Development of an Education Material Targeting Patients Undergoing Lower Extremity Amputation due to Severe Limb Ischemia-A Qualitative Study.

INTRODUCTION: Critical limb-threatening ischemia (CLTI) is associated with a high risk of amputation, yet patients undergoing amputation due to CLTI have little knowledge of the amputation process and the rehabilitation that awaits. The aim of the present study was to develop and validate information material for patients undergoing amputation. METHODS: Nine participants were included in the study. Two focus group interviews were performed with seven patients who had undergone lower extremity amputation due to CLTI within the past 2 y. Additionally, two individual interviews were carried out. A semistructured interview guide was used, and the interviews were transcribed verbatim and analysed using qualitative content analysis with a deductive approach. RESULTS: Three themes were identified as essential for the design of the written information: Perspectives on design and formatting, Providing information to enhance participation in care, and Accessibility to information and support. The prototyped information leaflet was perceived as acceptable, useable, relevant, and comprehensible by the participants. CONCLUSIONS: For patients to actively engage in their care, it is vital that their information needs are met and that they are provided with psychosocial support when needed. Written and oral information should be provided by a trusted healthcare professional.

Development of the AMPDECIDE Decision Aid to Facilitate Shared Decision Making in Patients Facing Amputation Secondary to Chronic Limb Threatening Ischemia.

INTRODUCTION: We developed a patient decision aid to enhance patient participation in amputation level decision making when there is a choice between a transmetatarsal or transtibial amputation. METHODS: In accordance with International Patient Decision Aid Standards, we developed an amputation level patient decision aid for patients who are being considered for either a transmetatarsal or transtibial amputation, incorporating qualitative literature data, quantitative literature data, qualitative provider and patient interviews, expert panel input and iterative patient feedback. RESULTS: The rapid qualitative literature review and qualitative interviews identified five domains outcome priority domains important to patients facing amputation secondary to chronic limb threatening ischemia: 1) the ability to walk, 2) healing and risk for reamputation, 3) rehabilitation program intensity, 4) ease of prosthetic use, and 5) limb length after amputation. The rapid quantitative review identified only two domains with adequate evidence comparing differences in outcomes between the two amputation levels: mobility and reamputation. Patient, surgeon, rehabilitation and decision aid expert feedback allowed us to integrate critical facets of the decision including addressing the emotional context of loss of limb, fear and anxiety as an obstacle to decision making, shaping the decision in the context of remaining life years, and how to facilitate patient knowledge of value tradeoffs. CONCLUSIONS: Amputation level choice is associated with significant outcome trade-offs. The AMPDECIDE patient decision aid can facilitate acknowledgment of patient fears, enhance knowledge of amputation level outcomes, assist patients in determining their personal outcome priorities, and facilitate shared amputation level decision making.

Utilization and Perception of Peer-Support After Lower Limb Loss in the United States: Potential Benefits on Mobility Outcomes.

OBJECTIVE: To examine participants' experiences with peer-support after lower limb loss (LLL) and the associations between the peer-support experience (perceived benefits and barriers) and mobility outcomes. DESIGN: Quantitative and qualitative descriptive study with a cross-sectional design. SETTING: National survey (distributed to 169 peer-support groups in 44 states in the US). PARTICIPANTS: The survey was completed by 82 individuals with a major lower limb amputation (53% female, 54% over 55 years of age; N=82). MAIN OUTCOME MEASURES: A 32-item survey to examine respondents' experiences in peer-support activities. Prosthetic mobility was measured using the Prosthetic Limb Users Survey of Mobility (PLUS-M). RESULTS: Two out of 3 respondents received some forms of peer-support after amputation. Among them 75% reported peer-support having a positive effect on their outlook on life, and 78% reported that information gained from peer-support was helpful. Companionship, altruistic acts, and gaining information on how to cope with amputation were the top themes of why respondents enjoyed the peer-support experience. Nearly all (94%) respondents would recommend peer-support to other people with LLL. Individuals who received peer-support exhibited a trend of greater mobility (55th vs 36th percentile on PLUS-M; P=.055). CONCLUSION: Individuals with LLL reported generally positive experiences regarding their engagement in peer-support activities. Peer-support groups are viewed as a helpful source for both information and emotional support, potentially benefiting functional and psychological recovery after amputation. Individuals who have received peer-support also exhibited greater mobility.

Nursing interventions to empower the family caregiver of person with lower limb amputation: scoping review.

OBJECTIVES: to map nursing interventions that empower the Family caregiver of the person with lower limb amputation for is role. METHODS: scoping review guided by Joanna Briggs Institute methodology conducted in different databases (including gray literature). RESULTS: six studies published between 2009 and 2021 were included. Interventions of counselling and support for patients and family; peer support interventions performed by a certified pair; involvement of caregivers or family members in support groups; and key interventions for patient and family caregiver psychological balance. Two studies discussed the importance of caregiver and amputee training and development of coping skills. Another study recommended Interventions of informative support for caregivers regarding care for the amputee and adaptation to home. CONCLUSIONS: results of this review allow the identification of recommendations (guidelines) for practice and recommendations/suggestions for interventions according with identified needs of family caregivers of patients with lower limb amputation.

