Humanos , Criança , Adolescente , Masculino , Feminino , Modalidades de Fisioterapia/instrumentação , Adulto , Pais , Fisioterapeutas , Deficiências do Desenvolvimento/terapia , Deficiências do Desenvolvimento/reabilitação
12.
Am J Occup Ther ; 78(4)2024 Jul 01.
Artigo em Inglês | MEDLINE | ID: mdl-38917193

RESUMO

IMPORTANCE: Play is the primary occupation in childhood and fundamental to occupational therapy practice. OBJECTIVE: To evaluate a play intervention in special school settings. DESIGN: Pre- and postinvolvement of a 7-mo play program. SETTING: Four special schools in Victoria, Australia, for children with IQs < 70. PARTICIPANTS: Thirty-eight children with diagnoses including intellectual disability, autism, and global developmental delay, 7 teachers, 2 speech pathologists, and 2 occupational therapists. INTERVENTION: Learn to Play Therapy for 1 hr per week over a 7-mo period. OUTCOMES AND MEASURES: Pre-post outcome measures included children's pretend play skills, language, social skills, emotional regulation, and academic competence. RESULTS: Mean age of 38 children (15 girls and 23 boys) at baseline was 5 yr 7 mo (SD = 0.46 yr). Results showed significant changes in children's pretend play (p = .03), ability to recall sentences (p = .02), social skills (p = .022), and academic competence (p = .012). Learn to Play had a large effect on children's narrative skills (d = 2.72). At follow-up, object substitution at baseline influenced expressive language (p < .001), narrative mean language utterance (MLU; p = .015), social skills (p < .001), and academic competence (p < .001); elaborate play at baseline plus time influenced social skills (p < .001); and elaborate play at baseline influenced narrative MLU (p =. 016), sentence recall (p = .009), and academic competence (p = .001). CONCLUSIONS AND RELEVANCE: Embedding pretend play within practice positively influenced children's language, narrative, social, and academic skills. Plain-Language Summary: This study adds to the limited research on play-based therapy programs in special school settings for children with an IQ of less than 70. Children participated in Learn to Play Therapy, during which an occupational therapist, who has observed and assessed the child's play and understands the child's play abilities, played beside the child. Learn to Play Therapy is a child-centered therapy that is used to increase a child's ability to self-initiate and enjoy pretend play. The positive impacts of supporting the children's pretend play ability were highlighted by increases in their pretend play, language, social skills, academic competence, and narrative language after participating in Learn to Play Therapy in their special schools.


Assuntos
Terapia Ocupacional , Ludoterapia , Habilidades Sociais , Humanos , Masculino , Feminino , Criança , Terapia Ocupacional/métodos , Pré-Escolar , Deficiência Intelectual/reabilitação , Deficiências do Desenvolvimento/reabilitação , Deficiências do Desenvolvimento/terapia , Transtorno Autístico/reabilitação , Transtorno Autístico/terapia , Educação Inclusiva , Jogos e Brinquedos , Instituições Acadêmicas
13.
J Appl Res Intellect Disabil ; 37(4): e13264, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38863161

RESUMO

BACKGROUND: Providing menstrual education and guidance for menstrual management for girls and young women with intellectual disabilities is recommended to ensure smooth pubertal transitions and to support menstrual self-agency. METHOD: The purpose of this systematic review is to explore menstrual education interventions for girls and young women with intellectual disabilities. RESULTS: Nine studies were included. Interventions were provided in small groups (n = 4) and individually (n = 5). Most studies used dolls (n = 7) and task analysis (n = 7) to teach pad-replacement skills. All reported significant improvements in participant skills and/or knowledge following the intervention. Only one study addressed self-agency and self-esteem as an outcome of the intervention. Menstrual education for girls and young women with intellectual disabilities is largely focused on pad-replacement skills. CONCLUSION: Further research is needed to understand the impact of menstrual health and hygiene education on variables apart from skill improvement such as self-agency and long-term health outcomes related to menstrual health.


