Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 20 de 157
Filtrar
1.
Med Care ; 62(6): 423-430, 2024 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-38728681

RESUMO

OBJECTIVE: Fragmented readmissions, when admission and readmission occur at different hospitals, are associated with increased charges compared with nonfragmented readmissions. We assessed if hospital participation in health information exchange (HIE) was associated with differences in total charges in fragmented readmissions. DATA SOURCE: Medicare Fee-for-Service Data, 2018. STUDY DESIGN: We used generalized linear models with hospital referral region and readmission month fixed effects to assess relationships between information sharing (same HIE, different HIEs, and no HIE available) and total charges of 30-day readmissions among fragmented readmissions; analyses were adjusted for patient-level clinical/demographic characteristics and hospital-level characteristics. DATA EXTRACTION METHODS: We included beneficiaries with a hospitalization for acute myocardial infarction, congestive heart failure, chronic obstructive pulmonary disease, syncope, urinary tract infection, dehydration, or behavioral issues with a 30-day readmission for any reason. PRINCIPAL FINDINGS: In all, 279,729 admission-readmission pairs were included, 27% of which were fragmented (n=75,438); average charges of fragmented readmissions were $64,897-$71,606. Compared with fragmented readmissions where no HIE was available, the average marginal effects of same-HIE and different-HIE admission-readmission pairs were -$2329.55 (95% CI: -7333.73, 2674.62) and -$3905.20 (95% CI: -7592.85, -307.54), respectively. While the average marginal effects of different-HIE pairs were lower than those for no-HIE fragmented readmissions, the average marginal effects of same-HIE and different-HIE pairs were not significantly different from each other. CONCLUSIONS: There were no statistical differences in charges between fragmented readmissions to hospitals that share an HIE or that do not share an HIE compared with hospitals with no HIE available.


Assuntos
Troca de Informação em Saúde , Medicare , Readmissão do Paciente , Readmissão do Paciente/estatística & dados numéricos , Humanos , Estados Unidos , Medicare/estatística & dados numéricos , Medicare/economia , Masculino , Feminino , Idoso , Troca de Informação em Saúde/estatística & dados numéricos , Idoso de 80 Anos ou mais , Planos de Pagamento por Serviço Prestado/estatística & dados numéricos
2.
J Neurooncol ; 168(2): 345-353, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38662150

RESUMO

PURPOSE: There is limited literature describing care coordination for patients with glioblastoma (GBM). We aimed to investigate the impact of primary care and electronic health information exchange (HIE) between neurosurgeons, oncologists, and primary care providers (PCP) on GBM treatment patterns, postoperative outcomes, and survival. METHODS: We identified adult GBM patients undergoing primary resection at our institution (2007-2020). HIE was defined as shared electronic medical information between PCPs, oncologists, and neurosurgeons. Multivariate logistic regression analyses were used to determine the effect of PCPs and HIE upon initiation and completion of adjuvant therapy. Kaplan-Meier and multivariate Cox regression models were used to evaluate overall survival (OS). RESULTS: Among 374 patients (mean age ± SD: 57.7 ± 13.5, 39.0% female), 81.0% had a PCP and 62.4% had electronic HIE. In multivariate analyses, having a PCP was associated with initiation (OR: 7.9, P < 0.001) and completion (OR: 4.4, P < 0.001) of 6 weeks of concomitant chemoradiation, as well as initiation (OR: 4.0, P < 0.001) and completion (OR: 3.0, P = 0.007) of 6 cycles of maintenance temozolomide thereafter. Having a PCP (median OS [95%CI]: 14.6[13.1-16.1] vs. 10.8[8.2-13.3] months, P = 0.005) and HIE (15.40[12.82-17.98] vs. 13.80[12.51-15.09] months, P = 0.029) were associated with improved OS relative to counterparts in Kaplan-Meier analysis and in multivariate Cox regression analysis (hazard ratio [HR] = 0.7, [95% CI] 0.5-1.0, P = 0.048). In multivariate analyses, chemoradiation (HR = 0.34, [95% CI] 0.2-0.7, P = 0.002) and maintenance temozolomide (HR = 0.5, 95%CI 0.3-0.8, P = 0.002) were associated with improved OS relative to counterparts. CONCLUSION: Effective care coordination between neurosurgeons, oncologists, and PCPs may offer a modifiable avenue to improve GBM outcomes.


