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Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda.
Hotez, Emily; Haley, Madeline; Martinez-Agosto, Julian A; Anderson, Jeffrey; Brown, Heather; Choi, Kristen; Croen, Lisa A; Dwyer, Patrick; Fernandes, Priyanka; Gassner, Dena; Giwa Onaiwu, Morénike; Gragnani, Candace M; Graham Holmes, Laura; Kapp, Steven; Kim, Dana; Massolo, Maria; Montgomery, Brianna; Natri, Heini M; Rava, Julianna A; Rosenau, Kashia A; Roth, Jeffrey; Rudolph, Dawn; Ryan, Jackie G; Shattuck, Paul; Shea, Lindsay; Williams, Zachary J; Wilson, Rujuta B; Kuo, Alice.
Afiliação
  • Hotez E; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Haley M; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Martinez-Agosto JA; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Anderson J; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Brown H; Department of Educational Psychology, Faculty of Education, Edmonton, CAN.
  • Choi K; Department of Nursing, School of Nursing, University of California Los Angeles, Los Angeles, USA.
  • Croen LA; Department of Health Policy and Management, Fielding School of Public Health, University of California Los Angeles, Los Angeles, USA.
  • Dwyer P; Division of Research, Kaiser Permanente Northern California, Oakland, USA.
  • Fernandes P; Laboratory of Neurocognitive Development, Center for Mind and Brain, University of California Davis, Davis, USA.
  • Gassner D; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Giwa Onaiwu M; Department of Health Sciences, School of Social Work, Adelphi University, New York, USA.
  • Gragnani CM; School of Humanities, University of East Anglia, Norwich, GBR.
  • Graham Holmes L; Department of Pediatrics, University of California Los Angeles, Los Angeles, USA.
  • Kapp S; Department of Social Work, School of Public Health, Boston University, Boston, USA.
  • Kim D; Department of Psychology, University of Portsmouth, Portsmouth, GBR.
  • Massolo M; Department of Research, Association of University Centers on Disabilities, Silver Spring, USA.
  • Montgomery B; Department of Research, Kaiser Permanente Northern California, Oakland, USA.
  • Natri HM; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Rava JA; Department of Computational Science, Translational Genomics Research Institute, Part of City of Hope Cancer Center, Phoenix, USA.
  • Rosenau KA; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Roth J; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Rudolph D; Department of Medicine, University of California Los Angeles, Los Angeles, USA.
  • Ryan JG; Department of Technical Assistance & Network Engagement, Association of University Centers on Disabilities, Silver Springs, USA.
  • Shattuck P; Department of Neurodiversity Strategy and Education, University of Alberta, Faculty of Rehabilitation Medicine, Edmonton, USA.
  • Shea L; Department of Policy Research, Mathematica, Princeton, USA.
  • Williams ZJ; Center of Policy and Analytics, A.J. Drexel Autism Institute, Drexel University, Philadelphia, USA.
  • Wilson RB; Department of Hearing & Speech Sciences, Vanderbilt Brain Institute, Vanderbilt University, Nashville, USA.
  • Kuo A; Department of Psychiatry, Semel Institute for Neuroscience and Human Behavior, Los Angeles, USA.
Cureus ; 15(8): e44388, 2023 Aug.
Article em En | MEDLINE | ID: mdl-37779815
INTRODUCTION: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network. METHODS: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities. RESULTS: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected. CONCLUSION: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion.
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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2023 Tipo de documento: Article
Texto completo
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XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2023 Tipo de documento: Article