Assuntos
Deficiências do Desenvolvimento , Deficiência Intelectual , Menstruação , Adolescente , Adulto , Criança , Feminino , Humanos , Adulto Jovem , Deficiências do Desenvolvimento/reabilitação , Educação em Saúde/métodos , Conhecimentos, Atitudes e Prática em Saúde , Deficiência Intelectual/reabilitação , Educação Sexual/métodos
14.
Res Dev Disabil ; 150: 104763, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38815409

RESUMO

This article describes the evolution of the quality of life concept through the lens of six distinct eras. Each era reflects a shared process in which multiple stakeholders, including persons with intellectual and developmental disabilities and researchers, have played a significant role. Across these six eras, research on quality of life has evolved from operationalizing a concept to developing a theory. As described in the article, the first three eras resulted in formulating conceptualization, measurement, and application principles; developing quality of life conceptual and operational models; and constructing reliable and valid instruments to assess quality of life domains or domain-referenced indicators. The application era has focused on applying the concept of quality of life and its measurement, supports provision, conceptualization and theory, and systemic change. The final two eras have involved theory development and theory confirmation.


Assuntos
Deficiências do Desenvolvimento , Deficiência Intelectual , Qualidade de Vida , Qualidade de Vida/psicologia , Humanos , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Deficiências do Desenvolvimento/psicologia , Deficiências do Desenvolvimento/reabilitação
15.
Res Dev Disabil ; 150: 104766, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38821012

RESUMO

BACKGROUND: A disability service organization piloted a parent capacity-building intervention for parents of children with developmental disabilities in rural South India. AIMS: To examine the impact of this parent capacity-building group intervention on parent empowerment, peer support, social inclusion, advocacy skills, and the factors influencing these outcomes. METHODS AND PROCEDURES: A qualitative study recruited 37 participants from 17 parent groups through convenience sampling. Six focus groups occurred six months post the start of this intervention and explored these parents' experiences with the groups and their perceived impacts. OUTCOMES AND RESULTS: Qualitative analysis yielded four main themes and corresponding sub-themes: peer support (feeling peaceful and supported, building self-efficacy), social inclusion (space to share, acceptance and identity), knowledge sharing (increasing awareness, accepting advice), and advocacy (building confidence, making requests). Participation in parent groups provided participants with opportunities to find peer support, utilize knowledge sharing, feel socially included, and build advocacy skills. CONCLUSIONS AND IMPLICATIONS: This study provides a greater understanding of the impact and benefits of parent capacity-building interventions in low-resource settings. Results will improve this intervention and guide other organizations in creating similar programs. WHAT THIS PAPER ADDS: This paper adds perspectives of parents who are caregivers of children with developmental disabilities in rural South India. More specifically, this paper highlights the impact of a parent-focused intervention in group settings in both rural and urban areas. Parent support group interventions are not common in India and low- and middle-income countries and there is a paucity of literature describing these interventions and their impact. In this study, parents described a need for multifaceted interventions to support their child in the community. These parent groups provided space for caregivers of children with developmental disabilities to make connections, feel validated, and grow confidence to utilize new knowledge or advice shared by other parents to further enhance their lives. Further, parent-group settings provide opportunities to build advocacy skills through timely discussions. Parents reported an increase in feelings of acceptance within the group itself but not within the wider community. This highlights the need for involving the wider community in interventions to promote integration for families with children with disabilities.


Assuntos
Fortalecimento Institucional , Deficiências do Desenvolvimento , Grupos Focais , Pais , Grupo Associado , Pesquisa Qualitativa , População Rural , Apoio Social , Humanos , Índia , Pais/psicologia , Masculino , Feminino , Criança , Deficiências do Desenvolvimento/reabilitação , Deficiências do Desenvolvimento/psicologia , Deficiências do Desenvolvimento/terapia , Adulto , Crianças com Deficiência/reabilitação , Crianças com Deficiência/psicologia , Empoderamento , Autoeficácia , Cuidadores/psicologia
16.
Phys Occup Ther Pediatr ; 44(5): 656-670, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38745466

