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The Libyan Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).
Hashad, Soad; Zletni, Mabruka Ahmed; Al-Mayouf, Sulaiman M; Etayari, Hala; Ibrahim, Eman; Etfil, Majeda; Consolaro, Alessandro; Bovis, Francesca; Ruperto, Nicolino.
Afiliação
  • Hashad S; Tripoli Children's Hospital, Omar Almukthar Street, Tripoli, Libya. soadhashad@hotmail.com.
  • Zletni MA; Tripoli Children's Hospital, Omar Almukthar Street, Tripoli, Libya.
  • Al-Mayouf SM; Department of Pediatric Rheumatology, King Faisal Specialist Hospital and Research Center, Alfaisal University, Riyadh, Saudi Arabia.
  • Etayari H; Tripoli Children's Hospital, Omar Almukthar Street, Tripoli, Libya.
  • Ibrahim E; Tripoli Children's Hospital, Omar Almukthar Street, Tripoli, Libya.
  • Etfil M; Tripoli Children's Hospital, Omar Almukthar Street, Tripoli, Libya.
  • Consolaro A; Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
  • Bovis F; Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
  • Ruperto N; Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
Rheumatol Int ; 38(Suppl 1): 267-274, 2018 Apr.
Article em En | MEDLINE | ID: mdl-29637335
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Libyan Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data, and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (22.0% systemic, 26.0% oligoarticular, 25.0% RF negative polyarthritis, and 27.0% other categories) and 100 healthy children, were enrolled in a paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there is no significant difference between the healthy subjects and their affected peers in the school-related problems variable. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Libyan Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Artrite Juvenil / Reumatologia / Avaliação da Deficiência / Medidas de Resultados Relatados pelo Paciente Idioma: En Ano de publicação: 2018 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Artrite Juvenil / Reumatologia / Avaliação da Deficiência / Medidas de Resultados Relatados pelo Paciente Idioma: En Ano de publicação: 2018 Tipo de documento: Article