Mental health is strongly associated with capability after lower extremity injury treated with free flap limb salvage or amputation.

BACKGROUND: Knowledge about factors associated with long-term outcomes, after severe traumatic injury to the lower extremity, can aid with the difficult decision whether to salvage or amputate the leg and improve outcome. We therefore studied factors independently associated with capability at a minimum of 1 year after amputation or free flap limb salvage. METHODS: We included 135 subjects with a free flap lower extremity reconstruction and 41 subjects with amputation, between 1991 and 2021 at two urban-level 1 trauma centers with a mean follow-up of 11 ± 7 years. Long-term physical functioning was assessed using the Physical Component Score (PCS) of the Short-Form 36 (SF36) and the Lower Extremity Functional Scale (LEFS) questionnaires. Independent variables included demographics, injury characteristics, and the Mental Component Score (MCS) of the SF36. RESULTS: Greater mental health was independently and strongly associated with greater capability, independent of amputation or limb reconstruction. Mental health explained 33% of the variation in PCS and 57% of the variation in LEFS. Injury location at the knee or leg was associated with greater capability, compared to the foot or ankle. Amputation or limb reconstruction was not associated with capability. DISCUSSION: This study adds to the growing body of knowledge that physical health is best regarded through the lens of the bio-psycho-social model in which mental health is a strong determinant. This study supports making mental health an important aspect of rehabilitation after major lower extremity injury, regardless of amputation or limb salvage.

The prevalence of depression in people following limb amputation: A systematic review and meta-analysis.

OBJECTIVE: To estimate the prevalence of depression in people with limb amputation. Additionally, factors affecting the prevalence or pattern of depression following limb amputation were explored. METHODS: Systematic literature search to identify all relevant studies assessing prevalence of depression following limb amputations was conducted through following databases: PubMed/ MEDLINE, Scopus, Embase, and Web of Science. Search period was since inception of database till December 2021. Meta-analyses using random-effects model were conducted to estimate pooled prevalence of depression. RESULTS: A total of 61 studies comprising 9852 limb amputees were included. Pooled prevalence of depression following limb amputations was 33.85% (95% CI: 27.15% to 40.54%), with significant heterogeneity (I2 = 98.57%; p < 0.001). Sub-group meta-analysis showed that pooled prevalence of depression was significantly higher in studies conducted from middle-income (45.31%, 95% CI: 28.92% to 61.70%) as compared high income countries (28.31%, 95% CI: 23.97% to 32.64%). Greater activity restriction, amputation-related body image disturbances, social discomfort, perceived vulnerability regarding disability, and avoidant coping style were commonly reported factors associated with greater depression symptomatology. Whereas, good perceived social support, and use of more active coping strategies were commonly reported protective factors. CONCLUSION: About one-third of all limb amputees suffered from clinically significant depression. This emphasizes need to sensitize health care professionals involved in providing care to people following limb amputation regarding the importance of periodically screening this vulnerable group of patients for depression and liaising with psychiatrists. Further, addressing risk factors identified in this review could help in reducing the rates of depression post-amputation.

The lived experience of military beneficiaries with amputations at the hip and pelvic level.

BACKGROUND: Hip- and pelvic-level amputations are devastating injuries that drastically alter patient function and quality of life. This study examined the experience of military beneficiaries with a hip- or pelvic-level amputation to better characterize their challenges and specific needs and to optimize treatment in the future. METHODS: We conducted a retrospective review of the Military Health System and identified 118 patients with a history of one or more amputation(s) at the hip or pelvic level between October 2001 and September 2017. Surviving participants (n = 97) were mailed a letter which explained the details of the study and requested participation in a telephonic interview. A total of six individuals (one female, five males) participated in structured interviews. RESULTS: The study group included four participants with hip disarticulations and two participants with hemipelvectomies (one internal, one external). All six participants reported significant challenges with activities related to prosthetic use, mobility, residual limb health, pain, gastrointestinal and genitourinary function, psychiatric health, and sexual function. CONCLUSIONS: These interviews highlight the unique needs of individuals with hip- and pelvic-level amputations and may improve access to higher echelons of care that would enhance the function and quality of life for these participants.

Prosthesis usability experience is associated with extent of upper limb prosthesis adoption: A Structural Equation Modeling (SEM) analysis.

