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1.
BMJ Open ; 14(9): e088079, 2024 Sep 03.
Artigo em Inglês | MEDLINE | ID: mdl-39231550

RESUMO

OBJECTIVES: We aimed to explore the lived experiences and needs of women after a recent stillbirth event. DESIGN: Qualitative phenomenological study. SETTING: The current study was conducted in a tertiary obstetric hospital in East China between 25 January 2024 and 29 March 2024. PARTICIPANTS: 14 women having experienced a stillbirth within the last 6 months. RESULTS: Researchers agreed on four key themes including individual variations in emotional reaction and recovery, physical recovery and concerns about future pregnancies, the critical role of social support systems and variations in perceptions of stillbirth as the death of a fetus versus a human being, along with related mourning rituals. These themes collectively highlight the multifaceted nature of the stillbirth experience, underscoring the complex interplay between personal, cultural and medical factors that shape women's emotional and physical responses. CONCLUSIONS: Post-stillbirth experiences among Chinese women are deeply individualised and influenced by a complex interplay of personal emotions, cultural contexts and medical interactions. It is imperative for healthcare systems to implement tailored care strategies beyond standard protocols to proactively address their varied emotional landscapes and physical concerns with an enhanced awareness of cultural sensitivities. Specialised training for healthcare providers should be devised to recognise and respond to the unique grief processes. Comprehensive support systems should be established to significantly enhance the recovery journey by providing essential resources and community connections.


Assuntos
Pesar , Pesquisa Qualitativa , Apoio Social , Natimorto , Humanos , Feminino , Natimorto/psicologia , Adulto , China , Gravidez , Emoções , Adulto Jovem , População do Leste Asiático
2.
Eur J Psychotraumatol ; 15(1): 2386827, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39140607

RESUMO

Background: Pregnancy loss (PL) is a common, yet rarely examined public health issue associated with an increased risk of impaired mental health, particularly depression.Objective: Previous research shows childlessness to be a correlate of depression after PL. First studies also indicate associations of the type of loss, multiple losses, relationship quality, and coping strategies with depression after the loss of a pregnancy. However, results are inconsistent and the few existing studies show methodological deficits. Therefore, we expect higher depression scores for women without living children, and we exploratively examine the associations between the type of loss, the number of losses, relationship quality, and coping strategies with depression scores for women who suffered a PL.Method: In an online setting, N = 172 women with miscarriage (n = 137) or stillbirth (n = 35) throughout the last 12 months completed the Patient Health Questionnaire (PHQ-D), Brief-COPE, and Partnerschaftsfragebogen (PFB), a German questionnaire measuring relationship quality.Results: In a multiple hierarchical regression analysis, stillbirth, ß = 0.15, p = .035, presence of living children, ß = -0.17, p = .022, and self-blame/emotional avoidance, ß = 0.34, p < .001, are predictors of depression scores. However, there was no association between depression symptoms and other coping strategies, relationship quality, and multiple losses.Conclusions: Especially with regard to women who have no living children, have suffered a stillbirth, or are affected by self-blame/emotional avoidance, health care providers should monitor the presence of depressive symptoms. Our results indicate the need for specific instruments measuring coping style and relationship quality after PL, since the standard items of the PFB and the Brief-COPE seem inappropriate for this setting.


Stillbirth is associated with higher maternal depression scores than miscarriage.Women with living children show lower depression scores after pregnancy loss than childless women.Self-blame and emotional avoidance are associated with higher maternal depression scores after pregnancy loss.


Assuntos
Aborto Espontâneo , Adaptação Psicológica , Depressão , Natimorto , Humanos , Feminino , Depressão/psicologia , Adulto , Aborto Espontâneo/psicologia , Gravidez , Inquéritos e Questionários , Natimorto/psicologia , Alemanha , Capacidades de Enfrentamento
3.
PLoS One ; 19(7): e0305403, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39052552

