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Caregiving for dementia: trends pre-post onset and predictive factors of family caregiving (2002-2018).
Ingraham, Bailey C; Barthold, Douglas; Fishman, Paul; Coe, Norma B.
Afiliação
  • Ingraham BC; Department of Health Systems and Population Health, University of Washington, Seattle, WA 98195, United States.
  • Barthold D; The Comparative Health Outcomes, Policy, and Economics (CHOICE) Institute, University of Washington Department of Pharmacy, Seattle, WA 98195, United States.
  • Fishman P; Department of Health Systems and Population Health, University of Washington, Seattle, WA 98195, United States.
  • Coe NB; Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA 19104, United States.
Health Aff Sch ; 2(3): qxae020, 2024 Mar.
Article em En | MEDLINE | ID: mdl-38756921
ABSTRACT
Persons living with Alzheimer's and other related forms of dementia rely heavily on care from family and friends for assistance with daily activities ("family care"), but little is known about care transitions over time. We analyzed data from the Health and Retirement Study to describe caregiving patterns, from 2 years before dementia onset and up to 6 years after. Using sociodemographic data from the interview prior to dementia onset, we determined if there are significant factors that predict receipt of family care at dementia onset. We found that one-third (33%) of people living with dementia were receiving help with daily activities 2 years prior to their first positive dementia screen and this increased to 60% during the first positive screen. Nearly all of those receiving assistance received family care. We found multiple significant predictors of receiving family care at onset, including race, education, access to private health insurance, number of activities of daily living that were difficult, number of chronic conditions, and already receiving help. This demonstrates potential gaps in dementia care, and which subpopulations may benefit most from targeted interventions for household members who do not have adequate caregiving resources or programs that provide additional formal care.
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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article