Assuntos
Neoplasias Encefálicas , Glioblastoma , Troca de Informação em Saúde , Atenção Primária à Saúde , Humanos , Feminino , Glioblastoma/terapia , Glioblastoma/mortalidade , Masculino , Pessoa de Meia-Idade , Neoplasias Encefálicas/terapia , Neoplasias Encefálicas/mortalidade , Atenção Primária à Saúde/estatística & dados numéricos , Troca de Informação em Saúde/estatística & dados numéricos , Estudos Retrospectivos , Idoso , Adulto , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Taxa de Sobrevida , Seguimentos , Prognóstico , Resultado do Tratamento
3.
Int J Popul Data Sci ; 8(1): 1771, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37636832

RESUMO

Introduction: The Patient Master Index (PMI) plays an important role in management of patient information and epidemiological research, and the availability of unique patient identifiers improves the accuracy when linking patient records across disparate datasets. In our environment, however, a unique identifier is seldom present in all datasets containing patient information. Quasi identifiers are used to attempt to link patient records but sometimes present higher risk of over-linking. Data quality and completeness thus affect the ability to make correct linkages. Aim: This paper describes the record linkage system that is currently implemented at the Provincial Health Data Centre (PHDC) in the Western Cape, South Africa, and assesses its output to date. Methods: We apply a stepwise deterministic record linkage approach to link patient data that are routinely collected from health information systems in the Western Cape province of South Africa. Variables used in the linkage process include South African National Identity number (RSA ID), date of birth, year of birth, month of birth, day of birth, residential address and contact information. Descriptive analyses are used to estimate the level and extent of duplication in the provincial PMI. Results: The percentage of duplicates in the provincial PMI lies between 10% and 20%. Duplicates mainly arise from spelling errors, and surname and first names carry most of the errors, with the first names and surname being different for the same individual in approximately 22% of duplicates. The RSA ID is the variable mostly affected by poor completeness with less than 30% of the records having an RSA ID.The current linkage algorithm requires refinement as it makes use of algorithms that have been developed and validated on anglicised names which might not work well for local names. Linkage is also affected by data quality-related issues that are associated with the routine nature of the data which often make it difficult to validate and enforce integrity at the point of data capture.


Assuntos
Troca de Informação em Saúde , Dados de Saúde Coletados Rotineiramente , Humanos , Algoritmos , População Negra/estatística & dados numéricos , Confiabilidade dos Dados , Troca de Informação em Saúde/estatística & dados numéricos , África do Sul/epidemiologia
4.
Med Care ; 60(2): 140-148, 2022 02 01.
Artigo em Inglês | MEDLINE | ID: mdl-35030563

RESUMO

BACKGROUND: Advanced use of health information technology (IT) functionalities can support more comprehensive, coordinated, and patient-centered primary care services. Safety net practices may benefit disproportionately from these investments, but it is unclear whether IT use in these settings has kept pace and what organizational factors are associated with varying use of these features. OBJECTIVE: The aim was to estimate advanced use of health IT use in safety net versus nonsafety net primary care practices. We explore domains of patient engagement, population health management (decision support and registries), and electronic information exchange. We examine organizational characteristics that may differentially predict advanced use of IT across these settings, with a focus on health system ownership and/or membership in an independent practice network as key factors that may indicate available incentives and resources to support these efforts. RESEARCH DESIGN: We conduct cross-sectional analysis of a national survey of physician practices (n=1776). We use logistic regression to predict advanced IT use in each of our domains based on safety net status and other organizational characteristics. We then use interaction models to assess whether ownership or network membership moderate the relationship between safety net status and advanced use of health IT. RESULTS: Health IT use was common across primary care practices, but advanced use of health IT functionalities ranged only from 30% to 50% use. Safety net settings have kept pace with adoption of features for patient engagement and population management, yet lag in information exchange capabilities compared with nonsafety net practices (odds ratio=0.52 for federally qualified health centers, P<0.001; odds ratio=0.66 for other safety net, P=0.03). However, when safety net practices are members of a health system or practice network, health IT capabilities are comparable to nonsafety net sites. CONCLUSIONS: All outpatient settings would benefit from improved electronic health record usability and implementation support that facilitates advanced use of health IT. Safety net practices, particularly those without other sources of centralized support, need targeted resources to maintain equitable access to information exchange capabilities.