Factors associated with upper limb prosthesis adoption are not well understood. In this study, we explored how prosthesis usability experience relates to the extent of prosthesis adoption through the development of a structural equation model (SEM). First, items related to prosthesis usability were developed and refined using cognitive testing and pilot testing and employed in a survey of 402 prosthesis users (mean age 61.7 (sd 14.4), 77.1% Veterans). The SEM examined two unidimensional latent constructs: Prosthesis Usability Experience and Prosthesis Adoption-and each had multiple measured indicators. SEMs tested direct as well as moderating and mediating effects between the latent constructs and covariates related to demographics and prosthesis type. SEM found a significant positive association between Prosthesis Usability Experience and Extent of Prosthesis Adoption. Several covariates had direct effects on prosthesis adoption: 1) Extent of Prosthesis Adoption was lower for those with transhumeral and shoulder amputation, and higher for those with bilateral amputation, compared to the reference group with unilateral transradial amputation and 2) Myoelectric multiple degree of freedom (multi-DOF) prosthesis use was associated with lower Extent of Prosthesis Adoption, compared to body-powered prosthesis use. Myoelectric multi-DOF use also modified the effect of Prosthesis Usability Experience on Extent of Prosthesis Adoption. For those with bilateral ULA, the strength of the relationship between Prosthesis Usability Experience and Extent of Prosthesis Adoption was reduced. Findings suggest that in order to increase prosthesis adoption, prosthetics developers and rehabilitation providers should focus on implementing strategies to improve prosthesis usability experience. New Prosthesis Usability Experience measures could be used to identify persons at greater risk for poor prosthesis adoption and target interventions to increase prosthesis use.

Experiences of middle-aged individuals with lower extremity amputation caused by diabetic foot ulcer after disability in China: A qualitative study.

AIM: To understand the experiences of individuals who undergo LEA due to DFU after disability. DESIGN: A descriptive research design in qualitative research. METHODS: Semi-structured interviews were used in this qualitative descriptive study. Eleven middle-aged patients (45-59 years) who underwent LEA due to DFU were purposively selected and interviewed. Qualitative data were thematically analysed. RESULTS: Three themes and 10 subthemes were identified. The themes were (1) role function confusion, (2) self-concept stress and (3) unreasonable objective support. Subthemes included (1) weakened career role, (2) family role reversal, (3) social role restriction, (4) over-focusing on appearance, (5) immersion in patient experience, (6) living with faith, (7) polarization of independent consciousness, (8) low perceived benefits of peer support, (9) existence of treatment disruption and (10) poor participation in medical decision-making.

Depression and anxiety symptoms are underestimated risk factors for postoperative prognosis in patients with Type 2 diabetes and peripheral artery disease undergoing partial foot amputation: Results from a prospective cohort study.

OBJECTIVE: The aim of this study was to evaluate the prevalence and impact of depression and anxiety symptoms on post-operative prognosis and 1-year all-cause mortality in a large unique cohort of patients with Type 2 diabetes (T2D) and peripheral artery disease (PAD) after partial foot amputation (PFA). METHODS: Prospective cohort study with 1-year follow-up of 785 consecutive patients (mean age 60.9 ± 9.1 years; 64.1% males) with T2D and PAD after PFA. Depressive symptoms were assessed by Patient Health Questionnaire-9 (PHQ-9) and anxiety symptoms by Hamilton Anxiety Rating Scale (HARS). We used multivariable Cox proportional hazard models to examine the association of depression and anxiety with all-cause mortality. RESULTS: One-year all-cause mortality was 16.9% (n = 133). 331 (42.1%) patients had PHQ-9 score ≥ 10 indicating major depressive disorder. After adjusting for confounders, PHQ-9 score ≥ 10 was associated with an increased risk of 1-year all-cause mortality (HR = 1.68 (95%CI[1.16-2.44], p = 0.006). Depression dimensions of negative self-feeling and suicidal ideations were independently associated with 1-year mortality (HR = 1.26 (95%CI[1.24-1.55], p = 0.029 and HR = 2.37 (95%CI[1.89-2.96], p < 0.001, respectively). Compared to no depression, severe depressive symptoms (cut-off≥20) were associated with increased all-cause mortality (HR = 3.9 (95%CI [1.48-10.29], p = 0.006). Compared to no anxiety, severe anxiety symptoms (cut-off>30) were associated with increased 1-year mortality (HR = 2.25(95%CI [1.26-4.05], p = 0.006). CONCLUSION: Depressive symptoms and severe anxiety have shown independently increased risk of 1-year all-cause mortality in patients with T2D and PAD requiring PFA. Our results indicate that screening for anxiety and depression should be considered under these circumstances to identify patients at increased risk to allow appropriate intervention.

Quality of Life Evaluation after Partial Penile Amputation for Penile Cancer.

