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Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children With Severe Neurological Impairment During Decision-Making.
Bogetz, Jori F; Trowbridge, Amy; Lewis, Hannah; Shipman, Kelly J; Jonas, Danielle; Hauer, Julie; Rosenberg, Abby R.
Afiliação
  • Bogetz JF; Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Palliative Care and Resilience Lab, Center for Clinical and Translational Research; Seattle Children's Hospital and Research Institute, Seattle, WA, USA. Electronic address: jori.bogetz@
  • Trowbridge A; Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Palliative Care and Resilience Lab, Center for Clinical and Translational Research; Seattle Children's Hospital and Research Institute, Seattle, WA, USA.
  • Lewis H; Treuman Katz Center for Bioethics, Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA.
  • Shipman KJ; Palliative Care and Resilience Lab, Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA.
  • Jonas D; Silver School of Social Work, New York University; New York, NY.
  • Hauer J; Seven Hills Pediatric Center; Assistant Professor, Division of General Pediatrics, Department of Pediatrics, Harvard Medical School; Boston Children's Hospital, Boston, MA.
  • Rosenberg AR; Division of Hematology/Oncology, Department of Pediatrics, University of Washington School of Medicine; Palliative Care and Resilience Lab, Center for Clinical and Translational Research, Seattle Children's Hospital and Research Institute, Seattle, WA.
J Pain Symptom Manage ; 62(6): 1117-1125, 2021 12.
Article em En | MEDLINE | ID: mdl-34147578
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Relações Profissional-Família Idioma: En Ano de publicação: 2021 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Relações Profissional-Família Idioma: En Ano de publicação: 2021 Tipo de documento: Article