Genetic testing for Huntington's disease: A thematic analysis of online support community messages.
J Health Psychol
; 26(4): 580-594, 2021 03.
Article
em En
| MEDLINE
| ID: mdl-30696276
ABSTRACT
Huntington's disease is a fatal late-onset genetic illness that causes motor, cognitive and psychiatric disorders. Individuals considering genetic testing may benefit from online social support. This study investigates how genetic testing is discussed within health forums. A total of 337 messages written by 58 individuals were analysed using deductive thematic analysis. Discussions examined three themes deciding to be tested (enquiring about symptoms and starting a new family), preparing for the test (information seeking and attending appointments) and receiving the results (positive and negative results). Forums can reduce the uncertainty of ambiguous symptoms and provide ongoing personalised support before, during and after a genetic test.
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Texto completo:
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Base de dados:
MEDLINE
Assunto principal:
Doença de Huntington
Idioma:
En
Ano de publicação:
2021
Tipo de documento:
Article