RESUMO

AIM: Prior studies on Japanese parents raising children with developmental disorders have predominantly emphasized negative psychological aspects like parenting conflicts and challenges. Purpose of this study was to construct a conceptual model to aid mothers in parenting children with developmental disorders by identifying effective parenting strategies. METHODS: In this qualitative study, participants were mothers who engaged in a home program through individual outpatient occupational therapy. Therapy sessions occurred biweekly, totaling 12 sessions, each lasting 40 min. Data collection involved semi-structured interviews, and the data were analyzed through the Modified Grounded Theory Approach. RESULTS: Analysis of mothers' narratives revealed heightened physical burden, psychological distress, severe stress, and social isolation. Our findings highlight those mothers who engaged in the home program navigated the intricate parenting landscape through problem-solving, including managing negative emotions, their demanding schedules, and societal norms. CONCLUSION: This study offers insights into the perceptions, experiences, and behaviors of families in supporting the development of parenting strategies within the family. Occupational therapy should prioritize evaluating a mother's parenting context and her interactions with her environment. Furthermore, it is crucial to provide support for her to independently formulate suitable parenting strategies that resonate with the specific circumstances of her family.


Assuntos
Deficiências do Desenvolvimento , Mães , Poder Familiar , Pesquisa Qualitativa , Humanos , Poder Familiar/psicologia , Feminino , Mães/psicologia , Adulto , Deficiências do Desenvolvimento/psicologia , Deficiências do Desenvolvimento/reabilitação , Criança , Terapia Ocupacional/métodos , Pré-Escolar , Relações Mãe-Filho/psicologia , Masculino , Teoria Fundamentada , Estresse Psicológico/psicologia , Entrevistas como Assunto
17.
Adapt Phys Activ Q ; 41(4): 513-533, 2024 Oct 01.
Artigo em Inglês | MEDLINE | ID: mdl-38734421

RESUMO

This study examined the effects of a combined virtual-reality- and gym-based physical activity (PA) program on PA levels, motor skills, and social skills of children with a developmental disability (DD). Twenty-five children with DD were randomly assigned to experimental and control groups. The intervention was conducted for 60 min, two times a week, for 12 weeks. Pre- and postintervention assessments encompassing PA levels measured via Gravity Estimator of Normal Everyday Activity, motor skills evaluated using the Test of Gross Motor Development-Third Edition, and social skills gauged via the Social Skills Rating System-Parent were conducted. Additionally, a follow-up assessment was administered to the experimental group 12 weeks postintervention. The findings unequivocally demonstrate that the combined virtual-reality- and gym-based PA program yielded significant enhancements in PA levels, motor skills, and social skills among children with DD in the experimental group. Notably, these improvements were sustained 12 weeks after the intervention. These findings may help professionals develop and implement better PA programs for children with DD.


Assuntos
Deficiências do Desenvolvimento , Exercício Físico , Destreza Motora , Habilidades Sociais , Humanos , Destreza Motora/fisiologia , Masculino , Feminino , Criança , Deficiências do Desenvolvimento/reabilitação , Realidade Virtual
18.
Am J Occup Ther ; 78(3)2024 May 01.
Artigo em Inglês | MEDLINE | ID: mdl-38767469

RESUMO

IMPORTANCE: Environmental modifications are targets for occupational therapy intervention because they support activities of daily living, self-efficacy, personal control, independence, and community living for people with intellectual and developmental disabilities (IDDs). OBJECTIVE: To examine how environmental modifications were provided to people with IDDs through Medicaid home- and community-based services (HCBS) waivers across the United States in fiscal year (FY) 2021. DESIGN: Using a mixed-methods policy analysis, we examined FY 2021 Medicaid HCBS 1915(c) waivers from across the United States to examine whether, and how, states provided environmental modifications to people with IDDs. RESULTS: In FY 2021, 35 states projected spending $68.8 million on environmental modifications for 12,671 people with IDDs. The purpose of environmental modifications was most often to promote the health, welfare, and safety of people with IDDs (82.68%), and to promote their independence (69.29%). The most common examples of environmental modifications included ramps and/or lifts (70.08%), widening doorways and/or hallways (61.42%), bathroom modifications (58.27%), specialized electrical and/or plumbing for medical equipment (54.33%), and grab bars and/or handrails (53.54%). CONCLUSIONS AND RELEVANCE: HCBS waiver data on environmental modifications for people with IDDs enhances an understanding of this funding source and provides a foundation of advocacy for occupational therapy practitioners to support people with IDDs with living, as well as aging, in the community rather than in institutions. An expansion of environmental modifications in HCBS for people with IDDs aligns with the aim of Medicaid HCBS waivers to promote community integration, self-determination, and independence, which are all benefits of environmental modifications. Plain-Language Summary: This study can help occupational therapy practitioners determine what funding sources are available in their state to help their clients with intellectual and developmental disabilities access environmental modifications. The findings can also help guide advocacy and lobbying efforts to expand access to environmental modifications.


