Proxy-Reported Quality of Life and Access to Nusinersen Among Patients with Spinal Muscular Atrophy in Saudi Arabia.

AlRuthia, Yazed; Almuaythir, Ghadah S; H Alrasheed, Hala; Alsharif, Wejdan R; Temsah, Mohamad-Hani; Alsohime, Fahad; Sales, Ibrahim; Alwhaibi, Monira; Bashiri, Fahad A.

Afiliação

AlRuthia Y; Department of Clinical Pharmacy, College of Pharmacy, King Saud University, Riyadh, Saudi Arabia.
Almuaythir GS; Pharmacoeconomics Research Unit, College of Pharmacy, King Saud University, Riyadh, Saudi Arabia.
H Alrasheed H; Department of Clinical Pharmacy, College of Pharmacy, King Saud University, Riyadh, Saudi Arabia.
Alsharif WR; Department of Clinical Pharmacy, College of Pharmacy, King Saud University, Riyadh, Saudi Arabia.
Temsah MH; Department of Clinical Pharmacy, College of Pharmacy, King Saud University, Riyadh, Saudi Arabia.
Alsohime F; College of Medicine, King Saud University, Riyadh, Saudi Arabia.
Sales I; Pediatric Intensive Care Unit, Pediatric Department, King Saud University Medical City, Riyadh, Saudi Arabia.
Alwhaibi M; College of Medicine, King Saud University, Riyadh, Saudi Arabia.
Bashiri FA; Pediatric Intensive Care Unit, Pediatric Department, King Saud University Medical City, Riyadh, Saudi Arabia.