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LGBTQ+ inequity in crowdfunding cancer costs: The influence of online reach and LGBTQ+ state policy.
Waters, Austin R; Easterly, Caleb W; Turner, Cindy; Ghazal, Lauren; Tovar, Ida; Mulvaney, Megan; Poquadeck, Matt; Rains, Stephen A; Cloyes, Kristin G; Kirchhoff, Anne C; Kent, Erin E; Warner, Echo L.
Afiliação
  • Waters AR; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, North Carolina, USA.
  • Easterly CW; Cancer Control and Population Sciences, Huntsman Cancer Institute at the University of Utah, Salt Lake City, Utah, USA.
  • Turner C; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, North Carolina, USA.
  • Ghazal L; College of Nursing, University of Utah, Salt Lake City, Utah, USA.
  • Tovar I; Crowdfunding Cancer Costs (C3) LGBTQ+ Study Advisory Board, Huntsman Cancer Institute at the University of Utah, Salt Lake City, Utah, USA.
  • Mulvaney M; School of Nursing, University of Rochester, Rochester, New York, USA.
  • Poquadeck M; College of Nursing, University of Utah, Salt Lake City, Utah, USA.
  • Rains SA; Crowdfunding Cancer Costs (C3) LGBTQ+ Study Advisory Board, Huntsman Cancer Institute at the University of Utah, Salt Lake City, Utah, USA.
  • Cloyes KG; School of Public Health, Indiana University Bloomington, Bloomington, Indiana, USA.
  • Kirchhoff AC; Crowdfunding Cancer Costs (C3) LGBTQ+ Study Advisory Board, Huntsman Cancer Institute at the University of Utah, Salt Lake City, Utah, USA.
  • Kent EE; Wilmot Cancer Institute, University of Rochester Medical Center, Rochester, New York, USA.
  • Warner EL; Department of Communication, University of Arizona, Tucson, Arizona, USA.
Cancer Med ; 13(3): e6926, 2024 Feb.
Article em En | MEDLINE | ID: mdl-38275010
ABSTRACT

BACKGROUND:

Emerging literature suggests that LGBTQ+ cancer survivors are more likely to experience financial burden than non-LGBTQ+ survivors. However, LGBTQ+ cancer survivors experience with cost-coping behaviors such as crowdfunding is understudied.

METHODS:

We aimed to assess LGBTQ+ inequity in cancer crowdfunding by combining community-engaged and technology-based methods. Crowdfunding campaigns were web-scraped from GoFundMe and classified as cancer-related and LGBTQ+ or non-LGBTQ+ using term dictionaries. Bivariate analyses and generalized linear models were used to assess differential effects in total goal amount raised by LGBTQ+ status. Stratified models were run by online reach and LGBTQ+ inclusivity of state policy.

RESULTS:

A total of N = 188,342 active cancer-related crowdfunding campaigns were web-scraped from GoFundMe in November 2022, of which N = 535 were LGBTQ+ and ranged from 2014 to 2022. In multivariable models of recent campaigns (2019-2022), LGBTQ+ campaigns raised $1608 (95% CI -2139, -1077) less than non-LGBTQ+ campaigns. LGBTQ+ campaigns with low (26-45 donors), moderate (46-87 donors), and high (88-240 donors) online reach raised on average $1152 (95% CI -$1589, -$716), $1050 (95% CI -$1737, -$364), and $2655 (95% CI -$4312, -$998) less than non-LGBTQ+ campaigns respectively. When stratified by LGBTQ+ inclusivity of state level policy states with anti-LGBTQ+ policy/lacking equitable policy raised on average $1910 (95% CI -2640, -1182) less than non-LGBTQ+ campaigns from the same states. CONCLUSIONS AND RELEVANCE Our findings revealed LGBTQ+ inequity in cancer-related crowdfunding, suggesting that LGBTQ+ cancer survivors may be less able to address financial burden via crowdfunding in comparison to non-LGBTQ+ cancer survivors-potentially widening existing economic inequities.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Crowdsourcing / Minorias Sexuais e de Gênero / Obtenção de Fundos / Neoplasias Idioma: En Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Crowdsourcing / Minorias Sexuais e de Gênero / Obtenção de Fundos / Neoplasias Idioma: En Ano de publicação: 2024 Tipo de documento: Article