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Increased phototoxic burn tolerance time and quality of life in patients with erythropoietic protoporphyria treated with afamelanotide - a three years observational study.
Barman-Aksözen, Jasmin; Nydegger, Michèle; Schneider-Yin, Xiaoye; Minder, Anna-Elisabeth.
Afiliação
  • Barman-Aksözen J; Institute of Laboratory Medicine, Stadtspital Waid und Triemli, Zurich, Switzerland.
  • Nydegger M; Institute of Anesthesia and Intensive Medicine, Stadtspital Waid und Triemli, Zurich, Switzerland.
  • Schneider-Yin X; Institute of Laboratory Medicine, Stadtspital Waid und Triemli, Zurich, Switzerland.
  • Minder AE; Department for Endocrinology, Diabetology, Porphyria, Stadtspital Waid und Triemli, Zurich, Switzerland. anna.minder@triemli.zuerich.ch.
Orphanet J Rare Dis ; 15(1): 213, 2020 08 18.
Article em En | MEDLINE | ID: mdl-32811524
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Queimaduras / Protoporfiria Eritropoética Idioma: En Ano de publicação: 2020 Tipo de documento: Article
Texto completo
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XML
PubMed Links
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Queimaduras / Protoporfiria Eritropoética Idioma: En Ano de publicação: 2020 Tipo de documento: Article