RESUMO

BACKGROUND: Pregnancy loss and mourning can lead to psychological adverse effects on women's quality of life. This study aimed to evaluate the effect of art therapy on the quality of life of women with pregnancy loss. METHODS: This study was a randomized clinical trial performed on 60 women who recently experienced abortion or stillbirth. After randomization in two groups (30 in each group), women in the intervention group received four session art therapy. In the control group, routine care was performed. The Perinatal Grief Scale and World Health Organization quality of life questionnaire, short version 26, was used to collect data before and eight weeks after intervention, and the result was compared before and after the intervention in both groups. RESULTS: The mean age of participants was 26.5±4.75 years. Eight weeks after the intervention, the mean score of the total quality of life was significantly different between the two groups (348.64±13.12 vs.254.46±58.35; P>0.01). Also, all physical, psychological, social, and environmental dimensions of quality of life improved in the art therapy group compared to the control group (P>0.01). CONCLUSIONS: Art therapy could improve the quality-of-life following pregnancy loss, and can be recommended as a complementary method next to routine care. TRIAL REGISTRATION: IRCT20200104046002N1.


Assuntos
Aborto Espontâneo , Arteterapia , Qualidade de Vida , Humanos , Feminino , Adulto , Gravidez , Aborto Espontâneo/psicologia , Arteterapia/métodos , Inquéritos e Questionários , Adulto Jovem , Natimorto/psicologia , Pesar
4.
Sociol Health Illn ; 46(6): 1275-1291, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-39031916

RESUMO

The critical sociological literature has explored social prescriptions on women's reproductive lives, trajectories, outcomes and aftermaths. However, little attention has been given to how these prescriptions are expressed through temporal negotiations. This article delves into the narratives of Jewish-Israeli women who have experienced stillbirths. In their narratives, these women contest expectations directed towards them in interactions with professionals, family and friends. Within these expectations, a form of dictation over their future comes into being, where a new pregnancy should quickly precede the stillbirth. The focus here lies on how these women navigate and contest these temporal expectations, carving out space for stillbirth as a meaningful and painful event that should be granted attention and for alternative forms of remembering their stillborn and caring for them after their death. They reshape their narratives through what I call "thickening a present tense" and extend care to the stillborn in the aftermath of the stillbirth. This work contributes to scholarly inquiries into reproductive life and probing time as a socially prescribed mechanism for the value and social distribution of care.


Assuntos
Natimorto , Humanos , Natimorto/psicologia , Feminino , Gravidez , Narração , Adulto , Israel
5.
J Womens Health (Larchmt) ; 33(9): 1205-1210, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-38842446

RESUMO

Background: Stillbirth is a devastating event for families as well as hospital staff. Hospital practices around internal and external staff communication, debriefing, and training are unknown. Methods: We systematically sampled U.S. hospitals that provide obstetrical care. Staff knowledgeable of bereavement care on labor and delivery were invited to participate in an anonymous survey linked to hospital descriptors. We evaluated stillbirth communication, debriefing, and training for staff. Results: We received 289 usable surveys from 429 eligible staff (67% response). Most (94%) noted hospitals' marked rooms housing bereaved families, but only a third (37%) reported a marker on the paper or electronic medical record. Half of the hospitals had no standard debriefings post-loss, and 38% reported no perinatal loss training for labor and delivery nurses. Conclusions: Hospitals have significant variations and gaps in staff communication, support, and training, which are key aspects of respectful stillbirth care.


Assuntos
Luto , Comunicação , Natimorto , Humanos , Natimorto/psicologia , Natimorto/epidemiologia , Feminino , Estados Unidos , Gravidez , Inquéritos e Questionários , Hospitais , Adulto
6.
Front Public Health ; 12: 1385125, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38689763

RESUMO

The stillbirth rate among Aboriginal and Torres Strait Islander women and communities in Australia is around double that of non-Indigenous women. While the development of effective prevention strategies during pregnancy and improving care following stillbirth for women and families in communities has become a national priority, there has been limited progress in stillbirth disparities. With community permission, this study aimed to gain a better understanding of community experiences, perceptions, and priorities around stillbirth. We undertook an Indigenous researcher-led, qualitative study, with community consultations guided by a cultural protection protocol and within an unstructured research framework. A total of 18 communities were consulted face-to-face through yarning interviews, focus groups and workshops. This included 54 community member and 159 health professional participants across remote, regional, and urban areas of Queensland, Western Australia, Victoria, South Australia, and Northern Territory. Thematic analysis of consultation data identified common themes across five focus/priority areas to address stillbirth: Stillbirth or Sorry Business Baby care needs to be family-centered; using Indigenous "ways of knowing, being, and doing" to ensure cultural safety; application of Birthing on Country principles to maternal and perinatal care; and yarning approaches to improve communication and learning or education. The results underscore the critical need to co-design evidence-based, culturally appropriate, and community-acceptable resources to help reduce existing disparities in stillbirth rates.


