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Exploring the impact of caring for an individual with neurogenic orthostatic hypotension: a qualitative study.
Gallop, Katy; Pham, Ngan; Maclaine, Grant; Saunders, Emma; Black, Bonnie; Acaster, Sarah.
Afiliação
  • Gallop K; Acaster Lloyd Consulting Ltd, London, WC1X 8NL, UK.
  • Pham N; HEOR and Value Strategy, Theravance Biopharma US, Inc., San Francisco, CA 94080, USA.
  • Maclaine G; HEOR and Value Strategy, Theravance Biopharma Ireland Limited, Dublin, D04 N9W8, Ireland.
  • Saunders E; Multiple System Atrophy Trust, London, SE16 2XB, UK.
  • Black B; Autonomic Dysfunction Center, Vanderbilt University Medical Center, Nashville, TN 37232, USA.
  • Acaster S; Acaster Lloyd Consulting Ltd, London, WC1X 8NL, UK.
Neurodegener Dis Manag ; 13(3): 191-201, 2023 06.
Article em En | MEDLINE | ID: mdl-37313784
Neurogenic orthostatic hypotension (nOH) is a type of hypotension (low blood pressure) which causes your blood pressure to fall when you stand up, meaning you can feel dizzy or lightheaded. This study looked at the experience of family members who provide day-to-day caregiving support to someone who has nOH as well as another condition which affects the brain and nerves (neurological condition). These neurological conditions included Parkinson's disease, multiple system atrophy, pure autonomic failure or dementia with Lewy bodies. Interviews were conducted with informal caregivers (family members) of people with nOH. Caregivers discussed a range of ways in which caring for their family member impacts them, including needing to supervise their family member to make sure they do not fall, as well as having a lack of freedom and feeling worried, stressed, depressed and frustrated.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Parkinson / Atrofia de Múltiplos Sistemas / Hipotensão Ortostática Idioma: En Ano de publicação: 2023 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Parkinson / Atrofia de Múltiplos Sistemas / Hipotensão Ortostática Idioma: En Ano de publicação: 2023 Tipo de documento: Article