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1.
Pediatr Blood Cancer ; 70(12): e30685, 2023 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-37740578

RESUMEN

BACKGROUND: High-quality communication in pediatric and adolescent cancer is the standard of care. Yet, we lack pediatric-specific communication measures. We designed self-report and caregiver-report communication measures for use in pediatric oncology settings. METHODS: We recruited adolescent and young adults (AYAs; 12-24 years) with cancer and parents of children and AYAs between 1 month post-diagnosis and 2 months after completing treatment. Participants completed measures including 58 questions addressing eight previously characterized communication functions. For each function, we conducted factor analysis, and assessed reliability and construct validity. Based on psychometric properties, we created final long-form (31 items) and short-form (eight items) communication measures (PedCOM) for both self- and caregiver-report. RESULTS: Participants included 200 parents and 88 AYAs. The final 31-item and eight-item PedCOM measures for parents and AYAs demonstrated good unidimensional model fit. Each communication function (e.g., building relationships) demonstrated high reliability, coefficient alphas ranged from .83 to .93 for parents and .85 to .93 for AYAs. The overall 31-item and eight-item PedCOM measures also demonstrated high reliability (alphas >.9). For construct validity, PedCOM-Parent-31 and PedCOM-Parent-8 correlated positively with satisfaction with care, trust, emotional self-management, and decisional satisfaction, and negatively with anxiety and caregiver burden. PedCOM-AYA-31 and PedCOM-AYA-8 correlated positively with satisfaction with care, trust, emotional self-management, symptoms self-management, and decisional satisfaction, and negatively with anxiety. DISCUSSION: We developed valid and reliable measures of communication functions for parents and AYAs with cancer. These measures can support organizations and stakeholder groups that are striving to improve the quality of cancer care.

2.
J Gen Intern Med ; 37(12): 3134-3146, 2022 09.
Artículo en Inglés | MEDLINE | ID: mdl-35391622

RESUMEN

BACKGROUND: Physicians' interest in the health and well-being of their patients is a tenet of medical practice. Physicians' ability to act upon this interest by caring for and about their patients is central to high-quality clinical medicine and may affect burnout. To date, a strong theoretical and empirical understanding of physician caring does not exist. To establish a practical, evidence-based approach to improve health care delivery and potentially address physician burnout, we sought to identify and synthesize existing conceptual models, frameworks, and definitions of physician caring. METHODS: We performed a scoping review on physician caring. In November 2019 and September 2020, we searched PubMed MEDLINE, Embase, PsycINFO, CINAHL, and CENTRAL Register of Controlled Trials to identify conceptual models, frameworks, and definitions of physician caring. Eligible articles involved discussion or study of care or caring among medical practitioners. We created a content summary and performed thematic analysis of extracted data. RESULTS: Of 11,776 articles, we reviewed the full text of 297 articles; 61 articles met inclusion criteria. Commonly identified concepts referenced Peabody's "secret of care" and the ethics of care. In bioethics, caring is described as a virtue. Contradictions exist among concepts of caring, such as whether caring is an attitude, emotion, or behavior, and the role of relationship development. Thematic analysis of all concepts and definitions identified six aspects of physician caring: (1) relational aspects, (2) technical aspects, (3) physician attitudes and characteristics, (4) agency, (5) reciprocity, and (6) physician self-care. DISCUSSION: Caring is instrumental to clinical medicine. However, scientific understanding of what constitutes caring from physicians is limited by contradictions across concepts. A unifying concept of physician caring does not yet exist. This review proposes six aspects of physician caring which can be used to develop evidence-based approaches to improve health care delivery and potentially mitigate physician burnout.


Asunto(s)
Agotamiento Profesional , Médicos , Agotamiento Psicológico , Emociones , Personal de Salud , Humanos , Médicos/psicología
3.
Aten Primaria ; 52(5): 335-344, 2020 05.
Artículo en Español | MEDLINE | ID: mdl-31029459

