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1.
Helicobacter ; 29(1): e13029, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-37823482

RESUMEN

BACKGROUND: Helicobacter pylori (H. pylori) poses serious threats to human health. TikTok (Douyin in Chinese), a major social media platform focused on sharing short videos, has demonstrated great potential in spreading health information, including information related to H. pylori infection. This study aims to evaluate the content and quality of the information shared in TikTok videos about H. pylori infection in mainland China. METHODS: We collected a sample of 116 videos in Chinese related to H. pylori infection from TikTok. Video contents were evaluated by the coding schema proposed by Goobie et al., and the Hexagonal Radar Schema was used to intuitively display the spotlight and weight of each aspect of the videos. The DISCERN questionnaire was used to evaluate the quality of the videos. RESULTS: We identified two major sources of videos related to H. pylori: individual users (n = 89) and organizational users (n = 27). Regarding content, the Hexagonal Radar Charts showed that more than 35% of the videos delivered moderate to high quality content (>1 point) in terms of definition, symptoms and management of the disease, whereas risk factors, evaluation and outcomes of the disease were less discussed. The DISCERN classification data showed that 0.9% of the videos were "very poor," 5.2% "poor," 68.7% "fair," 20.0% "good," and only 5.2% "excellent". Regarding total DISCERN scores, videos published by nonprofit organizations had the highest scores, followed by videos uploaded by health professionals. CONCLUSION: Although the overall quality of TikTok videos related to H. pylori infection was medium, users should be careful when obtaining information related to H. pylori infection on TikTok and opt for videos uploaded by nonprofit organizations and health professionals.


Asunto(s)
Información de Salud al Consumidor , Infecciones por Helicobacter , Medios de Comunicación Sociales , Humanos , Estudios Transversales , Helicobacter pylori
2.
Clin Oral Implants Res ; 35(5): 498-509, 2024 May.
Artículo en Inglés | MEDLINE | ID: mdl-38396373

RESUMEN

PURPOSE: To critically appraise the quality and reliability of YouTube videos regarding peri-implant diseases and conditions as a source of information for patients, students, and young clinicians. MATERIALS AND METHODS: In March 2023, electronic searches were performed on YouTube website to identify videos related to peri-implant diseases and conditions. We considered only the relevant 250 English-language videos with durations between 3 and 30 min for final analyses. Following the eligibility criteria videos were evaluated for their demographic data, including number of views; number of likes, dislikes, and comments; days since upload; duration; and number of subscribers. Moreover, two assessors independently evaluated the quality and reliability of the included videos using the DISCERN and Video Information and Quality Index (VIQI) tools. Statistical analyses were performed using the Kruskal-Wallis test and Spearman correlation analysis (∝ = 0.05). RESULTS: A total of 69 videos were included for profound analyses. The average DISCERN and VIQI scores were 35.04 ± 6.3 and 14.18 ± 2.46, with 53 videos categorized as "poor" quality using the DISCERN tool. A Spearman rank correlation analysis presented a strong agreement between the DISCERN and VIQI scores (r = .753; p < .001). Nevertheless, based on different sources of upload, no statistically significant differences were reported for video demographics, interaction index, and DISCERN and VIQI scores. CONCLUSIONS: Although YouTube videos on peri-implant diseases and conditions present accurate preliminary information, their reliability still remains uncertain. Hence, we urge respective policymakers to recognize, endorse and produce high-quality videos for accurate information dissemination.


Asunto(s)
Medios de Comunicación Sociales , Grabación en Video , Humanos , Estudios Transversales , Reproducibilidad de los Resultados , Implantes Dentales , Periimplantitis
3.
Photodermatol Photoimmunol Photomed ; 40(2): e12958, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-38489300

RESUMEN

BACKGROUND/PURPOSE: Vitiligo is a depigmenting disorder that affects up to 2% of the population. Due to the relatively high prevalence of this disease and its psychological impact on patients, decisions concerning treatment can be difficult. As patients increasingly seek health information online, the caliber of online health information (OHI) becomes crucial in patients' decisions regarding their care. We aimed to assess the quality and readability of OHI regarding phototherapy in the management of vitiligo. METHODS: Similar to previously published studies assessing OHI, we used 5 medical search terms as a proxy for online searches made by patients. Results for each search term were assessed using an enhanced DISCERN analysis, Health On the Net code of conduct (HONcode) accreditation guidelines, and several readability indices. The DISCERN analysis is a validated questionnaire used to assess the quality of OHI, while HONcode accreditation is a marker of site reliability. RESULTS: Of the 500 websites evaluated, 174 were HONcode-accredited (35%). Mean DISCERN scores for all websites were 58.9% and 51.7% for website reliability and treatment sections, respectively. Additionally, 0/130 websites analyzed for readability scored at the NIH-recommended sixth-grade reading level. CONCLUSION: These analyses shed light on the shortcomings of OHI regarding phototherapy treatment for vitiligo, which could exacerbate disparities for patients who are already at higher risk of worse health outcomes.