Assuntos
Troca de Informação em Saúde/estatística & dados numéricos , Propriedade/estatística & dados numéricos , Atenção Primária à Saúde/estatística & dados numéricos , Estudos Transversais , Sistemas de Apoio a Decisões Clínicas , Humanos , Modelos Logísticos , Participação do Paciente , Atenção Primária à Saúde/organização & administração , Características de Residência , Provedores de Redes de Segurança/organização & administração , Provedores de Redes de Segurança/estatística & dados numéricos
5.
PLoS One ; 16(6): e0247235, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34081724

RESUMO

Understanding sociodemographic, behavioral, clinical, and laboratory risk factors in patients diagnosed with COVID-19 is critically important, and requires building large and diverse COVID-19 cohorts with both retrospective information and prospective follow-up. A large Health Information Exchange (HIE) in Southeast Texas, which assembles and shares electronic health information among providers to facilitate patient care, was leveraged to identify COVID-19 patients, create a cohort, and identify risk factors for both favorable and unfavorable outcomes. The initial sample consists of 8,874 COVID-19 patients ascertained from the pandemic's onset to June 12th, 2020 and was created for the analyses shown here. We gathered demographic, lifestyle, laboratory, and clinical data from patient's encounters across the healthcare system. Tobacco use history was examined as a potential risk factor for COVID-19 fatality along with age, gender, race/ethnicity, body mass index (BMI), and number of comorbidities. Of the 8,874 patients included in the cohort, 475 died from COVID-19. Of the 5,356 patients who had information on history of tobacco use, over 26% were current or former tobacco users. Multivariable logistic regression showed that the odds of COVID-19 fatality increased among those who were older (odds ratio = 1.07, 95% CI 1.06, 1.08), male (1.91, 95% CI 1.58, 2.31), and had a history of tobacco use (2.45, 95% CI 1.93, 3.11). History of tobacco use remained significantly associated (1.65, 95% CI 1.27, 2.13) with COVID-19 fatality after adjusting for age, gender, and race/ethnicity. This effort demonstrates the impact of having an HIE to rapidly identify a cohort, aggregate sociodemographic, behavioral, clinical and laboratory data across disparate healthcare providers electronic health record (HER) systems, and follow the cohort over time. These HIE capabilities enable clinical specialists and epidemiologists to conduct outcomes analyses during the current COVID-19 pandemic and beyond. Tobacco use appears to be an important risk factor for COVID-19 related death.


Assuntos
COVID-19/mortalidade , Troca de Informação em Saúde/estatística & dados numéricos , Troca de Informação em Saúde/tendências , Fatores Etários , Estudos de Coortes , Comorbidade , Etnicidade , Disparidades em Assistência à Saúde , Hospitalização , Humanos , Pandemias , Estudos Prospectivos , Estudos Retrospectivos , Fatores de Risco , SARS-CoV-2/metabolismo , SARS-CoV-2/patogenicidade , Fatores Sexuais , Fumar , Texas
6.
J Biomed Inform ; 116: 103715, 2021 04.
Artigo em Inglês | MEDLINE | ID: mdl-33610878

RESUMO

Data quality is essential to the success of the most simple and the most complex analysis. In the context of the COVID-19 pandemic, large-scale data sharing across the US and around the world has played an important role in public health responses to the pandemic and has been crucial to understanding and predicting its likely course. In California, hospitals have been required to report a large volume of daily data related to COVID-19. In order to meet this need, electronic health records (EHRs) have played an important role, but the challenges of reporting high-quality data in real-time from EHR data sources have not been explored. We describe some of the challenges of utilizing EHR data for this purpose from the perspective of a large, integrated, mixed-payer health system in northern California, US. We emphasize some of the inadequacies inherent to EHR data using several specific examples, and explore the clinical-analytic gap that forms the basis for some of these inadequacies. We highlight the need for data and analytics to be incorporated into the early stages of clinical crisis planning in order to utilize EHR data to full advantage. We further propose that lessons learned from the COVID-19 pandemic can result in the formation of collaborative teams joining clinical operations, informatics, data analytics, and research, ultimately resulting in improved data quality to support effective crisis response.


Assuntos
COVID-19/epidemiologia , Registros Eletrônicos de Saúde , Pandemias , SARS-CoV-2 , COVID-19/mortalidade , COVID-19/terapia , California/epidemiologia , Confiabilidade dos Dados , Prestação Integrada de Cuidados de Saúde/estatística & dados numéricos , Registros Eletrônicos de Saúde/estatística & dados numéricos , Troca de Informação em Saúde/estatística & dados numéricos , Número de Leitos em Hospital/estatística & dados numéricos , Humanos , Disseminação de Informação/métodos , Informática Médica , Pandemias/estatística & dados numéricos
8.
J Am Med Inform Assoc ; 28(4): 727-732, 2021 03 18.
Artigo em Inglês | MEDLINE | ID: mdl-33410891

