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1.
Br J Surg ; 108(6): 613-621, 2021 06 22.
Article in English | MEDLINE | ID: mdl-34157080

ABSTRACT

INTRODUCTION: Operating room recording, via video, audio and sensor-based recordings, is increasingly common. Yet, surgical data science is a new field without clear guidelines. The purpose of this study is to examine existing published studies of surgical recording modalities to determine which are available for use in the operating room, as a first step towards developing unified standards for this field. METHODS: Medline, EMBASE, CENTRAL and PubMed databases were systematically searched for articles describing modalities of data collection in the operating room. Search terms included 'video-audio media', 'bio-sensing techniques', 'sound', 'movement', 'operating rooms' and others. Title, abstract and full-text screening were completed to identify relevant articles. Descriptive statistical analysis was performed for included studies. RESULTS: From 3756 citations, 91 studies met inclusion criteria. These studies described 10 unique data-collection modalities for 17 different purposes in the operating room. Data modalities included video, audio, kinematic and eye-tracking among others. Data-collection purposes described included surgical trainee assessment, surgical error, surgical team communication and operating room efficiency. CONCLUSION: Effective data collection and utilization in the operating room are imperative for the provision of superior surgical care. The future operating room landscape undoubtedly includes multiple modalities of data collection for a plethora of purposes. This review acts as a foundation for employing operating room data in a way that leads to meaningful benefit for patient care.


Subject(s)
Data Collection/methods , Operating Rooms/statistics & numerical data , Surgical Procedures, Operative/statistics & numerical data , Data Collection/instrumentation , Humans , Surgical Procedures, Operative/methods , Tape Recording , Video Recording
2.
ScientificWorldJournal ; 2021: 6076828, 2021.
Article in English | MEDLINE | ID: mdl-34335114

ABSTRACT

This paper investigated the performance of a number of acoustic measures, both individually and in combination, in predicting the perceived quality of sustained vowels produced by people impaired with Parkinson's disease (PD). Sustained vowel recordings were collected from 51 PD patients before and after the administration of the Levodopa medication. Subjective ratings of the overall vowel quality were garnered using a visual analog scale. These ratings served to benchmark the effectiveness of the acoustic measures. Acoustic predictors of the perceived vowel quality included the harmonics-to-noise ratio (HNR), smoothed cepstral peak prominence (CPP), recurrence period density entropy (RPDE), Gammatone frequency cepstral coefficients (GFCCs), linear prediction (LP) coefficients and their variants, and modulation spectrogram features. Linear regression (LR) and support vector regression (SVR) models were employed to assimilate multiple features. Different feature dimensionality reduction methods were investigated to avoid model overfitting and enhance the prediction capabilities for the test dataset. Results showed that the RPDE measure performed the best among all individual features, while a regression model incorporating a subset of features produced the best overall correlation of 0.80 between the predicted and actual vowel quality ratings. This model may therefore serve as a surrogate for auditory-perceptual assessment of Parkinsonian vowel quality. Furthermore, the model may offer the clinician a tool to predict who may benefit from Levodopa medication in terms of enhanced voice quality.


Subject(s)
Parkinson Disease/complications , Voice Quality , Aged , Aged, 80 and over , Antiparkinson Agents/therapeutic use , Female , Humans , Levodopa/therapeutic use , Male , Middle Aged , Parkinson Disease/drug therapy , Phonation , Speech Acoustics , Speech Therapy , Tape Recording , Voice Disorders/etiology , Voice Disorders/therapy
3.
Palliat Support Care ; 19(4): 421-436, 2021 08.
Article in English | MEDLINE | ID: mdl-32912373

ABSTRACT

OBJECTIVES: While patients' symptom experiences have been widely investigated, there is a lack of contextualized studies investigating how symptoms circulate in the medical consultation, how patients present them, what they convey, how physicians respond, and how patients and physicians negotiate with each other to find ways to address them. The aim of this study is to explore patients and physicians handling of symptoms throughout oncological consultations with a multiple case study approach. METHODS: Five consultations, purposively selected from an existing dataset of audiotaped consultations with patients with advanced cancer, were analyzed by means of an inductive analytical approach based on a sensitive framework from the literature. RESULTS: Patients' symptoms showed multiple dimensions such as medical, cognitive, emotional, psychological, interactional, symbolic, experiential, and existential. SIGNIFICANCE OF RESULTS: Different symptom dimensions remained unnoticed and unaddressed in the consultations. The physician-centered symptom approach that was observed leads to consumed time and missed opportunities for relationship building with the patient. Physicians showed a lack of sensitivity regarding the multiple dimensions of symptoms. Based on the findings, strategies for a more comprehensive symptom approach can be conceived.


