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1.
Med Educ ; 58(4): 392-404, 2024 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-37725417

RESUMEN

PURPOSE: Good relationships between physicians, patients, families and the healthcare team are essential for high-quality care. Medical encounters are sometimes challenging. They may include conflicts, requiring physicians to be assertive: that is to share and protect their needs, rights and values while preserving those of others. Whereas assertiveness has been studied in patients and nursing staff (those with less power in healthcare), physicians' assertiveness, which must be mindful of these power differences, lacks a comprehensive review. Thus, this scoping review focuses on assertive communication in physicians' encounters. METHODS: A literature search of four online databases: MEDLINE, Embase, PsycINFO and WoS, seeking articles on physicians' assertiveness as a communication style published until February 2022. The Joanna Briggs Institute approach and the Preferred Reporting Items for Systematic Reviews checklist underpinned the review protocol. RESULTS: We identified 1513 articles relating to assertiveness, reviewed 153 full-text articles and selected 22 for full review, 68% from the last decade. The articles focused mainly on assertive communication and relationships with medical staff, with 54% focusing on bottom-up power relations. In 40% of the articles, no clear definition of assertiveness was included. Definitions included had varied focus: on self, on the other or both. Overall, assertiveness measures varied widely, precluding a methodical comparison. CONCLUSIONS: Despite the growing interest in physicians' assertiveness, a clearer definition and in-depth exploration of assertiveness are needed alongside development of valid measures of assertiveness appropriate to physicians. Based on the review, we offer a relational definition of assertiveness as the capacity to communicate one's views, concerns, rights and needs while respecting others and preserving therapeutic, collegial and educational professional alliances. This definition may serve to expand research in the field while offering a professional alternative to problematic communication styles-passive and self-denying or paternalistic and aggressive -that obfuscate and thus undermine physician-patient relationships.


Asunto(s)
Asertividad , Médicos , Humanos , Relaciones Médico-Paciente , Comunicación
2.
BMC Med Educ ; 23(1): 55, 2023 Jan 24.
Artículo en Inglés | MEDLINE | ID: mdl-36690999

RESUMEN

INTRODUCTION: Professional burnout is characterized by loss of enthusiasm for work, cynicism, and a low sense of personal efficacy. Burnout may adversely affect medical professionalism. Burnout is common in clinicians and varying rates have been reported in medical students. No data exist regarding the prevalence of burnout among Israeli medical students. The aims of this study were to assess the rate of burnout in Israeli medical students and to identify students who were particularly susceptible to burnout. METHODS: A cross-sectional questionnaire design was employed, gathering data from medical students in all years of study across three medical schools. Burnout was measured using the Maslach Burnout Inventory Student Survey (MBI-SS), translated into Hebrew. RESULTS: Of the 2160 students in the participating medical schools, 966 (44.7%) completed MBI-SS and demographic questionnaires. The overall burnout rate was 50.6%. Multivariate logistic regression analysis yielded that female gender, age under 25, advanced year of study, studying at a specific medical school and not being a parent are all significantly correlated with higher levels of burnout. CONCLUSIONS: A high rate of burnout was found. The identification of young women who are not parents during advanced years of studies as being at-risk is important, in order to guide the development of burnout prevention interventions.


Asunto(s)
Agotamiento Profesional , Estudiantes de Medicina , Humanos , Femenino , Agotamiento Profesional/epidemiología , Estudios Transversales , Israel , Encuestas y Cuestionarios
3.
Qual Health Res ; 33(1-2): 25-38, 2023 01.
Artículo en Inglés | MEDLINE | ID: mdl-36384326