Asunto(s)
Información de Salud al Consumidor , Vitíligo , Humanos , Comprensión , Vitíligo/terapia , Reproducibilidad de los Resultados , Fototerapia , Internet
4.
BMC Public Health ; 24(1): 1216, 2024 May 02.
Artículo en Inglés | MEDLINE | ID: mdl-38698404

RESUMEN

BACKGROUND: Acute pancreatitis (AP) is a common acute digestive system disorder, with patients often turning to TikTok for AP-related information. However, the platform's video quality on AP has not been thoroughly investigated. OBJECTIVE: The main purpose of this study is to evaluate the quality of videos about AP on TikTok, and the secondary purpose is to study the related factors of video quality. METHODS: This study involved retrieving AP-related videos from TikTok, determining, and analyzing them based on predefined inclusion and exclusion criteria. Relevant data were extracted and compiled for evaluation. Video quality was scored using the DISCERN instrument and the Health on the Net (HONcode) score, complemented by introducing the Acute Pancreatitis Content Score (APCS). Pearson correlation analysis was used to assess the correlation between video quality scores and user engagement metrics such as likes, comments, favorites, retweets, and video duration. RESULTS: A total of 111 TikTok videos were included for analysis, and video publishers were composed of physicians (89.18%), news media organizations (13.51%), individual users (5.41%), and medical institutions (0.9%). The majority of videos focused on AP-related educational content (64.87%), followed by physicians' diagnostic and treatment records (15.32%), and personal experiences (19.81%). The mean scores for DISCERN, HONcode, and APCS were 33.05 ± 7.87, 3.09 ± 0.93, and 1.86 ± 1.30, respectively. The highest video scores were those posted by physicians (35.17 ± 7.02 for DISCERN, 3.31 ± 0.56 for HONcode, and 1.94 ± 1.34 for APCS, respectively). According to the APCS, the main contents focused on etiology (n = 55, 49.5%) and clinical presentations (n = 36, 32.4%), followed by treatment (n = 24, 21.6%), severity (n = 20, 18.0%), prevention (n = 19, 17.1%), pathophysiology (n = 17, 15.3%), definitions (n = 13, 11.7%), examinations (n = 10, 9%), and other related content. There was no correlation between the scores of the three evaluation tools and the number of followers, likes, comments, favorites, and retweets of the video. However, DISCERN (r = 0.309) and APCS (r = 0.407) showed a significant positive correlation with video duration, while HONcode showed no correlation with the duration of the video. CONCLUSIONS: The general quality of TikTok videos related to AP is poor; however, the content posted by medical professionals shows relatively higher quality, predominantly focusing on clinical presentations and etiologies. There is a discernible correlation between video duration and quality ratings, indicating that a combined approach incorporating the guideline can comprehensively evaluate AP-related content on TikTok.


Asunto(s)
Pancreatitis , Grabación en Video , Humanos , Pancreatitis/terapia , Pancreatitis/diagnóstico , Reproducibilidad de los Resultados , Enfermedad Aguda , Medios de Comunicación Sociales
5.
BMC Oral Health ; 24(1): 798, 2024 Jul 15.
Artículo en Inglés | MEDLINE | ID: mdl-39010000

RESUMEN

BACKGROUND: The aim of this study was to evaluate the content and quality of videos about bruxism treatments on YouTube, a platform frequently used by patients today to obtain information. METHODS: A YouTube search was performed using the keywords "bruxism treatment" and "teeth grinding treatment". "The sort by relevance" filter was used for both search terms and the first 150 videos were saved. A total of 139 videos that met the study criteria were included in the study. Videos were classified as poor, moderate or excellent based on a usefulness score that evaluated content quality. The modified DISCERN tool was also used to evaluate video quality. Additionally, videos were categorized according to the upload source, target audience and video type. The types of treatments mentioned in the videos and the demographic data of the videos were recorded. RESULTS: According to the usefulness score, 59% of the videos were poor-quality, 36.7% were moderate-quality and 4.3% were excellent-quality. Moderate-quality videos had a higher interaction index than excellent-quality videos (p = 0.039). The video duration of excellent-quality videos was longer than that of moderate and poor-quality videos (p = 0.024, p = 0.002). Videos with poor-quality content were found to have significantly lower DISCERN scores than videos with moderate (p < 0.001) and excellent-quality content (p = 0.008). Additionally, there was a significantly positive and moderate (r = 0.446) relationship between DISCERN scores and content usefulness scores (p < 0.001). There was only a weak positive correlation between DISCERN scores and video length (r = 0.359; p < 0.001). The videos uploaded by physiotherapists had significantly higher views per day and viewing rate than videos uploaded by medical doctors (p = 0.037), university-hospital-institute (p = 0.024) and dentists (p = 0.006). The videos uploaded by physiotherapists had notably higher number of likes and number of comments than videos uploaded by medical doctors (p = 0.023; p = 0.009, respectively), university-hospital-institute (p = 0.003; p = 0.008, respectively) and dentists (p = 0.002; p = 0.002, respectively). CONCLUSIONS: Although the majority of videos on YouTube about bruxism treatments are produced by professionals, most of the videos contain limited information, which may lead patients to debate treatment methods. Health professionals should warn patients against this potentially misleading content and direct them to reliable sources.


