Evaluation of a rehabilitation program from the perspective of children with disabilities and their caregivers in Uruguay.
J Pediatr Rehabil Med
; 14(3): 495-503, 2021.
Article
em En
| MEDLINE
| ID: mdl-34151870
ABSTRACT
PURPOSE:
The aim of the study was to evaluate the Assessment and Orientation Treatment Program for children and adolescents with disabilities treated at the Center Teletón Uruguay from the perspective of the patients and their parents based on several patient reported outcomemeasures:
health related quality of life (HRQOL), treatment satisfaction, family impact, and emotional distress.METHODS:
The sample consisted of all the 126 dyads of children/adolescents with ages ranging from 2 to 18 years and their primary caregivers who entered the program from April to October 2012. A set of instruments were filled out by children and parents before and six months after the program. T test for paired samples for continuous variables and McNemar's test for categorical variables were used to assess changes pre and post intervention.RESULTS:
There was a high prevalence of depression and anxiety in the caregivers. In the second evaluation, improvements that were statistically significant only for the caregivers were observed in the HRQOL of children, adolescents and caregivers.CONCLUSIONS:
The patient reported outcome measures used were effective in detecting changes in several areas of the quality of life of children observed by their caregivers and in their own quality of life after the intervention.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Cuidadores
/
Crianças com Deficiência
Idioma:
En
Ano de publicação:
2021
Tipo de documento:
Article