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1.
Proc Natl Acad Sci U S A ; 119(23): e2020901119, 2022 06 07.
Artículo en Inglés | MEDLINE | ID: mdl-35648824

RESUMEN

Divorces are predominantly initiated by one spouse alone. This might suggest that one spouse typically benefits from divorce (the initiator), while the other is disadvantaged (the noninitiator). At the same time, empirical research on the consequences of divorce commonly focuses on the average effect for both partners. In contrast, I estimate separation trajectories individually for initiators and noninitiators of formerly cohabitating or married couples. The analysis covers a wide range of outcomes and a long period of time surrounding the separation. I employ an event-study design based on individual fixed effects, thereby accounting for time-invariant individual heterogeneity that could be linked to initiator status and the outcomes. The results reveal substantial differences in separation trajectories between initiators and noninitiators. Initiators indeed improve their subjective well-being after a separation and also see gains in other life domains, with the exception of the economic domain. Noninitiators experience significant short-term losses in subjective well-being, from which they recover in the long run. Noninitiators' trajectories in other life domains vary.


Asunto(s)
Divorcio , Esposos , Divorcio/psicología , Femenino , Humanos , Masculino
2.
Proc Natl Acad Sci U S A ; 119(17): e2117454119, 2022 04 26.
Artículo en Inglés | MEDLINE | ID: mdl-35446613

RESUMEN

In the Nandi society in Kenya, custom establishes that a woman's "house property" can only be transmitted to male heirs. As not every woman gives birth to a male heir, the Nandi solution to sustain the family lineage is for the heirless woman to become the "female husband" to a younger woman by undergoing an "inversion" ceremony to "change" into a man. This biological female, now socially a man, becomes a "husband" and a "father" to the younger woman's children, whose sons become the heirs of her property. Using this unique separation of biological sex and social roles holding constant the same society, I conduct competitiveness experiments. Similar to Western cultures, I find that Nandi men choose to compete at roughly twice the rate as Nandi women. Importantly, however, female husbands compete at the same rate as males, and thus around twice as often as females. These findings are robust to controlling for several risk aversion, selection, and behavioral factors. The results provide support for the argument that social norms, family roles, and endogenous preference formation are crucially linked to differences in competitiveness between men and women.


Asunto(s)
Normas Sociales , Esposos , Adulto , Femenino , Identidad de Género , Humanos , Kenia , Masculino
3.
Proc Natl Acad Sci U S A ; 119(34): e2202515119, 2022 08 23.
Artículo en Inglés | MEDLINE | ID: mdl-35981139

RESUMEN

Marital attachment plays an important role in maintaining intimate personal relationships and sustaining psychological well-being. Mate-selection theories suggest that people are more likely to marry someone with a similar personality and social status, yet evidence for the association between personality-based couple similarity measures and marital satisfaction has been inconsistent. A more direct and useful approach for understanding fundamental processes underlying marital satisfaction is to probe similarity of dynamic brain responses to maritally and socially relevant communicative cues, which may better reflect how married couples process information in real time and make sense of their mates and themselves. Here, we investigate shared neural representations based on intersubject synchronization (ISS) of brain responses during free viewing of marital life-related, and nonmarital, object-related movies. Compared to randomly selected pairs of couples, married couples showed significantly higher levels of ISS during viewing of marital movies and ISS between married couples predicted higher levels of marital satisfaction. ISS in the default mode network emerged as a strong predictor of marital satisfaction and canonical correlation analysis revealed a specific relation between ISS in this network and shared communication and egalitarian components of martial satisfaction. Our findings demonstrate that brain similarities that reflect real-time mental responses to subjective perceptions, thoughts, and feelings about interpersonal and social interactions are strong predictors of marital satisfaction, reflecting shared values and beliefs. Our study advances foundational knowledge of the neurobiological basis of human pair bonding.