RESUMO

OBJECTIVE: Recent policy making aims to prevent health systems, lectronic health record (EHR) vendors, and others from blocking the electronic sharing of patient data necessary for clinical care. We sought to assess the prevalence of information blocking prior to enforcement of these rules. MATERIALS AND METHODS: We conducted a national survey of health information exchange organizations (HIEs) to measure the prevalence of information blocking behaviors observed by these third-party entities. Eighty-nine of 106 HIEs (84%) meeting the inclusion criteria responded. RESULTS: The majority (55%) of HIEs reported that EHR vendors at least sometimes engage in information blocking, while 30% of HIEs reported the same for health systems. The most common type of information blocking behavior EHR vendors engaged in was setting unreasonably high prices, which 42% of HIEs reported routinely observing. The most common type of information blocking behavior health systems engaged in was refusing to share information, which 14% of HIEs reported routinely observing. Reported levels of vendor information blocking was correlated with regional competition among vendors and information blocking was concentrated in some geographic regions. DISCUSSION: Our findings are consistent with early reports, revealing persistently high levels of information blocking and important variation by actor, type of behavior, and geography. These trends reflect the observations and experiences of HIEs and their potential biases. Nevertheless, these data serve as a baseline against which to measure the impact of new regulations and to inform policy makers about the most common types of information blocking behaviors. CONCLUSION: Enforcement aimed at reducing information blocking should consider variation in prevalence and how to most effectively target efforts.


Assuntos
Comércio/estatística & dados numéricos , Troca de Informação em Saúde/estatística & dados numéricos , Disseminação de Informação , Sistemas Computadorizados de Registros Médicos , Regulamentação Governamental , Troca de Informação em Saúde/legislação & jurisprudência , Interoperabilidade da Informação em Saúde/legislação & jurisprudência , Humanos , Disseminação de Informação/legislação & jurisprudência , Inquéritos e Questionários , Estados Unidos
9.
Perspect Med Educ ; 9(6): 333-342, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-33030643

RESUMO

INTRODUCTION: Wikipedia is an online encyclopedia read by millions seeking medical information. To provide health professions students with skills to critically assess, edit, and improve Wikipedia's medical content, a skillset aligned with evidence-based medicine (EBM), Wikipedia courses have been integrated into health professions schools' curriculum. This literature review and curricular inventory of Wikipedia educational initiatives provides an overview of current approaches and identifies directions for future initiatives and research. METHODS: Five databases were searched for articles describing educational interventions to train health professional students to edit Wikipedia. Course dashboards, maintained by Wiki Education (Wiki Edu), were searched for curricular materials. From these sources, key details were extracted and synthesized, including student and instructor type, course content, educational methods, and student outcomes. RESULTS: Six articles and 27 dashboards reported courses offered between 2015 and 2019. Courses were predominantly offered to medical and nursing students. Instructors delivered content via videos, live lectures, and online interactive modules. Course content included logistics of Wikipedia editing, EBM skills, and health literacy. All courses included assignments requiring students to edit Wikipedia independently or in groups. Limited details on assessment of student learning were available. DISCUSSION: A small but growing number of schools are training health professions education students to improve Wikipedia's medical content. Course details are available on Wiki Edu dashboards and, to a lesser extent, in peer-reviewed publications. While more needs to be done in conducting and sharing assessment of student learning, integrating Wikipedia into health professions education has potential to facilitate learning of EBM and communication skills, improve Wikipedia's online content, and engage students with an autonomous environment while learning. Future considerations should include a thorough assessment of student learning and practices, a final review of student edits to ensure they follow Wikipedia's guidelines and are written in clear language, and improved sharing of teaching resources by instructors.


Assuntos
Currículo/tendências , Troca de Informação em Saúde/normas , Pessoal de Saúde/educação , Disseminação de Informação/métodos , Informação de Saúde ao Consumidor/normas , Informação de Saúde ao Consumidor/estatística & dados numéricos , Troca de Informação em Saúde/estatística & dados numéricos , Pessoal de Saúde/tendências , Humanos
10.
Int J Med Inform ; 144: 104291, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-33049479

