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1.
J Pediatr Nurs ; 73: e401-e408, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37863785

RESUMEN

BACKGROUND: Blood sampling, which is frequently performed on children admitted to hospital, causes them pain, anxiety and fear. OBJECTIVES: The study was carried out to determine the effects of dry heat and dry cold application before blood sampling on pain, anxiety and fear levels in school age children. METHODS: The study was conducted between June and January 2021 with a parallel-group randomized controlled experimental design. It was carried out with 117 children who applied to the Pediatric Blood Collection Polyclinic of a training and research hospital. The children were assigned to dry heat application, dry cold application and control group by simple randomization. Data were collected using the Child-Family Introductory Information Form, Wong Baker Faces Pain Rating Scale (WBFPS), Child Fear Anxiety Scale (CFAS) and Medical Procedure Fear Scale (MPFS). In the data analysis, descriptive statistics, the Kruskal-Wallis H test, the Dunn test, Yates correction and the Pearson Chi-Square test were used. A level of p < 0.05 was considered statistically significant. RESULTS: It was found that children who were treated with dry heat and dry cold before blood sampling experienced less pain. The anxiety of the children in the dry heat treatment group was lower than the control group. According to the children's MPFS Operational Fear sub-dimension median scores, procedural fear was found to be lower in the dry heat application group. PRACTICE IMPLICATIONS: Pediatric nurses can safely use dry heat and dry cold application in the management of invasive procedure-related pain, and dry heat application in the management of anxiety. TRIAL REGISTRATION: This trial is registered with the US National Institutes of Health (ClinicalTrials.gov) under the number NCT05974319.


Asunto(s)
Calor , Proyectos de Investigación , Humanos , Niño , Ansiedad/etiología , Dolor/prevención & control , Dolor/etiología , Miedo
2.
Rheumatol Int ; 38(Suppl 1): 395-402, 2018 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-29637329

RESUMEN

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Turkish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 466 JIA patients (13.7% systemic, 40.6% oligoarticular, 22.5% RF negative poly-arthritis, and 23.2% other categories) and 93 healthy children were enrolled in four centres. The JAMAR components discriminated well-healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Turkish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.


Asunto(s)
Artritis Juvenil/diagnóstico , Evaluación de la Discapacidad , Medición de Resultados Informados por el Paciente , Reumatología/métodos , Adolescente , Edad de Inicio , Artritis Juvenil/fisiopatología , Artritis Juvenil/psicología , Artritis Juvenil/terapia , Estudios de Casos y Controles , Niño , Preescolar , Características Culturales , Femenino , Estado de Salud , Humanos , Masculino , Padres/psicología , Pacientes/psicología , Valor Predictivo de las Pruebas , Pronóstico , Psicometría , Calidad de Vida , Reproducibilidad de los Resultados , Traducción , Turquía
3.
Clin Exp Rheumatol ; 34(6 Suppl 102): 129-135, 2016.
Artículo en Inglés | MEDLINE | ID: mdl-27791950

RESUMEN

OBJECTIVES: To develop and test a new multidimensional questionnaire for assessment of children with auto-inflammatory disease (AID) such as FMF, PFAPA, HIDS, TRAPS in standard clinical care. METHODS: The juvenile auto-inflammatory disease multidimensional assessment report (JAIMAR) includes 16 parent or patient-centered measures and four dimensions that assess functional status, pain, therapeutic compliance and health-related quality of life (physical, social, school, emotional status) with disease outcome. It is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 8-18 years for use as a self-report. RESULTS: 250 children with FMF were included in the study. Total of 179 forms were filled up by parents and patients, and 71 forms were filled up by parents having children less than 8 years. Completing and scoring the JAIMAR can be done in 15 minutes. For the JAIMAR's dimensions, the Cronbach's alpha coefficient for internal consistency was between 0.507-0.998. There was a significant and a positive correlation between the test-retest scale scores (ICC=0.607-0.966). Concerning construct validity, all factors loadings were above 0.30. For the criterion validity, the correlation level between each dimension and the related scale ranged from medium (r=0.329, p<0.0001) to large (r=0.894, p<0.0001). The parents' proxy-reported and children's self-reported data were outstandingly concordant (r=0.770-0.989). CONCLUSIONS: The development of the JAIMAR introduces a new and multi-dimensional approach in paediatric rheumatology practice. It is a new tool for children with auto-inflammatory dis-ease and it may help enhance their quality of care.


Asunto(s)
Fiebre Mediterránea Familiar/diagnóstico , Fiebre/diagnóstico , Enfermedades Autoinflamatorias Hereditarias/diagnóstico , Encuestas y Cuestionarios , Adolescente , Factores de Edad , Niño , Preescolar , Costo de Enfermedad , Fiebre Mediterránea Familiar/fisiopatología , Fiebre Mediterránea Familiar/psicología , Fiebre Mediterránea Familiar/terapia , Femenino , Fiebre/fisiopatología , Fiebre/psicología , Fiebre/terapia , Estado de Salud , Enfermedades Autoinflamatorias Hereditarias/fisiopatología , Enfermedades Autoinflamatorias Hereditarias/psicología , Enfermedades Autoinflamatorias Hereditarias/terapia , Humanos , Masculino , Valor Predictivo de las Pruebas , Calidad de Vida , Reproducibilidad de los Resultados , Índice de Severidad de la Enfermedad
4.
Clin Exp Rheumatol ; 33(6 Suppl 94): S156-62, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-26393894

