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Multicenter Female Fabry Study (MFFS) - clinical survey on current treatment of females with Fabry disease.
Lenders, Malte; Hennermann, Julia B; Kurschat, Christine; Rolfs, Arndt; Canaan-Kühl, Sima; Sommer, Claudia; Üçeyler, Nurcan; Kampmann, Christoph; Karabul, Nesrin; Giese, Anne-Katrin; Duning, Thomas; Stypmann, Jörg; Krämer, Johannes; Weidemann, Frank; Brand, Stefan-Martin; Wanner, Christoph; Brand, Eva.
Afiliação
  • Lenders M; Internal Medicine D, Department of Nephrology, Hypertension and Rheumatology, University Hospital Muenster, Albert-Schweitzer-Campus 1, D-48149, Muenster, Germany.
  • Hennermann JB; Villa Metabolica, Department for Pediatric and Adolescent Medicine, University Medical Center of the Johannes Gutenberg-University Mainz, Mainz, Germany.
  • Kurschat C; Department II of Internal Medicine and center for Molecular Medicine Cologne, University of Cologne, Cologne, Germany.
  • Rolfs A; Albrecht-Kossel-Institute for Neuroregeneration, University of Rostock, Rostock, Germany.
  • Canaan-Kühl S; Department of Medicine, Division of Nephrology, University Hospital Charité, Campus Virchow-Klinikum, Berlin, Germany.
  • Sommer C; Department of Neurology, University of Wuerzburg, Wuerzburg, Germany.
  • Üçeyler N; Department of Medicine, Divisions of Cardiology and Nephrology, Comprehensive Heart Failure Center, Fabry Center for Interdisciplinary Therapy (FAZIT), University of Wuerzburg, Wuerzburg, Germany.
  • Kampmann C; Department of Neurology, University of Wuerzburg, Wuerzburg, Germany.
  • Karabul N; Department of Medicine, Divisions of Cardiology and Nephrology, Comprehensive Heart Failure Center, Fabry Center for Interdisciplinary Therapy (FAZIT), University of Wuerzburg, Wuerzburg, Germany.
  • Giese AK; Villa Metabolica, Department for Pediatric and Adolescent Medicine, University Medical Center of the Johannes Gutenberg-University Mainz, Mainz, Germany.
  • Duning T; Villa Metabolica, Department for Pediatric and Adolescent Medicine, University Medical Center of the Johannes Gutenberg-University Mainz, Mainz, Germany.
  • Stypmann J; Department of Neuropediatrics and Inborn Metabolic Disorders, Centre for Rare Diseases, University Children's Hospital, St. Josefs-Hospital, Bochum, Germany.
  • Krämer J; Albrecht-Kossel-Institute for Neuroregeneration, University of Rostock, Rostock, Germany.
  • Weidemann F; Department of Neurology, University Hospital Muenster, Muenster, Germany.
  • Brand SM; Department of Cardiovascular Medicine, Division of Cardiology, University Hospital Muenster, Muenster, Germany.
  • Wanner C; Department of Medicine, Divisions of Cardiology and Nephrology, Comprehensive Heart Failure Center, Fabry Center for Interdisciplinary Therapy (FAZIT), University of Wuerzburg, Wuerzburg, Germany.
  • Brand E; Department of Pediatrics and Adolescence Medicine, University of Ulm, Ulm, Germany.
Orphanet J Rare Dis ; 11(1): 88, 2016 06 29.
Article em En | MEDLINE | ID: mdl-27356758
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Fabry Idioma: En Ano de publicação: 2016 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Fabry Idioma: En Ano de publicação: 2016 Tipo de documento: Article