RESUMEN

OBJECTIVE: To determine the perceptions and attitudes of the general practitioners (GP) towards consultations with great emotional component, initially called "sacred encounters", and to identify areas of improvement. DESIGN: A qualitative methodology based on a socio-subjective approach and focused on health services research. Descriptive-interpretative study. LOCATION: Health Centres of Alava and Biscay. PARTICIPANTS: Selection of 23 GP from 23 urban and rural Health Centres. METHOD: Intentional sampling aimed at looking for discursive diversity. Data generated in 2016 by means of 3 discussion groups and 3 individual interviews recorded and transcribed after informed consent. Presentation to the ethics committee of the Basque Country. Thematic analysis with the aid of conceptual maps and MaxQDA program. Triangulation of the results between researchers and verification by the participants. RESULTS AND DISCUSSION: The findings were clustered into overlapping thematic areas related to the meaning of these encounters, attitudes of GP, health context, and patients. The importance of the emotions in primary care encounters and their invisibility is underlined, but the adequacy of the term "sacred" is questioned. This expression is built into the GP-patient relationship, if GP favours it and the patient also allows it, discussing the main circumstances that intervene in an essential dimension of integral care. CONCLUSIONS: The attention to the emotional dimension in the encounters has deficiencies that need to be corrected. In addition to its recognition and evaluation, it would be necessary to modify the organisational, training and professional factors that determine the involvement of the GPs in their good health care.


Asunto(s)
Actitud del Personal de Salud , Emociones , Relaciones Médico-Paciente , Médicos de Familia/psicología , Terminología como Asunto , Llanto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa , Salud Rural , Salud Urbana
4.
Psychooncology ; 28(2): 423-429, 2019 02.
Artículo en Inglés | MEDLINE | ID: mdl-30548100

RESUMEN

OBJECTIVE: This study analyzed cancer survivors' communication experiences that fell short of being patient-centered. Patients' descriptions of communication "breakdowns" were analyzed according to domain (eg, information exchange, fostering relationships, and managing emotions), whether it was a breakdown of commission (what was communicated) or omission (what should have been communicated) and whether it involved a clinician or the health care organization. METHODS: Cancer survivors (from an online panel of patients) completed the Patients Assessment of Communication Experience measure. Ratings less than "excellent" elicited a prompt asking where communication fell short. Communication breakdowns were categorized as one of commission/omission, if it involved a clinician/health care system, and within which communication domain. Thematic analysis explored how communication breakdowns affected respondents' cancer care experiences. RESULTS: Overall communication was rated as less than excellent by 153 respondents, of which 79 identified a specific communication breakdown. Over half (n = 43, 54%) were problems of omission, mostly attributed to interaction with health care organizations (n = 25). Breakdowns of commission (n = 36, 46%) occurred primarily within clinical encounters (n = 32). Most breakdowns were problems of information exchange (49%) or fostering relationships (27%). Three overarching themes emerged-emotional fallout from unmet information needs, inattention to patient perspective, and uncertainty about navigation and team communication. CONCLUSIONS: Patient-centered communication breakdowns create distress that worsens patients' cancer care experiences. Communication skills training for clinicians should address listening, perspective taking, and assessing/satisfying patients' information and emotional needs. Health care organizations should enhance processes to provide timely, useful information to patients.


Asunto(s)
Supervivientes de Cáncer , Comunicación , Neoplasias/terapia , Satisfacción del Paciente , Atención Dirigida al Paciente , Relaciones Médico-Paciente , Adulto , Femenino , Humanos , Masculino , Persona de Mediana Edad
5.
J Med Internet Res ; 20(2): e73, 2018 02 28.
Artículo en Inglés | MEDLINE | ID: mdl-29490892

RESUMEN

BACKGROUND: Both doctors and consumers have engaged in using social media for health purposes. Social media has changed traditional one-to-one communication between doctors and patients to many-to-many communication between doctors and consumers. However, little is known about the effect of doctor-consumer interaction on consumers' health behaviors. OBJECTIVE: The aim of this study was to investigate how doctor-consumer interaction in social media affects consumers' health behaviors. METHODS: On the basis of professional-client interaction theory and social cognitive theory, we propose that doctor-consumer interaction can be divided into instrumental interaction and affective interaction. These two types of interactions influence consumers' health behaviors through declarative knowledge (DK), self-efficacy (SE), and outcome expectancy (OE). To validate our proposed research model, we employed the survey method and developed corresponding measurement instruments for constructs in our research model. A total of 352 valid answers were collected, and partial least square was performed to analyze the data. RESULTS: Instrumental doctor-consumer interaction was found to influence consumers' DK (t294=5.763, P<.001), SE (t294=4.891, P<.001), and OE (t294=7.554, P<.001) significantly, whereas affective doctor-consumer interaction also impacted consumers' DK (t294=4.025, P<.001), SE (t294=4.775, P<.001), and OE (t294=4.855, P<.001). Meanwhile, consumers' DK (t294=3.838, P<.001), SE (t294=3.824, P<.001), and OE (t294=2.985, P<.01) all significantly affected consumers' health behaviors. Our mediation analysis showed that consumers' DK, SE, and OE partially mediated the effect of instrumental interaction on health behaviors, whereas the three mediators fully mediated the effect of affective interaction on health behaviors. CONCLUSIONS: Compared with many intentional intervention programs, doctor-consumer interaction can be treated as a natural cost-effective intervention to promote consumers' health behaviors. Meanwhile, both instrumental and affective interaction should be highlighted for the best interaction results. DK, SE, and OE are working mechanisms of doctor-consumer interaction.