RESUMEN

Medical clowns (MCs) are trained professionals who aim to change the hospital environment through humor. Previous studies focused on their positive impact and began identifying their various skills in specific situations. When placed in pediatrics, MCs face various challenges, including approaching frustrated adolescents who are unwilling to cooperate with their care, dealing with their anxious parents, and communicating in a team in the presence of other health professionals. Research that systematically describes MCs' skills and therapeutic goals in meeting these challenges is limited. This article describes a qualitative, immersion/crystallization study, triangulating between 26 video-recorded simulations and 12 in-depth-semi-structured interviews with MCs. Through an iterative consensus-building process we identified 40 different skills, not limited to humor and entertainment. Four main therapeutic goals emerged: building a relationship, dealing with emotions, enhancing a sense of control, caring, and encouragement, and motivating treatment adherence. Mapping MCs' skills and goals enhances the understanding of MCs' role and actions to illustrate their unique caring practices. This clarification may help other healthcare professionals to recognize their practices and the benefits in involving them in care. Furthermore, other health professionals may apply some of the identified skills when faced with these challenges themselves.


Asunto(s)
Emociones , Objetivos , Adolescente , Niño , Humanos , Investigación Cualitativa , Personal de Salud , Comunicación
4.
Med Teach ; 44(10): 1087-1091, 2022 10.
Artículo en Inglés | MEDLINE | ID: mdl-34057007

RESUMEN

Breaking bad news (BBN) is a difficult task that requires multiple professional competencies. The way it is managed has implications for all involved in the encounter: the patient, family members, and the news provider. Existing guidelines were developed mainly at the turn of the millennium and require updating based on identification of daily clinical needs and pedagogical challenges while teaching the current protocols. Furthermore, there is a need to provide an overview of BBN encounters as a process, rather than a subdivided event, to help practitioners adopt an approach that might serve them in their daily routines. This twelve tips article summarizes research and practical experience for handling BBN encounters, from their preparation, through delivering the news while attending patients and family members' needs, toward documenting the news, and critically reflecting on the interaction. The tips are structured and explained to serve both practitioners and medical educators.


Asunto(s)
Comunicación , Competencia Profesional , Humanos , Relaciones Médico-Paciente , Revelación de la Verdad
5.
Med Educ ; 55(4): 505-517, 2021 04.
Artículo en Inglés | MEDLINE | ID: mdl-33141960

RESUMEN

INTRODUCTION: Reflective ability is an important skill for enhancing professionalism and developing communication skills. To improve reflective ability, medical educators encourage use of written reflective journals, for which feedback is important. It is difficult for educators to anticipate how their feedback will be perceived. Therefore, this study examined students' experiences with educators' written feedback on reflective journals. METHODS: A qualitative, immersion/crystallization analysis of 60 written feedback texts to 15 medical students (30 identified by students as meaningful and 30 as less meaningful) and in-depth semi-structured interviews with these students. We did not define 'meaningful', to leave room for students' own interpretations. We analysed the feedback to identify what it includes (its components) and analysed the interviews to learn about students' experiences of receiving the feedback and the specific components. RESULTS: Students experienced five components as meaningful: supportive and encouraging statements; legitimisation of their emotions; educators sharing personal-professional experiences; asking questions to enhance reflection; and focusing on the students' main concern. These components enhanced students' willingness to read and learn from the feedback. Three components were experienced as less meaningful: detached, impersonal feedback; negative tone (criticism); and technical issues, for example brevity. These disappointing and hurtful components led students to pay less attention to the feedback or to invest less effort in future written assignments. CONCLUSIONS: The present study identified components in written reflective journal feedback texts and the experience and needs of students who received them. It showed the complexity of writing reflective feedback because of the need to support students through it, help them deal with emotions, identify and focus on personal content that matters to them, and provide opportunities to develop and enhance their reflective ability, while being mindful of their emotional state. To help educators in this challenging task, a self-assessment mnemonic ('FEEDBACK') for use before sending the initial feedback was developed.


