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1.
Palliat Med ; 38(3): 320-330, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-38372027

RESUMEN

BACKGROUND: Social workers have a significant role in hospices working with clients who are facing death but there is limited detailed understanding of the emotional impact of this work on social workers. Research has highlighted that those involved in hospice work find the work both a struggle (e.g. because of heightened emotions) and rewarding (noting that end-of-life care can feel like a privilege). AIM: To explore UK hospice social workers' emotional experiences of work and how this influences their practice. DESIGN: Semi-structured interviews were conducted with hospice social workers. Interviews were transcribed and transcripts were analysed using Interpretative Phenomenological Analysis. SETTING/PARTICIPANTS: Eight social workers from different hospices in the UK. RESULTS: Five overlapping superordinate themes emerged: making a difference to clients and families ('the difference made'), the emotional impact of working in hospices ('dealing with people's emotions, and death, and dying, it's serious stuff'), the relational context of this type of work ('awareness of affinity to connect'), the ways in which coping is facilitated in hospices ('seen it coming') and a foundation theme, connection and disconnection to values ('(dis)connection to values'). CONCLUSIONS: The results offer an exploration of social workers' experiences of their work in hospices; how adept they were at coping and how they prepared for and made sense of the often emotionally-laden experiences encountered. Their experience of the rewards and meaning derived from their work offers important findings for clinical practice. Further research is suggested to explore a multitude of healthcare professionals' perspectives across country settings using Interpretative Phenomenological Analysis.


Asunto(s)
Cuidados Paliativos al Final de la Vida , Hospitales para Enfermos Terminales , Cuidado Terminal , Humanos , Trabajadores Sociales , Emociones
2.
Support Care Cancer ; 31(6): 356, 2023 May 27.
Artículo en Inglés | MEDLINE | ID: mdl-37243744

RESUMEN

PURPOSE: People with primary malignant brain tumors (PMBT) undergo anti-tumor treatment and are followed up with MRI interval scans. There are potential burdens and benefits to interval scanning, yet high-quality evidence to suggest whether scans are beneficial or alter outcomes of importance for patients is lacking. We aimed to gain an in-depth understanding of how adults living with PMBTs experience and cope with interval scanning. METHODS: Twelve patients diagnosed with WHO grade III or IV PMBT from two sites in the UK took part. Using a semi-structured interview guide, they were asked about their experiences of interval scans. A constructivist grounded theory approach was used to analyze data. RESULTS: Although most participants found interval scans uncomfortable, they accepted that scans were something that they had to do and were using various coping methods to get through the MRI scan. All participants said that the wait between their scan and results was the most difficult part. Despite the difficulties they experienced, all participants said that they would rather have interval scans than wait for a change in their symptoms. Most of the time, scans provided relief, gave participants some certainty in an uncertain situation, and a short-term sense of control over their lives. CONCLUSION: The present study shows that interval scanning is important and highly valued by patients living with PMBT. Although interval scans are anxiety provoking, they appear to help people living with PMBT cope with the uncertainty of their condition.


Asunto(s)
Ansiedad , Neoplasias Encefálicas , Humanos , Adulto , Ansiedad/terapia , Trastornos de Ansiedad , Neoplasias Encefálicas/diagnóstico por imagen
3.
Epilepsy Behav ; 117: 107867, 2021 04.
Artículo en Inglés | MEDLINE | ID: mdl-33684785

RESUMEN

Poor sleep is reported by many with nonepileptic attack disorder (NEAD) with correlations evident between self-reported sleep quality and mood and functional impairment. However, it is contended that self-reported sleep impairment in NEAD is a subjective phenomenon, which represents a general tendency to over-report symptoms or misinterpret bodily states in those with NEAD. The present study was therefore designed to investigate the extent of subjective and objective sleep impairments in those with NEAD. Over six nights we prospectively recorded comparable nightly objective (actigraphy) and subjective (consensus sleep diary) sleep parameters in a sample of 17 people with NEAD, and an age- and gender-matched normative control group (N = 20). Participants recorded daily measures of attacks, dissociation, and mood. Alongside higher subjective sleep impairment, the NEAD group had significantly worse objective sleep on several metrics compared to the normative controls, characterized by disrupted sleep (frequent awakenings and wake after sleep onset, low efficiency). Exploratory analyses using mixed effects models showed that attacks were more likely to occur on days preceded by longer, more restful sleep. This study, which had good ecological validity, evidences the presence of objective sleep impairment in NEAD, suggesting that in patient reports of problems with sleep should be given careful consideration in clinical practice.