Asunto(s)
Bruxismo , Medios de Comunicación Sociales , Grabación en Video , Humanos , Bruxismo/terapia , Reproducibilidad de los Resultados
6.
Saudi Pharm J ; 32(4): 101997, 2024 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-38426034

RESUMEN

Background: The goal of this study was to identify and evaluate the use of Arabic YouTube videos on BD as a resource for patient education. Methods: A cross-sectional evaluation of YouTube videos as a source of information for patients with BD in Arabic was performed. The study was observational and, because it did not involve human subjects, it followed the STROBE guidelines whenever possible. The quality of the videos was assessed using the validated DISCERN instrument. The search strategy involved entering the term "bipolar disorder" in the YouTube search bar, and only YouTube videos in Arabic were included. Results: A total of 58 videos were included in this study after removing duplicates and videos unrelated to BD (Figure 1). The most common source of videos was others (38%), followed by physician (33%), educational (26%), and hospital (3%). Resources covering symptoms and prognosis were mostly in the "others" category (41%). The resources or videos that covered treatment options were mainly created by physicians (41%). However, resources or videos that included a personal story mainly belonged to the "others" category (67%). Conclusion: Visual health-related instructional resources still have a significant shortage. This study highlights the poor quality of videos about serious illnesses like BD. Evaluation and promotion of the creation of visual health-related educational resources should be the primary goal of future study.

7.
Int Ophthalmol ; 44(1): 329, 2024 Jul 18.
Artículo en Inglés | MEDLINE | ID: mdl-39026115

RESUMEN

PURPOSE: To evaluate the quality and reliability of YouTube videos as an educational resource about myopia. METHODS: The videos were identified by searching YouTube with the keywords 'myopia' and 'nearsightedness', using the website's default search settings. The number of views, likes, dislikes, view ratio, source of the upload, country of origin, video type, and described treatment techniques were assessed. Each video was evaluated using the DISCERN, Journal of the American Medical Association (JAMA), Ensuring Quality Information for Patients (EQIP), Health On the Net Code of Conduct Certification (HONcode), and the Global Quality Score (GQS) scales. RESULTS: A total of 112 videos were included. The classification of videos by source indicated that the top three contributors were health channels (30 videos [26.8%]), physicians (24 videos [21.4%]), and academic centers (19 videos [16.9%]). Most of these videos originated from the United States (74 videos [66.1%]) and focused on the pathophysiology (n = 89, 79.4%) and the treatment (n = 77, 68.7%) of myopia. Statistical comparisons among the groups of video sources showed no significant difference in the mean DISCERN score (p = 0.102). However, significant differences were noted in the JAMA (p = 0.011), GQS (p = 0.009), HONcode (p = 0.011), and EQIP (p = 0.002) scores. CONCLUSIONS: This study underscored the variability in the quality and reliability of YouTube videos related to myopia, with most content ranging from 'weak to moderate' quality based on the DISCERN and GQS scales, yet appearing to be 'excellent' according to the HONcode and EQIP scales. Videos uploaded by physicians generally exhibited higher standards, highlighting the importance of expert involvement in online health information dissemination. Given the potential risks of accessing incorrect medical data that can affect the decision-making processes of patients, caution should be exercised when using online content as a source of information.


Asunto(s)
Miopía , Medios de Comunicación Sociales , Grabación en Video , Humanos , Miopía/terapia , Miopía/fisiopatología , Medios de Comunicación Sociales/normas , Reproducibilidad de los Resultados , Difusión de la Información/métodos , Educación del Paciente como Asunto/métodos , Educación del Paciente como Asunto/normas
8.
Exp Dermatol ; 32(8): 1317-1321, 2023 08.
Artículo en Inglés | MEDLINE | ID: mdl-36815282

RESUMEN

Generalized pustular psoriasis (GPP) is a multisystem disease with potentially life-threatening adverse effects. As patients increasingly seek health information online, and as the landscape for GPP changes, the quality of online health information (OHI) becomes progressively more important. This paper is the first of its kind to examine the quality, comprehensiveness and readability of online health information for GPP. Similar to pre-existing studies evaluating OHI, this paper examines 5 key search terms for GPP- 3 medical and 2 laymen. For each search term, the results were evaluated based on HONcode accreditation, an enhanced DISCERN analysis and a number of readability indices. Of the 500 websites evaluated, 84 (16.8%) were HONcode-accredited. Mean DISCERN scores of all websites were 74.9% and 38.6% for website reliability and treatment sections, respectively, demonstrating key gaps in comprehensiveness and reliability of GPP-specific OHI. Additionally, only 4/100 websites (4%) analysed for readability were written at the NIH-recommended sixth-grade level. Academic websites were significantly more difficult to read than governmental websites. This further exacerbates the patient information gap, particularly for patients with low health literacy, who may already be at higher risk of not receiving timely medical care.