Subject(s)
Neoplasms , Physicians , Humans , Medical Oncology , Neoplasms/complications , Physician-Patient Relations , Referral and Consultation , Tape Recording
4.
Ann Rheum Dis ; 79(2): 170-175, 2020 02.
Article in English | MEDLINE | ID: mdl-31662320

ABSTRACT

OBJECTIVES: Although shared decision making (SDM) is advocated in rheumatoid arthritis (RA) treatment, it is largely unclear when, how and to what extent SDM is applied in routine clinical care of patients with RA. This study aimed to investigate the level of SDM in RA treatment from an observer perspective and to assess associations between the level of SDM and characteristics of the clinician, patient and consultation. METHODS: The level of SDM was investigated by scoring audio-recordings of 168 routine consultations with unique patients with the observer patient involvement (OPTION) scale (scale 0-100, higher OPTION scores indicating higher levels of SDM). Associations between the level of SDM and characteristics of the clinician, patient and consultation were assessed using multilevel modelling. Statistical significance was set at p<0.05. RESULTS: The mean OPTION score was 28.3 (SD=15.1). The multilevel model included four characteristics: clinician age, patient age, consultation duration and type of treatment decision. There were significant, positive associations between the level of SDM and the consultation duration (b=0.63, 95% CI 0.16 to 1.11), decision for stopping and/or starting medication (b=14.30, 95% CI 5.62 to 22.98), decision for adjusting medication doses (b=8.36, 95% CI 3.92 to 12.81) and decision for administering single dose glucocorticoids (b=15.03, 95% CI 9.12 to 20.93). Thus, a higher level of SDM was significantly associated with a longer consultation duration and the type of treatment decision. No other significant associations were found. CONCLUSIONS: Overall, the level of SDM in RA treatment leaves room for improvement. To foster SDM in routine clinical care, training programmes on patient-centred communication skills may be helpful.


Subject(s)
Arthritis, Rheumatoid/psychology , Decision Making, Shared , Patient Participation , Physician-Patient Relations , Adult , Arthritis, Rheumatoid/therapy , Communication , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Multilevel Analysis , Netherlands , Referral and Consultation , Tape Recording
5.
Horm Behav ; 122: 104762, 2020 06.
Article in English | MEDLINE | ID: mdl-32353446

ABSTRACT

Women's voices reportedly sound more attractive during the fertile days compared to the non-fertile days of their menstrual cycle. Here we investigated whether the speech content modulates the cyclic changes in women's voices. We asked 72 men and women to rate how interested they were in getting to know the speaker based on her voice. Forty-two naturally cycling women were recorded once during the late follicular phase (high fertility) and once during the luteal phase (low fertility) while speaking sentences of neutral and social content. Listeners were more interested in getting to know the speakers when hearing sentences with social content. Furthermore, raters were more interested in getting to know the speakers when these were recorded in the late follicular than in the luteal phase, but only in sentences with social content. Notably, levels of reproductive hormones (EP ratio) across the cycle phases did not significantly predict the preference for late follicular voices, but echoing the perceptual ratings, there was a significant EP ratio x speech content interaction. Phonetic analyses of mean fundamental frequency (F0) revealed a main effect of menstrual cycle phase and speech content but no interaction. Employing an action-oriented task, the present study extends findings of cycle-dependent voice changes by emphasising that speech content critically modulates fertility effects.