BACKGROUND: Penile cancer is most prevalent in developing countries. Both the physiological and psychological consequences for the patient are critical. These consequences result from both the cancer diagnosis and the treatment's effects. OBJECTIVE: The objective of this study was to evaluate the quality of life (QoL) of patients who have undergone partial penile amputation in terms of general well-being, sexual function, and urinary function. MATERIALS AND METHODS: This retrospective observational study included 32 patients who underwent partial penile amputation. The european organisation for research and treatment of cancer core quality of life questionnaire (EORTC QLQ C-30) questionnaire was completed postoperatively. Erectile function and satisfaction were assessed retrospectively after partial penile amputation using the International Index of Erectile Function-15. RESULTS: The mean age of the patients was 54.03 ± 16.02 years. The mean scores for erectile function, orgasm, sexual desire, satisfaction, and overall satisfaction were 16.28 ± 10.83, 7.50 ± 3.30, 5.72 ± 3.35, 8.84 ± 4.77, and 9.12 ± 0.83 preoperatively, and 14.03 ± 8.61, 6.88 ± 2.97, 5.72 ± 3.35, 7.94 ± 4.09, and 7.81 ± 1.00 postoperatively. Mean erectile function, orgasm, satisfaction, and overall satisfaction were significantly decreased postoperatively compared with preoperatively. Erectile function and overall satisfaction improved more in younger years from the preoperative to the postoperative period, whereas they improved less in older years. CONCLUSION: Although partial penile amputation for penile cancer provides adequate local disease management, appropriate counseling is crucial, especially when the QoL concerns general well-being, sexual function, and urinary function.

Résumé Contexte:Le cancer du pénis est plus répandu dans les pays en développement. Les conséquences physiologiques et psychologiques pour le patient sont cruciales. Ces conséquences résultent à la fois du diagnostic de cancer et des effets du traitement.Objectif:L'objectif de cette étude était d'évaluer la qualité de vie (QdV) des patients ayant subi une amputation partielle du pénis en termes de bien­être général, de fonction sexuelle et de fonction urinaire.Matériels et méthodes:Cette étude observationnelle rétrospective a inclus 32 patients ayant subi une amputation partielle du pénis. Le questionnaire de base sur la qualité de vie de l'organisation européenne pour la recherche et le traitement du cancer (EORTC QLQ C­30) a été complété en postopératoire. La fonction érectile et la satisfaction ont été évaluées rétrospectivement après une amputation partielle du pénis à l'aide de l'indice international de la fonction érectile­15.Résultats:L'âge moyen des patients était de 54,03 ± 16,02 ans. Les scores moyens pour la fonction érectile, l'orgasme, le désir sexuel, la satisfaction et la satisfaction globale étaient de 16,28 ± 10,83, 7,50 ± 3,30, 5,72 ± 3,35, 8,84 ± 4,77 et 9,12 ± 0,83 en préopératoire, et de 14,03 ± 8,61, 6,88 ± 2,97, 5,72. ± 3,35, 7,94 ± 4,09 et 7,81 ± 1,00 en postopératoire. La fonction érectile moyenne, l'orgasme, la satisfaction et la satisfaction globale étaient significativement diminués en postopératoire par rapport au préopératoire. La fonction érectile et la satisfaction globale se sont améliorées davantage dans les années plus jeunes, de la période préopératoire à la période postopératoire, alors qu'elles se sont moins améliorées dans les années plus âgées.Conclusion:Bien que l'amputation partielle du pénis pour le cancer du pénis permette une prise en charge locale adéquate de la maladie, un conseil approprié est crucial, en particulier lorsque la qualité de vie concerne le bien­être général, la fonction sexuelle et la fonction urinaire.

Fatigue, fear of being mobilized and residual limb pain limit independent basic mobility and physiotherapy for patients early after major dysvascular lower extremity amputation: A prospective cohort study.

AIM: Early mobilization of patients with a major lower extremity amputation (LEA) is often a challenge because of lack of compliance. Therefore, we investigated factors limiting independent mobility and physiotherapy on the first day with physiotherapy (PTDay1) and the following 2 days after LEA. METHODS: A total of 60 consecutive patients, mean age 73.7 years (SD 12.1 years), undergoing LEA were included over a period of 7 months. The Basic Amputee Mobility Score was used to assess basic mobility. Predefined limitations for not achieving independent mobility or not completing physiotherapy were residual limb pain, pain elsewhere, fear of being mobilized, fatigue, nausea/vomiting, acute cognitive dysfunction or "other" factors reported on PTDay1 and the following 2 days after LEA. RESULTS: Fatigue and fear of being mobilized were the most frequent limitations for not achieving independent mobility on PTDay1 and the following 2 days after LEA. Patients (n = 55) who were not independent in the Basic Amputee Mobility Score activity transferring from bed to chair on PTDay1 were limited by fatigue (44%) and fear of being mobilized (33%). A total of 21 patients did not complete planned physiotherapy on PTDay1, and were limited by fatigue (38%), residual limb pain (24%) and "other" factors (24%). CONCLUSION: Fatigue and fear of being mobilized were the most frequent factors that limited independent mobility early after LEA. Fatigue, residual limb pain and "other" factors limited completion of physiotherapy. Geriatr Gerontol Int 2024; 24: 470-476.