Assuntos
Grupos Focais , Pesquisa Qualitativa , Natimorto , Adulto , Feminino , Humanos , Masculino , Gravidez , Austrália , Povos Aborígenes Australianos e Ilhéus do Estreito de Torres , Entrevistas como Assunto , Natimorto/psicologia
7.
Women Birth ; 37(4): 101622, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38744163

RESUMO

PROBLEM: The COVID-19 pandemic hindered access to routine healthcare globally, prompting concerns about possible increases in pregnancy loss and perinatal death. BACKGROUND: PUDDLES is an international collaboration exploring the impact of the COVID-19 pandemic on parents who experience pregnancy loss and perinatal death in seven countries, including Aotearoa New Zealand. AIM: To explore parents' experiences of access to healthcare services and support following baby loss during the COVID-19 pandemic in Aotearoa New Zealand. METHODS: We conducted in-depth, semi-structured interviews with 26 bereaved parents, including 20 birthing mothers, and six non-birthing parents (one mother and five fathers). Types of loss included 15 stillbirths, four late miscarriages, and one neonatal death. Participant ethnicities were broadly representative of Aotearoa New Zealand's multi-ethnic society. Data were analysed using Template Analysis. FINDINGS: Analysis revealed five themes relating to pandemic impact on bereaved parent's experiences. These were: 'Distanced and Impersonal care'; 'Navigating Hospital Rules'; Exclusion of Non-birthing Parents; 'Hindered Access to Social Support'; and 'Continuity of Relational Care'. DISCUSSION: The COVID-19 pandemic exacerbated isolation of bereaved parents through perceived impersonal care by healthcare professionals and restrictions on movement hindered access to social and cultural support. Compassionate bending of the rules by healthcare professionals and community postnatal visits by continuity of care midwives following the bereavement appeared to be mitigating factors. CONCLUSION: Social isolation is an added challenge for parents experiencing baby loss during a pandemic, which may be mitigated by flexible and compassionate care from healthcare professionals, especially continuity of care midwives.


Assuntos
COVID-19 , Pais , Pesquisa Qualitativa , SARS-CoV-2 , Apoio Social , Natimorto , Humanos , COVID-19/epidemiologia , COVID-19/prevenção & controle , Nova Zelândia , Feminino , Gravidez , Adulto , Masculino , Natimorto/psicologia , Pais/psicologia , Entrevistas como Assunto , Luto , Acessibilidade aos Serviços de Saúde , Recém-Nascido , Morte Perinatal , Pandemias , Distanciamento Físico , Aborto Espontâneo/psicologia
8.
Med Humanit ; 50(2): 266-275, 2024 Aug 14.
Artigo em Inglês | MEDLINE | ID: mdl-38802247

RESUMO

This essay theorises what 'unmotherhood'-or, living outside of motherhood-means within the specific context of 'the modern'. Unmotherhood is an actively constructed state; it is explored through the parameters of agentive choice, social pressure and state control; and at the turn-of-the-20th-century novels articulate this state through specific vocabularies of contemporaneous phenomena of modernity. I look to four novels representative of four forms of unmotherhood: Tess Slesinger's The Unpossessed depicts a somewhat voluntary abortion; H.D.'s Asphodel (and its sister novel Bid Me to Live) are fictional representations of the author's own stillbirth; Jean Rhys's Good Morning, Midnight depicts a woman's life in the wake of her newborn son's death and Nella Larsen's Quicksand is a narrative dependent on the protagonist's refusal to marry because of her equation of marriage with conception. Reading these narratives together affords us the opportunity to consider what 'unmotherhood' means as a constructed state in and of itself, beyond the presumed negative, passive state of the 'not' or the 'not yet'. Through this analysis, I define 'unmotherhood' as: (1) a state mediated through medical knowledge, objects, spaces and authority figures; (2) an experience narrated through vocabularies pulled from phenomena closely associated with 20th-century modernity and (3) a role dynamically shaped through compulsory heterosexuality embedded in familial relationships. In these three ways, my analysis of the selected novels defines unmotherhood as a permanent, transient, chosen, enforced and-contradictory as it all may be-a legible and definable experience.