Subject(s)
Menstrual Cycle/physiology , Social Environment , Voice/physiology , Adult , Auditory Perception/physiology , Choice Behavior/physiology , Female , Fertility/physiology , Follicular Phase/metabolism , Gonadal Steroid Hormones/metabolism , Gonadal Steroid Hormones/urine , Humans , Luteal Phase/metabolism , Male , Menstrual Cycle/metabolism , Menstrual Cycle/urine , Saliva/chemistry , Saliva/metabolism , Speech/physiology , Tape Recording
6.
Cochrane Database Syst Rev ; 4: CD011882, 2020 04 20.
Article in English | MEDLINE | ID: mdl-32311774

ABSTRACT

BACKGROUND: Dementia is a common and serious neuropsychiatric syndrome, characterised by progressive cognitive and functional decline. The majority of people with dementia develop behavioural disturbances, also known as behavioural and psychological symptoms of dementia (BPSD). Several non-pharmacological interventions have been evaluated to treat BPSD in people with dementia. Simulated presence therapy (SPT), an intervention that uses video or audiotape recordings of family members played to the person with dementia, is a possible approach to treat BPSD. OBJECTIVES: To assess the effects of SPT on behavioural and psychological symptoms and quality of life in people with dementia. SEARCH METHODS: We searched ALOIS (the Specialised Register of the Cochrane Dementia and Cognitive Improvement Group), CENTRAL (The Cochrane Library) (9 April 2020), MEDLINE Ovid SP (1946 to 9 April 2020), Embase Ovid SP (1972 to 9 April 2020), PsycINFO Ovid SP (1806 to 9 April 2020), CINAHL via EBSCOhost (1980 to 9 April 2020), LILACS via BIREME (all dates to 9 April 2020), ClinicalTrials.gov (ClinicalTrials.gov) (all dates to 9 April 2020), and the World Health Organization (WHO) Portal (apps.who.int/trialsearch) (all dates to 9 April 2020). We also checked the reference lists of relevant articles to identify any additional studies. SELECTION CRITERIA: Randomised and quasi-randomised controlled trials, including cross-over studies, that evaluated the efficacy of SPT, consisting of personalised audio or videotape recordings of family members, in people with any form of dementia. DATA COLLECTION AND ANALYSIS: Two authors independently selected studies, assessed risk of bias and extracted data. No meta-analyses were conducted because of substantial heterogeneity among the included studies. MAIN RESULTS: Three trials with 144 participants met the inclusion criteria. Two of the trials had a randomised cross-over design, one was a cross-over trial which we classified as quasi-randomised. Participants in the included studies were people with dementia living in nursing homes. They were predominantly women and had a mean age of over 80 years. SPT was performed using an audio or video recording prepared by family members or surrogates. It varied in its content, frequency of administration and duration. All the studies compared multiple treatments. In one study, SPT was compared with two other interventions; in the other two studies, it was compared with three other interventions. Specifically, SPT was compared to usual care, personalised music (two studies), a 'placebo' audiotape containing the voice of a person (two studies), and one-to-one social interaction performed by trained research assistants (one study). In terms of outcomes evaluated, one study considered agitation and withdrawn behaviour (both assessed with three methods); the second study evaluated verbal disruptive behaviour (assessed with three methods); and the third study evaluated physically agitated behaviour and verbally agitated behaviour (the method used was not clearly described). According to the GRADE criteria, the overall quality of the evidence was very low due to very small numbers of participants and risk of bias in the included studies; (none of the trials was at low risk of selection bias; all the trials were at high risk of performance bias; one trial was at high risk of attrition bias; and all had unclear selective reporting). Because of variation in the participants, the format of SPT, the comparison interventions, and the measures used to assess outcomes, we judged the results unsuitable for a meta-analysis. Within each trial, the effect of SPT on behaviour, compared to usual care, was mixed and depended on the measure used. Two trials which included a personalised music intervention reported no significant differences between simulated presence and music on behavioural outcomes. Because the overall quality of the evidence was very low, we were very uncertain regarding all the results None of the studies evaluated quality of life or any of our secondary outcome measures (performance of activities of daily living, dropout and carer burden). AUTHORS' CONCLUSIONS: We were unable to draw any conclusions about the efficacy of SPT for treating behavioural and psychological symptoms and improving quality of life of people with dementia. New high-quality studies are needed to investigate the effect of SPT.