Asunto(s)
Actigrafía , Trastornos del Sueño-Vigilia , Trastornos Disociativos , Humanos , Estudios Prospectivos , Sueño , Trastornos del Sueño-Vigilia/diagnóstico , Trastornos del Sueño-Vigilia/etiología
4.
Qual Health Res ; 29(6): 846-856, 2019 05.
Artículo en Inglés | MEDLINE | ID: mdl-30371143

RESUMEN

The benefits of improved treatments for cystic fibrosis (CF) depend on optimal adherence, which remains problematic, particularly to aerosol therapy. In this study, we explored the process of adhering to aerosol therapy from the perspective of both adolescents with CF and their parents. Interviews were conducted individually with six adolescents and six parents, informed by accurate adherence data from an electronically chipped, aerosol device. Interview transcripts from audio-recordings were analyzed using grounded theory method (GTM). Major themes revealed differences in perspective between parent and adolescent, with this relationship mediating the cognitive and emotional processes that play a significant role in adherence behavior. These processes are further influenced by interactions with the aerosol therapy treatment regimen, device characteristics, and the context in which adherence is taking place. Parents and adolescents have different views of treatment and how to manage it. Both need to be addressed if optimal adherence is to be achieved.


Asunto(s)
Fibrosis Quística/tratamiento farmacológico , Fibrosis Quística/psicología , Cumplimiento de la Medicación/psicología , Relaciones Padres-Hijo , Padres/psicología , Pacientes/psicología , Administración por Inhalación , Adolescente , Niño , Femenino , Conductas Relacionadas con la Salud , Humanos , Entrevistas como Asunto , Masculino , Nebulizadores y Vaporizadores , Reino Unido
5.
Alcohol Alcohol ; 53(4): 408-411, 2018 Jul 01.
Artículo en Inglés | MEDLINE | ID: mdl-29659707

RESUMEN

AIMS: Motivational Interviewing is an effective treatment for a range of problematic behaviours, however, previous studies have revealed substantial variability in the effectiveness of therapists. Curiously, the specific behaviours which contribute to positive outcomes have rarely been studied. The aim of this study was to investigate hypothesised relationships between therapists' utterances and clients' change talk by analysing interactions sampled from the United Kingdom Alcohol Treatment Trial (UKATT). METHODS: This study comprised secondary analysis of process data and recordings selectively sampled from the UKATT database using sequential analyses of utterance categories, defined using the Motivational Interviewing Sequential Code for Observing Process Exchanges (MI-SCOPE). MI-SCOPE categories were modified on the basis of the existing literature. Observed and expected frequencies of change talk, transitional probabilities and their significance levels both immediately following therapists' statements (Lag 1), and after a delay (Lag 2) were calculated using the Generalised Sequential Querier (GSEQ) programme. Regression analyses were conducted using SPSS 21.0. RESULTS: In successful alcohol treatment sessions, therapists' open questions and complex reflections were significantly positively associated with client preparatory talk at Lag 1. Therapists' complex reflections were significantly positively associated with and predictive of strong client commitment talk at Lag 2. CONCLUSIONS: The findings extend those of previous studies, suggesting that open questions and complex reflections play a central role in preparing clients for, and facilitating strong commitment to, behaviour change.


Asunto(s)
Alcoholismo/psicología , Alcoholismo/terapia , Comunicación , Entrevista Motivacional , Relaciones Profesional-Paciente , Humanos
6.
J Cancer Surviv ; 2024 Jan 29.
Artículo en Inglés | MEDLINE | ID: mdl-38285112

RESUMEN

BACKGROUND: Chronic pain is a recognised long-term consequence associated with breast cancer and its treatment; however, it is often underdiagnosed and undertreated. This study aims to explore the associations between illness representations, chronic cancer pain, and HRQoL in women who have survived breast cancer. DESIGN AND METHODS: A cross-sectional online survey design was used. Data from 182 women who participated in the survey were analysed. RESULTS: Chronic cancer pain was reported by 66% of respondents. Using the BPI-SF (score 0-10), participants were categorised into one of four pain categories: no chronic pain (BPI score 0; 34.1%), mild pain (BPI score 1-3; 35.7%), moderate pain (BPI score 4-6; 25.3%), and severe pain (BPI score 7 + ; 4.9%). The main findings were that having a strong illness identity (IPQ-R subscale which assesses the number of symptoms an individual attributes to their illness) was found to be a significant predictor of pain severity (OR 1.21 (95% CI 1.07-1.37), p = 0.003). Furthermore, HRQoL was significantly associated and predictive of pain severity (OR 0.97 (95% CI 0.95-0.99), p < 0.001). An additional finding was that not being in paid work was strongly associated with being in a higher pain category (OR 5.92 (95% CI 1.84-19.05), p = 0.003). CONCLUSIONS: The findings of this study highlight the high prevalence of chronic cancer pain experienced by this population. Results show that dimensions of illness representations are associated with chronic cancer pain experienced by breast cancer survivors. Furthermore, having a strong illness identity and HRQoL were found to be independent, significant predictors of pain severity. IMPLICATIONS FOR CANCER SURVIVORS: These findings demonstrate that chronic pain is an unmet clinical need experienced by breast cancer survivors, which is associated with reduced overall HRQoL. Therefore, consideration is needed regarding the assessment and management of chronic pain experienced by this population.

