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1.
Pediatrics ; 145(5)2020 05.
Artigo em Inglês | MEDLINE | ID: mdl-32241824

RESUMO

Multiple births are increasing in frequency related to advanced maternal age and fertility treatments, and they have an increased risk for congenital anomalies compared to singleton births. However, twins have the same congenital anomalies <15% of the time. Thus, having multiple births with discordant anomalies is a growing challenge for neonatologists. Although external anomalies can often be spotted quickly at delivery or sex differences between multiples can rapidly identify those with internal anomalies described on prenatal ultrasound, we present a case of male multiples, who would optimally receive different initial resuscitation strategies on the basis of the presence or absence of an internal anomaly. The similar size of 4 extremely preterm quadruplets raises concern for whether accurate, immediate identification of 1 neonate with a congenital diaphragmatic hernia will be reliable in the delivery room. Clinicians discuss the ethical considerations of an "all for one" approach to this resuscitation.


Assuntos
Cesárea/ética , Salas de Parto/ética , Ruptura Prematura de Membranas Fetais/diagnóstico , Ruptura Prematura de Membranas Fetais/terapia , Lactente Extremamente Prematuro , Gravidez de Quadrigêmeos , Cesárea/métodos , Parto Obstétrico/ética , Parto Obstétrico/métodos , Feminino , Humanos , Lactente Extremamente Prematuro/fisiologia , Recém-Nascido , Intubação Intratraqueal/ética , Intubação Intratraqueal/métodos , Gravidez , Gravidez de Quadrigêmeos/fisiologia
2.
Arch Dis Child Fetal Neonatal Ed ; 105(3): 310-315, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31427459

RESUMO

OBJECTIVE: To gain insight into neonatal care providers' perceptions of deferred consent for delivery room (DR) studies in actual scenarios. METHODS: We conducted semistructured interviews with 46 neonatal intensive care unit (NICU) staff members of the Leiden University Medical Center (the Netherlands) and the Hospital of the University of Pennsylvania (USA). At the time interviews were conducted, both NICUs conducted the same DR studies, but differed in their consent approaches. Interviews were audio-recorded, transcribed and analysed using the qualitative data analysis software Atlas.ti V.7.0. RESULTS: Although providers reported to regard the prospective consent approach as the most preferable consent approach, they acknowledged that a deferred consent approach is needed for high-quality DR management. However, providers reported concerns about parental autonomy, approaching parents for consent and ethical review of study protocols that include a deferred consent approach. Providers furthermore differed in perceived appropriateness of a deferred consent approach for the studies that were being conducted at their NICUs. Providers with first-hand experience with deferred consent reported positive experiences that they attributed to appropriate communication and timing of approaching parents for consent. CONCLUSION: Insight into providers' perceptions of deferred consent for DR studies in actual scenarios suggests that a deferred consent approach is considered acceptable, but that actual usage of the approach for DR studies can be improved on.


Assuntos
Atitude do Pessoal de Saúde , Estudos Clínicos como Assunto/ética , Salas de Parto/ética , Consentimento Livre e Esclarecido/ética , Unidades de Terapia Intensiva Neonatal/ética , Adulto , Idoso , Estudos Clínicos como Assunto/métodos , Estudos Clínicos como Assunto/psicologia , Salas de Parto/normas , Feminino , Humanos , Consentimento Livre e Esclarecido/psicologia , Consentimento Livre e Esclarecido/normas , Unidades de Terapia Intensiva Neonatal/normas , Masculino , Pessoa de Meia-Idade , Países Baixos , Pais , Estudos Prospectivos , Pesquisa Qualitativa
3.
Nurs Ethics ; 27(1): 116-126, 2020 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-31046562