RESUMO

OBJECTIVE: The coronavirus pandemic has highlighted the need to simplify data collection for critically-ill patients, particularly for physicians relocated to the ICU setting. Herein we present a simple, reproducible, and highly-customizable manual-entry tool to track ICU patients using new HIPAA-compliant Google Big Query technology for parsing large datasets. This innovative flow chart is useful and could be modified to serve the particular needs of different sub-specialists, particularly those that either rely heavily on hand-written notes or experience poor electronic medical record (EMR) penetration. METHODS: The tool was developed using a combination of three Google Enterprise features: Google Forms for data input, Google Sheets for data output, and Google Big Query for data parsing. Code was written in SQL. Sheets functions were used to transpose and filter parsed data. White and black box tests were performed to examine functionality. RESULTS: Our tool was successfully able to collect and output fictional patient data across all 57 data points specified by the intensivists and surgeons of Cardiovascular Department of Mt. Sinai Morningside Hospital. CONCLUSION: The functional tests performed demonstrate use of the tool. Though originally conceived to simplify patient data collection for newly relocated physicians to the ICU, our tool also overcomes financial and technological barriers previously described in low-income countries that could dramatically improve patient care and provide data to power future studies in these regions. With the original code provided, implementers may adapt our tool to best meet the requirements of their clinical setting and protocols during this very challenging time.


Assuntos
Estado Terminal/terapia , Confiabilidade dos Dados , Gerenciamento de Dados/estatística & dados numéricos , Registros Eletrônicos de Saúde/estatística & dados numéricos , Troca de Informação em Saúde/estatística & dados numéricos , Unidades de Terapia Intensiva/estatística & dados numéricos , Assistência ao Paciente/normas , Médicos/estatística & dados numéricos , Atenção à Saúde/normas , Humanos
11.
PLoS One ; 15(9): e0238414, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32881933

RESUMO

In the face of the rapid evolution of the COVID-19 pandemic, healthcare professionals on the frontline are in urgent need of frequent updates in the accomplishment of their practice. Hence, clinicians started to search for prompt, valid information on sources that are parallel to academic journals. Aim of this work is to investigate the extent of this phenomenon. We administered an anonymous online cross-sectional survey to 645 Italian clinicians. Target of the survey were all medical figures potentially involved in the management of COVID-19 cases. 369 questionnaires were returned. 19.5% (n = 72) of respondents were younger than 30 years-old; 49,3% (n = 182) worked in Infectious Diseases, Internal Medicine or Respiratory Medicine departments, 11.5% (n = 42) in Intensive Care Unit and 7.4% (n = 27) were general practitioner. 70% (n = 261) of respondents reported that their use of social media to seek medical information increased during the pandemic. 39.3% (n = 145) consistently consulted Facebook groups and 53.1% (n = 196) Whatsapp chats. 47% (n = 174) of respondents reported that information shared on social media had a consistent impact on their daily practice. In the present study, we found no difference in social media usage between age groups or medical specialties. Given the urgent need for scientific update during the present pandemic, these findings may help understanding how clinicians access new evidences and implement them in their daily practice.


Assuntos
Infecções por Coronavirus/epidemiologia , Troca de Informação em Saúde/estatística & dados numéricos , Pessoal de Saúde/estatística & dados numéricos , Disseminação de Informação , Pneumonia Viral/epidemiologia , Mídias Sociais/estatística & dados numéricos , Adulto , Fatores Etários , Idoso , COVID-19 , Infecções por Coronavirus/psicologia , Difusão de Inovações , Feminino , Pessoal de Saúde/psicologia , Humanos , Itália , Masculino , Pessoa de Meia-Idade , Pandemias , Pneumonia Viral/psicologia
12.
J Infect Dis ; 222(Suppl 5): S437-S441, 2020 09 02.
Artigo em Inglês | MEDLINE | ID: mdl-32877542

RESUMO

BACKGROUND: Healthcare systems and public health agencies use different methods to measure the impact of substance use (SU) on population health. We studied the ability of systems to accurately capture data on drug use-associated infective endocarditis (DUA-IE). METHODS: We conducted a retrospective analysis of patients with IE discharge diagnosis from an academic medical center, 2011-2017, comparing data from hospital Electronic Health Record (EHR) to State Uniform Hospital Discharge Data Set (UHDDS). To identify SU we developed a composite measure. RESULTS: EHR identified 472 IE discharges (430 of these were captured in UHDDS); 406 (86.0%) were correctly coded based on chart review. IE discharges increased from 57 to 92 (62%) from 2012 to 2017. Hospitalizations for the subset of DUA-IE identified by any measure of SU increased from 10 to 54 (440%). Discharge diagnosis coding identified 128 (60.7%) of total DUA-IE hospitalizations. The composite measure identified an additional 65 (30.8%) DUA-IE hospitalizations and chart review an additional 18 (8.5%). CONCLUSIONS: The failure of discharge diagnosis coding to identify DUA-IE in 40% of hospitalizations demonstrates the need for better systems to capture the impact of SU. Collaborative data sharing could help improve surveillance responsiveness to address an emerging public health crises.