Asunto(s)
Comportamiento del Consumidor , Conductas Relacionadas con la Salud/fisiología , Relaciones Médico-Paciente/ética , Medios de Comunicación Sociales/tendencias , Adulto , Comunicación , Estudios Transversales , Femenino , Humanos , Masculino , Encuestas y Cuestionarios
6.
J Med Internet Res ; 19(7): e270, 2017 07 27.
Artículo en Inglés | MEDLINE | ID: mdl-28751301

RESUMEN

BACKGROUND: Personal Health Records (PHR) systems provide individuals with access and control over their health information and consequently can support individuals in becoming active participants, rather than passive recipients, in their own care process. In spite of numerous benefits suggested for consumers' utilizing PHR systems, research has shown that such systems are not yet widely adopted or well known to consumers. Bearing in mind the potential benefits of PHRs to consumers and their potential interest in these systems-and that similar to any other type of information system, adoption is a prerequisite for realizing the potential benefits of PHR systems-research is needed to understand how to enhance the adoption rates for PHR systems. OBJECTIVE: This research seeks to understand how individuals' intentions to adopt PHR systems are affected by their self-determination in managing their own health-the extent of their ability to take an active role in managing their own health. As such, this research aims to develop and empirically validate a theoretical model that explains PHR systems adoption by the general public through the integration of theories from the information systems and psychology literatures. METHODS: This research employs a cross-sectional survey method targeted at the Canadian general public without any prior experience in using PHR systems. A partial least squares approach to structural equation modeling was used to validate the proposed research model of this study (N=159). RESULTS: Individuals with higher levels of ability to manage their own health (self-determination) are more likely to adopt PHR systems since they have more positive perceptions regarding the use of such systems. Further, such self-determination is fueled by autonomy support from consumers' physicians as well as the consumers' personality trait of autonomy orientation. CONCLUSIONS: This study advances our theoretical understanding of PHR systems adoption. It also contributes to practice by providing insightful implications for designing, promoting, and facilitating the use of PHR systems among consumers.


Asunto(s)
Registros de Salud Personal/psicología , Femenino , Humanos , Masculino
7.
Cancer ; 120(15): 2272-81, 2014 Aug 01.
Artículo en Inglés | MEDLINE | ID: mdl-24888503

RESUMEN

BACKGROUND: Young adults with cancer are at an increased risk of suicidal ideation. To the authors' knowledge, the impact of the patient-oncologist alliance on suicidal ideation has not been examined to date. The current study examined the relationship between the patient-oncologist therapeutic alliance and suicidal ideation in young adults with advanced cancer. METHODS: A total of 93 young adult patients (aged 20 years-40 years) with incurable, recurrent, or metastatic cancer were evaluated by trained interviewers. Suicidal ideation was assessed with the Yale Evaluation of Suicidality scale, dichotomized into a positive and negative score. Predictors included diagnoses of major depressive disorder and posttraumatic stress disorder, physical quality of life, social support, and use of mental health and supportive care services. The Human Connection Scale, dichotomized into a strong (upper third) and weak (lower two-thirds) therapeutic alliance, assessed the strength of the patients' perceived oncologist alliance. RESULTS: Approximately 22.6% of patients screened positive for suicidal ideation. Patients with a strong therapeutic alliance were found to be at reduced risk of suicidal ideation after controlling for confounding influences of cancer diagnosis, Karnofsky performance status, number of physical symptoms, physical quality of life, major depressive disorder, posttraumatic stress disorder, and social support. A strong therapeutic alliance was also associated with a reduced risk of suicidal ideation after controlling for mental health discussions with health care providers and use of mental health interventions. CONCLUSIONS: The patient-oncologist alliance was found to be a robust predictor of suicidal ideation and provided better protection against suicidal ideation than mental health interventions, including psychotropic medications. Oncologists may significantly influence patients' mental health and may benefit from training and guidance in building strong alliances with their young adult patients.


