Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.

Litzkendorf, Svenja; Hartz, Tobias; Göbel, Jens; Storf, Holger; Pauer, Frédéric; Babac, Ana; Lührs, Verena; Bruckner-Tuderman, Leena; Schauer, Franziska; Schmidtke, Jörg; Biehl, Lisa; Wagner, Tof; Graf von der Schulenburg, J-Matthias; Frank, Martin.

Afiliação

Litzkendorf S; Center for Health Economics Research Hannover, Department of Insurance, Leibniz University of Hanover, Hannover, Germany.
Hartz T; Clinical Cancer Registry of Lower Saxony, Hannover, Germany.
Göbel J; Medical Informatics Group, University Hospital Frankfurt, Frankfurt, Germany.
Storf H; Medical Informatics Group, University Hospital Frankfurt, Frankfurt, Germany.
Pauer F; Centre for Quality and Management in Healthcare, Medical Association of Lower Saxony, Hannover, Germany.
Babac A; Center for Health Economics Research Hannover, Department of Insurance, Leibniz University of Hanover, Hannover, Germany.
Lührs V; Centre for Quality and Management in Healthcare, Medical Association of Lower Saxony, Hannover, Germany.
Bruckner-Tuderman L; Department of Dermatology, Medical University Center of Freiburg, Freiburg, Germany.
Schauer F; Department of Dermatology, Medical University Center of Freiburg, Freiburg, Germany.
Schmidtke J; Institute of Human Genetics, Orphanet Deutschland, Hannover Medical School, Hannover, Germany.
Biehl L; German Alliance of Chronic Rare Diseases, Berlin, Germany.
Wagner T; Frankfurt Center for Rare Diseases, University Hospital Frankfurt, Frankfurt, Germany.
Graf von der Schulenburg JM; Center for Health Economics Research Hannover, Department of Insurance, Leibniz University of Hanover, Hannover, Germany.
Frank M; Centre for Quality and Management in Healthcare, Medical Association of Lower Saxony, Hannover, Germany.