Asunto(s)
Retroalimentación , Estudiantes de Medicina , Escritura , Humanos , Autoevaluación (Psicología)
6.
Harefuah ; 160(5): 291-296, 2021 May.
Artículo en Hebreo | MEDLINE | ID: mdl-34028220

RESUMEN

INTRODUCTION: The COVID-19 pandemic posed unique challenges to medical teams in general and in the field of obstetrics in particular, where the provision of medical services could not be postponed. Optimal care during the COVID-19 outburst required rapid adjustment to changes, ensuring staff and patients' safety while maintaining close and direct contact with patients. OBJECTIVES: To explore obstetricians' experiences during the first outburst, focusing on their challenges, needs and ways of coping. METHODS: Semi-structured in-depth interviews were conducted online with 13 senior physicians and residents (7 women, 6 men) from four hospitals, who worked in obstetrics. The interviews were analyzed using the Immersion/Crystallization method developed in medicine focused on their experiences. RESULTS: The findings revealed that alongside the impressive mobilization of the teams during this period, physicians encountered various challenges. These included being overwhelmed with the ever-changing and often conflicting guidelines; a feeling of lack of transparency and loss of trust in the system that did not always protect them nor provided their basic needs; difficulty in maintaining daily needed routines, such as communication within the team; dealing with patients' and their families anxiety; and striving to maintain a positive childbirth atmosphere along with having to set boundaries and keep distance. The teams felt the need for training in dealing with patients' and staff's emotional needs as well as finding ways to maintain a professional-friendly relationship among team members. CONCLUSIONS: The COVID-19 period forced obstetricians to change procedures and conduct themselves differently. They demonstrated a great commitment to assuring that women have a positive childbirth experience, even within the limitations of COVID. They experienced great difficulty as they themselves were dealing with fears of the virus, distancing from others, and addressing new emerging needs. DISCUSSION: Reports from around the world and the findings of the current study indicate the importance of developing processes that will enhance physicians' and patients' trust, to allow physicians to feel safe and cared for and to be able to provide high-quality care Identifying the challenges, needs and strengths of the medical teams can help in dealing with this and future pandemics. This requires caring for physicians, as individuals, as family members, as team members, along with provision of training that can help them communicate well to provide high-quality safe care.


Asunto(s)
COVID-19 , Médicos , Familia , Femenino , Humanos , Masculino , Pandemias , Embarazo , SARS-CoV-2
7.
Health Commun ; 34(6): 631-637, 2019 05.
Artículo en Inglés | MEDLINE | ID: mdl-29393685

RESUMEN

Shared decision making (SDM) is an effective health communication model designed to facilitate patient engagement in treatment decision making. In mental health, SDM has been applied and evaluated for medications decision making but less for its contribution to personal recovery and rehabilitation in psychiatric settings. The purpose of this pilot study was to assess the effect of SDM in choosing community psychiatric rehabilitation services before discharge from psychiatric hospitalization. A pre-post non-randomized design with two consecutive inpatient cohorts, SDM intervention (N = 51) and standard care (N = 50), was applied in two psychiatric hospitals in Israel. Participants in the intervention cohort reported greater engagement and knowledge after choosing rehabilitation services and greater services use at 6-to-12-month follow-up than those receiving standard care. No difference was found for rehospitalization rate. Two significant interaction effects indicated greater improvement in personal recovery over time for the SDM cohort. SDM can be applied to psychiatric rehabilitation decision making and can help promote personal recovery as part of the discharge process.


Asunto(s)
Toma de Decisiones Conjunta , Hospitales Psiquiátricos , Alta del Paciente , Rehabilitación Psiquiátrica , Adulto , Femenino , Humanos , Israel , Masculino , Persona de Mediana Edad , Proyectos Piloto , Encuestas y Cuestionarios
8.
Med Educ ; 52(5): 497-512, 2018 05.
Artículo en Inglés | MEDLINE | ID: mdl-29672937