Assuntos
Centros Médicos Acadêmicos/estatística & dados numéricos , Endocardite/epidemiologia , Transtornos Relacionados ao Uso de Substâncias/complicações , United States Dept. of Health and Human Services/estatística & dados numéricos , Conjuntos de Dados como Assunto , Usuários de Drogas/estatística & dados numéricos , Registros Eletrônicos de Saúde/estatística & dados numéricos , Endocardite/etiologia , Endocardite/terapia , Feminino , Troca de Informação em Saúde/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , New Hampshire/epidemiologia , Sumários de Alta do Paciente Hospitalar/estatística & dados numéricos , Estudos Retrospectivos , Estados Unidos
14.
Psychol Aging ; 35(8): 1090-1104, 2020 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-32790456

RESUMO

Statistical learning (SL) is the ability to generate predictions based on probabilistic dependencies in the environment, an ability that is present throughout life. The effect of aging on SL is still unclear. Here, we explore statistical learning in healthy adults (40 younger and 40 older). The novel paradigm tracks learning trajectories and shows age-related differences in overall performance, yet similarities in learning rates. Bayesian models reveal further differences between younger and older adults in dealing with uncertainty in this probabilistic SL task. We test computational models of 3 different learning strategies: (a) Win-Stay, Lose-Shift, (b) Delta Rule Learning, (c) Information Weights to explore whether they capture age-related differences in performance and learning in the present task. A likely candidate mechanism emerges in the form of age-dependent differences in information weights, in which young adults more readily change their behavior, but also show disproportionally strong reactions toward erroneous predictions. With lower but more balanced information weights, older adults show slower behavioral adaptation but eventually arrive at more stable and accurate representations of the underlying transitional probability matrix. (PsycInfo Database Record (c) 2020 APA, all rights reserved).


Assuntos
Coleta de Dados/métodos , Troca de Informação em Saúde/estatística & dados numéricos , Adulto , Fatores Etários , Idoso , Envelhecimento , Feminino , Humanos , Masculino , Modelos Estatísticos , Adulto Jovem
15.
PLoS One ; 15(8): e0237392, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32804962

RESUMO

BACKGROUND: Birth defects surveillance in the United States is conducted principally by review of routine but lagged reporting to statewide congenital malformations registries of diagnoses by hospitals or other health care providers, a process that is not designed to rapidly detect changes in prevalence. Health information exchange (HIE) systems are well suited for rapid surveillance, but information is limited about their effectiveness at detecting birth defects. We evaluated HIE data to detect microcephaly diagnosed at birth during January 1, 2013-December 31, 2015 before known introduction of Zika virus in North America. METHODS: Data from an HIE system were queried for microcephaly diagnostic codes on day of birth or during the first two days after birth at three Bronx hospitals for births to New York City resident mothers. Suspected cases identified by HIE data were compared with microcephaly cases that had been identified through direct inquiry of hospital records and confirmed by chart abstraction in a previous study of the same cohort. RESULTS: Of 16,910 live births, 43 suspected microcephaly cases were identified through an HIE system compared to 67 confirmed cases that had been identified as part of the prior study. A total of 39 confirmed cases were found by both studies (sensitivity = 58.21%, 95% CI: 45.52-70.15%; positive predictive value = 90.70%, 95% CI: 77.86-97.41%; negative predictive value = 99.83%, 95% CI: 99.76-99.89% for HIE data). CONCLUSION: Despite limitations, HIE systems could be used for rapid newborn microcephaly surveillance, especially in the many jurisdictions where more labor-intensive approaches are not feasible. Future work is needed to improve electronic medical record documentation quality to improve sensitivity and reduce misclassification.


Assuntos
Troca de Informação em Saúde/estatística & dados numéricos , Microcefalia/epidemiologia , Hospitais/estatística & dados numéricos , Humanos , Cidade de Nova Iorque/epidemiologia
16.
J Evid Based Soc Work (2019) ; 17(3): 267-278, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32420837

RESUMO

Purpose: This article outlines the objective and structure of the Center for Youth Research and Practice (CYRP), its contributions toward youth research and practices, importance of the linkages that the CYRP has cultivated between research and practice, the facilitation of knowledge exchange with local and global institutions and professionals, and its role in future endeavors.Method: A social impact assessment has been implemented to address the intervention and the outcome based on the contributions of the CYRP to youth research and practices.Results: From this, the work of the CYRP on youth research and practices is concluded to have significant social impacts at the individual, social, organizational, and global levels. The work has found that the quality of life, self-esteem, involvement in society, empowerment through social capacity building, organizational development, and providing an international hub are crucial for youth development and wellbeing.Discussion: Hitherto, the CYRP has published over a hundred journal articles and held nearly 200 events including training courses, workshops, seminars and a conference. Over 6000 participants have taken part in these events and more than 60 institutions have collaborated with the CYRP to exchange knowledge on youth research and practices. The work of the CYRP as a whole has facilitated the participation of different individuals and organizations. In essence, the work of the CYRP has provided important grounds to initiate its role as an international hub as the CYRP is now considered as a center of significance in youth research and practices for Chinese societies in the East Asia region.