Subject(s)
Dementia/therapy , Depression/therapy , Family , Psychomotor Agitation/therapy , Tape Recording , Videotape Recording , Aged, 80 and over , Dementia/psychology , Female , Humans , Male , Randomized Controlled Trials as Topic
7.
BMC Med Res Methodol ; 19(1): 139, 2019 07 04.
Article in English | MEDLINE | ID: mdl-31272386

ABSTRACT

BACKGROUND: Information exchange between physician and patient is crucial to achieve patient involvement, shared decision making and treatment adherence. No reliable method exists for measuring how much information physicians provide in a complex, unscripted medical conversation, nor how much of this information patients recall. This study aims to fill this gap by developing a measurement system designed to compare complex orally provided information to patient recall. METHODS: The development of the complex information transfer measurement system required nine methodological steps. Core activities were data collection, definition of information units and the first draft of a codebook, refinement through independent coding and consensus, and reliability testing. Videotapes of physician-patient consultations based on a standardized scenario and post-consultation interviews with patients constituted the data. The codebook was developed from verbatim transcriptions of the videotapes. Inter-rater reliability was calculated using a random selection of 10% of the statements in the transcriptions. RESULTS: Thirtyfour transcriptions of visits and interviews were collected. We developed a set of rules for defining a single unit of information, defined detailed criteria for exclusion and inclusion of relevant units of information, and outlined systematic counting procedures. In the refinement phase, we established a system for comparing the information provided by the physician with what the patient recalled. While linguistic and conceptual issues arose during the process, coders still achieved good inter-rater reliability, with intra-class correlation for patient recall: 0.723, and for doctors: 0.761. A full codebook is available as an appendix. CONCLUSIONS: A measurement system specifically aimed at quantifying complex unscripted information exchange may be a useful addition to the tools for evaluating the results of health communication training and randomized controlled trials.


Subject(s)
Communication , Decision Making , Patient Participation/statistics & numerical data , Physician-Patient Relations , Referral and Consultation , Adult , Aged , Female , Humans , Male , Middle Aged , Patient Participation/methods , Patient Participation/psychology , Process Assessment, Health Care/methods , Process Assessment, Health Care/standards , Process Assessment, Health Care/statistics & numerical data , Reproducibility of Results , Tape Recording/methods
8.
Dev Sci ; 22(1): e12724, 2019 01.
Article in English | MEDLINE | ID: mdl-30369005

ABSTRACT

A range of demographic variables influences how much speech young children hear. However, because studies have used vastly different sampling methods, quantitative comparison of interlocking demographic effects has been nearly impossible, across or within studies. We harnessed a unique collection of existing naturalistic, day-long recordings from 61 homes across four North American cities to examine language input as a function of age, gender, and maternal education. We analyzed adult speech heard by 3- to 20-month-olds who wore audio recorders for an entire day. We annotated speaker gender and speech register (child-directed or adult-directed) for 10,861 utterances from female and male adults in these recordings. Examining age, gender, and maternal education collectively in this ecologically valid dataset, we find several key results. First, the speaker gender imbalance in the input is striking: children heard 2-3× more speech from females than males. Second, children in higher-maternal education homes heard more child-directed speech than those in lower-maternal education homes. Finally, our analyses revealed a previously unreported effect: the proportion of child-directed speech in the input increases with age, due to a decrease in adult-directed speech with age. This large-scale analysis is an important step forward in collectively examining demographic variables that influence early development, made possible by pooled, comparable, day-long recordings of children's language environments. The audio recordings, annotations, and annotation software are readily available for reuse and reanalysis by other researchers.


Subject(s)
Language Development , Speech Perception , Adult , Child, Preschool , Demography , Educational Status , Female , Humans , Infant , Male , Sex Factors , Tape Recording , United States
9.
World J Surg ; 43(2): 425-430, 2019 Feb.
Article in English | MEDLINE | ID: mdl-30267290

ABSTRACT

BACKGROUND: Literature suggests that patient-informing process prior to obtaining surgical informed consent (SIC) does not function well. This study aimed to provide insight into the current practice of SIC in the Netherlands. METHODS: This is a prospective, observational, and multicenter study, conducted in one academic and two non-academic teaching hospitals in the Netherlands. Audio recordings were made during outpatient consultations with patients presenting with Dupuytren Disease. The recorded informing process was scored according to a checklist. Written documentation of the SIC process in the patient's chart was compared to these scored checklists. Time spent on SIC during the consultations was also recorded. RESULTS: A total of 41 outpatient consultations were included in the study. Consultations were conducted by 25 plastic surgeons and their residents. Average time spent on SIC was 55.6% of the total consultation time. Considerable variation was observed concerning the amount and type of information given and discussed. In 59% of the consultations, discrepancies were observed between written documentation of consultations and audio recordings. Information on treatment risks, the postoperative period, and the operating surgeon was addressed the least. CONCLUSION: Despite a relatively large part of the consultation time being spent on SIC, patients received scarce information concerning treatment risks, postoperative period, and who their operating surgeon would be. Discrepancies were observed between the written documentation of SIC and information recorded on the audio recordings. This occurred predominantly in one hospital that used a pre-made list of 'discussed information' in its digital patient chart.