7.
Pediatr Obes ; 19(7): e13129, 2024 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-38764203

RESUMEN

OBJECTIVES: This study aimed to investigate weight bias within young children's pro-social choices between characters who differed in body size. METHODS: Seventy-six children aged 4-6 years read stories asking them to choose who they would first help, share with, comfort, and steal from, between a healthy weight and child with overweight. They also selected the one character they would most like to play with. Children's reasoning for these choices was recorded and analysed. RESULTS: The character with overweight was helped first in only a third of the choices made. Children chose the characters with overweight more often as the target for anti-social action. In friendship selections, children overwhelmingly rejected the characters with overweight. However, weight bias was not prominent in the reasons children gave for the choices. Most children were not negative about body shape, weight or appearance. Similarly, in friendship choices, these were mostly expressed positively to the character chosen. Only a small minority of children were explicitly negative about the character with overweight. CONCLUSIONS: A better understanding of weight bias acquisition and variation between children will benefit those working in health care and educational settings. Future research should link with developmental theory, such as on social categorization and theory of mind.


Asunto(s)
Conducta de Elección , Amigos , Humanos , Femenino , Masculino , Niño , Preescolar , Amigos/psicología , Sobrepeso/psicología , Sobrepeso/epidemiología , Conducta Social , Imagen Corporal/psicología , Conducta Infantil/psicología , Obesidad Infantil/psicología , Obesidad Infantil/epidemiología , Prejuicio de Peso/psicología
8.
World J Pediatr Surg ; 6(3): e000596, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37441089

RESUMEN

Objectives: Patient experience is directly related to health outcomes, and parental experience can be used as a proxy for this in neonatal care. This project was designed to assess parental experience of neonatal surgical care to inform future service developments and improve the care we provide. Methods: This was a qualitative study using rapid qualitative analysis. The study was carried out in a large neonatal surgical intensive care unit in the UK. Parents of infants treated by the neonatal surgical team between March 2020 and February 2021, during the COVID-19 pandemic were included. Purposive sampling was used to ensure that a representative range of parents were interviewed. A semistructured interview was created and tested in a previous phase of work. This questionnaire was used to ask parents open questions about different aspects of their infants' healthcare journey from the antenatal phase through to discharge from the neonatal unit (NUU). Results: Rapid qualitative analysis was employed, and parental experiences were grouped into five main categories: before admission to the NNU, initial admission to NNU, information and support, COVID-19 and discharge. Within these five groups, we highlighted positive experiences to be fed back to the healthcare teams to reinforce good practice, areas that warranted improvement and suggestions for service development. Conclusions: The wealth of data generated from the interviews has been summarized and shared with healthcare teams who are putting the service improvement suggestions into practice. The tool is available for services that wish to measure parental experience.

9.
BMJ Paediatr Open ; 6(1)2022 07.
Artículo en Inglés | MEDLINE | ID: mdl-36053593

RESUMEN

INTRODUCTION: Improved parental experience is related to improved mental and physical health outcomes for the infant. The COVID-19 pandemic abruptly impacted on healthcare delivery and services need information to shape how to manage the disruption and recovery. METHODS: Our aim was to develop a systematic process to capture parents' experience of their neonatal surgical healthcare journey during the pandemic. We identified relevant stakeholders and using semistructured interviews, we explored three key themes.(1) How to recruit and collect data from representative parents?(2) What questions should be asked?(3) How to disseminate results for service development? RESULTS: Responses indicated the need to involve 'difficult to access groups' (eg, first language not English, high social deprivation, low health literacy), defined the range of family and patient characteristics variables to be considered for representative responses (eg, antenatal diagnosis, disease complexity, number of siblings, single parent, parental health). The proposed questions were grouped into five main topics: information preadmission; in-patient experience; support during admission; the effect of COVID-19; discharge and posthospital experience. Recommendations for dissemination included local, regional and national fora as well as the need to feedback to participants about the changes made.Based on the analysis, we developed a semistructured interview which underwent cognitive testing, prepilot and pilot phase testing. DISCUSSION: This protocol is grounded in the views of relevant stakeholders to ensure it captures relevant information in a pragmatic but methodologically sound way. It will next be used to assess parental experience in a large neonatal surgical unit. We hope that the protocol could be adapted and used by other groups.