Asunto(s)
Neoplasias/psicología , Relaciones Médico-Paciente , Ideación Suicida , Adulto , Trastorno Depresivo Mayor/psicología , Femenino , Humanos , Masculino , Calidad de Vida , Factores de Riesgo , Trastornos por Estrés Postraumático/psicología , Adulto Joven
8.
Psychiatr Serv ; 74(11): 1171-1175, 2023 11 01.
Artículo en Inglés | MEDLINE | ID: mdl-37194313

RESUMEN

OBJECTIVE: Shared decision making (SDM) is a health communication model to improve treatment decision making and is underused for people with mental health conditions and limited, impaired, or fluctuating decisional capacity. SDM measures are essential to enhancing the adoption and implementation of SDM practices, yet no tools or research findings exist that explicitly focus on measuring SDM with such patients. The aim of this review was to identify instruments that measure SDM involving individuals with mental health conditions and limited decisional capacity, their family members, and their health and social care providers. METHODS: A systematic review was performed by searching the PubMed, Embase, Web of Science, and PsycInfo databases. The authors included peer-reviewed, quantitative articles published in English during 2009-2022 that focused on adults (≥18 years old). All authors performed the screening independently. RESULTS: A total of 7,956 records were identified, six of which met the inclusion criteria for full-text review and five of which were analyzed (one full-text article was not available). No instruments were identified that measured forms of SDM involving patients with mental health conditions and limited, impaired, or fluctuating decisional capacity. CONCLUSIONS: Measurement instruments to address and assess SDM in health care-related communication processes involving individuals with a mental health condition and limited decisional capacity are needed.


Asunto(s)
Toma de Decisiones Conjunta , Trastornos Mentales , Adulto , Humanos , Adolescente , Toma de Decisiones , Participación del Paciente , Trastornos Mentales/terapia , Familia
9.
Br J Gen Pract ; 73(733): e623-e633, 2023 08.
Artículo en Inglés | MEDLINE | ID: mdl-37012078

RESUMEN

BACKGROUND: Chronic back pain (CBP) is common among patients in primary care and is associated with significant personal and socioeconomic burden. Research has shown that physical activity (PA) is one of the most effective therapies to reduce pain; however, for GPs it remains challenging to advise and encourage individuals with CBP to exercise regularly. AIM: To provide insight into the views and experiences of PA in individuals with CBP, along with those of GPs, and to reveal the facilitators and barriers to engaging in, and maintaining, PA. DESIGN AND SETTING: Qualitative semi-structured interviews with individuals with CBP and GPs recruited via the local research practice network (Famprax) in Hessen, western-central Germany between June and December 2021. METHOD: Interviews were coded separately by consensus and analysed thematically. Findings of the two groups (GPs and patients with CBP) were compared and summarised. RESULTS: A total of 14 patients (n = 9 females and n = 5 males) and 12 GPs (n = 5 females and n = 7 males) were interviewed. Opinions and experiences of PA in individuals with CBP were similar both within and across the GP and patient groups. Interviewees expressed their views on internal and external barriers to PA, and provided strategies to address these barriers and concrete recommendations to increase PA. This study revealed a conflicting doctor-patient relationship ranging from paternalistic, to partnership based, to service provision, which could lead to negative perceptions on both sides, such as frustration and stigma. CONCLUSION: To the best of the authors' knowledge, this is the first qualitative study exploring opinion and experience of PA in individuals with CBP and GPs in parallel. This study reveals a complex doctor- patient relationship and provides an important insight to motivation for, and adherence to, PA in individuals with CBP.


Asunto(s)
Médicos Generales , Masculino , Femenino , Humanos , Relaciones Médico-Paciente , Actitud del Personal de Salud , Investigación Cualitativa , Ejercicio Físico , Dolor de Espalda/terapia , Atención Primaria de Salud
10.
J Health Psychol ; 27(4): 913-922, 2022 03.
Artículo en Inglés | MEDLINE | ID: mdl-33339482

RESUMEN

There is a need for a psychometrically-informed model identifying attitudinal and social factors explaining adherence to oral endocrine therapy (OET) for women with hormone receptor positive breast cancer. This study tested a model with variables selected by stringent psychometric criteria, including attitudes about benefit and burden, patient-practitioner alliance and confusion, and positive and negative interpersonal interactions. Self-report scales were completed by 150 current or past OET users. Fourteen correlations and six mediated pathways implied by the model were tested. All hypothesized associations were significant. This preliminary study suggests the model is a valuable framework for OET adherence research and intervention.