Subject(s)
Ambulatory Care/standards , Dupuytren Contracture/surgery , Informed Consent/standards , Referral and Consultation/standards , Aged , Aged, 80 and over , Checklist , Disclosure , Dupuytren Contracture/psychology , Female , Humans , Male , Medical Records , Middle Aged , Physician-Patient Relations , Prospective Studies , Tape Recording , Time Factors
10.
Anaesthesia ; 74(9): 1095-1100, 2019 Sep.
Article in English | MEDLINE | ID: mdl-30973191

ABSTRACT

Audio recording consent discussions, and giving a copy of the recording to the patient to keep, might improve the consent process and reduce the risk of misunderstandings, complaints or medicolegal claims. However, there may be concerns over confidentiality and how being recorded could affect the consent discussion. We ascertained the views of 50 postnatal women and 100 maternity staff (25 anaesthetists, 25 obstetricians and 50 midwives) on making audio recordings of consent discussions. There was a wide range of opinions, with women and staff similarly supportive of audio recording overall, but the women were more supportive of recording than the staff when asked if they were against it, or whether they would support recording the discussion if the patient requested it; and less concerned than the staff regarding the potential disadvantages of audio recording. There were no significant differences in the views between anaesthetists, obstetricians and midwives.


Subject(s)
Attitude of Health Personnel , Informed Consent , Obstetrics and Gynecology Department, Hospital , Patient Participation/statistics & numerical data , Personnel, Hospital/psychology , Tape Recording , Adult , Anesthesiologists/psychology , Anesthesiologists/statistics & numerical data , Female , Humans , Male , Midwifery/statistics & numerical data , Patient Participation/psychology , Physicians/psychology , Physicians/statistics & numerical data , Postpartum Period , Surveys and Questionnaires
11.
BMC Health Serv Res ; 19(1): 612, 2019 Aug 30.
Article in English | MEDLINE | ID: mdl-31470856

ABSTRACT

BACKGROUND: Shared decision-making (SDM) is a key principle in asthma management, but continues to be poorly implemented in routine care. This study aimed to evaluate the impact of a SDM communication skills training for physicians treating patients with asthma on the SDM behaviors of physicians, and to analyze physician views on the training. METHODS: A mixed methods study with a partially mixed sequential equal status design was conducted to evaluate a 12 h SDM communication skills training for physicians treating patients with asthma. It included a short introductory talk, videotaped consultations with simulated asthma patients, video analysis in small group sessions, individual feedback, short presentations, group discussions, and practical exercises. The quantitative evaluation phase consisted of a before (t0) after (t1) comparison of SDM performance using the observer-rated OPTION5, the physician questionnaire SDM-Q-Doc, and the patient questionnaire SDM-Q-9, using dependent t-tests. The qualitative evaluation phase (t2) consisted of a content analysis of audiotaped and transcribed interviews. RESULTS: Initially, 29 physicians participated in the study, 27 physicians provided quantitative data, and 22 physicians provided qualitative data for analysis. Quantitative results showed significantly improved performance in SDM following the training (t1) when compared with performance in SDM before the training (t0) (OPTION5: t (26) = - 5.16; p < 0.001) (SDM-Q-Doc: t (26) = - 4.39; p < 0.001) (SDM-Q-9: t (26) = - 5.86; p < 0.001). The qualitative evaluation showed that most physicians experienced a change in attitude and behavior after the training, and positively appraised the training program. Physicians considered simulated patient consultations, including feedback and video analysis, beneficial and suggested the future use of real patient consultations. CONCLUSION: The SDM communication skills training for physicians treating patients with asthma has potential to improve SDM performance, but would benefit from using real patient consultations.