Evaluation of Prosthesis Satisfaction, Psychological Status, and Quality of Life in Lower-Extremity Amputee Patients: A Pilot Study.

BACKGROUND: There are various factors affecting the use of prostheses. This study was aimed to examine satisfaction, psychological state, quality of life, and the factors affecting these in individuals who use prostheses because of lower-extremity amputation. METHODS: Sixty-three patients were included in this study. Demographic data and features related amputation and prosthesis were recorded. Quality of life was evaluated with the Nottingham Health Profile (NHP), anxiety and depression levels were evaluated with the Hospital Anxiety Depression Scale (HADS), body image was evaluated by the Amputee Body Image Scale (ABIS), prosthesis satisfaction was evaluated with the Prosthesis Satisfaction Questionnaire (PSQ), and the relationship between them was examined. RESULTS: There was a positive correlation between all HADS scores, NHP-emotional reactions, NHP-sleep, NHP-social isolation, NHP-total, and ABIS (P < .05). A negative correlation was found between HADS-anxiety and PSQ results (r = -0.394, P = .003). A positive correlation was found between HADS-depression scores and NHP-pain, NHP-emotional reactions, NHP-social isolation, NHP-total, and ABIS (P < .05); and a negative correlation was found with PSQ questionnaire scores (r = -0.427, P = .001). There was a positive correlation between HADS-total scores and all parameters except NHP-energy level and ABIS (P < .05). A positive correlation was found between ABIS and all parameters except NHP-energy level (P < .05). A negative correlation was found between PSQ and NHP-social isolation, NHP-physical activity, and NHP-total scores (r = -0.312, P = 0.019; r = -0.312, P = .019; and r = -0.277, P = .039, respectively). The presence of residual extremity pain was found to be an effective factor on the psychological state (ß = 0.429, P = .001). The presence of residual limb pain and phantom pain were found to be effective factors on the prosthesis satisfaction (ß = -0.41, P = .001; and ß = -0.406, P = .001, respectively). The presence of residual extremity pain and anxiety level were found independent risk factors on the NHP (ß = -0.401, P = .006; and ß = -0.445, P = .006, respectively). CONCLUSIONS: Individuals using prostheses because of lower-extremity amputation should be examined in detail from various perspectives.

Descripción clínica de los pacientes con amputación transfemoral unilateral: estudio de casos múltiples / Clinical Description Of Patients With Unilateral Transfemoral Amputation

Introducción: Una correcta evaluación fisioterapéutica permite direccionar una intervención idónea del paciente con amputación transfemoral. Objetivo: Describir clínicamente a los pacientes con amputación transfemoral unilateral en la ciudad de Pasto, Nariño, Colombia. Métodos: Se realiza estudio transversal de casos múltiples. Se selecciona una muestra de 13 pacientes que se encontraban en la base de datos del Instituto Departamental de Salud de Nariño, con amputación transfemoral unilateral, a los que se realizó una caracterización sociodemográfica y clínica, así como una evaluación fisioterapéutica. Se obtuvieron valores de frecuencias y porcentajes. El análisis de los datos recolectados se realizó mediante el software SPSS, versión 24. De manera descriptiva se dieron a conocer los resultados de la evaluación fisioterapéutica. Resultados: La edad media de los pacientes fue de 46 años, predominó el género masculino (77 por ciento), y la etiología traumática (69,23 por ciento). La sensación y dolor de miembro fantasma se presentó en el 69,23 por ciento y 53,84 por ciento de los pacientes, respectivamente. Se encontró una disminución marcada de fuerza muscular en los músculos pelvitrocantéreos, glúteo medio, menor y tensor de la fascia lata. El rango de movimiento estaba disminuido para los movimientos de rotación interna con una media de 27,8°/ 45°, rotación externa con una media de 29,8°/ 45° y aducción de cadera con una media de 31,2°/ 45°. Conclusiones: Las principales características clínicas y resultados de evaluación fisioterapéutica de los pacientes con amputación transfemoral unilateral son la presencia de sensación y dolor de miembro fantasma, diminución de fuerza, rangos de movimiento y presencia de escoliosis dorsales y/o lumbares. Realizar un adecuado proceso de evaluación fisioterapéutica, proporciona información sobre las necesidades individuales de cada paciente en cuanto a rehabilitación, para posteriormente, ejecutar un tratamiento idóneo(AU)