RESUMEN

OBJECTIVES: To develop and assess the validity and reliability of an adherence scale concerning medical treatment in paediatric FMF patients. METHODS: The Medication Adherence Scale in FMF Patients (MASIF) is a 18-item questionnaire that evaluates adherence to medication in four domains. Validation of the instrument was accomplished in paediatric FMF patients (aged 2-18 years) under medication at least for 6 months. The first step was to build up the scale through qualitative approach (with interviews using semi-structured questions). Validation analyses included assessment of feasibility, face and content validity; construct validity, internal consistency and test-retest reliability. RESULTS: One hundred and fifty patients with FMF were enrolled in the study. The mean age of the patients was 11.11±4.02 years and 48.7% of them were male. The MASIF was found to be feasible and valid for both face and content. It correlated with the Morisky Medication Adherence Scale as a gold standard thereby demonstrating good construct validity (r=0.515, p<0.001). Assessment of content validity identified four subscales. The internal consistency, Cronbach's alpha was 0.728. There was a positive and significant correlation between test and retest scores (r=0.843; p<0.001). Also, a significant correlation between parents' and children's reports (r=0.781, p<0.001). CONCLUSIONS: Based on these results, the use of this scale to assess and follow up the adherence to treatment in paediatric FMF patients under medical treatment is recommended.


Asunto(s)
Fiebre Mediterránea Familiar/tratamiento farmacológico , Inmunosupresores/uso terapéutico , Cumplimiento de la Medicación , Encuestas y Cuestionarios , Adolescente , Factores de Edad , Niño , Preescolar , Fiebre Mediterránea Familiar/diagnóstico , Fiebre Mediterránea Familiar/epidemiología , Estudios de Factibilidad , Femenino , Humanos , Entrevistas como Asunto , Masculino , Investigación Cualitativa , Reproducibilidad de los Resultados , Resultado del Tratamiento , Turquía/epidemiología
5.
Clin Exp Rheumatol ; 32(3 Suppl 82): S122-7, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-24021608

RESUMEN

OBJECTIVES: The aim of this study was to develop a multidimensional assessment instrument named 'Juvenile Vasculitis Multidimensional Assessment Report' (J-VAMAR) to measure all the domains of the vasculitis. In this qualitative study, it is primarily aimed to enrich the item generation for the J-VAMAR. METHODS: Twelve children with vasculitis and their mothers (n=12) were enrolled in this study. The data were collected using both a demographic data form and a semi-structured interview form. The study was performed on individual patient face-to face interview. Data were analysed by grounded theory and the N Vivo 9 software program. RESULTS: Four categories were obtained. These categories were (i) physical effects of the illness, (ii) emotional effects of the illness, (iii) social effects of the illness and (iv) experienced challenges related to treatment process. In the physical effect category severe pain, physical limitations, weakness and fatigue; in emotional effect category thought of death, hopelessness and dissatisfaction about body image; in the social effects category decrease in academic performance, absenteeism to school and concealing the sickness from friends were the most common features. In the fourth category, subjects complained of lifelong drug use and frequency of daily drug consumptions. CONCLUSIONS: These results provide evidence-based data for the assessment of children with vasculitis by several domains including physical, emotional and social aspects as well as treatment protocols. The study provides the basis and/or justification for selecting the domains that the developing multidimensional instrument should include.


Asunto(s)
Adaptación Psicológica , Síntomas Afectivos , Vasculitis , Adolescente , Adulto , Síntomas Afectivos/diagnóstico , Síntomas Afectivos/etiología , Síntomas Afectivos/fisiopatología , Edad de Inicio , Niño , Preescolar , Costo de Enfermedad , Femenino , Evaluación del Impacto en la Salud , Humanos , Relaciones Interpersonales , Entrevista Psicológica/métodos , Italia , Masculino , Cumplimiento de la Medicación , Relaciones Madre-Hijo , Investigación Cualitativa , Índice de Severidad de la Enfermedad , Encuestas y Cuestionarios , Vasculitis/diagnóstico , Vasculitis/epidemiología , Vasculitis/fisiopatología , Vasculitis/psicología , Vasculitis/terapia
6.
J Child Health Care ; 27(1): 160-173, 2023 03.
Artículo en Inglés | MEDLINE | ID: mdl-36537754

RESUMEN

Calculating the correct medication dosage for pediatric patients can be difficult for nurses to determine, as the pediatric dose is typically a small fraction of the adult dosage. This study aims to examine the impact of the Triangle Technique on the ability of nursing students to calculate low and high safe dosage ranges in children. To evaluate how this educational tool could improve a nurse's skill in this area, a quasi-experimental pre-/post-test research design was employed including one hundred fifty-eight third-year nursing students. The Pediatric Medication Administration Form and Pediatric Safe Dosage Calculations Quiz (PSDCQ) were used to measure the effectiveness of the Triangle Technique. While <50% (n < 79) of students gave correct answers to each question in PSDCQ before this intervention, all of the participants (N = 158, 100%) gave a correct answer to one question, and >89.2% (n > 141) of the students correctly answered the other four questions of PSDCQ. The change in scores (pre-PSDCQ median score = 0, IQR = 60; post-PSDCQ median score = 100, IQR = 0) post-intervention was statistically significant (z = 10.633, p ≤ .001), indicating that this teaching technique was effective for improving students' ability to calculate pediatric safe dose ranges. Nursing students (n = 144, 91.1%) were satisfied with using Triangle Technique. Using the Triangle Technique can increase nursing students' understanding of how they calculate safe pediatric medication dosages.


Asunto(s)
Bachillerato en Enfermería , Estudiantes de Enfermería , Adulto , Humanos , Niño , Cálculo de Dosificación de Drogas , Competencia Clínica
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