Assuntos
Desenvolvimento do Adolescente , Pesquisa Biomédica/organização & administração , Prática Clínica Baseada em Evidências/organização & administração , Troca de Informação em Saúde/estatística & dados numéricos , Avaliação de Resultados em Cuidados de Saúde , Mudança Social , Adolescente , Feminino , Humanos , Masculino , Projetos de Pesquisa , Adulto Jovem
17.
Support Care Cancer ; 28(12): 6011-6021, 2020 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-32296980

RESUMO

PURPOSE: Our objective was to evaluate health information seeking behaviors in yCRC (young onset colorectal cancer, diagnosed ≤ 50 years) and aCRC (average-age onset colorectal cancer, diagnosed ≥ 50 years). METHODS: We administered an international, Internet-based survey to ask individuals diagnosed with CRC how they seek health information, including sources sought and utilization behaviors. We also asked participants their preferences for digital technologies. RESULTS: In total 1125 individuals including 455 with yCRC (68.6% female) and 670 with aCRC (53.5% female) participated. There were similar frequencies of seeking among participants with yCRC and aCRC across all sources except for the Internet. Healthcare providers were the most frequently sought source with similar proportions of participants indicating their response as "always" (yCRC, 43.7% vs. aCRC, 43.2%, p = 0.91). We also observed differences in utilization behaviors with more participants with yCRC using the Internet first when seeking information (yCRC 31.6% vs. aCRC 24.3%, p < 0.05) and those with aCRC seeking healthcare providers first (aCRC 61.9% vs. yCRC 45.5%, p < 0.05). With respect to digital technologies, we found a higher proportion of yCRC participants owning smartphones and indicating use of apps related to health/wellness and cancer. CONCLUSION: Individuals with yCRC and aCRC similarly sought the same resources for health information on CRC. However, they differed with respect to utilization behaviors, particularly a greater reliance on digital technologies among individuals with yCRC. These have implications for informing age-specific resources and information to support patients.


Assuntos
Neoplasias Colorretais/psicologia , Troca de Informação em Saúde/estatística & dados numéricos , Comportamento de Busca de Informação , Adulto , Idoso , Idoso de 80 Anos ou mais , Neoplasias Colorretais/patologia , Estudos Transversais , Feminino , Humanos , Internet , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários , Adulto Jovem
18.
PLoS One ; 15(4): e0230947, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32287266

RESUMO

BACKGROUND: Although studies report that more than 90% of pregnant women utilize digital sources to supplement their maternal healthcare, little is known about the kinds of information that women seek from their peers during pregnancy. To date, most research has used self-report measures to elucidate how and why women to turn to digital sources during pregnancy. However, given that these measures may differ from actual utilization of online health information, it is important to analyze the online content pregnant women generate. OBJECTIVE: To apply machine learning methods to analyze online pregnancy forums, to better understand how women seek information from a community of online peers during pregnancy. METHODS: Data from seven WhatToExpect.com "birth club" forums (September 2018; January-June 2018) were scraped. Forum posts were collected for a one-year period, which included three trimesters and three months postpartum. Only initial posts from each thread were analyzed (n = 262,238). Automatic natural language processing (NLP) methods captured 50 discussed topics, which were annotated by two independent coders and grouped categorically. RESULTS: The largest topic categories were maternal health (45%), baby-related topics (29%), and people/relationships (10%). While pain was a popular topic all throughout pregnancy, individual topics that were dominant by trimester included miscarriage (first trimester), labor (third trimester), and baby sleeping routine (postpartum period). CONCLUSION: More than just emotional or peer support, pregnant women turn to online forums to discuss their health. Dominant topics, such as labor and miscarriage, suggest unmet informational needs in these domains. With misinformation becoming a growing public health concern, more attention must be directed toward peer-exchange outlets.


