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Experience of adults with cystic fibrosis: a perspective based on social phenomenology.
Cordeiro, Samara Macedo; Jesus, Maria Cristina Pinto de; Tavares, Renata Evangelista; Oliveira, Deise Moura de; Merighi, Miriam Aparecida Barbosa.
Afiliação
  • Cordeiro SM; Universidade de São Paulo, Nursing School. São Paulo, São Paulo, Brazil.
  • Jesus MCP; Universidade Federal de Juiz de Fora, Nursing School. Juiz de Fora, Minas Gerais, Brazil.
  • Tavares RE; Universidade de São Paulo, Nursing School. São Paulo, São Paulo, Brazil.
  • Oliveira DM; Universidade Federal de Viçosa. Viçosa, Minas Gerais, Brazil.
  • Merighi MAB; Universidade de São Paulo, Nursing School. São Paulo, São Paulo, Brazil.
Rev Bras Enferm ; 71(6): 2891-2898, 2018.
Article em En, Pt | MEDLINE | ID: mdl-30517390
OBJECTIVE: To understand the experience of adults living with cystic fibrosis. METHOD: A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. RESULTS: The following categories were evidenced: "The biopsychosocial impact of the disease on daily life", "Social prejudice as a generator of embarrassment", "Coping strategies" and "Fear, uncertainties and the desire to carry out life projects". FINAL CONSIDERATIONS: The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.
Assuntos

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Adaptação Psicológica / Fibrose Cística Idioma: En / Pt Ano de publicação: 2018 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Adaptação Psicológica / Fibrose Cística Idioma: En / Pt Ano de publicação: 2018 Tipo de documento: Article