RESUMEN

CONTEXT: Breaking bad news (BBN) is a challenge that requires multiple professional competencies. BBN teaching often includes didactic and group role-playing sessions. Both are useful and important, but exclude another critical component of students' learning: day-to-day role-model observation in the clinics. Given the importance of observation and the potential benefit of reflective writing in teaching, we have incorporated reflective writing into our BBN course. The aim of this study was to enhance our understanding of the learning potential in reflective writing about BBN encounters and the ability to identify components that inhibit this learning. METHODS: This was a systematic qualitative immersion/crystallization analysis of 166 randomly selected BBN narratives written by 83 senior medical students. We analysed the narratives in an iterative consensus-building process to identify the issues discussed, the lessons learned and the enhanced understanding of BBN. RESULTS: Having previously been unaware of, not invited to or having avoided BBN encounters, the mandatory assignment led students to search for or ask their mentors to join them in BBN encounters. Observation and reflective writing enhanced students' awareness that 'bad news' is relative and subjective, while shedding light on patients', families', physicians' and their own experiences and needs, revealing the importance of the different components of the BBN protocol. We identified diversity among the narratives and the extent of students' learning. DISCUSSION: Narrative writing provided students with an opportunity for a deliberative learning process. This led to deeper understanding of BBN encounters, of how to apply the newly taught protocol, or of the need for it. This process connected the formal and informal or hidden curricula. To maximise learning through reflective writing, students should be encouraged to write in detail about a recent observed encounter, analyse it according to the protocol, address different participants' behaviours and emotions, and identify dilemmas and clear lessons learned.


Asunto(s)
Empatía , Narración , Estudiantes de Medicina/psicología , Pensamiento , Escritura , Curriculum , Educación de Pregrado en Medicina , Femenino , Humanos , Masculino , Competencia Profesional
9.
Health Commun ; 33(12): 1560-1572, 2018 12.
Artículo en Inglés | MEDLINE | ID: mdl-29058509

RESUMEN

Teaching and applying interpersonal communication skills (ICS) and humor in medicine is challenging. The present study assessed an innovative course focused on enhancing ICS and humor based on the Four Habits Model and theater concepts. Medical students enrolled in the course (the study group) were assessed pre- and post-intervention, as well as compared with their peers (the control group) using quantitative methods to measure attitudes, self-efficacy, and behaviors. Qualitative methods were used to learn about students' change in perceptions related to ICS and humor following the course, as well as their experiences of developing these skills during the course. Post-intervention study group participants scored significantly higher on all ICS measurements and on humor behavior compared with pre-intervention, and significantly higher on all humor measurements compared with control group participants. Interviews indicated students' increased understanding and difficulties in learning these skills. Analyses showed how framing humor as one possible ICS and focusing on specific parts of the medical encounter can promote patient-centered care.


Asunto(s)
Educación Médica/métodos , Relaciones Interpersonales , Relaciones Médico-Paciente , Estudiantes de Medicina/psicología , Ingenio y Humor como Asunto , Adulto , Curriculum , Femenino , Humanos , Entrevistas como Asunto , Israel , Masculino , Atención Dirigida al Paciente , Autoeficacia , Adulto Joven
10.
Health Commun ; 32(1): 126-130, 2017 01.
Artículo en Inglés | MEDLINE | ID: mdl-27168160

RESUMEN

Encouraging patients to be involved in their care and enhancing shared decision making (SDM) have been advocated over the past two decades as means to enhance patient-centered care. However, one of the barriers to implementing SDM in medical consultations is the need to adapt this approach to various populations and medical settings, including mental health, and developing reliable and practical methods for measuring and assessing SDM. This article presents the psychometric properties and validity of an adapted scale, SDM-Q-9-Psy, that assesses SDM in routine care among psychiatric inpatients. Psychiatric inpatients were assigned into an SDM intervention cohort (n = 46) or a control cohort (n = 40). The adapted scale was administered after a decision-making process. The scale was subsequently psychometrically tested via factor and reliability analyses. It was also tested for convergent validity and for its ability to distinguish the degree of SDM between the intervention and control groups (construct validity). The SDM-Q-9-Psy scale yielded a Cronbach's α of .94. Convergent and construct validity parameters were good. The SDM-Q-9-Psy scale can be used to evaluate SDM from psychiatric inpatients' perspective and to provide rapid feedback to mental health professionals, enabling them to monitor their decision-making practice in real-time clinical consultations.