Asunto(s)
Comprensión , Información de Salud al Consumidor , Internet , Psoriasis , Humanos , Información de Salud al Consumidor/normas , Acceso a la Información
9.
J Surg Res ; 292: 206-213, 2023 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-37639947

RESUMEN

INTRODUCTION: YouTube has become a main resource used by patients for self-education on medicine. It is important for surgeons to understand the quality and reliability of videos that patients are likely to view about elective procedures. METHODS: Videos were categorized by view count and content creators. The top 20 videos for each term, sorted by relevance, were evaluated using DISCERN criteria, a question set externally validated to assess the quality of information regarding health treatment choices. DISCERN score (DS) closer to 5 indicate higher quality information and 1 indicates the opposite. Total scores were given: 15-26 (very poor), 27-38 (poor), 39-50 (fair), 51-62 (very good), and 63-75 (excellent). Search terms included "Wound Care", "Skin Grafting", "Tracheostomy", and "percutaneous endoscopic gastrostomy tube placement". RESULTS: In total, 80 unique videos were evaluated with a total view of 8,848,796. The mean overall DS was 2.15 and a mean bias DS was 2.46. The median DISCERN total score for each key term was Tracheostomy: 35 (poor), Skin Grafting 26 (very poor), percutaneous endoscopic gastrostomy: 32 (poor), and Wound Care: 40 (fair). CONCLUSIONS: YouTube videos surrounding elective procedures should be viewed cautiously in patient education despite wide availability. The videos in this study show high levels of bias and low DS. Healthcare providers should be aware of poor-quality consumer health information often disseminated in online media such as YouTube.

10.
Artif Organs ; 47(6): 1029-1037, 2023 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-36478254

RESUMEN

BACKGROUND: As patients seek online health information to supplement their medical decision-making, the aim of this study is to assess the quality and readability of internet information on the left ventricular assist device (LVAD). METHODS: Three online search engines (Google, Bing, and Yahoo) were searched for "LVAD" and "Left ventricular assist device." Included websites were classified as academic, foundation/advocacy, hospital-affiliated, commercial, or unspecified. The quality of information was assessed using the JAMA benchmark criteria (0-4), DISCERN tool (16-80), and the presence of Health On the Net code (HONcode) accreditation. Readability was assessed using the Flesch Reading Ease score. RESULTS: A total of 38 unique websites were included. The average JAMA and DISCERN scores of all websites were 0.82 ± 1.11 and 52.45 ± 13.51, respectively. Academic sites had a significantly lower JAMA mean score than commercial (p < 0.001) and unspecified (p < 0.001) websites, as well as a significantly lower DISCERN, mean score than commercial sites (p = 0.002). HONcode certification was present in 6 (15%) websites analyzed, which had significantly higher JAMA (p < 0.001) and DISCERN (p < 0.016) mean scores than sites without HONcode certification. Readability was fairly difficult and at the level of high school students. CONCLUSIONS: The quality of online information on the LVAD is variable, and overall readability exceeds the recommended level for the public. Patients accessing online information on the LVAD should be referred to sites with HONcode accreditation. Academic institutions must provide higher quality online patient literature on LVADs.


Asunto(s)
Comprensión , Corazón Auxiliar , Humanos , Benchmarking
11.
J Med Internet Res ; 25: e40733, 2023 02 02.
Artículo en Inglés | MEDLINE | ID: mdl-36729573

RESUMEN

BACKGROUND: There is a wide variation in the quality of information available to patients on the treatment of the diseases afflicting them. To help patients find clear and accessible information, many scales have been designed to evaluate the quality of health information, including the Patient Education Materials Assessment Tool; the Suitability Assessment of Materials for evaluation of health-related information for adults; and DISCERN, an instrument for judging the quality of written consumer health information on treatment choices. These instruments are primarily in English. Few of them have been translated and adapted into simplified Chinese tools for health information assessment in China. OBJECTIVE: This study aimed to translate and adapt DISCERN into the first simplified Chinese version and validate the psychometric properties of this newly developed scale for judging the quality of patient-oriented health information on treatment choices. METHODS: First, we translated DISCERN into simplified Chinese using rigorous guidelines for translation and validation studies. We tested the translation equivalence and measured the content validity index. We then presented the simplified Chinese instrument to 3 health educators and asked them to use it to assess the quality of 15 lung cancer-related materials. We calculated the Cohen κ coefficient and Cronbach α for all items and for the entire scale to determine the reliability of the new tool. RESULTS: We decided on the simplified Chinese version of the DISCERN instrument (C-DISCERN) after resolving all problems in translation, adaptation, and content validation. The C-DISCERN was valid and reliable: the content validity index was 0.98 (47/48, 98% of the items) for clarity and 0.94 (45/48, 94% of the items) for relevance, the Cronbach α for internal consistency was .93 (95% CI 0.699-1.428) for the whole translated scale, and the Cohen κ coefficient for internal consistency was 0.53 (95% CI 0.417-0.698). CONCLUSIONS: C-DISCERN is the first simplified Chinese version of the DISCERN instrument. Its validity and reliability have been attested to assess the quality of patient-targeted information for treatment choices.