Subject(s)
Asthma/therapy , Clinical Competence/standards , Decision Making, Shared , Physicians/standards , Aged , Communication , Feedback , Female , Humans , Male , Middle Aged , Patient Participation , Patient Simulation , Physician-Patient Relations , Surveys and Questionnaires , Tape Recording , Video Recording
12.
J Health Commun ; 24(9): 711-718, 2019.
Article in English | MEDLINE | ID: mdl-31525115

ABSTRACT

Despite the importance of empathic communication in cancer patient outcomes, the majority of opportunities to respond empathically to a patient's concern within clinical consultations are "missed" (i.e., 70-90%), or not responded to by physicians. The present study examined the empathic opportunities and responses within clinical consultations of lung cancer patients and how these each are associated with patient-reported outcomes. Results indicate that lung cancer patients (n = 56) most commonly presented empathic opportunities related to emotions, anxiety was significantly associated with empathic opportunity type (p = .011), and physicians are most likely to respond with high empathy to statements around a patient making progress rather than bringing up a challenge or an emotion they felt (p = .031). The present study results highlight the need to train lung cancer physicians to respond with higher empathy to opportunities to respond to negative emotions, including mentions of challenges faced or emotions experienced, as these patients are at the highest risk of experiencing distress and the least likely to receive a high empathic response from physicians.


Subject(s)
Communication , Empathy , Lung Neoplasms/therapy , Physician-Patient Relations , Physicians/psychology , Aged , Emotions , Female , Humans , Lung Neoplasms/psychology , Male , Middle Aged , Tape Recording
13.
Proc Natl Acad Sci U S A ; 113(34): 9641-6, 2016 08 23.
Article in English | MEDLINE | ID: mdl-27506786

ABSTRACT

Predicting future events is a critical computation for both perception and behavior. Despite the essential nature of this computation, there are few studies demonstrating neural activity that predicts specific events in learned, probabilistic sequences. Here, we test the hypotheses that the dynamics of internally generated neural activity are predictive of future events and are structured by the learned temporal-sequential statistics of those events. We recorded neural activity in Bengalese finch sensory-motor area HVC in response to playback of sequences from individuals' songs, and examined the neural activity that continued after stimulus offset. We found that the strength of response to a syllable in the sequence depended on the delay at which that syllable was played, with a maximal response when the delay matched the intersyllable gap normally present for that specific syllable during song production. Furthermore, poststimulus neural activity induced by sequence playback resembled the neural response to the next syllable in the sequence when that syllable was predictable, but not when the next syllable was uncertain. Our results demonstrate that the dynamics of internally generated HVC neural activity are predictive of the learned temporal-sequential structure of produced song and that the strength of this prediction is modulated by uncertainty.


Subject(s)
Auditory Perception/physiology , Finches/physiology , Mental Recall/physiology , Neurons/physiology , Sensorimotor Cortex/physiology , Vocalization, Animal/physiology , Acoustic Stimulation , Animals , Male , Models, Neurological , Neurons/cytology , Tape Recording , Time Factors , Uncertainty
14.
Qual Health Res ; 29(5): 672-679, 2019 04.
Article in English | MEDLINE | ID: mdl-30791819

ABSTRACT

Randomized controlled trials (RCTs) can provide high quality evidence about the comparative effectiveness of health care interventions, but many RCTs struggle with or fail to complete recruitment. RCTs are built on the principles of the experimental method, but their planning, conduct, and interpretation can depend on complex social, behavioral, and cultural factors that may be best understood through qualitative research. Most qualitative studies undertaken alongside RCTs involve interviews that produce data that are used in a supportive or supplicatory role, but there is potential for qualitative research to be more influential. In this article, we describe the research methods underpinning the "QuinteT" (Qualitative Research Integrated Within Trials) approach to understand and address RCT recruitment difficulties. The QuinteT Recruitment Intervention (QRI) brings together multiple qualitative strategies and quantitative data and uses triangulation to understand recruitment issues rapidly. These nuanced understandings are used to inform the implementation of collaborative actions to improve recruitment.


Subject(s)
Patient Selection , Qualitative Research , Randomized Controlled Trials as Topic/methods , Humans , Interviews as Topic , Research Design , Tape Recording
15.
Qual Health Res ; 29(5): 680-692, 2019 04.
Article in English | MEDLINE | ID: mdl-29938607

ABSTRACT

This methodological article reflects on the contribution audio diaries can make to accessing important, and commonly silenced, dimensions of the lived experience of growing up with HIV and their acceptability to children. Audio diaries were used by 12 young people, aged 11 to 13 years, as part of a longitudinal qualitative study embedded within the Anti-Retroviral Research for Watoto (ARROW) clinical trial. The method provided an alternative means for young people to express detailed reflections on their day-to-day encounters, as well as ordinarily silenced topics, including hidden and suppressed emotions regarding the circumstance surrounding their perinatal infection. Although the audio diary has great potential as method, its efficacy rests on young people's understanding of how to use it. There are ethical challenges around maintaining confidentiality while participants are in possession of the diaries and provision of appropriate support. The technology used in the study was in many ways cumbersome compared with opportunities increasingly available.