Asunto(s)
Toma de Decisiones , Hospitalización , Trastornos Mentales/terapia , Participación del Paciente/métodos , Encuestas y Cuestionarios/normas , Adulto , Femenino , Humanos , Masculino , Trastornos Mentales/psicología , Persona de Mediana Edad , Relaciones Médico-Paciente , Psicometría , Reproducibilidad de los Resultados , Autoeficacia
11.
Qual Health Res ; 27(1): 138-151, 2017 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-26489712

RESUMEN

In this article, we present the use of illustrated metaphorical cards as a technique to enrich the qualitative narrative interview. We examine the advantages of incorporating a projective tool to assist in constructing and understanding personal narratives of people living with severe mental illness. We interviewed 25 participants-staff and members of a clubhouse in Israel (an international community model of rehabilitation in mental health)-and sought to understand their stories focused on personal and organizational values. The findings revealed that, in most cases, the cards contributed to data collection by enhancing the interviewees' ability for expression and by facilitating richer, more comprehensive stories and descriptions. This in turn enhanced the researcher's ability to understand the messages and stories presented. The research conclusions discuss the cards' potential contribution to improving data collection and analysis. The cards became an additional channel for expressing participants' experiences, emotions, and unique voice.


Asunto(s)
Recolección de Datos/métodos , Entrevistas como Asunto/métodos , Trastornos Mentales/rehabilitación , Metáfora , Narración , Comunicación , Femenino , Humanos , Israel , Masculino , Proyectos de Investigación
12.
Qual Health Res ; 27(4): 573-583, 2017 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-28682733

RESUMEN

People with mental illnesses face the dilemma of whether to disclose or conceal their diagnosis, but this dilemma was scarcely researched. To gain in-depth understanding of this dilemma, we interviewed 29 individuals with mental illnesses: 16 with major depression/bipolar disorders and 13 with schizophrenia. Using a phenomenological design, we analyzed individuals' experiences, decision-making processes, and views of gains and costs regarding concealment and disclosure of mental illness. We found that participants employed both positive and negative disclosure/concealment practices. Positive practices included enhancing personal recovery, community integration, and/or supporting others. Negative practices occurred in forced, uncontrolled situations. We also identified various influencing factors, including familial norms of sharing, accumulated experiences with disclosure, and ascribed meaning to diagnosis. Based on these findings, we deepen the understanding about decision-making processes and the consequences of disclosing or concealing mental illness. We discuss how these finding can help consumers explore potential benefits and disadvantages of mental illness disclosure/concealment occurrences.


Asunto(s)
Revelación , Trastornos Mentales/psicología , Adulto , Trastorno Bipolar/psicología , Toma de Decisiones , Trastorno Depresivo Mayor/psicología , Femenino , Humanos , Israel , Masculino , Persona de Mediana Edad , Investigación Cualitativa , Psicología del Esquizofrénico , Índice de Severidad de la Enfermedad , Estigma Social , Apoyo Social
15.
Qual Health Res ; 25(7): 887-98, 2015 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-25288409

RESUMEN

We explored the experiences of social work students with psychiatric difficulties and focused on their challenges as they went through the different stages of development as health care professionals. We interviewed 12 social work students with psychiatric difficulties and analyzed the data using the immersion/crystallization method. The findings reveal the developmental process they underwent from being patients to being "therapatients" (therapists who are also patients; here, therapists coping with psychiatric difficulties). This process included four stages: an initial exploration of the health care world; questioning the possibility of a patient being a therapist and feeling incompetent; identifying their ability to be professionals; and integrating between their patient and therapist parts to become a therapatient. Understanding this process and finding ways to help students through it is crucial to allowing the patient and therapist parts to "live" together and enrich each other, and to allowing integration of professional knowledge and personal experience.