Assuntos
Deficiências do Desenvolvimento , Serviços de Assistência Domiciliar , Deficiência Intelectual , Medicaid , Terapia Ocupacional , Humanos , Estados Unidos , Deficiências do Desenvolvimento/reabilitação , Deficiência Intelectual/reabilitação , Serviços de Assistência Domiciliar/economia , Serviços de Saúde Comunitária , Atividades Cotidianas , Planejamento Ambiental , Formulação de Políticas
19.
Intellect Dev Disabil ; 62(3): 225-240, 2024 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-38802097

RESUMO

Meaningful progress in improving employment outcomes for people with intellectual and developmental disabilities continues to be elusive, despite 40 years of investment in research, policy, and supports. This article reviews the current state of employment for individuals with intellectual and developmental disabilities (IDD) and describes policy, practice, and individual factors that influence employment outcomes. Research suggests the need for a holistic approach to change that addresses systems-level strategy, policy, and fiscal investment while strengthening individual experiences with employment and related day services. Recommendations address strengthening the implementation of employment policy, developing pathways to employment, and engaging individuals with IDD and, in particular, individuals with diverse social characteristics in reflecting on the quality of their experiences and supports.


Assuntos
Deficiências do Desenvolvimento , Emprego , Deficiência Intelectual , Humanos , Deficiência Intelectual/reabilitação , Deficiências do Desenvolvimento/reabilitação , Readaptação ao Emprego , Política Pública
20.
J Dance Med Sci ; 28(3): 190-195, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-38462903

RESUMO

INTRODUCTION: Promoting physical wellness for preschool-aged children with developmental disorders (DD) is a known challenge. Interventions are more likely to succeed when physical activity opportunities are available to children within the context of their typical environments. We evaluated the feasibility and preliminary effect of 1 potential solution: structured creative dance classes delivered within a preschool environment. METHODS: Using a non-randomized feasibility study design, we offered physical activity in the form of creative dance classes for children with and without DD within an inclusive preschool. Classes lasted 30 minutes and were held once a week or 7 weeks. We measured attendance (primary), observed active participation (% of class duration), and balance (Pediatric Balance Scale). Non-parametric descriptive statistics are expressed as median (interquartile range). Balance was evaluated regarding (a) difference between groups at baseline (Mann-Whitney statistic) and (b) intervention effect for children with DD (1-tailed, paired t-test). RESULTS: Twelve preschoolers (age range = 3-5 years) participated: 4 with DD and 8 with neurotypical development. Attendance was 93% (79%-100%) for children with and 100% for children without DD. Per class, rate of active participation in dance activity was 33% (28%-45%) for children with and 80% (71%-82%) for children without DD. Starting balance scores were lower (P = .014) for children with DD (42 (39-45)) compared to those without (51 (50-52)). Post-intervention, balance scores improved for the children with DD to 50 (50-51) (df = 3, p = .014, t-statistic = 2.35); each child with DD surpassed minimal detectable change for balance. CONCLUSION: Creative dance classes, delivered within an inclusive preschool environment, are feasible for some preschool-aged children with DD to participate in and efficacious as a physical training challenge at low activity doses. More study is warranted of this potential solution to meet the need for physical wellness promotion among young children with DD.


Assuntos
Dança , Deficiências do Desenvolvimento , Estudos de Viabilidade , Humanos , Pré-Escolar , Projetos Piloto , Masculino , Feminino , Deficiências do Desenvolvimento/reabilitação , Dança/fisiologia , Equilíbrio Postural/fisiologia , Dançaterapia/métodos , Destreza Motora/fisiologia , Exercício Físico/fisiologia
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