Asunto(s)
Encéfalo , Matrimonio , Satisfacción Personal , Encéfalo/fisiología , Comunicación , Humanos , Relaciones Interpersonales , Matrimonio/psicología , Personalidad , Esposos/psicología
4.
Cancer ; 130(5): 816-826, 2024 03 01.
Artículo en Inglés | MEDLINE | ID: mdl-37902827

RESUMEN

BACKGROUND: Cancer patients and survivors have high care needs, often provided by a spouse or partner. The purpose of this study was to elucidate how employment and work loss patterns differed across cancer history/treatment status and gender. METHODS: Using nationally representative data from the Medical Expenditure Panel Survey (2011, 2016, and 2017), the authors linked data across married participants and categorized them by spouses' cancer treatment status (no cancer history, on treatment for cancer, off treatment for cancer). Multivariable logistic and zero-inflated negative binomial regressions were used to assess the associations among cancer history/treatment status, gender, and employment outcomes (employment status and workdays lost to care for self or others). RESULTS: For men, employment did not differ significantly by cancer history/treatment status (on treatment: odds ratio [OR], 0.58; 95% confidence interval [CI], 0.33-1.02, off treatment: OR, 0.84; 95% CI, 0.62-1.14 vs. no cancer history). For women, employment was not significantly different when the spouse was on treatment for cancer compared to no cancer history (OR, 0.78; 95% CI, 0.33-1.86]) but was significantly increased for women whose spouse was off treatment (OR, 1.39; 95% CI, 1.05-1.84). Among employed participants, women whose spouse was on cancer treatment were nine times more likely to take days off work to provide care (OR, 9.52; 95% CI, 3.94-23.03) and took more than three times as many days off to care for others (OR, 3.21; 95% CI, 2.07-4.97) as men whose spouse had no cancer history. CONCLUSIONS: Wives of cancer survivors are at increased risk of work loss, with implications for their financial and psychological well-being. Employers, policymakers, and clinicians have opportunities to support working caregivers.


Asunto(s)
Supervivientes de Cáncer , Neoplasias , Masculino , Humanos , Femenino , Esposos/psicología , Empleo , Matrimonio , Sobrevivientes , Neoplasias/terapia , Neoplasias/psicología
5.
Psychosom Med ; 86(6): 512-522, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38666654

RESUMEN

OBJECTIVE: Chronic stress adversely affects mental and physical well-being. However, health outcomes vary among people experiencing the same stressor. Individual differences in physical and emotional well-being may depend on mitochondrial biology, as energy production is crucial for stress regulation. This study investigated whether mitochondrial respiratory capacity corresponds to individual differences in dementia spousal caregivers' mental and physical health. METHODS: Spousal caregivers of individuals with Alzheimer's disease and related dementias ( N = 102, mean age = 71, 78% female, 83% White) provided peripheral blood samples and completed self-report questionnaires on quality of life, caregiver burden, and a 7-day affect scale. Multiple and mixed linear regressions were used to test the relationship between mitochondrial biology and well-being. RESULTS: Spare respiratory capacity ( b = 12.76, confidence interval [CI] = 5.23-20.28, p = .001), maximum respiratory capacity ( b = 8.45, CI = 4.54-12.35, p < .0001), and ATP-linked respiration ( b = 10.11, CI = 5.05-15.18, p = .0001) were positively associated with physical functioning. At average ( b = -2.23, CI = -3.64 to -0.82, p = .002) and below average ( b = -4.96, CI = -7.22 to 2.70, p < .0001) levels of spare respiratory capacity, caregiver burden was negatively associated with daily positive affect. At above average levels of spare respiratory capacity, caregiver burden was not associated with positive affect ( p = .65). CONCLUSIONS: Findings suggest that higher mitochondrial respiratory capacity is associated with better psychological and physical health-a pattern consistent with related research. These findings provide some of the earliest evidence that cellular bioenergetics are related to well-being.