Subject(s)
Attitude to Health , Diaries as Topic , Emotions , HIV Infections/psychology , Adolescent , Anti-Retroviral Agents/therapeutic use , Child , Clinical Trials as Topic , Female , HIV Infections/drug therapy , Humans , Interviews as Topic , Longitudinal Studies , Male , Tape Recording , Zimbabwe
16.
Qual Health Res ; 29(5): 719-730, 2019 04.
Article in English | MEDLINE | ID: mdl-30499374

ABSTRACT

In this article, we present a case study in which we consider our use of the audio diary method with young people (aged 10-24) living with HIV in Uganda in a longitudinal qualitative study conducted in a clinical randomized control trial. Despite initial enthusiasm for the method among participants to capture accounts of participants' experiences outside of the confines of the HIV clinic, the constraints the young people encountered in accessing sufficient privacy to confidently make recordings meant that no one elected to use them again in the study. Despite the insights the use of the method generated, the lack of acceptability led to its relative failure. This demonstrates that despite the call for innovation, there is an unwavering necessity when selecting methods that they align with the needs and preferences of our participants and with an attentive assessment of the local context in which illness narratives are produced.


Subject(s)
Confidentiality/psychology , Diaries as Topic , HIV Infections/psychology , Health Knowledge, Attitudes, Practice , Tape Recording , Adolescent , Adult , Child , Female , HIV Infections/drug therapy , Humans , Interviews as Topic , Longitudinal Studies , Male , Medication Adherence/psychology , Qualitative Research , Randomized Controlled Trials as Topic , Uganda , Young Adult
17.
Holist Nurs Pract ; 33(2): 111-120, 2019.
Article in English | MEDLINE | ID: mdl-30747780

ABSTRACT

Despite the plethora of treatments available for patients with fibromyalgia, there is insufficient evidence to date as to what the ideal treatment approach is. This study sought to determine the effectiveness of a home program of audio-recorded guided imagery relaxation on people with fibromyalgia. This experimental 8-week longitudinal trial design was undertaken with 60 people diagnosed with fibromyalgia who were randomly assigned to either a guided imagery intervention group or a control group. Pain at tender points, anxiety, self-efficacy, quality of sleep, quality of life, and the impact of the fibromyalgia were determined at baseline, at 4 weeks, and at 8 weeks. After the guided imagery intervention, we found significant differences regarding trait anxiety, sleep quality, and tenderness at some of the tender points. There is a need, therefore, to develop and evaluate interventions that may enhance the quality of life of those affected by this disorder.


Subject(s)
Fibromyalgia/therapy , Imagery, Psychotherapy/methods , Relaxation Therapy/methods , Anxiety/psychology , Anxiety/therapy , Female , Fibromyalgia/psychology , Humans , Imagery, Psychotherapy/trends , Male , Middle Aged , Psychometrics/instrumentation , Psychometrics/methods , Relaxation Therapy/trends , Self Efficacy , Sleep Wake Disorders/psychology , Sleep Wake Disorders/therapy , Surveys and Questionnaires , Tape Recording/methods , Tape Recording/standards , Treatment Outcome
18.
Sex Transm Infect ; 94(2): 88-92, 2018 03.
Article in English | MEDLINE | ID: mdl-28778979