Asunto(s)
COVID-19 , Atención a la Salud , Femenino , Humanos , Lactante , Recién Nacido , Pandemias , Padres/psicología , Embarazo , Investigación Cualitativa
10.
Br J Health Psychol ; 26(2): 325-342, 2021 05.
Artículo en Inglés | MEDLINE | ID: mdl-33058369

RESUMEN

OBJECTIVES: With few empirically supported treatments, functional movement disorders (FMD) can be challenging to manage. To enable service providers to better support people with FMD, this study sought to understand the lived experience of FMD: to gain insight into how individuals make sense of their experience from symptom onset through medical evaluation and diagnosis to post-diagnostic adaptation. DESIGN: An interpretative phenomenological analysis (IPA) of patient accounts of living with FMD. METHODS: Eight participants were recruited from a UK teaching hospital adult neurology service: seven females, varying in age (20s-70s), FMD symptom type (tremor, dystonia, and tics), and time to diagnosis (10 - 192 months). Semi-structured interviews facilitated participant accounts of key events. Interviews lasted 75-125 minutes and were transcribed verbatim. RESULTS: Three super-ordinate themes were apparent. The first covered the experiences of onset ('Something is wrong with me'), including loss of control - with the affected body part often described as a separate entity - threats to identity and disturbance in relationships. 'At last! What now?' outlined the bittersweet experience of diagnosis and of treatments. Third, 'Living my life with it' incorporated ongoing experiences of coping with symptoms. While some continued to struggle with the emotional impact of symptoms, others developed a compassionate relationship with their self and maintained satisfying activities. CONCLUSIONS: FMD has a significant impact on patients' relationships with themselves and others, which in turn affects well-being. These findings suggest some nuanced additions to interventions (diagnosis, psychotherapy, physiotherapy, public education.).


Asunto(s)
Adaptación Psicológica , Trastornos del Movimiento , Adulto , Femenino , Humanos , Lactante , Psicoterapia , Investigación Cualitativa
11.
J Perioper Pract ; 31(7-8): 246-254, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-32638654

RESUMEN

AIM: To investigate patient anxiety at anaesthetic induction and whether this is affected by anaesthetic room interventions. METHODS: A mixed methods study was carried out: pre-induction interventions were directly observed. Patient anxiety was assessed quantitatively with cardiovascular changes, the visual analogue scale and the state-trait anxiety inventory. Interviews allowed qualitative assessment. RESULTS: Patient-reported anxiety did not correlate with cardiovascular changes. Anaesthetic room interventions were not predictive of anxiety. Postoperative interviews identified five sources of anxiety, mostly related to preparation for surgery. Staff responses to anxiety were also highlighted. DISCUSSION: Patient-reported anxiety and its biological response are not correlated. Pre-induction interventions do not contribute to anxiety. Anxiety levels at induction are similar to or lower than earlier in the preoperative period. CONCLUSIONS: On induction of anaesthesia, patients have little control over their situation but are actively reassured and distracted by theatre staff. Our data suggest staff are good at this. More could still be done to reduce preoperative sources of anxiety.


Asunto(s)
Anestesia , Ansiedad , Anestesia/efectos adversos , Ansiedad/etiología , Humanos , Dimensión del Dolor , Periodo Preoperatorio
12.
Patient Educ Couns ; 75(1): 141-4, 2009 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-18952395

RESUMEN

OBJECTIVE: To examine the adherence of patients with cystic fibrosis to nebulised antibiotics. METHODS: A longitudinal design with adherence data collected over 12 weeks. 38 patients (mean age 24.6 years, S.D. 5.3) were recruited from an adult cystic fibrosis (CF) clinic. Adherence was electronically monitored using a Prodose adaptive aerosol delivery (AAD) device. RESULTS: Three indices of adherence were calculated: mean percentage of times the nebuliser was used as prescribed was 50.0% (S.D.=39.7, range 1.1, 155.6); mean percentage of days fully adhered was 31.6% (S.D.=29.4, range 0, 97.2); mean percentage of days nebuliser used at least once was 57.1% (S.D.=34.2, range 3.3, 100). CONCLUSION: Rates of adherence were generally low. Adherence was not associated with any variables apart from age. There were wide variations between individuals, and differences in rates of adherence depending on how this was defined, with potentially important health consequences for the patients. PRACTICE IMPLICATIONS: Technology that improves medication administration may still be associated with low rates of adherence. Health professionals need to be mindful of the pattern of non-adherence for each individual, and factors which may be influencing this.


