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1.
Br J Nurs ; 30(7): 416-421, 2021 Apr 08.
Artigo em Inglês | MEDLINE | ID: mdl-33830799

RESUMO

This article reports on the journey of a child with an inoperable hypothalamic-origin pilocytic astrocytoma causing hydrocephalus, which was refractory to treatment with shunts, and required a new approach. With multidisciplinary support, excellent nursing care and parental education, the child's hydrocephalus was managed long term in the community with bilateral long-tunnelled external ventricular drains (LTEVDs). This article describes the patient's journey and highlights the treatment protocols that were created to achieve this feat. Despite the difficulties in initially setting up these protocols, they proved successful and thus the team managing the patient proposed that LTEVDs are a viable treatment option for children with hydrocephalus in the context of inoperable tumours to help maximise quality of life.


Assuntos
Drenagem , Hidrocefalia , Guias de Prática Clínica como Assunto , Criança , Doença Crônica , Drenagem/métodos , Drenagem/enfermagem , Humanos , Hidrocefalia/enfermagem
2.
Adv Neonatal Care ; 17(6): 430-439, 2017 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-29166295

RESUMO

BACKGROUND: Infants with congenital or posthemorrhagic hydrocephalus may require a ventriculoperitoneal (VP) shunt to divert the flow of cerebrospinal fluid, thus preventing increase in intracranial pressure. Knowledge on various aspects of caring for a child with a VP shunt will enable new and experienced nurses to better care for these infants and equip parents for ongoing care at home. PURPOSE: To review the nurses' role in care of infants with hydrocephalus, care after VP shunt placement, prevention of complications, and parental preparation for home care. METHODS/SEARCH STRATEGY: A literature review involving electronic databases, such as CINAHL and MEDLINE, Cochrane Database Systematic Reviews, and resources from the Web sites of the National Hydrocephalus Foundation and Hydrocephalus Association, was performed to gather evidence for current practice information. FINDINGS AND IMPLICATIONS FOR PRACTICE AND RESEARCH: Vigilant care can help with early identification of potential complications. The younger the infant at VP shunt placement, the higher the occurrence of complications. All neonatal intensive care unit nurses must be equipped with knowledge and skills to care for infants with hydrocephalus and those who undergo VP shunt placement. Monitoring for early signs of increased intracranial pressure can facilitate timely diagnosis and prompt surgical intervention. Equipping families will be helpful in early identification and timely management of shunt failure. Research on infants with VP shunt placement is essential to develop appropriate guidelines and explore experiences of families to identify caregiver burden and improve parental preparation.


Assuntos
Hemorragia Cerebral/enfermagem , Hidrocefalia/enfermagem , Enfermagem Neonatal , Papel do Profissional de Enfermagem , Derivação Ventriculoperitoneal/enfermagem , Hemorragia Cerebral/cirurgia , Enfermagem Baseada em Evidências , Humanos , Hidrocefalia/cirurgia , Recém-Nascido
3.
Nurs Stand ; 30(52): 22-4, 2016 Aug 24.
Artigo em Inglês | MEDLINE | ID: mdl-27641571

RESUMO

These are challenging times in the NHS,' says RCN north west regional director Estephanie Dunn. 'We are endeavouring to safeguard already diminishing budgets and services while there are increasing pressures on staff.


Assuntos
Recursos Humanos de Enfermagem , Medicina Estatal/organização & administração , Inglaterra , Hidrocefalia/enfermagem , Hidrocefalia/reabilitação , Hidrocefalia/terapia , Triagem
5.
Rev Bras Enferm ; 63(5): 782-5, 2010.
Artigo em Português | MEDLINE | ID: mdl-21103772

RESUMO

Knowledge of caregivers of children with hydrocephalus is not well assessed. This study identifies the fonts of information to assume activities how to care; to verify caregivers' knowledge about hydrocephalus. Fifty-four caregivers answered the interview from november 2007 to august 2008, with absolute predominance of females. Twenty-nine (53.7%) learned to take care by themselves. Only four caregivers (16.0%) received information at the hospital. 29 (53.7%) regarding the definition, 11 (20.4%) the cause of hydrocephalus. It was observed that caregivers with eight years of study had bigger knowledge. The education level of the caregiver had a positive correlation to on increased knowledge about hydrocephalus, but the caregivers have little concerns about important hydrocephalus' aspects.