Asunto(s)
Neoplasias de la Mama , Cumplimiento de la Medicación , Neoplasias de la Mama/tratamiento farmacológico , Quimioterapia Adyuvante , Femenino , Humanos , Autoinforme
11.
Ann Palliat Med ; 11(2): 412-422, 2022 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-34775775

RESUMEN

BACKGROUND: Advance care planning (ACP) discussions are often procrastinated due to both physician and patient factors. However, ACP should be started earlier, to provide more time for reviewing one's values and discussing them with loved ones and medical professionals. This study examined the effectiveness of ACP discussions with health care providers held among older adults with chronic diseases. METHODS: This was a non-randomized controlled trial among chronically ill people aged 65 years and older. A 6-month follow-up was conducted in the intervention group, in which participants had ACP discussions with trained nurses (n=115), and the control group, in which participants did not discuss ACP (n=115). Questionnaires were administered at baseline and at 6 months, to examine knowledge, ACP readiness and self-efficacy, and comprehensive quality of life (QoL). RESULTS: A total of 200 participants were included in the analysis. The mean age of participants was 69.6 years. There was only a small change in knowledge scores before and after the intervention, with no significant difference between the two groups. ACP engagement was significantly higher in the intervention group than in the control group at 6 months (P=0.016). Comprehensive QoL was significantly higher in the intervention group than in the control group (P<0.001). After adjusting for confounders using multiple regression analysis, there was still an association between those higher scores and the intervention (P=0.01, P=0.044). CONCLUSIONS: This study showed that older adults with chronic diseases can have better communication with their families and health care providers and a higher QoL if they engage in ACP discussions with trained nurses at an early stage.


Asunto(s)
Planificación Anticipada de Atención , Calidad de Vida , Anciano , Enfermedad Crónica , Comunicación , Humanos , Japón
12.
Inflamm Bowel Dis ; 27(7): 1096-1106, 2021 06 15.
Artículo en Inglés | MEDLINE | ID: mdl-33057598

RESUMEN

BACKGROUND: The Ulcerative Colitis (UC) Narrative global surveys examined patient and physician perspectives on living with UC and tried to identify gaps in optimal care. Questions explored patient-physician interactions, UC management goals, and resources for improving communication. METHODS: Questionnaires were conducted across 10 countries, covering aspects of UC including diagnosis, treatment, and impact on patient quality of life, in addition to standard demographic information. Descriptive statistics were calculated. RESULTS: Globally, 2100 patients and 1254 physicians were surveyed (from August 2017 to February 2018). Results showed 85% of patients were satisfied with the communication they had with their physician, including discussions relating to symptoms (86%) and medication options (81%). However, 72% of patients wished for more information and support at initial diagnosis, and 48% did not feel comfortable talking to their physician about emotional concerns. Most patients (71%) set UC management goals with their physician. Both patients (63%) and physicians (79%) wished for longer appointments. Although 84% of physicians believed patient advocacy organizations to be important in UC management, more than half (54%) never discussed them with patients. CONCLUSIONS: These survey results highlight overall patient satisfaction with patient-physician communication but emphasize areas for improvement, such as patient desire to have more information earlier in their disease course. There is an unmet need for better information, materials, and support. Physicians need to consider which of the available tools and resources can help patients talk more openly, and accurately, because informed patients are more likely to engage with physicians in a shared decision-making process.


Asunto(s)
Colitis Ulcerosa , Comunicación , Relaciones Médico-Paciente , Colitis Ulcerosa/diagnóstico , Colitis Ulcerosa/terapia , Humanos , Satisfacción del Paciente , Médicos , Calidad de Vida , Encuestas y Cuestionarios
13.
Ecancermedicalscience ; 15: 1220, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-34158824