Asunto(s)
Antibacterianos/administración & dosificación , Fibrosis Quística/tratamiento farmacológico , Cumplimiento de la Medicación , Administración por Inhalación , Adulto , Femenino , Humanos , Estudios Longitudinales , Masculino , Nebulizadores y Vaporizadores , Reino Unido
13.
Patient Educ Couns ; 73(2): 224-31, 2008 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-18701234

RESUMEN

OBJECTIVE: Facilitating lifestyle change and improved self-management are important aspects of diabetes treatment. Previous research shows motivational, patient-centred approaches are more effective at this than traditional, didactic approaches. This study explores the degree to which doctors with no previous training in motivational techniques employ these methods to affect behaviour change in routine consultations. METHODS: A cross-sectional design was employed. Forty-four routine consultations with nine physicians were tape-recorded, of which nineteen focussed on behaviour change; patient questionnaires assessed patient demographics, intention to self-manage and satisfaction with consultation. Physician behaviour was coded for use of motivational, behaviour change techniques, patient-centeredness and other verbal communication variables; patient communication was also assessed. RESULTS: Lifestyle issues were raised in 43% of consultations but few motivational strategies were employed; 10% of physicians' communication was patient-centred. An association was found between physicians' use of patient-centred strategies and patients expressing views (r = .44, p < .05). Higher patient satisfaction with the consultation was related to physician partnership-building (r = .37, p < or = .05) and patients asking questions (r = -.31, p < or = .05). Familiarity between doctor and patient was associated with more physician recommendations and directives (r = .35, p < or = .05) and information giving (r= .30, p < or = .05), and more assertive responses by the patient (r = .31, p < or = .05). CONCLUSION: Effective communication strategies related to behaviour change were not used routinely in diabetes consultations in the clinic studied. More patient-centred approaches were associated with higher indicators of patient satisfaction. PRACTICE IMPLICATIONS: Physicians require training and support in employing behaviour change techniques if these are to be integrated into routine care.


Asunto(s)
Diabetes Mellitus/terapia , Cooperación del Paciente , Educación del Paciente como Asunto/métodos , Atención Dirigida al Paciente , Autocuidado , Adulto , Estudios Transversales , Femenino , Humanos , Intención , Masculino , Persona de Mediana Edad , Motivación , Satisfacción del Paciente , Relaciones Médico-Paciente , Grabación en Cinta , Reino Unido
14.
Pilot Feasibility Stud ; 4: 106, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29862037

RESUMEN

BACKGROUND: Although supported self-management is a well-recognised part of chronic disease management, it has not been routinely used as part of healthcare for adults with a learning disability. We developed an intervention for adults with a mild or moderate learning disability and type 2 diabetes, building on the principles of supported self-management with reasonable adjustments made for the target population. METHODS: In five steps, we:Clarified the principles of supported self-management as reported in the published literatureIdentified the barriers to effective self-management of type 2 diabetes in adults with a learning disabilityReviewed existing materials that aim to support self-management of diabetes for people with a learning disabilitySynthesised the outputs from the first three phases and identified elements of supported self-management that were (a) most relevant to the needs of our target population and (b) most likely to be acceptable and useful to themImplemented and field tested the intervention. RESULTS: The final intervention had four standardised components: (1) establishing the participant's daily routines and lifestyle, (2) identifying supporters and their roles, (3) using this information to inform setting realistic goals and providing materials to the patient and supporter to help them be achieved and (4) monitoring progress against goals.Of 41 people randomised in a feasibility RCT, thirty five (85%) completed the intervention sessions, with over three quarters of all participants (78%) attending at least three sessions.Twenty-three out of 40 (58%) participants were deemed to be very engaged with the sessions and 12/40 (30%) with the materials; 30 (73%) participants had another person present with them during at least one of their sessions; 15/41 (37%) were reported to have a very engaged main supporter, and 18/41 (44%) had a different person who was not their main supporter but who was engaged in the intervention implementation. CONCLUSIONS: The intervention was feasible to deliver and, as judged by participation and engagement, acceptable to participants and those who supported them. TRIAL REGISTRATION: Current Controlled Trials ISRCTN41897033 (registered 21/01/2013).