Asunto(s)
Cuidadores , Demencia , Metabolismo Energético , Mitocondrias , Humanos , Femenino , Masculino , Cuidadores/psicología , Anciano , Persona de Mediana Edad , Demencia/fisiopatología , Metabolismo Energético/fisiología , Mitocondrias/metabolismo , Calidad de Vida , Enfermedad de Alzheimer/fisiopatología , Afecto/fisiología , Anciano de 80 o más Años , Estado de Salud , Carga del Cuidador , Esposos/psicología , Estrés Psicológico/metabolismo , Estrés Psicológico/fisiopatología
6.
Mov Disord ; 39(7): 1212-1217, 2024 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-38597193

RESUMEN

BACKGROUND: While preclinical studies have shown that alpha-synuclein can spread through cell-to-cell transmission whether it can be transmitted between humans is unknown. OBJECTIVES: The aim was to assess the presence of a synucleinopathy in autopsied conjugal couples. METHODS: Neuropathological findings in conjugal couples were categorized as Parkinson's disease (PD), dementia with Lewy bodies (DLB), Alzheimer's disease with Lewy bodies (ADLB), incidental Lewy body disease (ILBD), or no Lewy bodies. RESULTS: Ninety conjugal couples were included; the mean age of death was 88.3 years; 32 couples had no Lewy bodies; 42 couples had 1 spouse with a synucleinopathy: 10 PD, 3 DLB, 13 ADLB, and 16 ILBD; 16 couples had both spouses with a synucleinopathy: in 4 couples both spouses had PD, 1 couple had PD and DLB, 4 couples had PD and ADLB, 2 couples had PD and ILBD, 1 couple had DLB and ADLB, in 3 couples both had ADLB, and 1 couple had ADLB and ILBD. No couples had both spouses with ILBD. CONCLUSIONS: This large series of 90 autopsied conjugal couples found 16 conjugal couples with synucleinopathies, suggesting transmission of synucleinopathy between spouses is unlikely. © 2024 International Parkinson and Movement Disorder Society.


Asunto(s)
Enfermedad por Cuerpos de Lewy , Enfermedad de Parkinson , Sinucleinopatías , Humanos , Femenino , Masculino , Anciano de 80 o más Años , Enfermedad de Parkinson/patología , Enfermedad de Parkinson/metabolismo , Enfermedad por Cuerpos de Lewy/patología , Enfermedad por Cuerpos de Lewy/metabolismo , Anciano , Sinucleinopatías/patología , Autopsia , alfa-Sinucleína/metabolismo , Esposos , Enfermedad de Alzheimer/patología , Enfermedad de Alzheimer/metabolismo , Cuerpos de Lewy/patología
7.
Brain Behav Immun ; 119: 898-907, 2024 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-38718908

RESUMEN

Marital quality shares ties to inflammatory conditions like cardiovascular disease and diabetes. For decades, research has focused on marital conflict as a primary mechanism given its potential to trigger inflammatory responses. However, longitudinal evidence suggests that marital conflict declines over time, and little attention has been paid to the inflammatory aftermath of other types of marital exchanges. A spouse's emotional distress is an important but overlooked marital context, as partners are exposed to each other's upsetting emotions throughout adulthood. To directly compare reactivity in proinflammatory gene expression to these two marital stressors and to examine differences by age and marital satisfaction, 203 community adults ages 25-90 (N = 102 couples) provided blood samples and rated their negative mood before and after they 1) watched their partner relive an upsetting personal memory and, in a separate visit 1-2 weeks later, 2) discussed a conflictual topic in their relationship. Controlling for age, sex, race/ethnicity, BMI, alcohol use, smoking, and comorbidities, increases in proinflammatory gene expression were significantly larger after the partner's upsetting disclosure than after marital conflict (B = 0.073, SE = 0.031, p = .018). This pattern paralleled emotional reactivity to the tasks, wherein negative mood rose more in response to the partner's disclosure than to marital conflict (B = 4.305, SE = 1.468, p = .004). In sum, proinflammatory and mood reactivity to spousal distress exceeded reactivity to marital conflict, a well-established marital stressor. Findings reveal spousal distress as a novel mechanism that may link marriage to inflammation-related diseases, and even pose risks for both happy and unhappy couples across adulthood.