RESUMEN

In Iran (with a population of 83 million), 19,973 children were diagnosed with cancer from 2009 to 2019 (MAHAK Charity). This study was part of the International Society of Paediatric Oncology, Paediatric Oncology in Developing Countries Committee, 'Patient, Family and Stakeholder Engagement Task Force' engagement study in ten low- and middle-income countries in 2019. We documented childhood cancer survivors and parents' experiences and quality of engagement, including perceptions and expectations, during their cancer treatment journey in Iran. Fourteen in-depth interviews and three focus group discussions were conducted by three Iranian qualitative researchers with 29 participants: recent adolescent/young adult survivors (12-20 years), long-term survivors (21-30 years) and parents [36-61 years (six mothers and four fathers)] from diverse socio-economic and ethnic backgrounds. Data were recorded, transcribed and analysed, and then translated from Farsi into English. Participants' expectations included inter alia improved communication and information flow among the key stakeholders including doctors, nurses, parents and patients. A need for improved patterns of doctor-patient relationships and communication, more effective psychosocial support and the importance of peer support groups (for survivors and parents) were reported. Participants identified areas of satisfaction and dissatisfaction regarding their actual engagement and decision-making. The dominance of a medical-only approach instead of multidisciplinary approach in care, the shortage of psychosocial support, the lack of an integrated system for providing information and delivering a package of printed material about the treatment journey and the absence of patient navigator in childhood cancer care systems were among obstacles for successful engagement of patients and parents throughout their cancer journey.

14.
J Healthc Qual Res ; 35(2): 113-116, 2020.
Artículo en Español | MEDLINE | ID: mdl-32273106

RESUMEN

OBJECTIVE: To analyse the frequency of complaints due to the refusal of Primary Care Physicians to indicate a diagnostic test, treatment, or referral requested by a patient. METHODS: Observational, retrospective study was conducted by analysing the complaints filed in a Primary Care Area during the years 2016, 2017, and 2018. RESULTS: A total of 378 complaints were included. Of these, 30 (8%) were justified in the refusal by the doctors to a request of the patient (28 addressed to general practitioners and 2 to paediatricians). The most frequent related to the request was for a treatment (18 [60%]) followed by the request for diagnostic tests (9 [30%]). While the total number of claims increased by 151%, the relative weight of the claims for not responding to a patient's request was reduced (2016, 8/70, 11.4%; 2017, 11/132, 8.3%; and 2018, 11/176, 6.3%). No professional liability claims were filed. CONCLUSIONS: Complaints for rejecting patient requests increased slightly, but tends to decrease their relative weight when considering the volume of complaints.


Asunto(s)
Pruebas Diagnósticas de Rutina , Prioridad del Paciente/estadística & datos numéricos , Atención Primaria de Salud , Derivación y Consulta , Negativa al Tratamiento , Femenino , Humanos , Masculino , Estudios Retrospectivos
15.
BMJ Open ; 9(11): e030831, 2019 11 03.
Artículo en Inglés | MEDLINE | ID: mdl-31685506

RESUMEN

OBJECTIVE: We sought to investigate the concept and practices of 'clinician presence', exploring how physicians and professionals create connection, engage in interpersonal interaction, and build trust with individuals across different circumstances and contexts. DESIGN: In 2017-2018, we conducted qualitative semistructured interviews with 10 physicians and 30 non-medical professionals from the fields of protective services, business, management, education, art/design/entertainment, social services, and legal/personal services. SETTING: Physicians were recruited from primary care clinics in an academic medical centre, a Veterans Affairs clinic, and a federally qualified health centre. PARTICIPANTS: Participants were 55% men and 45% women; 40% were non-white. RESULTS: Qualitative analyses yielded a definition of presence as a purposeful practice of awareness, focus, and attention with the intent to understand and connect with individuals/patients. For both medical and non-medical professionals, creating presence requires managing and considering time and environmental factors; for physicians in particular, this includes managing and integrating technology. Listening was described as central to creating the state of being present. Within a clinic, presence might manifest as a physician listening without interrupting, focusing intentionally on the patient, taking brief re-centering breaks throughout a clinic day, and informing patients when attention must be redirected to administrative or technological demands. CONCLUSIONS: Clinician presence involves learning to step back, pause, and be prepared to receive a patient's story. Building on strategies from physicians and non-medical professionals, clinician presence is best enacted through purposeful intention to connect, conscious navigation of time, and proactive management of technology and the environment to focus attention on the patient. Everyday practice or ritual supporting these strategies could support physician self-care as well as physician-patient connection.