Assuntos
Literatura Moderna , Humanos , Feminino , Literatura Moderna/história , Casamento , Amigos , Natimorto/psicologia , Narração , Gravidez , História do Século XX , Masculino , Aborto Induzido , Ilegitimidade , Medicina na Literatura
9.
JAMA Netw Open ; 7(5): e249291, 2024 May 01.
Artigo em Inglês | MEDLINE | ID: mdl-38691357

RESUMO

Importance: Becoming a first-time parent is a major life-changing event and can be challenging regardless of the pregnancy outcome. However, little is known how different adverse pregnancy outcomes affect the father's risk of psychiatric treatment post partum. Objective: To examine the associations of adverse pregnancy outcomes with first-time psychiatric treatment in first-time fathers. Design, Setting, and Participants: This nationwide cohort study covered January 1, 2008, to December 31, 2017, with a 1-year follow-up completed December 31, 2018. Data were gathered from Danish, nationwide registers. Participants included first-time fathers with no history of psychiatric treatment. Data were analyzed from August 1, 2022, to February 20, 2024. Exposures: Adverse pregnancy outcomes including induced abortion, spontaneous abortion, stillbirth, small for gestational age (SGA) and not preterm, preterm with or without SGA, minor congenital malformation, major congenital malformation, and congenital malformation combined with SGA or preterm compared with a full-term healthy offspring. Main Outcomes and Measures: Prescription of psychotropic drugs, nonpharmacological psychiatric treatment, or having a psychiatric hospital contact up to 1 year after the end of the pregnancy. Results: Of the 192 455 fathers included (median age, 30.0 [IQR, 27.0-34.0] years), 31.1% experienced an adverse pregnancy outcome. Most of the fathers in the study had a vocational educational level (37.1%). Fathers experiencing a stillbirth had a significantly increased risk of initiating nonpharmacological psychiatric treatment (adjusted hazard ratio [AHR], 23.10 [95% CI, 18.30-29.20]) and treatment with hypnotics (AHR, 9.08 [95% CI, 5.52-14.90]). Moreover, fathers experiencing an early induced abortion (≤12 wk) had an increased risk of initiating treatment with hypnotics (AHR, 1.74 [95% CI, 1.33-2.29]) and anxiolytics (AHR, 1.79 [95% CI, 1.18-2.73]). Additionally, late induced abortion (>12 wk) (AHR, 4.46 [95% CI, 3.13-6.38]) and major congenital malformation (AHR, 1.36 [95% CI, 1.05-1.74]) were associated with increased risk of nonpharmacological treatment. In contrast, fathers having an offspring being born preterm, SGA, or with a minor congenital malformation did not have a significantly increased risk of any of the outcomes. Conclusions and Relevance: The findings of this Danish cohort study suggest that first-time fathers who experience stillbirths or induced abortions or having an offspring with major congenital malformation had an increased risk of initiating pharmacological or nonpharmacological psychiatric treatment. These findings further suggest a need for increased awareness around the psychological state of fathers following the experience of adverse pregnancy outcomes.


Assuntos
Pai , Resultado da Gravidez , Humanos , Dinamarca/epidemiologia , Feminino , Gravidez , Pai/estatística & dados numéricos , Pai/psicologia , Adulto , Masculino , Resultado da Gravidez/epidemiologia , Natimorto/epidemiologia , Natimorto/psicologia , Estudos de Coortes , Transtornos Mentais/epidemiologia , Psicotrópicos/uso terapêutico , Recém-Nascido , Recém-Nascido Pequeno para a Idade Gestacional , Sistema de Registros , Aborto Espontâneo/epidemiologia , Aborto Induzido/estatística & dados numéricos , Aborto Induzido/psicologia
10.
Women Birth ; 37(4): 101604, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38640744