Asunto(s)
Conflicto Familiar , Inflamación , Matrimonio , Esposos , Estrés Psicológico , Humanos , Femenino , Masculino , Persona de Mediana Edad , Conflicto Familiar/psicología , Adulto , Anciano , Esposos/psicología , Estrés Psicológico/psicología , Estrés Psicológico/inmunología , Matrimonio/psicología , Inflamación/inmunología , Inflamación/psicología , Anciano de 80 o más Años , Satisfacción Personal , Emociones/fisiología , Distrés Psicológico , Afecto/fisiología
8.
Psychooncology ; 33(3): e6314, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-38459736

RESUMEN

OBJECTIVE: Psychological distress is prevalent in couples facing breast cancer. Couples often deal with breast cancer as a unit instead of as individuals. Couple's dyadic coping is important for their adjustment to breast cancer; however, little is known about how couple's coping congruence influences their distress. This study examined how common dyadic coping (CDC) and coping congruence impact psychological distress in couples facing breast cancer. METHODS: Baseline data were analyzed from 343 women with recently diagnosed early-stage breast cancer and their partners who participated in a randomized clinical trial. Psychological distress was indicated by depressed mood and state anxiety. Common dyadic coping was measured by a self-report scale. Coping congruence was assessed by the absolute difference between a woman's and her partner's CDC scores. RESULTS: Higher CDC scores were associated with lower psychological distress in both women and partners. In the CDC subscales, women who suffered less scored higher on open communication, sharing a positive outlook, and lower on avoidance coping. Partners who suffered less scored higher on open communication, sharing a positive outlook, spending time talking, and lower on avoidance coping. Greater congruence in CDC was associated with lower psychological distress in women and their partners. Congruence in sharing a positive outlook benefited both members of the dyad; congruence in avoidance coping significantly benefited patients; congruence in open communication significantly benefited partners. CONCLUSIONS: CDC and its congruence in specific areas have potential benefit to couple's psychological distress when facing breast cancer. Health care providers could consider enhancing couple's CDC and coping congruence to improve their adjustment.


Asunto(s)
Neoplasias de la Mama , Distrés Psicológico , Humanos , Femenino , Adaptación Psicológica , Neoplasias de la Mama/psicología , Esposos/psicología , Habilidades de Afrontamiento
9.
Psychooncology ; 33(3): e6310, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-38411282

RESUMEN

OBJECTIVE: Patients with advanced cancer who parent minor children report parenting concerns and increased psychological distress. This cross-sectional study seeks to understand parenting-related issues in patients and spousal caregivers from a relationship perspective. METHODS: Patients with a metastatic solid malignancy and their spouses independently completed cross-sectional assessments of psychological distress (Hospital Anxiety and Depression Scale), parenting concerns (Parenting Concern Questionnaire) and efficacy (Cancer-Related Parenting Self-Efficacy Scale), and relationship measures (DAS-7, Couples' Illness Communication Scale, and Family Relationship Index). RESULTS: Of the 51 patients (57% female, 49% NHW, mean age 42 years) and spouses (43% female, 43% NHW, mean age of 42 years), approximately 50% couples endorsed psychological distress and were at risk for family dysfunction. Spouses reported significantly higher levels of parenting-related concerns (t = -2.0, p < 0.05) and anxiety (t = -2.8, p < 0.001) than patients. Parenting concerns were significantly associated with illness communication (r = -0.56, p < 0.001) and family function (r = -0.38, p < 0.001). Although the expected interactions between parenting concerns and relationship variables (i.e., illness communication, dyadic adjustment, and family function) were significant for depressive symptoms at p < 0.05, the associations were not in the expected direction. Relationship function buffered against depressive symptoms for those with low rather than high parenting concerns. CONCLUSIONS: Not only patients but also spouses report cancer-related parenting concerns. The associations between parenting concerns and distress were stronger for spouses than patients. Dual caregiving appears to be a particularly stressful role. Because relationship function was associated with parenting concerns, we suggest that parent support programs that are couple-based and include both parenting-specific and relationship-specific content may be most effective in reducing distress for this vulnerable population.