Asunto(s)
Atención , Actitud del Personal de Salud , Actitud Frente a la Salud , Relaciones Interpersonales , Relaciones Médico-Paciente , Médicos/psicología , Confianza/psicología , Adulto , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Atención Primaria de Salud , Investigación Cualitativa
16.
J Clin Nurs ; 17(11c): 362-9, 2008 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-26327419

RESUMEN

AIM: The purpose of this research is to provide healthcare professionals with patients' views on improving care for people with fibromyalgia. BACKGROUND: Fibromyalgia is a chronic pain syndrome that often challenges patients and healthcare professionals. Current literature suggests that the people with fibromyalgia are disempowered by their interactions with physicians. Soliciting patients' suggestions for improving care can be helpful in identifying weaknesses and strengths in current physician-patient interactions, and in improving future care. METHODS: Forty-two participants with fibromyalgia submitted written responses to open-ended questions about their experiences with physicians, and how care could be improved. RESULTS: Positive interactions with physicians referenced care quality, feelings of respect and patient involvement. Negative interactions included receiving inadequate care, perceiving the physician to be uncaring and lacking knowledge of fibromyalgia. CONCLUSIONS: Unlike most research suggests, the majority of patients with fibromyalgia report having positive interactions with physicians. However, suggestions for improving care are similar throughout the literature, reinforcing the need for supportive care, empathetic listening and increased knowledge of alternative treatments. RELEVANCE TO CLINICAL PRACTICE: Patients' recommendations identified in this study can be implemented by nurses involved in providing supportive care and education to patients with fibromyalgia. Application of patients' recommendations may facilitate the creation of therapeutic alliances and improve patients' satisfaction with care.


Asunto(s)
Fibromialgia/psicología , Fibromialgia/terapia , Satisfacción del Paciente , Adulto , Anciano , Enfermedad Crónica , Humanos , Masculino , Persona de Mediana Edad , Participación del Paciente , Adulto Joven
17.
Sex Med ; 5(3): e196-e202, 2017 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-28823315

RESUMEN

INTRODUCTION: Several studies have shown that sexuality is an important aspect of life. Nevertheless, sexual matters are only rarely discussed between patients and doctors. Other studies have suggested that women undergoing fertility treatment compose a group of patients with low satisfaction in their sexual life. AIM: To investigate how women at a fertility clinic desire and experience communication about sexual matters with doctors and to investigate the sexual function of these women. METHODS: A cross-sectional self-administered questionnaire survey of women attending a Danish fertility clinic over 4 months was performed. Descriptive statistics were calculated and presented as frequencies. MAIN OUTCOME MEASURE: Communication about sexual matters with doctors included the women's comfort, preferred and actual frequency of discussion, and initiation of the conversation. Sexual function included participants' sexuality during the past year including certain sexual difficulties. RESULTS: Of the 201 participating women in the survey, most felt comfortable discussing sexual matters with doctors and preferred gynecologists for such discussions. There was a greater desire for communication than what was actually experienced by the women, and most wanted to initiate the conversation themselves. The women were less satisfied with their sexual life compared with a national control group, and they experienced sexual difficulties more often. CONCLUSION: There is an unmet desire of women in fertility treatment for discussing sexual matters, and greater communication on this subject needs to be clinically implemented. Eldridge KE, Giraldi A. Communication About Sexual Matters With Women Attending a Danish Fertility Clinic. A Descriptive Study. Sex Med 2017;5:e196-e202.

18.
Urologe A ; 56(8): 1001-1004, 2017 Aug.
Artículo en Alemán | MEDLINE | ID: mdl-28660307

RESUMEN

The German Medical Association is working out a new fee scale for medical invoicing, which has to be reformed because the contents and the ratings are not up to date. The secretary of state for health in Germany demands that the new draft be coordinated with private insurance companies; as a result, they can influence indirectly the relationship between physicians and their patients. The new specifications will narrow the gap between private and social insurance in Germany. We discuss the consequences for the physician-patient relationship and the implications for the political plans to reform the whole insurance system in Germany.


Asunto(s)
Tabla de Aranceles/economía , Tabla de Aranceles/legislación & jurisprudencia , Reforma de la Atención de Salud/economía , Reforma de la Atención de Salud/legislación & jurisprudencia , Seguro de Salud/economía , Seguro de Salud/legislación & jurisprudencia , Programas Nacionales de Salud/economía , Programas Nacionales de Salud/legislación & jurisprudencia , Relaciones Médico-Paciente , Sector Privado/economía , Sector Privado/legislación & jurisprudencia , Alemania , Humanos , Política
19.
J R Coll Physicians Edinb ; 47(4): 314-323, 2017 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-29537400