RESUMO

BACKGROUND: First Nations Peoples endure disproportionate rates of stillbirth compared with non-First Nations Peoples. Previous interventions have aimed at reducing stillbirth in First Nations Peoples and providing better bereavement care without necessarily understanding the perceptions, knowledge and beliefs that could influence the design of the intervention and implementation. AIM: The aim of this review was to understand the perceptions, knowledge and beliefs about stillbirth prevention and bereavement of First Nations Peoples from the US, Canada, Aotearoa/New Zealand, and Australia. METHODS: This review was conducted in accordance with the JBI methodology for a convergent integrated mixed method systematic review. This review was overseen by an advisory board of Aboriginal Elders, researchers, and clinicians. A search of eight databases (PubMed, MEDLINE, PsycInfo, CINAHL, Embase, Emcare, Dissertations and Theses and Indigenous Health InfoNet) and grey literature was conducted. All studies were screened, extracted, and appraised for quality by two reviewers and results were categorised, and narratively summarised. RESULTS: Ten studies were included within this review. Their findings were summarised into four categories: safeguarding baby, traditional practices of birthing and grieving, bereavement photography and post-mortem examination. The results indicate a diversity of perceptions, knowledge and beliefs primarily around smoking cessation and bereavement practices after stillbirth. However, there was a paucity of research available. CONCLUSIONS: Further research is needed to understand the perceptions, knowledge and beliefs about stillbirth among First Nations Peoples. Without research within this area, interventions to prevent stillbirth and support bereaved parents and their communities after stillbirth may face barriers to implementation.


Assuntos
Luto , Conhecimentos, Atitudes e Prática em Saúde , Povos Indígenas , Natimorto , Feminino , Humanos , Gravidez , Austrália , Canadá , Povos Indígenas/psicologia , Nova Zelândia , Natimorto/psicologia , Natimorto/etnologia , Estados Unidos
11.
Kobe J Med Sci ; 70(1): E1-E14, 2024 Feb 08.
Artigo em Inglês | MEDLINE | ID: mdl-38462460

RESUMO

PROBLEM: Miscarriage and stillbirth can severely impact maternal mental well-being. BACKGROUND: In Japan, local municipalities must prepare systems to provide mental and social-spiritual support to women after miscarriage or stillbirth. OBJECTIVE: To elucidate what spiritually supports the mental health of women who have experienced miscarriages and stillbirths. METHODS: This analysis included 25 women who had experienced miscarriage or stillbirth at least one month previously and participated in self-help group meetings at least twice. Data were collected from March 2020 to March 2021 using two narrative interviews and questionnaires. FINDINGS: The mothers led their lives "together" with their children. They derived spiritual support from others, such as "the presence of someone who is living now after having experienced anguish" and "others who acknowledge the presence of my child and me as a mother. " Further elements of the support included "resigning myself to face my grief" and "strong links to deceased children. " While facing their grief by accepting that this anguish cannot be replaced [with anything else] and resigning themselves to reality, their bond to their child is strengthened. CONCLUSION: What women perceive as support after a miscarriage or stillbirth will be an important clue to care.


Assuntos
Aborto Espontâneo , Natimorto , Gravidez , Criança , Humanos , Feminino , Natimorto/psicologia , Aborto Espontâneo/psicologia , Saúde Mental , Japão , Mães/psicologia
12.
Am J Hosp Palliat Care ; 41(12): 1511-1516, 2024 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-38242843

RESUMO

Narrative care for families suffering from perinatal loss is rarely provided by medical institutions in China Mainland. However, with the advancement of the Chinese narrative medicine theory and practice, the clinical significance of narrative care has been increasingly recognized. Based on the principles of Chinese narrative medicine, this narrative case study described traumatic narrative foreclosures occuring in a family suffering from stillbirth, and highlighted the multidisciplinary collaboration for practising narrative care in the process of supporting the bereaved in our hospital. Meanwhile, we advocate the establishment of a narrative care ecology by training more obsteticians and nurses with good narrative competence in purpose of helping the family experiencing perinatal losses to overcome their tramatic narrative foreclosures, increasing the chances of another successful pregnancy and childbirth as well as enhancing their quality of life.