15.
Health Technol Assess ; 22(26): 1-328, 2018 05.
Artículo en Inglés | MEDLINE | ID: mdl-29845932

RESUMEN

BACKGROUND: Obesity and type 2 diabetes are common in adults with a learning disability. It is not known if the principles of self-management can be applied in this population. OBJECTIVES: To develop and evaluate a case-finding method and undertake an observational study of adults with a learning disability and type 2 diabetes, to develop a standardised supported self-management (SSM) intervention and measure of adherence and to undertake a feasibility randomised controlled trial (RCT) of SSM versus treatment as usual (TAU). DESIGN: Observational study and an individually randomised feasibility RCT. SETTING: Three cities in West Yorkshire, UK. PARTICIPANTS: In the observational study: adults aged > 18 years with a mild or moderate learning disability, who have type 2 diabetes that is not being treated with insulin and who are living in the community. Participants had mental capacity to consent to research and to the intervention. In the RCT participants had glycated haemoglobin (HbA1c) levels of > 6.5% (48 mmol/mol), a body mass index (BMI) of > 25 kg/m2 or self-reported physical activity below national guideline levels. INTERVENTIONS: Standardised SSM. TAU supported by an easy-read booklet. MAIN OUTCOME MEASURES: (1) The number of eligible participants identified and sources of referral; (2) current living and support arrangements; (3) current health state, including level of HbA1c, BMI and waist circumference, blood pressure and lipids; (4) mood, preferences for change; (5) recruitment and retention in RCT; (6) implementation and adherence to the intervention; (7) completeness of data collection and values for candidate primary outcomes; and (8) qualitative data on participant experience of the research process and intervention. RESULTS: In the observational study we identified 147 eligible consenting participants. The mean age was 54.4 years. In total, 130 out of 147 (88%) named a key supporter, with 113 supporters (77%) being involved in diabetes management. The mean HbA1c level was 54.5 mmol/mol [standard deviation (SD) 14.8 mmol/mol; 7.1%, SD 1.4%]. The BMI of 65% of participants was > 30 kg/m2 and of 21% was > 40 kg/m2. Many participants reported low mood, dissatisfaction with lifestyle and diabetes management and an interest in change. Non-response rates were high (45/147, 31%) for medical data requested from the primary care team. In the RCT, 82 participants were randomised. The mean baseline HbA1c level was 56 mmol/mol (SD 16.5 mmol/mol; 7.3%, SD 1.5%) and the mean BMI was 34 kg/m2 (SD 7.6 kg/m2). All SSM sessions were completed by 35 out of 41 participants. The adherence measure was obtained in 37 out of 41 participants. The follow-up HbA1c level and BMI was obtained for 75 out of 82 (91%) and 77 out of 82 (94%) participants, respectively. Most participants reported a positive experience of the intervention. A low response rate and difficulty understanding the EuroQol-5 Dimensions were challenges in obtaining data for an economic analysis. LIMITATIONS: We recruited from only 60% of eligible general practices, and 90% of participants were on a general practice learning disability register, which meant that we did not recruit many participants from the wider population with milder learning disability. CONCLUSIONS: A definitive RCT is feasible and would need to recruit 194 participants per arm. The main barrier is the resource-intensive nature of recruitment. Future research is needed into the effectiveness of obesity treatments in this population, particularly estimating the longer-term outcomes that are important for health benefit. Research is also needed into improving ways of assessing quality of life in adults with a learning disability. TRIAL REGISTRATION: Current Controlled Trials ISRCTN41897033. FUNDING: This project was funded by the National Institute for Health Research (NIHR) Health Technology Assessment programme and will be published in full in Health Technology Assessment; Vol. 22, No. 26. See the NIHR Journals Library website for further project information.