Asunto(s)
Información de Salud al Consumidor , Traducción , Adulto , Humanos , Reproducibilidad de los Resultados , Lenguaje , Psicometría , China , Encuestas y Cuestionarios
12.
J Med Internet Res ; 25: e47210, 2023 07 05.
Artículo en Inglés | MEDLINE | ID: mdl-37405825

RESUMEN

BACKGROUND: Liver cancer incidence has been increasing in China in the recent years, leading to increased public concern regarding the burden of this disease. Short videos on liver cancer are disseminated through TikTok and Bilibili apps, which have gained popularity in recent years as an easily accessible source of health information. However, the credibility, quality, and usefulness of the information in these short videos and the professional knowledge of the individuals uploading health information-based videos in these platforms have not yet been evaluated. OBJECTIVE: Our study aims to assess the quality of the information in Chinese short videos on liver cancer shared on the TikTok and Bilibili short video-sharing platforms. METHODS: In March 2023, we assessed the top 100 Chinese short videos on liver cancer in TikTok and Bilibili (200 videos in total) for their information quality and reliability by using 2 rating tools, namely, global quality score (GQS) and the DISCERN instrument. Correlation and Poisson regression analyses were applied to discuss the factors that could impact video quality. RESULTS: Compared to Bilibili, TikTok is more popular, although the length of the videos on TikTok is shorter than that of the videos on Bilibili (P<.001). The quality of the short videos on liver cancer in TikTok and Bilibili was not satisfactory, with median GQS of 3 (IQR 2-4) and 2 (IQR 1-5) and median DISCERN scores of 5 (IQR 4-6) and 4 (IQR 2-7), respectively. In general, the quality of videos sourced from professional institutions and individuals was better than that of those sourced from nonprofessionals, and videos involving disease-related knowledge were of better quality than those covering news and reports. No significant differences were found in the quality of videos uploaded by individuals from different professions, with the exception of those uploaded by traditional Chinese medicine professionals, which demonstrated poorer quality. Only video shares were positively correlated with the GQS (r=0.17, P=.01), and no video variables could predict the video quality. CONCLUSIONS: Our study shows that the quality of short videos on health information related to liver cancer is poor on Bilibili and TikTok, but videos uploaded by health care professionals can be considered reliable in terms of comprehensiveness and content quality. Thus, short videos providing medical information on TikTok and Bilibili must be carefully considered for scientific soundness by active information seekers before they make decisions on their health care management.


Asunto(s)
Neoplasias Hepáticas , Medios de Comunicación Sociales , Humanos , Estudios Transversales , Reproducibilidad de los Resultados , Grabación en Video , China
13.
J Med Internet Res ; 25: e39162, 2023 02 08.
Artículo en Inglés | MEDLINE | ID: mdl-36753307

RESUMEN

BACKGROUND: TikTok was an important channel for consumers to access and adopt health information. But the quality of health content in TikTok remains underinvestigated. OBJECTIVE: Our study aimed to identify upload sources, contents, and feature information of gallstone disease videos on TikTok and further evaluated the factors related to video quality. METHODS: We investigated the first 100 gallstone-related videos on TikTok and analyzed these videos' upload sources, content, and characteristics. The quality of videos was evaluated using quantitative scoring tools such as DISCERN instrument, the Journal of American Medical Association (JAMA) benchmark criteria, and Global Quality Scores (GQS). Moreover, the correlation between video quality and video characteristics, including duration, likes, comments, and shares, was further investigated. RESULTS: According to video sources, 81% of the videos were posted by doctors. Furthermore, disease knowledge was the most dominant video content, accounting for 56% of all the videos. The mean DISCERN, JAMA, and GQS scores of all 100 videos are 39.61 (SD 11.36), 2.00 (SD 0.40), and 2.76 (SD 0.95), respectively. According to DISCERN and GQS, gallstone-related videos' quality score on TikTok is not high, mainly at fair (43/100, 43%,) and moderate (46/100, 46%). The total DISCERN scores of doctors were significantly higher than that of individuals and news agencies, surgery techniques were significantly higher than lifestyle and news, and disease knowledge was significantly higher than news, respectively. DISCERN scores and video duration were positively correlated. Negative correlations were found between DISCERN scores and likes and shares of videos. In GQS analysis, no significant differences were found between groups based on different sources or different contents. JAMA was excluded in the video quality and correlation analysis due to a lack of discrimination and inability to evaluate the video quality accurately. CONCLUSIONS: Although the videos of gallstones on TikTok are mainly provided by doctors and contain disease knowledge, they are of low quality. We found a positive correlation between video duration and video quality. High-quality videos received low attention, and popular videos were of low quality. Medical information on TikTok is currently not rigorous enough to guide patients to make accurate judgments. TikTok was not an appropriate source of knowledge to educate patients due to the low quality and reliability of the information.