Assuntos
Cuidadores , Conhecimentos, Atitudes e Prática em Saúde , Hidrocefalia/enfermagem , Adolescente , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Adulto Jovem
6.
Rev. bras. enferm ; 63(5): 782-785, set.-out. 2010. tab
Artigo em Português | LILACS, BDENF - Enfermagem | ID: lil-565062

RESUMO

Pouco se discute sobre conhecimentos dos cuidadores de crianças com hidrocefalia. Este estudo buscou identificar as fontes de informação dos cuidadores e verificar seus conhecimentos sobre hidrocefalia. Foram entrevistados 54 cuidadores com idade entre 18 a 52 anos no período de novembro de 2007 a agosto de 2008. O gênero do cuidador foi predominantemente feminino. Vinte e nove cuidadoras (53,7 por cento) aprenderam a cuidar sozinhas. Apenas quatro cuidadoras (16,0 por cento) receberam orientações na alta hospitalar. Vinte e nove (53,7 por cento) conhecem a definição e 11 (20,4 por cento) conhecem as causas da hidrocefalia. Verificou-se maior conhecimento entre cuidadoras com mais de oito anos de estudo. A escolaridade teve relação significativa para maior conhecimento, entretanto as cuidadoras possuem pouco conhecimento sobre aspectos importantes da hidrocefalia.


Knowledge of caregivers of children with hydrocephalus is not well assessed. This study identifies the fonts of information to assume activities how to care; to verify caregivers' knowledge about hydrocephalus. Fifty-four caregivers answered the interview from november 2007 to august 2008, with absolute predominance of females. Twenty-nine (53.7 percent) learned to take care by themselves. Only four caregivers (16.0 percent) received information at the hospital. 29 (53.7 percent) regarding the definition, 11 (20.4 percent) the cause of hydrocephalus. It was observed that caregivers with eight years of study had bigger knowledge. The education level of the caregiver had a positive correlation to on increased knowledge about hydrocephalus, but the caregivers have little concerns about important hydrocephalus' aspects.


Poco se discute sobre los conocimientos de los cuidadores de niños con hidrocefalia. Este estudio identificó las fuentes de información de los cuidadores y verificó sus conocimientos acerca de la hidrocefalia. Se entrevistó 54 cuidadores con 18 a 52 años desde noviembre de 2007 a agosto de 2008. El género del cuidador fue predominantemente femenino. Veinte y nove cuidadoras (53,7 por ciento) aprenderán a cuidar solas. Apenas cuatro cuidadoras (16,0 por ciento) tuvieran orientaciones a la salida del hospital. Veinte y nove (53,7 por ciento) conocen la definición y 11 (20,4 por ciento) conocen las causas da hidrocefalia. Se observó mayor conocimiento entre cuidadoras con más de ocho años de estudio. La escolaridad tuve relación significativa para mayor conocimiento, todavía las cuidadoras posee poco conocimiento acerca de aspectos importantes da hidrocefalia.


Assuntos
Adolescente , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Adulto Jovem , Cuidadores , Conhecimentos, Atitudes e Prática em Saúde , Hidrocefalia/enfermagem , Adulto Jovem
7.
Arq. ciências saúde UNIPAR ; 14(2)maio-ago. 2010.
Artigo em Português | LILACS | ID: lil-601321

RESUMO

A hidrocefalia é um problema permanente em que a criança necessitará de avaliação e acompanhamento regularmente. O tratamento para a criança com hidrocefalia é uma tarefa difícil, tanto para a família quanto para os profissionais de saúde. A assistência prestada para com a criança portadora de hidrocefalia deve ser realizada com sólido conhecimento técnico-científico, para que as ações sejam praticadas de forma segura. Considerando a importância da assistência do enfermeiro à criança portadora de hidrocefalia, objetivou-se, com o presente estudo, descrever as ações do enfermeiro durante a assistência ao hidrocéfalo. Trata-se de um trabalho de revisão bibliográfica. Considerando que a Hidrocefalia Infantil (HI) é uma condição que afeta o paciente por toda sua vida, priorizar a assistência de enfermagem, humanizada, pautada na promoção da qualidade de vida da criança é indispensável. Nesse sentido, cabe ao enfermeiro elaborar e implementar estratégias que melhorem não somente o quadro clínico da doença, bem como promover a saúde em seu contexto bio-psico-social, pois esse profissional é responsável por identificar e intervir nos problemas reais e potenciais.