RESUMO

INTRODUCTION: Dignified care is one of the moral responsibilities of professional caregivers. However, in many cases the dignity of hospitalized patients, especially women in the delivery room, is not maintained. Dignity is an abstract concept and there has been no previous research exploring the dignity of pregnant women in the delivery room in Iran. OBJECTIVES: The objective of this study is to define and explain the concept of dignity for pregnant women in the delivery room from the perspectives of professional caregivers. RESEARCH DESIGN: This is qualitative research. The data were collected through in-depth semi-structured individual interviews. The conventional content analysis method was used to analyze the data. In qualitative content analysis, participant narrative is examined in-depth and sorted into categories and themes. PARTICIPANTS AND RESEARCH CONTEXT: Potential participants who met the entrance criteria for this study were approached between July 2016 and February 2017. In all, 20 professional caregivers working in the delivery room setting within Iranian general hospitals were invited to participate in the study. The sampling was done through targeted sampling until saturation was achieved. ETHICAL CONSIDERATIONS: The research ethics committee of the Shiraz University of Medical Sciences has approved the study's protocol and all commonly recognized ethical principles were followed throughout the study. FINDINGS: The findings of this study were presented in three main themes, including "privacy," "respecting patients' preferences," and "comprehensive attention" and eight categories. DISCUSSIONS AND CONCLUSION: Women in the delivery room need to be taken care of in an environment where healthcare staff promote the preservation of dignity through maintaining privacy, by providing attentive care and through ensuring that patient preferences regarding care and treatment are respected. In such an environment, the dignity of these women would be maintained and desirable outcomes achieved.


Assuntos
Atitude do Pessoal de Saúde , Cuidadores/psicologia , Salas de Parto/ética , Trabalho de Parto , Gestantes , Respeito , Adulto , Atenção , Feminino , Humanos , Irã (Geográfico)/epidemiologia , Preferência do Paciente , Gravidez , Privacidade , Pesquisa Qualitativa
4.
Semin Fetal Neonatal Med ; 24(6): 101029, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31606328

RESUMO

There is very little law-either case law or statutory law - that regulates delivery room decisions about resuscitation of critically ill newborns. Most of the case law that exists is decades old. Thus, physicians cannot look to the law for much guidance about what is permissible or prohibited. Local hospital policies and professional society statements provide some guidance, but they cannot be all-inclusive and encompass all potentially encountered scenarios. Ultimately, the physician, the medical team, and the parents must try to reach a shared decision about the best course of action for each individual infant and each unique family. In this paper, we review some of the case law that may be applicable to such decisions and make recommendations about how decisions should be made.


Assuntos
Estado Terminal , Salas de Parto , Parto Obstétrico , Doenças do Recém-Nascido , Relações Médico-Paciente/ética , Ressuscitação , Adulto , Estado Terminal/psicologia , Estado Terminal/terapia , Tomada de Decisão Compartilhada , Salas de Parto/ética , Salas de Parto/legislação & jurisprudência , Salas de Parto/organização & administração , Parto Obstétrico/ética , Parto Obstétrico/legislação & jurisprudência , Parto Obstétrico/psicologia , Emergências/psicologia , Feminino , Humanos , Recém-Nascido , Doenças do Recém-Nascido/psicologia , Doenças do Recém-Nascido/terapia , Responsabilidade Legal , Complicações do Trabalho de Parto/terapia , Gravidez , Ressuscitação/ética , Ressuscitação/psicologia
5.
Semin Fetal Neonatal Med ; 19(5): 290-5, 2014 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25153263

RESUMO

For more than half a century neonatologists and ethicists alike have struggled with ethical dilemmas surrounding infants born at the limits of viability. Both doctors and parents face difficult decisions. Do we try to save these babies, knowing that such efforts are likely to be unsuccessful? Or do we provide only comfort care, knowing that, in doing so, you will inevitably allow some babies to die who might have been saved? In this paper, we review the outcome data on these babies and offer ten suggestions for doctors: (1) accept that there is a 'gray zone' during which decisions are not black and white; (2) do not place too much emphasis on gestational age; (3) dying is generally not in an infant's best interest; (4) impairment does not necessarily equal poor quality of life; (5) just because the train has left the station doesn't mean you can't get off; (6) respect powerful emotions; (7) be aware of the self-fulfilling prophecies; (8) time lag likely skews all outcome data; (9) statistics can be both confused and confusing; (10) never abandon parents.


Assuntos
Tomada de Decisões/ética , Salas de Parto/ética , Parto Obstétrico/ética , Ética Médica , Suspensão de Tratamento/ética , Idade Gestacional , Humanos , Lactente Extremamente Prematuro , Recém-Nascido , Qualidade de Vida
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