Brief Report: Participation of Black and African-American Families in Autism Research.
J Autism Dev Disord
; 50(5): 1841-1846, 2020 May.
Article
em En
| MEDLINE
| ID: mdl-30805765
ABSTRACT
Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues.
Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Participação do Paciente
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Negro ou Afro-Americano
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Conhecimentos, Atitudes e Prática em Saúde
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Sujeitos da Pesquisa
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Transtorno do Espectro Autista
Idioma:
En
Ano de publicação:
2020
Tipo de documento:
Article