The communication GAP between patients and clinicians and the importance of patient reported outcomes in Systemic Lupus Erythematosus.
Best Pract Res Clin Rheumatol
; 37(4): 101939, 2023 Dec.
Article
em En
| MEDLINE
| ID: mdl-38485601
ABSTRACT
Systemic Lupus Erythematosus (SLE) imposes a great burden on the lives of patients. Patients' and physicians' concerns about the disease diverge considerably. Physicians focus on controlling disease activity to prevent damage accrual, while patients focus on symptoms that impact on Health-Related Quality of Life (HRQoL). We explored the physicians' and patients' perspective and the potential role of Patient Reported Outcomes (PROs). Physicians are aware of the theoretical usefulness of PROs to collect information deriving from the patients' perspective. However, they often do not know how to interpret and use these questionnaires in a real shared therapeutic strategy. For the patients, it's important to be seen as a whole person with a true consideration of how they feel and function. Strategies to help bridge the communication gap could include better use of time during visits, preparing for the consultation, a more understandable lay language used by the doctor, a dedicated nurse.
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Texto completo:
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Base de dados:
MEDLINE
Assunto principal:
Relações Médico-Paciente
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Qualidade de Vida
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Comunicação
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Medidas de Resultados Relatados pelo Paciente
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Lúpus Eritematoso Sistêmico
Idioma:
En
Ano de publicação:
2023
Tipo de documento:
Article