Asunto(s)
Neoplasias Primarias Secundarias , Neoplasias , Niño , Humanos , Femenino , Adulto , Masculino , Responsabilidad Parental/psicología , Esposos/psicología , Estudios Transversales , Neoplasias/psicología , Padres/psicología , Cuidadores/psicología , Adaptación Psicológica
10.
Am J Geriatr Psychiatry ; 32(7): 825-831, 2024 07.
Artículo en Inglés | MEDLINE | ID: mdl-38342662

RESUMEN

OBJECTIVE: This study aims to investigate the effect of partner loss on suicide mortality for surviving partners in the elderly Italian population and to explore differences according to sex and time elapsed since the loss. DESIGN: This was a historical cohort study. SETTING: All Italian residents registered by the 15th Italian Population Census (9 October 2011) were linked to emigration records and death certificates for 2012-2017 to track migration, vital status, and cause of death. PARTICIPANTS: 5,068,414 individuals living as a couple, as registered in the census, and aged ≥69 years on January 1, 2012. MEASUREMENTS: Mortality rate ratios (MRR) estimated through Poisson regression models were used to compare suicide mortality at age ≥75 years between subjects who experienced partner loss and those who did not. RESULTS: Among people who experienced partner loss, there were 383 suicide deaths in men and 90 in women. Suicide mortality was higher in older men and women who experienced the loss compared to those who did not, and the impact of the spouse loss on mortality was stronger in men (age-adjusted MRR=2.83) than in women (1.41). Among men the excess risk was particularly high during the first year following the loss; in women, no substantial differences in the excess risk were observed over the follow-up period. CONCLUSION: Study findings provide evidence of the sex differences in the impact of spouse loss based on data from a large national cohort and reinforce the need for monitoring suicide risk in recently widowed older people.


Asunto(s)
Suicidio , Humanos , Masculino , Femenino , Anciano , Italia/epidemiología , Suicidio/estadística & datos numéricos , Anciano de 80 o más Años , Estudios de Cohortes , Esposos/estadística & datos numéricos , Esposos/psicología , Factores Sexuales , Viudez/estadística & datos numéricos , Viudez/psicología , Factores de Riesgo
11.
Pediatr Blood Cancer ; 71(2): e30790, 2024 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-38053241

RESUMEN

It is unknown how common job lock (i.e., staying at job to maintain health insurance) remains among childhood cancer survivors after Affordable Care Act (ACA) implementation in 2010. We examined prevalence of and factors associated with job lock using a cross-sectional survey from the Childhood Cancer Survivor Study (3503 survivors; 942 siblings). Survivor, spousal, and any survivor/spouse job lock were more frequently reported by survivors than siblings. Survivor job lock/any job lock was associated with older age, low income, severe chronic conditions, and debt/inability to pay debt. Job lock remains more common among survivors than siblings after ACA implementation.


Asunto(s)
Supervivientes de Cáncer , Neoplasias , Estados Unidos/epidemiología , Humanos , Niño , Neoplasias/epidemiología , Patient Protection and Affordable Care Act , Estudios Transversales , Esposos , Sobrevivientes , Hermanos
12.
J Geriatr Psychiatry Neurol ; 37(2): 163-172, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-37551824

RESUMEN

Dementia caregiving experiences are not universal and different factors may influence the risk for burden and depression. This study examined factors such as the relationship with the care recipient, severity of dementia, and relationship satisfaction to uncover different types of caregiver burden profiles using baseline assessment for a telephone-based intervention study for dementia caregivers. Participants (n = 233) completed a battery of psychological and caregiving related surveys. The sample was predominantly White and female. Latent class analysis suggested four class models in subsamples of spousal caregivers and adult children caregivers. The results suggested four distinct classes among samples of spousal and adult child caregivers. Differences in burden emerged across both spouses and adult children, and differences in depression also emerged in the spousal sample. Our findings demonstrate the diversity of the caregiving experience and suggest that future psychosocial interventions may benefit from being tailored to the needs of caregiver subgroups.


