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Determinants of Quality of Life in Children with Inborn Errors of Metabolism Receiving a Restricted Diet.
Ouattara, Abdoulaye; Resseguier, Noemie; Cano, Aline; De Lonlay, Pascale; Arnoux, Jean-Baptiste; Brassier, Anais; Schiff, Manuel; Pichard, Samia; Fabre, Alexandre; Hoebeke, Celia; Guffon, Nathalie; Fouilhoux, Alain; Broué, Pierre; Touati, Guy; Dobbelaere, Dries; Mention, Karine; Labarthe, Francois; Tardieu, Marine; De Parscau, Loïc; Feillet, Francois; Bonnemains, Chrystèle; Kuster, Alice; Labrune, Philippe; Barth, Magalie; Damaj, Lena; Lamireau, Delphine; Berbis, Julie; Auquier, Pascal; Chabrol, Brigitte.
Afiliação
  • Ouattara A; Department of Epidemiology and Health Economics, AP-HM/EA 3279, Centre d'Etude et de Recherche sur les Services de Santé et la Qualité de vie, Aix-Marseille University, Marseille, France.
  • Resseguier N; Department of Epidemiology and Health Economics, AP-HM/EA 3279, Centre d'Etude et de Recherche sur les Services de Santé et la Qualité de vie, Aix-Marseille University, Marseille, France. Electronic address: noemie.resseguier@univ-amu.fr.
  • Cano A; Reference Center of Inherited Metabolic Disorders, Timone Enfants Hospital, Marseille, France.
  • De Lonlay P; Reference Center of Inherited Metabolic Disorders, Necker Hospital, Paris, France.
  • Arnoux JB; Reference Center of Inherited Metabolic Disorders, Necker Hospital, Paris, France.
  • Brassier A; Reference Center of Inherited Metabolic Disorders, Necker Hospital, Paris, France.
  • Schiff M; Reference Center of Inherited Metabolic Disorders, Necker Hospital, Paris, France.
  • Pichard S; Reference Center of Inherited Metabolic Disorders, Robert Debré Hospital, Paris, France.
  • Fabre A; Reference Center of Inherited Metabolic Disorders, Timone Enfants Hospital, Marseille, France.
  • Hoebeke C; Reference Center of Inherited Metabolic Disorders, Timone Enfants Hospital, Marseille, France.
  • Guffon N; Reference Center of Inherited Metabolic Disorders, Femme Mère Enfant Hospital, Lyon, France.
  • Fouilhoux A; Reference Center of Inherited Metabolic Disorders, Femme Mère Enfant Hospital, Lyon, France.
  • Broué P; Reference Center of Inherited Metabolic Disorders, Purpan Hospital, Toulouse, France.
  • Touati G; Reference Center of Inherited Metabolic Disorders, Purpan Hospital, Toulouse, France.
  • Dobbelaere D; Reference Center of Inherited Metabolic Disorders, Jeanne de Flandres Hospital, Lille, France.
  • Mention K; Reference Center of Inherited Metabolic Disorders, Jeanne de Flandres Hospital, Lille, France.
  • Labarthe F; Reference Center of Inherited Metabolic Disorders, Clocheville Hospital, Tours, France.
  • Tardieu M; Reference Center of Inherited Metabolic Disorders, Clocheville Hospital, Tours, France.
  • De Parscau L; Competence Center of Inherited Metabolic Disorders, Brest Hospital, Brest, France.
  • Feillet F; Reference Center of Inherited Metabolic Disorders, Brabois Hospital, Nancy, France.
  • Bonnemains C; Reference Center of Inherited Metabolic Disorders, Brabois Hospital, Nancy, France.
  • Kuster A; Pediatric Intensive Care Unit, Nantes Hospital, Nantes, France.
  • Labrune P; Reference Center of Rare Liver Disease, Antoine Beclere Hospital, Clamart, France.
  • Barth M; Competence Center of Inherited Metabolic Disorders, Angers Hospital, Angers, France.
  • Damaj L; Competence Center of Inherited Metabolic Disorders, Rennes Hospital, Rennes, France.
  • Lamireau D; Competence Center of Inherited Metabolic Disorders, Pellegrin Hospital, Bordeaux, France.
  • Berbis J; Department of Epidemiology and Health Economics, AP-HM/EA 3279, Centre d'Etude et de Recherche sur les Services de Santé et la Qualité de vie, Aix-Marseille University, Marseille, France.
  • Auquier P; Department of Epidemiology and Health Economics, AP-HM/EA 3279, Centre d'Etude et de Recherche sur les Services de Santé et la Qualité de vie, Aix-Marseille University, Marseille, France.
  • Chabrol B; Reference Center of Inherited Metabolic Disorders, Timone Enfants Hospital, Marseille, France.
J Pediatr ; 242: 192-200.e3, 2022 03.
Article em En | MEDLINE | ID: mdl-34788681
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Erros Inatos do Metabolismo Idioma: En Ano de publicação: 2022 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Erros Inatos do Metabolismo Idioma: En Ano de publicação: 2022 Tipo de documento: Article