Assuntos
Troca de Informação em Saúde/estatística & dados numéricos , Internet/estatística & dados numéricos , Aborto Espontâneo , Emoções/fisiologia , Feminino , Humanos , Aprendizado de Máquina/estatística & dados numéricos , Saúde Materna/estatística & dados numéricos , Parto , Grupo Associado , Gravidez , Gestantes , Apoio Social
19.
BMC Med Inform Decis Mak ; 20(1): 44, 2020 02 28.
Artigo em Inglês | MEDLINE | ID: mdl-32111203

RESUMO

BACKGROUND: Laboratory testing occupies a prominent place in health care. Information technology systems have the potential to empower laboratory experts and to enhance the interpretation of test results in order to better support physicians in their quest for better and safer patient care. This study sought to develop a better understanding of which laboratory information exchange (LIE) systems and features specialist physicians are using in hospital settings to consult their patients' laboratory test results, and what benefit they derive from such use. METHODS: As part of a broader research program on the use of health information exchange systems for laboratory medicine in Quebec, Canada, this study was designed as on online survey. Our sample is composed of 566 specialist physicians working in hospital settings, out of the 1512 physicians who responded to the survey (response rate of 17%). Respondents are representative of the targeted population of specialist physicians in terms of gender, age and hospital location. RESULTS: We first observed that 80% of the surveyed physicians used the province-wide interoperable electronic health records (iEHR) system and 93% used a laboratory results viewer (LRV) to consult laboratory test results and most (72%) use both systems to retrieve lab results. Next, our findings reveal important differences in the capabilities available in each type of system and in the use of these capabilities. Third, there are differences in the nature of the perceived benefits obtained from the use of each of these two systems. Last, the extent of use of an LRV is strongly influenced by the IT artefact itself (i.e., the hospital's LRV available capabilities) while the use of the provincial iEHR system is influenced by its organizational context (i.e. the hospital's size and location). CONCLUSIONS: The main contribution of this study lies in its insights into the role played by context in shaping physicians' choices about which laboratory information exchange systems to adopt and which features to use, and the different perceptions they have about benefits arising from such use. One related implication for practice is that success of LIE initiatives should not be solely assessed with basic usage statistics.


Assuntos
Técnicas de Laboratório Clínico , Troca de Informação em Saúde/estatística & dados numéricos , Troca de Informação em Saúde/normas , Médicos/psicologia , Médicos/estatística & dados numéricos , Especialização , Feminino , Hospitais , Humanos , Internet , Masculino , Pessoa de Meia-Idade , Quebeque , Inquéritos e Questionários
20.
J Am Med Inform Assoc ; 27(4): 606-612, 2020 04 01.
Artigo em Inglês | MEDLINE | ID: mdl-32134449

RESUMO

OBJECTIVE: While there has been a substantial increase in health information exchange, levels of outside records use by frontline providers are low. We assessed whether integration between outside data and local data results in increased viewing of outside records, overall and by encounter, provider, and patient type. MATERIALS AND METHODS: Using data from UCSF Health, we measured change in outside record views after integrating the list of local (UCSF) and outside (other health systems on Epic [Epic Systems, Verona, WI]) encounters on the Chart Review tab. Previously, providers only viewed records from outside encounters on a separate tab. We used an interrupted time series design (with outside record viewing event counts aggregated to the week level) to measure changes in the level and trend over a 1-year period. RESULTS: There was a large increase in the level of outside record views of 22 920 per week (P < .001). The change in trend went from a weekly increase of 116 (P < .05) to a decrease of 402 (P = .08), reflecting a small effect decay. There were increases in the level of views for all provider and encounter types: attendings (n = 3675), residents (n = 3277), and nurses (n = 914); and inpatient (n = 1676), emergency (n = 487), and outpatient (n = 7228) (P < .001 for all). Results persisted when adjusted for total encounter volume. DISCUSSION: While outside records were readily available before the encounter integration, the simple step of clicking on a separate tab appears to have depressed use. CONCLUSIONS: User interface designs that comingle local and outside data result in higher levels of viewing and should be more broadly pursued.


Assuntos
Registros Eletrônicos de Saúde , Troca de Informação em Saúde/estatística & dados numéricos , Interoperabilidade da Informação em Saúde , Interface Usuário-Computador , Centros Médicos Acadêmicos , Adulto , Conjuntos de Dados como Assunto , Prestação Integrada de Cuidados de Saúde , Feminino , Humanos , Análise de Séries Temporais Interrompida , Masculino , Pessoa de Meia-Idade , São Francisco , Integração de Sistemas
SELEÇÃO DE REFERÊNCIAS
DETALHE DA PESQUISA