Lived experiences of adult patients with moyamoya disease: A qualitative case study.
Jpn J Nurs Sci
; 17(3): e12332, 2020 Jul.
Article
em En
| MEDLINE
| ID: mdl-32153137
ABSTRACT
AIM:
To understand the daily lived experiences of adult moyamoya disease patients.METHODS:
This qualitative study involved a purposive sample of 14 adult moyamoya disease patients diagnosed after 19 years or older at one university hospital in Seoul. Interviews conducted with patients included open-ended questions about the experience of living with moyamoya disease. The data were analyzed using Colaizzi's seven-step method, which derives the theme.RESULTS:
Participants' experiences were divided into three themes and eight sub-themes. "Having an unexpected disease that suddenly struck my life" refers to confusion and depression due to the diagnosis of the unexpected illness; "being occasionally anxious about the illness" describes patients' uncertainty about the disease and worrying about passing the disease on to their child; and "living with the disease by going through the disease experience" refers to the process of accepting and adapting to the illness.CONCLUSIONS:
The findings provide a better understanding of the life changes and lived experiences of adult patients with moyamoya disease. Nurses should consider various aspects when providing care to adult moyamoya disease patients.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Doença de Moyamoya
Idioma:
En
Ano de publicação:
2020
Tipo de documento:
Article