Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine.
Per Med
; 18(1): 67-74, 2021 01.
Article
em En
| MEDLINE
| ID: mdl-33332195
Increasing American Indian/Alaska Native (AI/AN) representation in genetic research is critical to ensuring that personalized medicine discoveries do not widen AI/AN health disparities by only benefiting well-represented populations. One reason for the under-representation of AIs/ANs in research is warranted research distrust due to abuse of some AI/AN communities in research. An approach to easing the tension between protecting AI/AN communities and increasing the representation of AI/AN persons in genetic research is community-based participatory research. This approach was used in a collaboration between a tribe and academic researchers in efforts to increase AI/AN participation in genetic research. From the lessons learned, the authors propose recommendations to researchers that may aid in conducting collaborative and respectful research with AI/AN tribes/communities and ultimately assist in increasing representation of AIs/ANs in personalized medicine discoveries.
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Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Pesquisa em Genética
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Indígena Americano ou Nativo do Alasca
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Pesquisa Participativa Baseada na Comunidade
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Medicina de Precisão
Idioma:
En
Ano de publicação:
2021
Tipo de documento:
Article