Asunto(s)
Diabetes Mellitus Tipo 2/epidemiología , Diabetes Mellitus Tipo 2/terapia , Discapacidades para el Aprendizaje/epidemiología , Obesidad/epidemiología , Automanejo/economía , Automanejo/métodos , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Presión Sanguínea , Índice de Masa Corporal , Análisis Costo-Beneficio , Estudios Transversales , Estudios de Factibilidad , Femenino , Hemoglobina Glucada , Estado de Salud , Humanos , Lípidos/sangre , Masculino , Persona de Mediana Edad , Cooperación del Paciente , Calidad de Vida , Proyectos de Investigación , Medicina Estatal , Adulto Joven
16.
J Cyst Fibros ; 16(1): 146-150, 2017 01.
Artículo en Inglés | MEDLINE | ID: mdl-27666487

RESUMEN

BACKGROUND: Balancing cystic fibrosis (CF) care with demands of normal life is associated with decreased adherence to infection prevention and control (IPC) guidelines. METHODS: Adults with CF, aged 18-25years, were invited to participate via UK CF Trust social media platforms. An online survey evaluated participants' decision-making in nine clinician-rated vignettes and assessed the perceived influence of infection-related information sources. RESULTS: Participants (n=87, mean 21.4years [SD=2.45]; 75% female) were less likely to engage in the high-risk scenarios, although demonstrated greater awareness of cross-infection than environmental risks. Associations between risk-perception and willingness to participate in five vignette-based hypothetical activities were significant (p<0.05). Thematic analysis emphasised influences of past experience and a need to achieve good quality of life. Knowledge gaps were evident. CONCLUSIONS: People with CF make decisions that discriminate between risk-levels but are not always based on robust knowledge. They also show some inclination towards engaging in risky behaviours.


Asunto(s)
Control de Enfermedades Transmisibles/métodos , Fibrosis Quística , Cooperación del Paciente , Asunción de Riesgos , Adolescente , Adulto , Control de Enfermedades Transmisibles/estadística & datos numéricos , Fibrosis Quística/complicaciones , Fibrosis Quística/epidemiología , Fibrosis Quística/psicología , Toma de Decisiones , Exposición a Riesgos Ambientales/prevención & control , Femenino , Humanos , Masculino , Cooperación del Paciente/psicología , Cooperación del Paciente/estadística & datos numéricos , Participación del Paciente/psicología , Participación del Paciente/estadística & datos numéricos , Percepción Social , Encuestas y Cuestionarios , Reino Unido/epidemiología
17.
Psychol Psychother ; 89(1): 97-114, 2016 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-25876107

RESUMEN

OBJECTIVES: To explore clients' experience of the therapy process in motivational interviewing (MI) for alcohol abuse. DESIGN: A qualitative study using grounded theory. METHODS: Interviews with nine clients were conducted using interpersonal process recall (IPR), a methodology which utilizes a video recording as a cue to aid memory recall. Clients watched a videotape of their MI session and were asked to identify and describe the important moments in the therapy session. The transcribed interviews were then analysed using grounded theory. RESULTS: A single session of MI is seen by the clients in this study as a complex interpersonal interaction between client and therapist, which impacts on the client's cognitive and affective intrapersonal processes. CONCLUSIONS: The themes which emerged partly confirm processes of MI previously hypothesized to be important, but also highlight the importance of factors common to all therapeutic approaches. PRACTITIONER POINTS: The aspects of therapy which clients in this study felt were important are similar to those hypothesized to underlie the effectiveness of MI, including a non-confrontational approach, affirmation, and developing discrepancies between beliefs and behaviour. These were embedded in aspects common to all therapies, including the qualities of the therapist and the therapeutic relationship. Client's perspectives on therapeutic processes are an important area of research, and IPR is a particularly suitable method.


Asunto(s)
Entrevista Motivacional , Adulto , Alcoholismo/psicología , Alcoholismo/terapia , Femenino , Teoría Fundamentada , Humanos , Masculino , Recuerdo Mental , Persona de Mediana Edad , Entrevista Motivacional/métodos , Relaciones Profesional-Paciente , Investigación Cualitativa , Grabación en Video , Adulto Joven
18.
Pulm Med ; 2016: 9458980, 2016.
Artículo en Inglés | MEDLINE | ID: mdl-27999682

RESUMEN

Advances in the treatment and life expectancy of cystic fibrosis (CF) patients mean that motherhood is now a realistic option for many women with CF. This qualitative study explored the psychosocial impact and adjustments made when women with CF become mothers. Women with CF (n = 11) were recruited via an online forum and participated in semistructured telephone interviews about their experiences of becoming a mother. Transcriptions were analysed using Grounded Theory. Analysis revealed three core categories: (i) "Living with CF": how becoming a mother impacted on health and treatment adherence, requiring a change in support from the CF team, (ii) "Becoming a Mother": balancing issues common to new mothers with their CF, and (iii) "Pooling Personal Resources": coping strategies in managing the dual demands of child and CF care. Participants experienced a variety of complex psychosocial processes. Most participants acknowledged an initial negative impact on CF care; however over time they reported successful adaptation to managing dual commitments and that adherence and motivation to stay well had improved. This study highlights the need for preconceptual psychosocial counselling and postpartum adjustment to CF care.


