Self-management skills and behaviors, self-efficacy, and quality of life in people with epilepsy from underserved populations.
Epilepsy Behav
; 98(Pt A): 258-265, 2019 09.
Article
em En
| MEDLINE
| ID: mdl-31398690
ABSTRACT
PURPOSE:
People with epilepsy (PWE) from underserved populations face significant barriers to epilepsy management and therefore may lack knowledge about epilepsy and self-management (SM) of epilepsy. This paper evaluates SM practices, self-efficacy, outcome expectancy, quality of life, and personal impact of epilepsy in PWE from underserved populations as compared with all PWE.METHODS:
Recruitment for the Managing Epilepsy Well (MEW) Network PAUSE to Learn Your Epilepsy study occurred from October 2015 to March 2019. Participants were assessed at baseline; after SM education intervention; and 6-, 9-, and 15-month postbaseline assessment. Baseline data from 112 PWE were analyzed for this report.RESULTS:
Study population was diverse 63% were women, 47.3% were non-Hispanic black, 24.1% were Hispanic, and 57.4% had public healthcare coverage. Participants on average had epilepsy for 14â¯years, and 49.1% reported at least one seizure within the past month, but only 27% reported having used a seizure diary or calendar for seizure tracking. Self-management practices & behaviors were significantly lower among PWE from underserved populations than all PWE, though self-efficacy among PWE from underserved populations was significantly higher.CONCLUSION:
This study identifies the unique epilepsy SM needs of PWE from underserved populations. We discuss the need for a personalized approach for developing SM skills and behaviors among these PWE.Palavras-chave
Texto completo:
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Base de dados:
MEDLINE
Assunto principal:
Qualidade de Vida
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Autoeficácia
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Populações Vulneráveis
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Epilepsia
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Medicina de Precisão
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Autogestão
Idioma:
En
Ano de publicação:
2019
Tipo de documento:
Article