Child-rearing practices of primary caregivers of children with sickle cell disease: the perspective of professionals and caregivers.
J Pediatr Psychol
; 23(2): 131-40, 1998 Apr.
Article
em En
| MEDLINE
| ID: mdl-9585639
ABSTRACT
OBJECTIVE:
To obtain caregiver and medical professional opinions regarding the child-rearing practices of caregivers of children with sickle cell diseases (SCD).METHODS:
We obtained self-reports of parenting practices from 48 caregivers of children with SCD and 48 caregivers of matched classroom comparison peers using the Child-Rearing Practices Report (CRPR). CRPR ratings were also obtained from 12 experts in pediatric SCD regarding their predictions of how a parent of a child with SCD would respond. The experts predicted differences in protectiveness, discipline, and excessive worry. Objective interim and lifetime illness severity scores were obtained for the children with SCD.RESULTS:
Caregivers showed similarity between the two groups, disagreement with the experts, and minimal relationship to illness severity.CONCLUSIONS:
Experts who work with children with chronic illnesses such as SCD seem to have stereotyped ideas that do not correspond with parental reports of their child-rearing practices, suggesting the need for careful clinical evaluations.
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Base de dados:
MEDLINE
Assunto principal:
Equipe de Assistência ao Paciente
/
Educação Infantil
/
Cuidadores
/
Anemia Falciforme
Idioma:
En
Ano de publicação:
1998
Tipo de documento:
Article