Hydrocephalus is a permanent problem in which infants need a regular evaluation and accompaniment. The treatment is a difficult duty for the family as well as for health professionals. The assistance taken with hydrocephalus infant should be carried out with a solid technical and scientific knowledge that the actions would be practice in a secure way. Considering the importance of nursing assistance to the hydrocephalus infant it was aimed at the present study to describe through a bibliographical revision nursing actions hold during this process. It is indispensable to prioritize a humanized nursing assistance promoting the quality of life of the infant due to the fact that hydrocephalus is a condition that affects the patient for the whole life. It is the nurse responsibility to identify and intervene in the real and potential problems by elaborating and implementing strategies to improve the clinical chart of the illness as well as to promote health in the bio-psico-social context.


Assuntos
Humanos , Masculino , Feminino , Criança , Hidrocefalia/enfermagem , Cuidados de Enfermagem , Enfermagem Pediátrica
8.
Home Healthc Nurse ; 28(7): 424-31, 2010.
Artigo em Inglês | MEDLINE | ID: mdl-20592542

RESUMO

The acuity and number of children with life-threatening, life-limiting, and chronic conditions has increased dramatically over the past decade. The pediatric home care nurse needs a special body of knowledge and repertoire of tools to accurately assess, intervene, manage, evaluate, and provide resources to this most vulnerable population. Inherent in caring for these children is the need to support the family, nurturing the parents who care for chronically ill children at home.


Assuntos
Serviços de Assistência Domiciliar , Papel do Profissional de Enfermagem , Enfermagem Pediátrica/métodos , Deficiências do Desenvolvimento/complicações , Deficiências do Desenvolvimento/enfermagem , Diarreia Infantil/complicações , Diarreia Infantil/enfermagem , Insuficiência de Crescimento/complicações , Insuficiência de Crescimento/enfermagem , Refluxo Gastroesofágico/complicações , Refluxo Gastroesofágico/enfermagem , Assistência Domiciliar/educação , Síndrome de Horner/complicações , Síndrome de Horner/enfermagem , Humanos , Hidrocefalia/complicações , Hidrocefalia/enfermagem , Lactente , Recém-Nascido , Recém-Nascido Prematuro , Masculino , Hipotonia Muscular/complicações , Hipotonia Muscular/enfermagem , Avaliação em Enfermagem/métodos , Planejamento de Assistência ao Paciente
9.
Neonatal Netw ; 29(4): 243-8, 2010.
Artigo em Inglês | MEDLINE | ID: mdl-20630840

RESUMO

Management strategies in the treatment of infants with posthemorrhagic ventricular dilation include the placement of a ventricular reservoir. Traditionally, ventricular punctures of these reservoirs have been performed only by physicians. In the pilot project described in this article, we taught nursing staff to perform punctures of a cerebral ventricular reservoir in neonates with hydrocephalus to give nurses more control in their daily care of these infants.All consecutive punctures performed between August 2006 and March 2007 (n = 302) were studied. The chart was reviewed for the infant's state during the puncture, the caregiver who performed the puncture, and the timeliness of the puncture with respect to schedule and to infant state. During the day shift, there was no significant difference in timeliness, whether the puncture was performed by a physician, a nurse, a physician assistant (PA), or a nurse under the supervision of a physician. On the night shift, punctures were performed on schedule significantly more often when they were carried out by nurses (p>.001). This pilot project demonstrated that nurses can learn to perform cerebrospinal fluid removal from a ventricular reservoir. Because it increased the timeliness with which punctures were performed and gave nurses more control in planning rest periods for these infants, this policy change was judged a success.


Assuntos
Derivações do Líquido Cefalorraquidiano/enfermagem , Drenagem/enfermagem , Hidrocefalia/enfermagem , Doenças do Prematuro/enfermagem , Recém-Nascido Prematuro , Punções/enfermagem , Hemorragia Cerebral/complicações , Ventrículos Cerebrais , Protocolos Clínicos , Humanos , Hidrocefalia/etiologia , Hidrocefalia/terapia , Recém-Nascido , Capacitação em Serviço/métodos , Projetos Piloto
13.
Br J Nurs ; 11(1): 47-53, 2002.
Artigo em Inglês | MEDLINE | ID: mdl-11826320

RESUMO

Sharing of best practice and use of all available evidence is important in developing effective clinical guidelines for nursing practice. This can be achieved through benchmarking. Sharing of good practice and achieving consensus guidelines can avoid repetition of effort by nurses engaged in similar fields of practice. The Pan London Neuroscience Practice Development Forum was established in 1998 to share best practice within the field of neuroscience nursing across London. The Pan London Forum has now achieved consensus and developed evidence-based clinical guidelines for the management of external ventricular drainage. Within the scope of this article, the principles of external ventricular drainage will be highlighted, before identifying the evidence base for nursing management of patients. Approaches for troubleshooting common problems will also be discussed and the benchmarked clinical guidelines will be presented.