Assuntos
Pesar , Terapia Narrativa , Cuidados Paliativos , Natimorto , Humanos , Natimorto/psicologia , Cuidados Paliativos/organização & administração , Cuidados Paliativos/psicologia , Cuidados Paliativos/métodos , Feminino , Terapia Narrativa/métodos , Adulto , China , Gravidez , Qualidade de Vida , Assistência Perinatal/organização & administração , Assistência Perinatal/métodos
13.
BMJ Open ; 14(1): e082835, 2024 01 18.
Artigo em Inglês | MEDLINE | ID: mdl-38238057

RESUMO

INTRODUCTION: In the UK, 1600 babies die every year before, during or immediately after birth at 20-28 weeks' gestation. This bereavement has a similar impact on parental physical and psychological well-being to late stillbirth (>28 weeks' gestation). Improved understanding of potentially modifiable risk factors for late stillbirth (including supine going-to-sleep position) has influenced international clinical practice. Information is now urgently required to similarly inform clinical practice and aid decision-making by expectant mothers/parents, addressing inequalities in pregnancy loss between 20 and 28 weeks. METHODS AND ANALYSIS: This study focuses on what portion of risk of pregnancy loss 20-28 weeks' gestation is associated with exposures amenable to public health campaigns/antenatal care adaptation. A case-control study of non-anomalous singleton baby loss (via miscarriage, stillbirth or early neonatal death) 20+0 to 27+6 (n=316) and randomly selected control pregnancies (2:1 ratio; n=632) at group-matched gestations will be conducted. Data is collected via participant recall (researcher-administered questionnaire) and extraction from contemporaneous medical records. Unadjusted/confounder-adjusted ORs will be calculated. Exposures associated with early stillbirth at OR≥1.5 will be detectable (p<0.05, ß>0.80) assuming exposure prevalence of 30%-60%. ETHICS AND DISSEMINATION: NHS research ethical approval has been obtained from the London-Seasonal research ethics committee (23/LO/0622). The results will be presented at international conferences and published in peer-reviewed open-access journals. Information from this study will enable development of antenatal care and education for healthcare professionals and pregnant people to reduce risk of early stillbirth. TRIAL REGISTRATION NUMBER: NCT06005272.


Assuntos
Aborto Espontâneo , Natimorto , Recém-Nascido , Humanos , Feminino , Gravidez , Natimorto/epidemiologia , Natimorto/psicologia , Estudos de Casos e Controles , Mães , Cuidado Pré-Natal , Inquéritos e Questionários
14.
BJOG ; 131(8): 1120-1128, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38221506

RESUMO

OBJECTIVE: To examine which met and unmet needs are discussed in stillbirth stories shared on YouTube with the aim to improve obstetric care. DESIGN: Inductive thematic analysis of 19 English-language stillbirth stories uploaded to YouTube. SETTING: Online setting, YouTube video content. SAMPLE: Women who experienced stillbirth and shared a video on YouTube talking about their experience. METHODS: We conducted a thorough textual reading of the transcripts following Braun and Clarke's guidelines for thematic analysis. MAIN OUTCOME MEASURES: Codes were developed and grouped into themes. RESULTS: Although some women actively used their birth videos to call out shortcomings in their care, most others used their platform for other purposes such as destigmatisation, awareness and support, and rather unintentionally provided insight into their met and unmet needs. When analysing their birth stories, three major themes emerged: choice and decision-making, education and information, and behaviour of healthcare providers. CONCLUSIONS: This study demonstrates the value of birth stories in research. We identified three major opportunities for improvement of obstetric care: being provided with options and being able to make choices in the decision-making process are clearly valued, but there are some caveats: women and other childbearing individuals need timely and continuous information, and more attention is needed for emotional intelligence training of healthcare providers.


