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PURPOSE: Nigeria has the highest burden of breast cancer (BC) in Africa. While the survival rates for BC are over 90% in many high-income countries; low-and middle-income countries like Nigeria have 40% BC survival rates. Prior studies show that the burden and poor BC survival rates are exacerbated by both health system and individual level factors, yet there is a paucity of literature on the experiences of BC survivors in Nigeria. Hence, this study explored the divergent and convergent experiences of BC survivors in accessing, navigating, and coping with treatment. METHODS: Participants (N = 24, aged 35 to 73 years) were recruited and engaged in focus group discussions (group 1, n = 11; group 2, n = 13 participants). Transcripts were transcribed verbatim and analyzed with inductive thematic analysis. RESULTS: Four themes were identified: "I am carrying this [breast cancer] alone," "Living my life," "'God' helped me," and "A very painful journey." Participants described how they concealed their BC diagnosis from family and significant others while accessing and navigating BC treatment. Also, they adopted spiritual beliefs as a coping mechanism while sticking to their treatment and acknowledging the burden of BC on their well-being. CONCLUSIONS: Our findings explored the emotional burden of BC diagnosis and treatment and the willingness of the BC survivors to find meaning in their diagnosis. Treatment for BC survivors should integrate supportive care and innovative BC access tools to reduce pain and mitigate the burdens of BC. IMPLICATIONS FOR CANCER SURVIVORS: The integration of innovative technologies for venous access and other treatment needs of BC is crucial and will improve survivorship. Non-disclosure of BC diagnosis is personal and complicated; hence, BC survivors need to be supported at various levels of care and treatment to make meaningful decisions. To improve survivorship, patient engagement is crucial in shared decision-making, collaboration, and active participation in care.
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Neoplasias de la Mama , Supervivientes de Cáncer , Humanos , Femenino , Neoplasias de la Mama/terapia , Esposos , Sobrevivientes , Supervivencia , DolorRESUMEN
The probate court may appoint legal guardians to make decisions on behalf of older adults regarding medical needs, living arrangements, or finances. This study aims to highlight the challenges of guardianship for older adults and ways to improve practice at the county level. Focus group discussions were comprised of probate court judges and other court staff, and guardians (including family members, volunteers, attorneys, and professionals) in five counties within the state of Ohio. Themes identified illuminate challenges regarding responsibility to care, elder mistreatment, and administrative bottlenecks. These counties have developed some promising practices including commitment to excellence, resource stability, and community collaboration, to address these challenges.
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Familia , Tutores Legales , Anciano , Toma de Decisiones , Humanos , OhioRESUMEN
Some Nigerians, in their effort to make sense of dementia symptoms, use descriptions that may stigmatize people with dementia and their families. This qualitative descriptive study focused on the everyday understanding of dementia and the impact of stigma on the caregiving experiences of informal female Nigerian dementia caregivers. Semi-structured interviews were conducted with a purposive sample of 12 adult informal female caregivers in Nigeria and analyzed for themes. Afterward, results were presented to focus groups of 21 adult Nigerians residing in the United States for more contextual insight on the findings. The three major themes were misconceptions about dementia symptoms, caregiving protects against stigmatization, and stigma affects caregiving support. Overall, we argue that knowledge deficit, poor awareness, and traditional spiritual beliefs combine to drive dementia-related stigmatization in Nigeria. Strategies such as culturally appropriate dementia awareness campaigns and formal long-term care policies are urgently needed to help strengthen informal dementia caregiving in Nigeria.
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Cuidadores , Demencia , Adulto , Actitud , Femenino , Humanos , Nigeria , Investigación Cualitativa , Estados UnidosRESUMEN
This qualitative study explored the unique challenges and experiences faced by Black and Latinx cancer survivors through the lens of their caregivers, including the specific cultural, social, and systemic factors that influence cancer survivorship experience within these communities in the United States. We conducted six focus group discussions (three Latinx and three Black groups) with a total of 33 caregivers of cancer survivors, (Mean age = 63 years). Data were analyzed using inductive content analysis; The sociocultural stress and coping model was used as a framework to interpret the findings. We identified three main themes: 1) families as (un)stressors in survivorship such as the vitality of social connections and families as unintended burden; 2) responses after diagnosis specifically whether to conceal or accept a diagnosis, and 3) experiencing health care barriers including communication gaps, biased prioritizing of care, and issues of power, trust, and need for stewardship. This study's findings align with previous research, highlighting the complex interplay between cultural, familial, and healthcare factors in cancer survivorship experiences within underserved communities. The study reiterates the need for culturally tailored emotional, physical, financial, and informational support for survivors and their caregivers. Also, the study highlights a need to strengthen mental health and coping strategies, to help address psychological distress and improve resilience among survivors and their caregivers.
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OBJECTIVES: Ghana's population is rapidly aging and there may be healthcare access and utilization issues. This study investigates some of the issues that may influence outpatient care utilization rate among older Ghanaians. METHODS: Cross-sectional wave 1 (2007-2010) data from WHO's Study on Global Ageing and Adult Health are used, and a sample of 1408 are analyzed. After multiple imputations of missing values, a negative binomial regression model is used to identify the association between outpatient care utilization rate and lifestyle activities. RESULTS: The rate of outpatient care utilization is negatively associated with the rate of eating vegetables (ß =0.0830, p < .001), fruits (ß =0.0033, p < .05), moderate-exercise (ß =0.4010, p < .001), moderate-work (ß =0.2049, p < .001), walking/biking (ß = 0.0436, p < .001), and positively associated with leisure hours ((ß =0.0194, p < .001). CONCLUSION: To promote better aging situations of older adults in Ghana, poverty and poor education should be addressed as potential barriers to healthcare access. There is a need for policies that encourage healthier lifestyles for older Ghanaian's health. FUNDING: The study was self-funded by the authors.