Validation of the Observer-Reported Communication Ability (ORCA) measure for individuals with Rett syndrome.
Eur J Paediatr Neurol
; 46: 74-81, 2023 Sep.
Article
em En
| MEDLINE
| ID: mdl-37536121
ABSTRACT
PURPOSE:
The study goal was to validate the Observer-Reported Communication Ability (ORCA) measure for use with females with Rett Syndrome (RTT).METHODS:
Qualitative interviews, including concept elicitation and cognitive interviewing methods, were conducted with 19 caregivers of individuals with RTT ages 2 and older. A quantitative study was then conducted in 279 caregivers to evaluate construct validity and reliability.RESULTS:
After minor modifications were made, the modified ORCA measure was well understood and captured key communication concepts. Quantitative data showed evidence for reliable scores (α = 0.90, test-retest intraclass correlation = 0.88), minimal floor and no ceiling effects, and strong correlation with the Communication and Symbolic Behaviors Scale (r = 0.73).CONCLUSIONS:
This study provided initial support that the modified ORCA measure is an acceptable caregiver-reported measure of communication ability for females with RTT. Future work should include evaluation of longitudinal validity of the measure and its associations with clinician- and performance-based measures in diverse samples.Palavras-chave
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Base de dados:
MEDLINE
Assunto principal:
Síndrome de Rett
Idioma:
En
Ano de publicação:
2023
Tipo de documento:
Article