Introduction: Correct physiotherapeutic evaluation allows directing ideal intervention for the patient with transfemoral amputation. Objective: To clinically describe patients with unilateral transfemoral amputation in the city of Pasto, Nariño, Colombia. Methods: A cross-sectional study of multiple cases is carried out. A sample of 13 patients was selected. They were in the database of the Departmental Institute of Health of Nariño, with unilateral transfemoral amputation, they had underwent a sociodemographic and clinical characterization, as well as a physiotherapeutic evaluation. Frequency values and percentages were obtained. The analysis of the collected data was carried out using the SPSS software, version 24. The results of the physiotherapeutic evaluation were disclosed in a descriptive manner. Results: The mean age of the patients was 46 years, the male gender predominated (77 percent), and the traumatic etiology (69.23 percent). Phantom limb sensation and pain occurred in 69.23 percent and 53.84 percent of the patients, respectively. A marked decrease in muscle strength was found in the pelvitrochanteric, gluteus medius, minimus, and tensor fascia lata muscles. The range of motion was decreased for movements of internal rotation with a mean of 27.8°/45°, external rotation with a mean of 29.8°/45°, and hip adduction with a mean of 31.2°/ 45°. Conclusions: The main clinical characteristics and physiotherapeutic evaluation results of patients with unilateral transfemoral amputation are the presence of phantom limb sensation and pain, decreased strength, range of motion, and the presence of dorsal and/or lumbar scoliosis. An adequate physiotherapeutic evaluation process provides information on the individual needs of each patient in terms of rehabilitation, in order to subsequently execute an ideal treatment(AU)

Frequencia e fatores determinantes da dor do membro fantasma em pacientes amputados assistidos por um centro de reabilitação situado no centro-oeste do Brasil / Frequency and determining factors of phantom limb pain in amputee patients assisted by a rehabilitation center in the Midwest region of Brazil

Objetivo: Este estudo descritivo, longitudinal e prospectivo busca avaliar a frequência de dor do membro fantasma (DMF) em pacientes amputados que são assistidos por um centro de reabilitação assim como verificar a influência do perfil biopsicossocial, uso de tecnologias assistivas, medicamentos e terapias no caráter da DMF. Método: Foram entrevistados 16 indivíduos em dois momentos com intervalo de seis meses no período de Julho/2016 à Agosto de 2017. Como instrumentos de avaliação foram utilizados: questionário semi-estruturado abordando perfil social e clínico, EVA, SF-36 e Questionário de McGill. Os dados foram analisados descritivamente e com os testes T e Pearson. Resultados: Dos participantes, 8 eram do sexo masculino (50%), com idade média de 55,5 anos (DP:15,7), sendo maior parte procedente de Goiânia (75%) e com amputação transfemural (68,7%) de etiologia traumática (56,2). A frequência de DMF foi de 68,5% na primeira entrevista e 50% na segunda. Entre as duas entrevistas, houve diminuição na intensidade da dor relatada pelos indivíduos assim como no índice da dor e número de descritores do McGill e também acréscimo nos domínios do SF36. Não foi observada correlação positiva entre o uso de próteses, medicamentos ou realização de terapias com o quadro álgico dos amputados. Conclusão: A amostra estudada apresentou alta prevalência de dor do membro fantasma. São necessários mais estudos sobre a DMF e seus determinantes a fim de evidenciar seu impacto na vida do amputado.

Objective: This descriptive, longitudinal and prospective study has the objectives to evaluate the frequency of phantom limb pain (PLP) in amputees who are assisted at a rehabilitation center as well as to verify the influence of biopsychosocial profile, use of assistive technologies, medications and therapies for PLP. Method: Sixteen subjects were interviewed twice with an interval of six months between July / 2016 and August 2017. A semi-structured questionnaire addressing social and clinical profile, Visual Analogue Scale (VAS), SF-36 and McGill Questionnaire were the evaluations used in this study. Data were analyzed descriptively and statistically with the student T-test and Pearson correlation. Results: Of the participants, 8 were male (50%), with 55.5 years of age (SD: 15.7). They were mostly from Goiânia (75%) and had transfemoral amputation (68.7%) of traumatic etiology (56.2%). PLP frequency was 68.5% in the first interview and 50% in the second interview. Between the two interviews, there was a decrease in pain intensity reported by individual, decrease in pain index and number of McGill descriptors, as well as increase in the SF-36 domains. No positive correlation was found between the use of prostheses, use of medications or therapies for pain. Conclusion: The patients studied presented a high prevalence of phantom limb pain. Further studies on PLP and its determinants are needed to evidence the impact of PLP on the amputee's daily life.

