Patient and caregiver perceptions of the social impact of advanced Parkinson's disease and dyskinesias.
J Neural Transm (Vienna)
; 119(11): 1367-71, 2012 Nov.
Article
em En
| MEDLINE
| ID: mdl-22437202
ABSTRACT
Parkinson's disease (PD) exacts a physical and emotional toll on both patients and family. The aim of this study was to compare patient and caregiver perceptions of the social consequences of basic symptoms of PD and levodopa-induced dyskinesias. Forty patients with PD and dyskinesias and 35 of their caregivers completed a self-report questionnaire on the impact of PD and dyskinesias on their feelings of security and embarrassment and participation in family/social events, and indicated their preference for the "on" (with dyskinesias) or the "off" (without dyskinesias) state. The patients scored significantly higher than the caregivers did on the negative social impact of the disease in general (p = 0.002) and of the dyskinesias in particular (p = 0.03). Nevertheless, the patients expressed a significantly greater preference for the "on" state (83 %) than the caregivers (59 %) (p = 0.03). Preferences turned to be reverse in direction among spouse-caregivers who significantly preferred the "off" state (54 %) than the patients (25 %) (p = 0.04). Although patients have a worse perception of the effects of PD than their caregivers do, they prefer the more independent "on" state, whereas their caregivers prefer the "off" state.
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Base de dados:
MEDLINE
Assunto principal:
Doença de Parkinson
/
Mudança Social
/
Percepção Social
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Cuidadores
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Discinesia Induzida por Medicamentos
Idioma:
En
Ano de publicação:
2012
Tipo de documento:
Article