Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations.
Hum Mol Genet
; 15 Spec No 1: R45-9, 2006 Apr 15.
Article
em En
| MEDLINE
| ID: mdl-16651368
ABSTRACT
Advances and declining costs in sequencing technology will result in increasing number of studies with individual sequence data linked to phenotypic information, which has been dubbed medical sequencing. At least some of this linked information will be publicly available. Medical sequencing raises ethical issues for both individuals and populations, including data release and identifiability, adequacy of consent, reporting research results, stereotyping and stigmatization, inclusion and differential benefit and culturally and community-specific concerns. Those issues are reviewed, along with possible solutions to them.
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Base de dados:
MEDLINE
Assunto principal:
Análise de Sequência de DNA
/
Pesquisa em Genética
Idioma:
En
Ano de publicação:
2006
Tipo de documento:
Article