RESUMEN

This paper examines the proposed asymmetry that should occur between resonance and dissonance in physician-patient relationships in favour of resonance to facilitate an effective relationship. Resonance is represented by the positive emotional attractor, which comprises patients' conscious preferred future or ideal self, and dissonance is expressed by the negative emotional attractor and consists of the gaps between patients' ideal and real self or their fears, problems, and shortfalls. Intentional change theory is reviewed to optimise the physician-patient relationship. Concepts from complexity theory and recent research on emotions are used to explain positive and negative emotional attractors. The role of resonance and dissonance in physician-patient relationships is discussed along with how behaviour can be changed with positive and negative emotional attractors. This paper focuses on the quality and effectiveness of physician-patient relationships for physicians who create high versus low positive emotional attractor/negative emotional attractor ratios. Two theoretical propositions are offered and the research and practice implications are explained.


Asunto(s)
Emociones , Relaciones Médico-Paciente , Teoría Psicológica , Humanos
20.
Rev. bras. educ. méd ; 42(2): 54-62, Apr.-June 2018. tab
Artículo en Portugués | LILACS | ID: biblio-958586

RESUMEN

RESUMO O brincar é uma ferramenta de extrema importância para todas as crianças e, no hospital, representa uma fuga do ambiente desgastante e dos sintomas da doença. Nesse contexto, o Mediarte: com Amor e Humor é um projeto de extensão que visa à prática da ludoterapia, musicoterapia e palhaçoterapia, no setor de Pediatria do hospital universitário e que, além de transformar a vida das crianças, acredita-se ter potencial para influenciar os voluntários - estudantes de Medicina do curso da Universidade Federal do Rio Grande do Norte. Objetiva-se neste estudo identificar a influência do projeto na vida e formação médica dos estudantes de Medicina, utilizando como referencial teórico as Diretrizes Nacionais do Curso de Graduação em Medicina (DCN). Desse modo, realizou-se uma pesquisa qualitativa mediante entrevistas semiestruturadas e análise de conteúdo proposta por Bardin. Exploraram-se três categorias temáticas: "Por que estou aqui?", "O que aprendi?" e "Que barreiras encontrei?". Destacam-se como resultados: a vontade dos voluntários de se inserir precocemente no ambiente do cuidado e de interagir com crianças, como aspectos atraentes para o projeto; o desenvolvimento das competências de comunicação, humanização e relação médico-paciente durante a participação no Mediarte. Como barreira encontrada, tem-se, por exemplo, a necessidade de adaptação para brincar com crianças doentes, que, embora tenham certas limitações, não perdem o brilho nos olhos a cada brincadeira. O estudo concluiu que o projeto, na vida dos estudantes voluntários, exercita as competências desejadas pelas novas DCN. Tais resultados servem de estímulo à prática do Mediarte como mais uma estratégia educacional interessante, capaz de atender às demandas atuais da formação médica ampliada e complexa, bem como um estímulo à implantação de projetos semelhantes em outras escolas médicas pelo Brasil.


ABSTRACT Play is an extremely important tool for all children and, at the hospital, it represents an escape for young patients from a taxing environment and from the symptoms of their diseases. In this context, "Mediarte: with Love and Humor" is an outreach project which aims to practice play therapy, music therapy and clown therapy in the pediatric ward of a university hospital. In addition to transforming the children's lives (routine), it also has the potential to positively influence the project's volunteers - medical students at the Federal University of Rio Grande do Norte. The purpose of this study is to identify the impact of this project on the medical training and personal development of the volunteers, based on the Brazilian National Guidelines of Medical Training (DCN). Thus, a qualitative study was conducted in the form of semi-structured interviews and the content was analyzed in line with Bardin's proposals. Three themes were analyzed: "Why am I here?" "What have I learned?" and "What barriers have I found?" The results showed that the volunteers are keen to have an early opportunity to be placed in the health care environment and interact with kids, as important aspects that attracted them to the project, as well as the chance to develop abilities such as communication, humanized care and doctor-patient relationship skills. As a challenge, for example, the students described the need to adapt their behavior while playing with ill children, who, despite their own limitations, never lose the sparkle in their eyes during the proposed activities. The study concluded that the project helped the volunteers develop some of the key competencies and skills required by the new DCN. These results can be used to encourage the practice of "Mediarte" as an additional educational strategy to meet the current demands of complex, extended medical training. It also serves as a successful example that may stimulate the implementation of similar projects at other medical schools throughout Brazil.

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