ABSTRACT

OBJECTIVES: Domestic violence and abuse (DVA) is a major clinical challenge and public health issue. Sexual health services are an important potential site of DVA intervention. The Assessing for Domestic Violence in Sexual Health Environments (ADViSE) intervention aimed to improve identification and management of DVA in sexual healthcare settings and is a modified version of the Identification and Referral to Improve Safety (IRIS) general practice programme. Our qualitative evaluation aimed to explore the experiences of staff participating in an IRIS ADViSE pilot. METHODS: Interviews were conducted with 17 sexual health clinic staff and DVA advocate workers. Interviews were audio recorded, transcribed, anonymised and analysed thematically. RESULTS: Staff prioritised enquiring about DVA and tailored their style of enquiry to the perceived characteristics of patients, current workload and individual clinical judgements. Responding to disclosures of abuse was divided between perceived low-risk cases (with quick onwards referral) and high-risk cases (requiring deployment of institution safeguarding procedures), which were viewed as time consuming and could create tensions with patients. Ongoing training and feedback, commissioner recognition, adequate service-level agreements and reimbursements are required to ensure sustainability and wider implementation of IRIS ADViSE. CONCLUSIONS: Challenges of delivering and sustaining IRIS ADViSE included the varied styles of enquiry, as well as tensions and additional time pressure arising from disclosure of abuse. These can be overcome by modifying initial training, providing regular updates and stronger recognition (and resources) at policy and commissioning levels.


Subject(s)
Domestic Violence , General Practice/education , Sexual Health , Ambulatory Care Facilities , Crime Victims , Female , Humans , Interviews as Topic/standards , Male , Qualitative Research , Referral and Consultation , Tape Recording
19.
Psychooncology ; 27(9): 2206-2213, 2018 09.
Article in English | MEDLINE | ID: mdl-29904980

ABSTRACT

OBJECTIVE: This study revealed the landscape of noncancer conversations, identifying topics and types of everyday conversation, and examined links to psychological adjustment among couples coping with breast cancer. METHODS: Fifty-two couples wore the Electronically Activated Recorder (EAR) over 1 weekend and self-reported psychological adjustment while patients were on treatment. The EAR sampled 50 s of ambient sound every 9 minutes to estimate the frequency of noncancer conversation and reveal topics and types of conversation. RESULTS: Analyses revealed noncancer conversations comprised over 93% of conversations. The most common topic discussed was people. Substantive conversation was associated with better, while emotional disclosure was associated with worse, well-being for patients, but not spouses. CONCLUSIONS: Results revealed that ordinary conversations are frequent among couples who face breast cancer, and they are associated with patients' psychological adjustment, providing a foundation for potential interventions for coping with cancer that do not focus on illness.


Subject(s)
Adaptation, Psychological , Attitude to Health , Breast Neoplasms/psychology , Spouses/psychology , Tape Recording , Communication , Emotional Adjustment , Female , Humans , Male , Middle Aged , Social Adjustment
20.
Psychooncology ; 27(9): 2180-2188, 2018 09.
Article in English | MEDLINE | ID: mdl-29893041

ABSTRACT

OBJECTIVE: Ethnicity and migrant status result in disparities with cancer burden and survival, with communication difficulties cited as the main barrier to access. Our research team tested a communication intervention package comprising consultation audio-recordings (ARs) and question prompt lists (QPLs) for low English-speaking (LES) patients with cancer. This study explored LES patient experiences, preferences, and recommendations regarding the communication package. METHODS: Participants completed a questionnaire and qualitative interview regarding ARs and QPLs. Eligibility criteria comprised aged ≥18 years old; a consultation with an oncologist between June 1, 2015 and April 1, 2016; an Arabic, Cantonese, Greek, or Mandarin professional interpreter booked for that consultation; and randomised to receive the communication intervention. RESULTS: Eighteen patients completed the qualitative interview and 17 completed the questionnaire. Fifteen reported listening to the AR at least once. Participants reported that QPLs and ARs provide support and assistance with remembering and understanding medical information. Both resources were seen as having applicability beyond the oncology setting in regards to improving health service delivery and continuity of care. However, patients felt that individual tailoring of the resources should be considered. Patients also found it useful to share ARs with family. CONCLUSIONS: The LES participants in this study considered the ARs and QPLs useful for most, but not all contexts. Recommendations regarding delivery and use highlight that these resources should be tailored and patient-driven. Further, patients foresaw a range of additional uses for consultation ARs within the broader healthcare context.


Subject(s)
Neoplasms/psychology , Patient Participation/statistics & numerical data , Physician-Patient Relations , Referral and Consultation/statistics & numerical data , Tape Recording/statistics & numerical data , Adult , Aged , Australia , Communication , Ethnicity/psychology , Female , Humans , Male , Medical Oncology , Middle Aged , Neoplasms/ethnology , Neoplasms/therapy , Surveys and Questionnaires
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