Assuntos
Natimorto , Humanos , Feminino , Natimorto/psicologia , Gravidez , Adulto , Tomada de Decisões , Mídias Sociais , Educação de Pacientes como Assunto , Melhoria de Qualidade , Gravação em Vídeo , Pesquisa Qualitativa
15.
Matern Child Health J ; 28(6): 1103-1112, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38270716

RESUMO

OBJECTIVE: Responding to the National Institutes of Health Working Group's call for research on the psychological impact of stillbirth, we compared coping-related behaviors by outcome of an index birth (surviving live birth or perinatal loss - stillbirth or neonatal death) and, among individuals with loss, characterized coping strategies and their association with depressive symptoms 6-36 months postpartum. METHODS: We used data from the Stillbirth Collaborative Research Network follow-up study (2006-2008) of 285 individuals who experienced a stillbirth, 691 a livebirth, and 49 a neonatal death. We conducted a thematic analysis of coping strategies individuals recommended following their loss. We fit logistic regression models, accounting for sampling and inverse probability of follow-up weights to estimate associations between pregnancy outcomes and coping-related behaviors and, separately, coping strategies and probable depression (Edinburgh Postnatal Depression Scale > 12) for those with loss. RESULTS: Compared to those with a surviving live birth and adjusting for pre-pregnancy drinking and smoking, history of stillbirth, and age, individuals who experienced a loss were more likely to report increased drinking or smoking in the two months postpartum (adjusted OR: 2.7, 95% CI = 1.4-5.4). Those who smoked or drank more had greater odds of probable depression at 6 to 36 months postpartum (adjusted OR 6.4, 95% CI = 2.5-16.4). Among those with loss, recommended coping strategies commonly included communication, support groups, memorializing the loss, and spirituality. DISCUSSION: Access to a variety of evidence-based and culturally-appropriate positive coping strategies may help individuals experiencing perinatal loss avoid adverse health consequences.


Assuntos
Adaptação Psicológica , Depressão Pós-Parto , Nascido Vivo , Período Pós-Parto , Natimorto , Humanos , Feminino , Natimorto/psicologia , Natimorto/epidemiologia , Adulto , Gravidez , Período Pós-Parto/psicologia , Depressão Pós-Parto/psicologia , Depressão Pós-Parto/epidemiologia , Nascido Vivo/epidemiologia , Morte Perinatal , Recém-Nascido , Seguimentos
16.
Women Birth ; 37(2): 296-302, 2024 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-38242808

RESUMO

BACKGROUND: Previous research indicates disparities in the care of bereaved parents and siblings following a stillbirth in the family. The aim of this systematic review was to assess the effects of interventions aimed at reducing psychological distress among parents or siblings in high-income countries after experiencing a stillbirth. METHODS: The databases CINAHL, Medline, PsycInfo, Cochrane Library, and EMBASE were searched in August 2022. RESULTS: Four intervention studies from the United States (US), the United Kingdom (UK), Finland, and Australia, met the inclusion criteria. The interventions comprised a perinatal grief support team; a perinatal counselling service; a grief support program; and a support package including contacts with peer supporters and health care staff. No studies of interventions for siblings were found. The results could not be synthesised due to disparities in interventions and outcome measures. The risk of bias was assessed as high in all four studies and the certainty for all outcomes was rated as very low. CONCLUSION: More controlled trials with rigorous methods are needed to evaluate the effect of bereavement support interventions in parents and siblings after stillbirth. Future studies should include a core outcome set to make them more comparable. Most of the studies in this review were assessed to have an overall high risk of bias, mainly due to problems with missing outcome data; thus, future studies could specifically target this problem.


Assuntos
Pesar , Natimorto , Gravidez , Feminino , Humanos , Natimorto/psicologia , Países Desenvolvidos , Pais/psicologia , Aconselhamento/métodos
17.
Psychopathology ; 57(1): 45-52, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-37669632

RESUMO

The loss of pregnancy through miscarriage or stillbirth is typically an unexpected and highly distressing event for parents. While death in any form may be overwhelming to those bereaved, pregnancy and newborn loss are unique in several ways because they involve the added loss of parental identity and the idealized baby and family. In this study, the authors performed a narrative review of the literature regarding the phenomenon of grief following reproductive loss in bereaved parents, focusing on heteronormative mothers and fathers and on nontraditional families. One of the main highlighted aspects is the disenfranchisement of grief, which refers to a loss that is not or cannot be acknowledged, publicly mourned, or socially supported. This feeling is elicited by family, society, and healthcare providers. Although the literature has consistently documented the negative impact of this type of experience on parents and families, it is still largely unrecognized by healthcare providers. As most studies demonstrate, there are significant gaps in the psychosocial components of miscarriage and stillbirth care, including a lack of clarity in communication about the loss and subsequent steps, a lack of empathy, an invalidation of grief, and a failure to attend to emotional needs. Since healthcare providers are most often the first point of contact as they experience the loss, it is imperative to act so that patients' needs are more adequately met. To this purpose, the authors propose a set of measures aimed at improving the quality of care and support.