Asunto(s)
Cálculos Biliares , Medios de Comunicación Sociales , Humanos , Cálculos Biliares/diagnóstico , Estudios Transversales , Reproducibilidad de los Resultados , Benchmarking , Emociones , Grabación en Video , Difusión de la Información
14.
J Shoulder Elbow Surg ; 32(1): e23-e32, 2023 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-36108880

RESUMEN

BACKGROUND: Websites have become a primary way for patients to access health-related information, which allows patients to not only understand their condition better but also to engage in better decision making with their health care provider. However, this can be a double-edged sword, as information patients access may not be of high quality, easily readable, or could be biased based on website authorship. This study examines the readability and content quality of common websites about shoulder pain, with a specific focus on biomedical vs. psychosocial information. METHODS: The Flesch reading-ease score (FRES) and Flesch-Kincaid grade level (FKGL) instruments were used to assess website readability. Health on the net code of conduct (HONcode) certification and the DISCERN tool were used to evaluate the reliability and quality of information. Lastly, shoulder-specific content quality and focus was gauged using a Shoulder-specific Website Appraisal Tool (SWAT) created for this study. A systematic search protocol was used to identify popular shoulder injury websites. The websites were identified using 5 search terms (shoulder pain, shoulder muscle pain, shoulder impingement, shoulder rotator cuff pain, and shoulder pain diagnosis) across 5 English-speaking regions (United States, Canada, United Kingdom, Australia, and New Zealand) using the Google search engine. The top 10 websites for each term and region combination were included and combined, yielding 41 original websites for appraisal; several (6) websites were omitted as duplicates, behind paywalls, or nontext (video) for a total of 35 websites appraised. RESULTS: On average, the FRES shoulder pain websites readability was 55.37, which is categorized as "fairly difficult" to read, and a seventh- or eighth-grade reading level based on the FKGL. For trustworthiness and bias, 57% (20 of 35) of the websites were HONcode certified. The quality of health care information using the DISCERN score averaged 50.92%. Examining shoulder-specific content quality, the average SWAT score was 10.54 out of 14 possible points, with only 1 website reporting information on psychosocial aspects of shoulder pain. CONCLUSIONS: This study suggests that shoulder pain websites present information that is at too high of a reading level for public consumption, has a strong bias toward biomedical causes of shoulder pain, and would benefit from implementation of website screening tools to improve evidence-based content.


Asunto(s)
Comprensión , Dolor de Hombro , Humanos , Dolor de Hombro/diagnóstico , Reproducibilidad de los Resultados , Motor de Búsqueda , Internet
15.
J Stroke Cerebrovasc Dis ; 32(2): 106914, 2023 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-36462451

RESUMEN

OBJECTIVES: Acute ischemic stroke is a leading cause of mortality and long-term disability. Mechanical thrombectomy can effectively treat large artery occlusions. This study aimed to evaluate the quality, reliability, and usefulness of videos on mechanical thrombectomy on YT using quantitative and qualitative analyses. MATERIALS AND METHODS: Video searches were performed by entering the following keywords into the YT search bar: "endovascular thrombectomy," "endovascular treatment of acute stroke," "mechanical thrombectomy," "stroke stent retriever," and "stent retriever thrombectomy." For each search term, the top 35 videos were reviewed. The videos were analyzed by two independent raters using the DISCERN and JAMA scoring systems. Qualitative and quantitative data were recorded for each video. RESULTS: A total of 150 videos were analyzed. The mean DISCERN score was 41.26, and the mean JAMA score was 1.42. Of the videos, 5.3% were categorized as very poor, 33.3% as poor, 44% as fair, 12% as good, and 5.3% as excellent. The videos that included qualitative features, such as clear information, symptomatology, diagnosis, treatment response, prognosis, etiology, epidemiology, diagram, and radiological image, had significantly higher DISCERN and JAMA scores than their counterparts. CONCLUSION: A reliable and useful content is not available for individuals searching for information on mechanical thrombectomy on YT. In this paper, we highlighted key points for content creators to increase the quality and audience engagement statistics of their videos. Information provided in YT videos should be verified using more reliable sources.