Asunto(s)
Adaptación Psicológica , Trastornos Mentales/psicología , Servicio Social/organización & administración , Estudiantes/psicología , Adulto , Femenino , Humanos , Israel , Masculino , Persona de Mediana Edad , Investigación Cualitativa
16.
Qual Health Res ; 24(10): 1368-80, 2014 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-25147222

RESUMEN

Doctors' clear disclosure of diagnoses to patients is fundamental to patient autonomy and patient-centered approaches in health care. Although diagnosis disclosure is common in general health, it is less so in psychiatry. The aim of this study was to explore psychiatrists' experiences of schizophrenia diagnosis disclosure to patients and/or family members. We conducted in-depth interviews with 14 psychiatrists from hospital and community settings in Israel and used a phenomenological framework to analyze the interviews. Overall, psychiatrists experienced disclosure as problematic, unproductive, and harmful. We identified 10 themes of psychiatrist experiences and concerns conceptualized under three domains: (a) characteristics of schizophrenia, (b) the doctor-patient/family relationship, and (c) psychiatrists' difficulties with the disclosure task. We discuss the results suggesting a multilayered model of medical, relational, social, and personal disclosure challenges. We suggest that a constructive schizophrenia diagnosis disclosure needs to take into account psychiatrist- and patient-related factors and specify possible directions.


Asunto(s)
Actitud del Personal de Salud , Relaciones Médico-Paciente , Psiquiatría , Esquizofrenia , Revelación de la Verdad , Adulto , Femenino , Humanos , Entrevistas como Asunto , Israel , Masculino , Persona de Mediana Edad
17.
BMC Psychol ; 12(1): 296, 2024 May 27.
Artículo en Inglés | MEDLINE | ID: mdl-38802899

RESUMEN

BACKGROUND: Medical students, especially during the clinical years, are often exposed to breaches of safety and professionalism. These contradict personal and professional values exposing them to moral distress and to the dilemma of whether and how to act. Acting requires moral courage, i.e., overcoming fear to maintain one's core values and professional obligations. It includes speaking up and "doing the right thing" despite stressors and risks (e.g., humiliation). Acting morally courageously is difficult, and ways to enhance it are needed. Though moral courage efficacy, i.e., individuals' belief in their capability to act morally, might play a significant role, there is little empirical research on the factors contributing to students' moral courage efficacy. Therefore, this study examined the associations between perceived stress, academic burnout, and moral courage efficacy. METHODS: A cross-sectional study among 239 medical students who completed self-reported questionnaires measuring perceived stress, academic burnout ('exhaustion,' 'cynicism,' 'reduced professional efficacy'), and moral courage efficacy (toward others' actions and toward self-actions). Data analysis via Pearson's correlations, regression-based PROCESS macro, and independent t-tests for group differences. RESULTS: The burnout dimension of 'reduced professional efficacy' mediated the association between perceived stress and moral courage efficacy toward others' actions. The burnout dimensions 'exhaustion' and 'reduced professional efficacy' mediated the association between perceived stress and moral courage efficacy toward self-actions. CONCLUSIONS: The results emphasize the importance of promoting medical students' well-being-in terms of stress and burnout-to enhance their moral courage efficacy. Medical education interventions should focus on improving medical students' professional efficacy since it affects both their moral courage efficacy toward others and their self-actions. This can help create a safer and more appropriate medical culture.


Asunto(s)
Agotamiento Profesional , Coraje , Principios Morales , Estrés Psicológico , Estudiantes de Medicina , Humanos , Estudiantes de Medicina/psicología , Masculino , Femenino , Adulto , Agotamiento Profesional/psicología , Estudios Transversales , Adulto Joven , Estrés Psicológico/psicología
18.
Med Educ ; 47(1): 97-108, 2013 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-23278829