Adaptação transcultural da Trinity Amputation and Prosthesis Experience Scales: revised (TAPES-R): avaliação dos processos psicossociais envolvidos no ajuste à amputação e à prótese / Transcultural adaptation of the Trinity Amputation and Prosthesis Experience Scales: revised (TAPES-R): evaluation of psychosocial processes involved in adjustment to amputation and prosthesis

A literatura aponta ausência de instrumentos específicos para avaliação clínica e pesquisa direcionada a pessoas com amputação, sendo a escala TAPES-R relevante para análise dos aspectos psicossociais nessa população. Esta escala foi desenvolvida para avaliar os processos envolvidos na adaptação à amputação de membros inferiores e à prótese. Este instrumento abrange 33 itens organizados em três domínios - ajustamento psicossocial, restrição de atividade e satisfação com prótese, além de questões relacionadas com a dor do membro fantasma e do membro residual. Objetivo: Realizar adaptação transcultural da escala TAPES-R para aplicação na população brasileira. Método: A adaptação transcultural foi realizada em cinco etapas: tradução, tradução reversa, síntese das avaliações, avaliação por comitê de especialistas e teste final na população. Foi realizada a comparação entre as versões original e traduzida em relação às equivalências semântica, idiomática, cultural e conceitual. A versão final foi aplicada em 116 sujeitos amputados de membros inferiores. Resultados: Houve clareza quanto à compreensão do instrumento pelos participantes, indicando que o mesmo esteja apropriado à realidade do público-alvo na população brasileira. Amputação acima de joelho e tempo de uso da prótese abaixo de 10 horas/dia estão associados a pior ajustamento e menor satisfação com a prótese. Conclusão: O uso da escala TAPES-R permitiu avaliar a percepção dos indivíduos acerca da experiência com a amputação e prótese, possibilitando o uso clínico para avaliação de resultados voltados para a reabilitação de pacientes com amputação de membro inferiores. Serão desenvolvidos novos estudos para a continuidade de validação do instrumento.

The literature indicates the absence of specific instruments for clinical evaluation and research directed at people with amputation, with the TAPES-R scale being relevant for the analysis of psychosocial aspects in this population. This scale was developed to evaluate the processes involved in adapting to lower limb amputation and to the prosthesis. This instrument covers 33 items organized in three domains - psychosocial adjustment, activity restriction and prosthesis satisfaction, as well as issues related to phantom limb and residual limb pain. Objective: To perform transcultural adaptation of the TAPES-R scale for application in the Brazilian population. Method: Transcultural adaptation was carried out in five stages: translation, reverse translation, synthesis of the evaluations, evaluation by expert committee and final test in the population. The comparison between the original and translated versions was performed in relation to the semantic, idiomatic, cultural and conceptual equivalences. The final version was applied to 116 amputees of the lower limbs. Results: There was clarity regarding participants' understanding of the instrument, indicating that it is appropriate to the reality of the target audience in the Brazilian population. Amputation above the knee and time of use of the prosthesis below 10 hours / day are associated with worse fit and less satisfaction with the prosthesis. Conclusion: The use of the TAPES-R scale allowed the evaluation of the individuals' perception about the experience with the amputation and prosthesis, allowing the clinical use to evaluate the results for the rehabilitation of patients with lower limb amputation. Further studies will be developed for the continued validation of the instrument.

As significações acerca da imagem corporal por crianças amputadas / Significations of body image by amputated children / Los significados sobre la imagen corporal de los niños amputados

A imagem corporal é importante na consciência de si, relacionando-se com a experiência existencial de cada um, podendo ser alterada por fatores como a amputação. Assim, as narrativas permitem organizar esta experiência, atribuindo-lhe um significado. O objetivo deste estudo foi investigar as significações construídas por crianças amputadas acerca de sua imagem corporal. Para tanto, foram realizados quatro momentos, gravados e transcritos, com três crianças com amputações adquiridas e uma congênita. As narrativas que remetiam à imagem corporal foram submetidas à análise da enunciação. Nos resultados, o olhar do outro foi a principal forma de preconceito, elegendo-se como uma das dificuldades impostas pela amputação. Porém, crianças com amputação adquirida e congênita diferenciaram-se quanto à significação da prótese e à possível aceitação/negação da amputação. Esses resultados demonstram que a significação sobre a imagem corporal é construída de forma singular e estar sensível a estas particularidades pode auxiliar o profissional em sua prática.

Body image is important in the awareness of the self, relating to the existential experience of each person, and can be altered by factors such as amputation. Discussing and giving a signification to experiences people live can help them organize their body images. The aim of this study was to investigate the significations attributed by amputated children about their body image. In order to achieve this goal, four interviews were organized with three children with congenital or acquired amputations. These interviews were recorded and transcribed, and the narratives that referred to body image were subjected to enunciation analysis. In the results, children mentioned that the discomfort caused by people's reactions when looking at them could be considered as one of the biggest difficulties imposed by amputation. However, children with acquired and congenital amputation differed as to the signification attributed to the prosthesis and the possible acceptance/denial of the amputation. These results demonstrate that the signification of body image is constructed in a unique way and being sensitive to these peculiarities can help professionals in their practice.