Asunto(s)
Accidente Cerebrovascular Isquémico , Medios de Comunicación Sociales , Accidente Cerebrovascular , Humanos , Difusión de la Información/métodos , Reproducibilidad de los Resultados , Accidente Cerebrovascular/diagnóstico por imagen , Accidente Cerebrovascular/terapia , Trombectomía/efectos adversos , Grabación en Video/métodos
16.
Int Ophthalmol ; 43(2): 549-555, 2023 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-35945414

RESUMEN

BACKGROUND: This study aimed to analyze the quality of videos on YouTube as educational resources about uveitis. METHODS: An online YouTube search was performed using the keyword "uveitis". Total view counts, duration of videos, publishing dates, likes and dislikes, numbers of comments, and source of videos were recorded. The quality and accuracy of the video's educational content were evaluated using the DISCERN score, Global Quality Score (GQS), and Journal of the American Medical Association (JAMA) score. Video power index (VPI) was used to evaluate both the view and the like ratio of the videos. All videos were classified according to publishers and types of categories. RESULTS: From among the 200 videos analyzed, 94 were included. The mean DISCERN score was 38.5 ± 13.2 (poor), the mean JAMA score was 1.8 ± 0.6 (fair), and the GQS was 2.5 ± 0.9 (fair). There were positive correlations between the three checklists (p < .001). VPI was not correlated with each score (p > .05). The most common upload sources were ophthalmologists (24.4%) and YouTube channels about health (20.2%). Regarding content, we identified 47 (50%) medical education, 26 (27.6%) patient education, 16 (17%) patient experience, and five (5.3%) surgical procedure videos involving patients with uveitis. While the most popular videos were uploaded by doctors other than ophthalmologists, the videos uploaded by academic institutions and associations of healthcare professional were found to have higher educational quality and reliability scores. CONCLUSIONS: Uveitis videos on YouTube are of poor quality and reliability and are not adequately educational for patients. Therefore, physicians must be aware of the limitations of YouTube and ensure the flow of correct medical information to patients.


Asunto(s)
Medios de Comunicación Sociales , Estados Unidos , Humanos , Reproducibilidad de los Resultados , Instituciones Académicas , Escolaridad , Concienciación
17.
Int Ophthalmol ; 43(6): 2065-2072, 2023 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-36484952

RESUMEN

PURPOSE: It is aimed to determine the utility, reliability and quality of the lid loading videos on YouTube, a video sharing platform. METHODS: A YouTube searches were made with the keywords 'Eyelid Loading,' 'Gold Weight Implantation,' 'Lid Loading for Lagophthalmos' (without user login, cleared search history, in incognito tab). A total of 75 videos were recorded. Length of videos (seconds), number of views, uploaded source (doctor/health institution/medical channel), number of subscribers, number of likes, time since uploading (days), video content (surgical/theoretical information), type of narration (verbal narration/subtitle) were recorded. DISCERN, The Journal of the American Medical Association (JAMA), and Global Quality Scores of the videos were evaluated and recorded by two experienced oculoplastic surgeons (KSC, HT). RESULTS: After the exclusion criteria, the remaining 46 videos were included in the study. The mean DISCERN score was 25.17 ± 6.88 (very poor quality), the JAMA score was 0.79 ± 0.63 (very poor quality), and GQS was 2.84 ± 1.03 (medium quality). Thirty videos (65.2%) had verbal narration, and 16 videos (34.8%) had subtitled narration. The DISCERN score and GQS were significantly higher in the videos with verbal narration compared to the narration with subtitles (p < 0.05). All three scores were positively correlated with each other. There was also a positive correlation between video length, number of subscribers, and DISCERN score. CONCLUSIONS: The videos about lid loading on YouTube are of poor reliability, accuracy, and educational quality. The duration of the video and the type of narration can be kept in the foreground when choosing the video. Experts must review the content that is uploaded to websites like YouTube.


Asunto(s)
Lagoftalmos , Medios de Comunicación Sociales , Estados Unidos , Humanos , Reproducibilidad de los Resultados , Escolaridad , Párpados
18.
Int Ophthalmol ; 43(8): 2851-2856, 2023 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-36930360

