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Michael J. Fox Foundation LRRK2 Consortium: geographical differences in returning genetic research data to study participants.
Alcalay, Roy N; Aasly, Jan; Berg, Daniela; Bressman, Susan; Brice, Alexis; Brockmann, Kathrin; Chan, Piu; Clark, Lorraine; Cormier, Florence; Corvol, Jean-Christophe; Durr, Alexandra; Facheris, Maurizio; Farrer, Matthew; Foroud, Tatiana M; Gasser, Thomas; Giladi, Nir; Halter, Cheryl; Lang, Anthony; Langston, J William; Marras, Connie; Marti-Masso, Jose-Felix; Ruiz Martinez, Javier; Mejia-Santana, Helen; Mirelman, Anat; Pont-Sunyer, Claustre; Orr-Urtreger, Avi; Raymond, Deborah; Saunders-Pullman, Rachel; Schüle, Birgitt; Tanner, Caroline; Tolosa, Eduardo; Urkowitz, Alison; Vilas, Dolores; Wise, Adina; Marder, Karen.
Afiliação
  • Alcalay RN; Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, New York, USA.
  • Aasly J; Department of Neurology, St Olavs University Hospital, Trondheim, Norway.
  • Berg D; Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany.
  • Bressman S; Department of Neurology, Beth Israel Medical Center and St. Luke's and Roosevelt Hospitals, Mount Sinai School of Medicine, New York, New York, USA.
  • Brice A; Centre de Recherche de l'Institut du Cerveau et de la Moelle Épinière, INSERM U1127, Paris, France.
  • Brockmann K; Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany.
  • Chan P; Department of Neurology and Neurobiology, Xuanwu Hospital Capital Medical University, Beijing, China.
  • Clark L; Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, New York, USA.
  • Cormier F; Centre de Recherche de l'Institut du Cerveau et de la Moelle Épinière, INSERM U1127, Paris, France.
  • Corvol JC; Centre de Recherche de l'Institut du Cerveau et de la Moelle Épinière, INSERM U1127, Paris, France.
  • Durr A; Centre de Recherche de l'Institut du Cerveau et de la Moelle Épinière, INSERM U1127, Paris, France.
  • Facheris M; The Michael J. Fox Foundation for Parkinson's Research, New York, New York, USA.
  • Farrer M; Department of Medical Genetics, University of British Columbia, Vancouver, British Columbia, Canada.
  • Foroud TM; Department of Medical and Molecular Genetics, Indiana University, Indianapolis, Indiana, USA.
  • Gasser T; Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany.
  • Giladi N; Tel Aviv Sourasky Medical Center, and Sackler Faculty of Medicine, Tel Aviv, Israel.
  • Halter C; Department of Medical and Molecular Genetics, Indiana University, Indianapolis, Indiana, USA.
  • Lang A; Morton and Gloria Shulman Movement Disorders Centre and the Edmond J. Safra Program in Parkinson's Disease, Toronto Western Hospital, Toronto, Ontario, Canada.
  • Langston JW; The Parkinson's Institute and Clinical Center, Sunnyvale, California, USA.
  • Marras C; Morton and Gloria Shulman Movement Disorders Centre and the Edmond J. Safra Program in Parkinson's Disease, Toronto Western Hospital, Toronto, Ontario, Canada.
  • Marti-Masso JF; Neurology Service, Hospital Universitario Donostia, Biodonostia, Basque Country University (UPV/EHU), San Sebastián, Spain.
  • Ruiz Martinez J; Neurology Service, Hospital Universitario Donostia, Biodonostia, Basque Country University (UPV/EHU), San Sebastián, Spain.
  • Mejia-Santana H; Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, New York, USA.
  • Mirelman A; Tel Aviv Sourasky Medical Center, and Sackler Faculty of Medicine, Tel Aviv, Israel.
  • Pont-Sunyer C; Neurology Service, Hospital Clínic de Barcelona, Universitat de Barcelona, IDIBAPS, Centro de Investigación Biomédica en Red Sobre Enfermedades Neurodegenerativas, Barcelona, Catalonia, Spain.
  • Orr-Urtreger A; Tel Aviv Sourasky Medical Center, and Sackler Faculty of Medicine, Tel Aviv, Israel.
  • Raymond D; Department of Neurology, Beth Israel Medical Center and St. Luke's and Roosevelt Hospitals, Mount Sinai School of Medicine, New York, New York, USA.
  • Saunders-Pullman R; Department of Neurology, Beth Israel Medical Center and St. Luke's and Roosevelt Hospitals, Mount Sinai School of Medicine, New York, New York, USA.
  • Schüle B; The Parkinson's Institute and Clinical Center, Sunnyvale, California, USA.
  • Tanner C; The Parkinson's Institute and Clinical Center, Sunnyvale, California, USA.
  • Tolosa E; Neurology Service, Hospital Clínic de Barcelona, Universitat de Barcelona, IDIBAPS, Centro de Investigación Biomédica en Red Sobre Enfermedades Neurodegenerativas, Barcelona, Catalonia, Spain.
  • Urkowitz A; The Michael J. Fox Foundation for Parkinson's Research, New York, New York, USA.
  • Vilas D; Neurology Service, Hospital Clínic de Barcelona, Universitat de Barcelona, IDIBAPS, Centro de Investigación Biomédica en Red Sobre Enfermedades Neurodegenerativas, Barcelona, Catalonia, Spain.
  • Wise A; Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, New York, USA.
  • Marder K; Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, New York, USA.
Genet Med ; 16(8): 644-5, 2014 Aug.
Article em En | MEDLINE | ID: mdl-25093570

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Parkinson / Acesso dos Pacientes aos Registros Idioma: En Ano de publicação: 2014 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Parkinson / Acesso dos Pacientes aos Registros Idioma: En Ano de publicação: 2014 Tipo de documento: Article