La imagen corporal es importante en la conciencia de sí mismo, en relación con la experiencia existencial de cada uno, puede ser alterado por factores tales como la amputación. Por lo tanto, las narrativas permiten organizar esta experiencia, dándole un significado. El objetivo de este estudio fue investigar los significados construidos por los niños amputados por su imagen corporal. Se realizaron cuatro veces, grabadas y transcritas con tres niños con amputaciones adquiridas y congénitas. Se analizaron los relatos que hacían referencia a la imagen corporal de la enunciación. En los resultados, la mirada de la otra era la principal forma de prejuicio, fue elegido como una de las dificultades impuestas por la amputación. Sin embargo, los niños con amputación congénita y adquirida difieren sobre el significado de la prótesis y posible aceptación / denegación de la amputación. Estos resultados demuestran que la importancia de la imagen corporal se construye de una manera única y ser sensible a estas características pueden ayudar a los profesionales en su práctica.

Criterios de amputación de una extremidad severamente lesionada / Amputation criteria of a severely injured extremity

Se realiza una revisión de las debilidades y valores clínicos de los diferentes sistemas de evaluación, ya publicados, en cuanto al trato a brindar a una extremidad severamente lesionada. Se consideran los criterios de cada sistema de puntuación en relación a la toma de decisión, ante la disyuntiva de amputar o conservar un miembro severamente lesionado. El sistema de puntuación de severidad de la extremidad lesionada (MESS) es el más empleado por su fácil cálculo y seguridad(AU)

A review is made of the weaknesses and clinical values of the different assessment systems, already published, in regards to the treatment to provide a severely injured extremity. Considered the criteria of each scoring system in relation to the decision-making, faced with the alternative of amputating or retain a member severely injured. The Mangled Extremity Severity Score (MESS)) is the most used by its easy calculation and security(AU)

Vivir con dolor de miembro fantasma: persona postamputada / Living with member phantom pain: person postamputada

Objetivo: Describir el vivir con dolor de miembro fantasma en la persona posamputada. Método: Estudio de abordaje cualitativo-descriptivo, exploratorio; y como técnica se empleó la entrevista semiestructurada, los sujetos participantes residen en el Estado de Durango, México; participaron 12 personas que al ser amputadas debutaron con Dolor de miembro fantasma, el soporte teórico estuvo apoyado con el dolor de Le Breton (1999)21. Resultados: En los discursos de la persona posamputada se evidencian expresiones de una vida sin objetivos, se de terminan a desempeñar el rol de enfermos al considerar su dolor como una tragedia personal o una desviación social que enluta su vida y la de su familia. Consideraciones Finales: La enfermera debe aprender a escuchar el cuerpo enfermo, seguir con atención sus señales y sus expresiones ya sean de alegría, llanto, tristeza, dolor, desagrado, silencio, etc., interpretando lo que trata de comunicar y solicita. Deberá estar atenta y vigilante procurando que el cuerpo-sujeto alivie el dolor físico y el dolor del alma, que se pueda revertir permanente por el resto de su vida, pues vivir con dolor desde el punto de vista fisiopatológico constituye una crisis circunstancial, eventual y controlable que no sucede igual con la enfermedad del alma.

Objective: To describe the live with phantom limb pain in posamputada person. Method: Qualitative Study-descriptive, exploratory approach; and as a semi-structured interview technique was employed, participating subjects residing in the State of Durango, Mexico; involving 12 people to be amputated debuted with painphantom limb the theoretical support was supported with the pain of Le Breton (1999)21 Results: In the discourses of posamputada individual expressions of life without goals is evident, are determined to play the role of patients to consider their pain as a personal tragedy or social deviance that his life and mourns for his family. Final Thoughts: The nurse must learn to listen to the sick body, carefully follow their signals and whether their expressions of joy, sorrow, sadness, pain, disgust, silence, etc; interpreting what is communicating and requests. You must be alert and vigilant care that the body-subject relieve physical pain and the pain of the soul, which can be reversed permanently for the rest of your life, because living with pain from the physiological point of view is a circumstantial eventual crisis and controllable which does not happen with the disease of the soul.

Vivência do idoso institucionalizado com membros inferiores amputados decorrentes de complicações do Diabetes Mellitus / Experience of the institutionalized elderly with amputated lower limbs due to complications of Diabetes Mellitus

Objetivo: conhecer a vivência do idoso institucionalizado com membros inferiores amputados decorrentes de complicações do Diabetes Mellitus. Método: estudo descritivo, com abordagem qualitativa, realizado em uma Instituição de Longa Permanência para Idosos de Maceió-Al, com idosos diabéticos e amputados. A produção dos dados foi realizada por meio de entrevistas e observação de prontuários. A pesquisa obteve aprovação do Comitê de Ética em Pesquisa, parecer n°1293/12. Resultados: evidenciou-se que o processo de amputação envolve sentimentos de perda, dependência e isolamento social. Ser diabético com amputação significa vivenciar um cotidiano permeado por dificuldades e limitações, e sofrer pela dependência de outras pessoas para realizar atividades básicas de vida diária. Conclusão: conhecer a vivência do sujeito amputado é fundamental para tornar a assistência mais integrada, valorizando as singularidades dele, e favorecer o processo de reabilitação.(AU)