RESUMEN

PURPOSE: To evaluate the quality and reliability of YouTube videos about Thyroid Orbitopathy. METHODS: A YouTube search was performed using the keyword 'Graves eye disease', 'thyroid eye disease', 'thyroid orbitopathy', 'thyroid ophtalmopathy' in the search bar of YouTube. The first 50 videos were analyzed for each keywords, and the first 100 videos that came out were included in the study. The numbers of views, likes, dislikes, comments, daily viewing rate (number of views per day), uploaded source, country of origin, video type (patient experience, scholarly information), and described treatment technique were evaluated for all videos. They were also evaluated regarding their DISCERN, Journal of the American Medical Association (JAMA), global quality score (GQS) and usefulness score by two independent ophthalmologists. RESULTS: Of the top 100 videos, 94 videos met the criteria. The mean DISCERN, JAMA, GQS and usefulness score were 55.27 ± 16.57, 3.04 ± 0.64, 3.44 ± 0.93 and 3.23 ± 1.1. If we look at the upload source 53 (56.4%) videos were uploaded by physicians, 30 (31.9%) videos by institutions/private health institutions, 7 (7.4%) videos by health channels, 4 (4.3%) videos by patients. All scoring systems showed a statistically significant and strong positive correlation with each other (p < 0.001). A statistically significant positive correlation between viewing rate, likes and comments was observed. As the duration of the video increased, a significant increase in the scores in other scores was observed. CONCLUSION: We observed that the tests we used in the scoring were correlated with each other. Most of the thyroid orbitopathy videos on YouTube were of good quality. Ophthalmologists should guide their patients who want to get information on YouTube to watch videos uploaded by health care professionals.


Asunto(s)
Oftalmopatía de Graves , Oftalmólogos , Medios de Comunicación Sociales , Estados Unidos , Humanos , Reproducibilidad de los Resultados
19.
Respir Res ; 23(1): 103, 2022 Apr 27.
Artículo en Inglés | MEDLINE | ID: mdl-35477513

RESUMEN

BACKGROUND: The Internet is commonly used by patients to acquire health information. To date, no studies have evaluated the quality of information available on YouTube regarding lymphangioleiomyomatosis (LAM). Our aim was to determine the quality and content of YouTube videos regarding LAM and to compare the information provided with current knowledge and guidelines about the disease. METHODS: The first 200 video hits on YouTube in English for the search term "lymphangioleiomyomatosis" were recorded. All videos suitable for patient education on LAM were included. Video quality was analyzed independently by two investigators utilizing the Health on the Net (HONcode) score, which assesses whether websites provide understandable, accessible, and trustworthy health information; the DISCERN score, which evaluates the quality of information about treatment decisions; and a newly developed LAM-related content score (LRCS) with 31 guideline elements. RESULTS: The search identified 64 eligible videos. The "engagement rate" of 0.3 was low, with a median number of views of 408 (range 42-73,943), a median of 4 likes (range 0-2082), and the majority (53%) receiving a low HONcode score (≤ 2) and only 10% of videos achieving a high score (> 5). The median DISCERN score was 28 (range 15-61, maximum possible score 80), indicating poor video quality and reliability. The median LRCS was 8 (range 0-29, maximum possible score 31) and videos frequently failed to provide sources of information. CONCLUSIONS: Online resources could contribute to the limited and often inaccurate information available to patients with LAM, with only a few YouTube videos providing high-quality patient-relevant information.


Asunto(s)
Linfangioleiomiomatosis , Medios de Comunicación Sociales , Humanos , Difusión de la Información , Linfangioleiomiomatosis/diagnóstico , Linfangioleiomiomatosis/terapia , Educación del Paciente como Asunto , Reproducibilidad de los Resultados , Grabación en Video
20.
Surg Endosc ; 36(7): 5198-5206, 2022 07.
Artículo en Inglés | MEDLINE | ID: mdl-34845552

RESUMEN

BACKGROUND: More patients are turning to the internet for their health information than ever before. This is a growing problem as it is well recognized that medical information on the internet is highly variable. We assessed the quality of information on the internet regarding the anti-reflux procedure, Nissen Fundoplication. Three commonly used measures of website quality are the Health On the Net code, the Journal of the American Medical Association Benchmark criteria, and the DISCERN tool. The HON code is a seal of approval awarded by an independent organization where the JAMA Benchmark and DISCERN Tool are a set of standards that can be utilized by an internet user or webpage creator. METHODS: We performed a Google search using the term "Nissen Fundoplication", where we analyzed the top 75 websites. We included English language websites and excluded advertisements, websites for medical professionals, duplicates, and requiring a login. Each website included was evaluated for presence of the HON seal and scored with the JAMA Benchmark and DISCERN criteria to determine quality. RESULTS: Only 16.28% of websites were found to be HON code certified. The average JAMA benchmark score was 1.23, with 9.3% websites scoring the maximum 4 points and 39.53% receiving a score of 0. The average DISCERN score was 34.65 out of a total possible score of 75, where the mean score for the overall quality of the website (question 16) was 2.19 out of a maximal score of 5. CONCLUSION: This study, using 3 commonly used validated measures, has found that the quality of online information pertaining to Nissen Fundoplication is sorely lacking. The implications of these results are twofold as an important reference for institutions to update their source material and a guide when providing patients with adequate resources.


Asunto(s)
Información de Salud al Consumidor , Fundoplicación , Benchmarking , Humanos , Internet
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