Assuntos
Benchmarking , Procedimentos Clínicos , Hidrocefalia/enfermagem , Ventriculostomia/enfermagem , Medicina Baseada em Evidências , Humanos , Hidrocefalia/etiologia , Guias de Prática Clínica como Assunto , Reino Unido
15.
J Neurosci Nurs ; 33(2): 90-6, 104, 2001 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-11326624

RESUMO

Chiari malformations are cerebellar anomalies. The four types of Chiari malformations, as described more than 100 years ago by Dr. Hans Chiari, have neither anatomic nor embryologic correlation. Their only commonality is that they all involve the cerebellum. Chiari I malformation consists of herniation of the cerebellar tonsils into the foramen magnum, thus crowding the craniocervical junction. Chiari II malformation is almost exclusively associated with myelomeningocele and hydrocephalus. It consists of herniation of not only the tonsils but also all the contents of the posterior fossa into the foramen magnum. This herniation involves the brainstem, fourth ventricle, and cerebellar vermis. Chiari III and IV malformations are rare. Chiari III represents an encephalocele (external sac containing brainstem and posterior fossa contents); thus, the cerebellum and brainstem are descending not only into the spine, but also into an external sac. Chiari IV consists of cerebellar hypoplasia. The Chiari I malformation has the latest mean age of clinical presentation. A Chiari type I anomaly presenting in adulthood is the focus of this article. Surgery is indicated with neurological dysfunction, symptomatic syrinx, or hydrocephalus. Of all Chiari I patients, 15%-20% will have hydrocephalus. For some of them, the hydrocephalus will resolve with ventriculoperitoneal shunting, alleviating the need for a Chiari decompression. Long-term prognosis for patients with symptomatic Chiari type I malformations who undergo surgical treatment is variable, based on the patients' presenting symptoms and spinal cord cyst response.


Assuntos
Malformação de Arnold-Chiari/enfermagem , Adulto , Malformação de Arnold-Chiari/diagnóstico , Malformação de Arnold-Chiari/cirurgia , Seguimentos , Humanos , Hidrocefalia/diagnóstico , Hidrocefalia/enfermagem , Hidrocefalia/cirurgia , Imageamento por Ressonância Magnética , Masculino , Equipe de Assistência ao Paciente , Cuidados Pós-Operatórios , Complicações Pós-Operatórias/diagnóstico , Complicações Pós-Operatórias/enfermagem
17.
J Neurosci Nurs ; 30(3): 185-90, 1998 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-9689610

RESUMO

External ventricular drainage systems (EVDs), or external ventriculostomies, are challenging additions for the neurosurgical patient. An EVD involves a catheter placed in the ventricular space. It is used to drain off excess cerebrospinal fluid that is causing hydrocephalus and increased intracranial pressure. The cerebrospinal fluid is produced in the brain and flows through the four ventricles, to the arachnoid space around the spinal cord, then is absorbed by the arachnoid villi in the brain. The causes of hydrocephalus include tumors and hemorrhage. The nursing responsibilities include monitoring for infection, bleeding, herniation, documenting aspects of the drainage system and providing emotional support for the patient and family.


Assuntos
Hidrocefalia/enfermagem , Ventriculostomia/enfermagem , Humanos , Hidrocefalia/etiologia , Pressão Intracraniana/fisiologia , Monitorização Fisiológica/enfermagem , Cuidados Pós-Operatórios
20.
Nurs Clin North Am ; 32(1): 73-96, 1997 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-9030651

RESUMO

Advances in the field of neuroscience are enhancing outcomes for pediatric neurosurgical patients. Innovative diagnostic tools that include ventriculoscopy for hydrocephalus; long-term monitoring with subdural and epidural electrodes for seizures; and intraoperative computer-assisted, three-dimensional imaging for tumors are currently aiding neurosurgeons. These advances in the care of pediatric patients require the perioperative nurse to reevaluate and expand the nurse's role to optimize patient outcomes.


Assuntos
Neurocirurgia/tendências , Enfermagem Pediátrica/tendências , Enfermagem Perioperatória/tendências , Neoplasias Encefálicas/enfermagem , Neoplasias Encefálicas/cirurgia , Criança , Pré-Escolar , Humanos , Hidrocefalia/enfermagem , Hidrocefalia/cirurgia , Lactente , Neurocirurgia/enfermagem
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