RESUMEN

CONTEXT: White coat ceremonies (WCCs) are widely prevalent as a celebration of matriculation in medical schools. Critics have questioned whether these ceremonies can successfully combine the themes of professionalism and humanism, as well as whether the white coat is an appropriate symbol. OBJECTIVES: This study aimed to add a process of empirical assessment to the discussion of these criticisms by analysing the content and messages communicated during these ceremonies. METHODS: Multiple qualitative methods were used to discern the core meanings expressed in a sample of 18 ceremonies through the analysis of artefacts, words, phrases, statements and narratives. Out of a stratified random sample of 25 US schools of medicine conducting WCCs in 2009, 18 schools submitted video, audio and written materials. RESULTS: All ceremonies followed the same general format, but varied in their content, messages and context. Ceremonies included five principal descriptions of what is symbolised by the white coat, including: commitment to humanistic professional care; a reminder of obligations and privileges; power; the student's need to 'grow', and the white coat as a mantle. Statements about obligations were made three times more frequently than statements about privileges. Key words or phrases in WCCs mapped to four domains: professionalism; morality; humanism, and spirituality. Spoken narratives focused on humility and generosity. CONCLUSIONS: The WCCs studied did not celebrate the status of an elite class, but marked the beginning of educational, personal and professional formation processes and urged matriculants to develop into doctors 'worthy of trust'. The ceremonies centred on the persons entering the vocation, who were invited to affirm its calling and obligations by donning a symbolic garb, and to join an ancient and modern tradition of healing and immersion in their community. The schools' articulated construct of the white coat situated it as a symbol of humanism. This study's findings may clarify and guide schools' choices in designing their own WCCs.


Asunto(s)
Vestuario/psicología , Educación Médica/normas , Juramento Hipocrático , Humanismo , Competencia Profesional/normas , Estudiantes de Medicina/psicología , Aniversarios y Eventos Especiales , Conducta Ceremonial , Humanos , Rol del Médico/psicología , Simbolismo , Estados Unidos
19.
Alzheimers Dement ; 9(2): e74-88, 2013 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-23098912

RESUMEN

BACKGROUND: The disclosure of Alzheimer's disease presents a great challenge because it entails emotionally charged communication about a life-threatening, incurable, and stigmatized disease. Although a broad consensus has evolved regarding the potential benefits of early disclosure of the diagnosis, little is known about how these recommendations are actually implemented, and there is limited published research about the process issues of the disclosure. PURPOSE: (1) To systematically obtain and evaluate the relevant literature on disclosing a diagnosis of dementia, with special attention to process issues, and (2) to summarize current research findings and draw conclusions for future research and clinical care in this area. METHODS: A systematic review of the literature on disclosure of dementia during the first decade of the 21st century was conducted. RESULTS: From 265 articles retrieved, 47 were included in the review. Although the studies published in the first years of the decade were concerned with assessing attitudes and preferences of those involved in the process of disclosing the diagnosis, those of the last years have focused more on communication and other process issues. CONCLUSIONS: A conceptual development over time in the area is observed in which in the first years, thought processes begin as an ethical debate among clinicians and researchers about the topic of "truth telling" and dementia, continue as a search of the opinions of those involved in the process of disclosure about truth telling, and evolve (observed more recently) into an examination of how this truth telling is delivered.


Asunto(s)
Demencia/diagnóstico , Revelación de la Verdad , Comunicación , Humanos , Relaciones Médico-Paciente
20.
J Ment Health ; 22(3): 254-62, 2013 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-23662789

RESUMEN

BACKGROUND: Studies have indicated that family members of persons with mental illness often experience stigma in relation to their relatives' illness. Less is known about the type of experiences they face and how they cope with these experiences. AIMS: To explore family members' experiences and efforts to cope with mental illness stigma in social encounters. METHOD: A qualitative immersion/crystallization analysis of focus group data was used to examine family members' experiences and responses to perceived stigma. RESULTS: Family members reported experiencing rejection, blame and avoidance by others, engendering hurt, disappointment and shame. They employed flexible coping strategies depending on their personal resources, motivation and their relatives' willingness to disclose. CONCLUSION: Findings suggest that families learn from their own experience the "art of selective disclosure": what, when, how much and who to share information with. Coping strategies are developed based on the situation and family members' needs and personal resources which differ between families and over time.


Asunto(s)
Adaptación Psicológica , Familia/psicología , Enfermos Mentales , Estigma Social , Femenino , Humanos , Masculino
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