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Quality of life of siblings of adolescents with severe haemophilia (FRATHEMO): An ancillary study to the TRANSHEMO project.
Nguyen, Ngoc Anh Thu; Auquier, Pascal; Beltran Anzola, Any; Harroche, Annie; Huguenin, Yoann; Hochart, Audrey; Meunier, Sandrine; Frotscher, Birgit; Nguyen, Philippe; Schneider, Pascale; Berger, Claire; Lebreton, Aurélien; Vanderbecken, Stéphane; De Raucourt, Emmanuelle; D'Oiron, Roseline; Oudot-Challard, Caroline; Baumstarck, Karine; Boucekine, Mohamed; Tabélé, Clémence; Rosso-Delsemme, Natacha; Sannié, Thomas; Giraud, Nicolas; Chambost, Hervé; Resseguier, Noémie.
Afiliação
  • Nguyen NAT; CEReSS - Health Services and Quality of Life Research, Research Unit 3279, Aix-Marseille University, Marseille, France.
  • Auquier P; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (AP-HM), Marseille, France.
  • Beltran Anzola A; CEReSS - Health Services and Quality of Life Research, Research Unit 3279, Aix-Marseille University, Marseille, France.
  • Harroche A; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (AP-HM), Marseille, France.
  • Huguenin Y; FranceCoag Network, Marseille, France.
  • Hochart A; CEReSS - Health Services and Quality of Life Research, Research Unit 3279, Aix-Marseille University, Marseille, France.
  • Meunier S; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (AP-HM), Marseille, France.
  • Frotscher B; University Hospital of Paris (AP-HP), Haemophilia Treatment Centre, Hospital Necker, Paris, France.
  • Nguyen P; University Hospital of Bordeaux, Haemophilia Treatment Centre, Bordeaux, France.
  • Schneider P; University Hospital of Lille, Hematology Transfusion, Lille, France.
  • Berger C; Hospices Civils de Lyon, Haemophilia Treatment Centre and French Reference Centre on Haemophilia, University Hospital, Bron, France.
  • Lebreton A; University Hospital of Nancy, Haemophilia Treatment Centre, Nancy, France.
  • Vanderbecken S; University Hospital of Reims, Haemophilia Treatment Centre, Reims, France.
  • De Raucourt E; University Hospital of Rouen, Haemophilia Treatment Centre, Rouen, France.
  • D'Oiron R; University Hospital of Saint-Etienne, Haemophilia Treatment Centre, Saint-Etienne, France.
  • Oudot-Challard C; University Hospital of Clermont-Ferrand, Haemophilia Treatment Centre, Clermont-Ferrand, France.
  • Baumstarck K; University Hospital of Reunion, Haemophilia Treatment Centre, Reunion Island, France.
  • Boucekine M; Hospital of Versailles, Haemophilia Treatment Centre, Versailles, France.
  • Tabélé C; FranceCoag Network, Marseille, France.
  • Rosso-Delsemme N; University Hospital of Paris (AP-HP), Haemophilia Treatment Centre, Hospital Bicêtre, Paris, France.
  • Sannié T; University Hospital of Toulouse, Haemophilia Treatment Centre, Toulouse, France.
  • Giraud N; CEReSS - Health Services and Quality of Life Research, Research Unit 3279, Aix-Marseille University, Marseille, France.
  • Chambost H; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (AP-HM), Marseille, France.
  • Resseguier N; FranceCoag Network, Marseille, France.
Haemophilia ; 30(4): 1071-1076, 2024 Jul.
Article em En | MEDLINE | ID: mdl-38684456
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Irmãos / Hemofilia A Idioma: En Ano de publicação: 2024 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Irmãos / Hemofilia A Idioma: En Ano de publicação: 2024 Tipo de documento: Article