Assuntos
Aborto Espontâneo , Natimorto , Feminino , Lactente , Recém-Nascido , Gravidez , Humanos , Natimorto/psicologia , Aborto Espontâneo/psicologia , Pesar , Pais/psicologia , Mães/psicologia
18.
Death Stud ; 48(9): 975-987, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38145415

RESUMO

In this study, we describe continuing bonds and grief reactions and assess their association in 980 parents bereaved in pregnancy, at or shortly after birth. We found that most parents experienced continuing bonds. However, they differed by type of loss. Parents losing their child due to termination of pregnancy or miscarriage experienced bonds less frequently and had the least intense grief reaction. Parents losing their child postpartum experienced bonds most frequently and had the most intense grief reaction. Continuing bonds were associated with intensified grief in parents losing their child after termination or miscarriage, while this relationship was less obvious after stillbirth or postpartum death.


Assuntos
Pesar , Apego ao Objeto , Pais , Natimorto , Humanos , Feminino , Gravidez , Adulto , Natimorto/psicologia , Pais/psicologia , Masculino , Aborto Espontâneo/psicologia , Luto
19.
Semin Perinatol ; 48(1): 151872, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-38135622

RESUMO

Pregnancy after stillbirth is associated with increased risk of stillbirth and other adverse pregnancy outcomes including fetal growth restriction, preeclampsia, and preterm birth in subsequent pregnancies. In addition, pregnancy after stillbirth is associated with emotional and psychological challenges for women and their families. This manuscript summarizes information available to guide clinicians for how to manage a pregnancy after stillbirth by appreciating the nature of the increased risk in future pregnancies, and that these are not affected by interpregnancy interval. Qualitative studies have identified clinician behaviors that women find helpful during subsequent pregnancies after loss which can be implemented into practice. The role of peer support and need for professional input from the antenatal period through to after the birth of a live baby is discussed. Finally, areas for research are highlighted to develop care further for this group of women at increased risk of medical and psychological complications.


Assuntos
Pré-Eclâmpsia , Nascimento Prematuro , Feminino , Gravidez , Recém-Nascido , Humanos , Natimorto/epidemiologia , Natimorto/psicologia , Retardo do Crescimento Fetal , Emoções , Resultado da Gravidez
20.
Qual Health Res ; 33(14): 1262-1278, 2023 12.
Artigo em Inglês | MEDLINE | ID: mdl-37848195

RESUMO

Despite almost one-third of women suffering from the loss of a baby through miscarriage, stillbirth, or infant loss, it is surprising how little research examines how such loss affects the identity and stigmas experienced by these individuals. Through in-depth, semi-structured interviews with bereaved mothers (in particular, mothers who lost a baby during pregnancy or within one year after birth), this research sheds light on the bereaved mother's experiences after loss. Specifically, this research applies the identity-threat model of stigma to showcase the process of stigmatized loss. Based on our findings, we also introduce the process model of stigmatized loss that can apply to all types of stigmatized loss. Key themes emerged as we explored stigmatized loss discourses. These include situational cues that trigger stigma, identity-based responses that aim to preserve both a baby's and mother's identity, as well as nonvolitional and volitional responses that help restore control and reconstruct identity. Additionally, other themes revolve around positive and negative outcomes stemming from avoiding stigmatized identity activation and identification of triggers that initiate a recursive process through stigmatized baby loss. Importantly, stigma can be perceived as both an identity threat (negative) and an identity confirmation (positive). Findings inform theory and practice alike.


Assuntos
Aborto Espontâneo , Mães , Natimorto , Feminino , Humanos , Lactente , Gravidez , Aborto Espontâneo/psicologia , Mães/psicologia , Estigma Social , Natimorto/psicologia
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