Asunto(s)
Adaptación Psicológica/fisiología , Fibrosis Quística , Atención Perinatal , Apoyo Social , Adulto , Fibrosis Quística/epidemiología , Fibrosis Quística/fisiopatología , Fibrosis Quística/psicología , Fibrosis Quística/terapia , Servicios de Planificación Familiar/organización & administración , Servicios de Planificación Familiar/normas , Femenino , Necesidades y Demandas de Servicios de Salud/tendencias , Disparidades en el Estado de Salud , Humanos , Esperanza de Vida/tendencias , Madres , Grupo de Atención al Paciente/organización & administración , Grupo de Atención al Paciente/normas , Cooperación del Paciente/psicología , Prioridad del Paciente , Atención Perinatal/métodos , Atención Perinatal/normas , Investigación Cualitativa , Mejoramiento de la Calidad , Reino Unido/epidemiología
19.
Soc Sci Med ; 60(7): 1637-47, 2005 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-15652694

RESUMEN

The aim of this study is to explore identity change in medical students over their first year of medical training, particularly in relation to their experience of human dissection. Each of our four participants completed two repertory grids at the end of term one and, again, towards the end of term three. One grid tapped their identity construction, and the other, their experience of human dissection. Our participants were optimistic about becoming similar to a doctor they admired and, towards the end of term three, began to develop a stable identity as a medical student. Their identity constructs involved three common themes: dedication, competence, and responsibility. However, the data also revealed negative reactions to the demands of training, such as feeling driven and stressed. Three major themes were apparent in their experience of human dissection: involvement, emotional coping, and ability. Our participants' dedication to their studies was reflected in their appreciation of the need to become involved actively in the process of dissection but some experienced an erosion of their self-confidence and perceived some of their colleagues to have lost much of their enthusiasm for learning. Emotional coping could be an additional challenge within this context and their reaction tended to reflect distancing processes previously identified in the literature. In all, we see a development of a vulnerable sense of professionalism alongside a frustration of losing out potentially on wider aspects of personal development due to the high work demands.


Asunto(s)
Actitud del Personal de Salud , Disección/psicología , Acontecimientos que Cambian la Vida , Autoimagen , Estudiantes de Medicina/psicología , Adulto , Educación de Pregrado en Medicina , Humanos , Facultades de Medicina , Ajuste Social , Identificación Social , Estrés Psicológico , Reino Unido
20.
Crisis ; 36(1): 65-70, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-25410256

RESUMEN

BACKGROUND: Nonfatal self-harm is the strongest predictor of suicide, with some of the risk factors for subsequent suicide after nonfatal self-harm being similar to those for suicide in general. However, we do not have sufficient information regarding the medical care provided to nonfatal self-harm episodes preceding suicide. AIMS: Our study sought to explore hospital care and predictive characteristics of the risk of suicide after nonfatal self-harm. METHOD: Individuals with history of nonfatal self-harm who died by suicide were compared with those who had a nonfatal self-harm episode but did not later die by suicide. Cases were identified by cross-linking data collected through a self-harm monitoring project, 2000-2007, and comprehensive local data on suicides for the same period. RESULTS: Dying by suicide after nonfatal self-harm was more common for male subjects than for female subjects (OR = 3.3, 95% CI = 1.7-6.6). Self-injury as the method of nonfatal self-harm was associated with higher risk of subsequent suicide than was self-poisoning (OR = 2.0, 95% CI = 1.04-3.9). More urgent care at the emergency department (OR = 2.7, 95% CI = 1.1-6.3) and admission to hospital (OR = 2.0, 95% CI = 1.0-4.0) at the index episode were related to a heightened risk of suicide. CONCLUSION: The findings of our study could help services to form assessment and aftercare policies.


Asunto(s)
Conducta Autodestructiva/epidemiología , Intento de Suicidio/estadística & datos numéricos , Suicidio/estadística & datos numéricos , Adulto , Cuidados Posteriores , Estudios de Casos y Controles , Servicio de Urgencia en Hospital , Inglaterra/epidemiología , Femenino , Hospitalización/estadística & datos numéricos , Humanos , Masculino , Factores de Riesgo
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