Asunto(s)
Cuidadores , Demencia , Humanos , Femenino , Cuidadores/psicología , Depresión/psicología , Esposos/psicología , Carga del Cuidador , Demencia/psicología
13.
J Sex Marital Ther ; 50(5): 659-674, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38721828

RESUMEN

This study examined attachment insecurities, infertility-specific coping strategies, and quality of life (QoL) in 87 couples seeking fertility treatment. Partners completed self-report measures. Path analyses showed that women's and men's attachment anxiety were associated with their own lower QoL, whereas attachment avoidance was associated with their own and their partner's lower QoL. Adaptive coping in men and women were associated with women's higher QoL. Non-adaptive coping was associated with men and women's lower QoL. Coping strategies explained the associations between attachment and QoL. This highlights the importance of individual and dyadic factors for understanding QoL in couples seeking fertility treatment.


Asunto(s)
Adaptación Psicológica , Infertilidad , Apego a Objetos , Calidad de Vida , Humanos , Femenino , Calidad de Vida/psicología , Masculino , Adulto , Infertilidad/psicología , Esposos/psicología , Relaciones Interpersonales , Parejas Sexuales/psicología
14.
J Sex Marital Ther ; 50(4): 527-541, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38567544

RESUMEN

This study examines dyadic data from 299 married and 242 cohabiting Black heterosexual couples in the United States (an understudied cross-section of the population) and assesses individual (actor) effects as well as couple (partner) effects of sexual sanctification and relationship satisfaction. Higher levels of sexual sanctification were associated with higher levels of relationship satisfaction for women and men in the actor effects, but no significant associations were found in the partner effects for couples. Additionally, initial findings suggest that sexual sanctification may act as a relational protective factor for Black married and cohabiting couples. Implications for further research as well as practical applications for clergy, therapists, and practitioners working with Black heterosexual couples in sexual relationships are also discussed.


Asunto(s)
Negro o Afroamericano , Heterosexualidad , Satisfacción Personal , Parejas Sexuales , Humanos , Masculino , Femenino , Heterosexualidad/psicología , Adulto , Negro o Afroamericano/psicología , Parejas Sexuales/psicología , Estados Unidos , Relaciones Interpersonales , Conducta Sexual/psicología , Persona de Mediana Edad , Esposos/psicología , Matrimonio/psicología
15.
Int J Geriatr Psychiatry ; 39(5): e6092, 2024 May.
Artículo en Inglés | MEDLINE | ID: mdl-38687142

RESUMEN

OBJECTIVES: As symptoms emerge and worsen in people living with dementia, their spouses can benefit from behavioral interventions to support their adjustment as a care partner. The Wish Outcome Obstacle Plan (WOOP) intervention improves the well-being of spouses of people living with dementia early in the disease course, but intervention mechanisms and opportunities for improvement are unclear. The present study gave voice to spouses who participated in a trial of WOOP, describing how WOOP was incorporated into their lives and how it could be improved for future implementation. METHOD: For this qualitative study, we conducted longitudinal semi-structured interviews among 21 spouses of people living with dementia (three interviews over three months; 63 interviews total). Codebook thematic analysis was performed. RESULTS: Three meta-themes were derived: (1) assessing baseline strengths and limitations of WOOP, (2) learning from experience, and (3) fine-tuning and sustaining WOOP. Participants described how WOOP addressed their interpersonal and emotional stressors, their responses to behaviors of the person living with dementia, and their relationship quality. Considerations for future intervention delivery (e.g., solo vs. in group settings) and instructions (e.g., encouraging writing vs. thinking through the four steps of WOOP) were identified as areas of improvement. CONCLUSIONS: WOOP was described as a practical, feasible, and desirable intervention for spouses at the early stages of their partner's dementia. Participants made WOOP easier to incorporate in their everyday lives by adapting the design into a mental exercise that they used as needed. Suggestions from participants specified how to make the everyday use of WOOP more feasible, sustainable, and applicable in a variety of contexts. TRIAL REGISTRATION: ClinicalTrials.gov HIC 2000021852.


Asunto(s)
Demencia , Estudios de Factibilidad , Investigación Cualitativa , Esposos , Humanos , Masculino , Femenino , Demencia/psicología , Demencia/terapia , Esposos/psicología , Anciano , Persona de Mediana Edad , Anciano de 80 o más Años , Cuidadores/psicología , Estudios Longitudinales , Adaptación Psicológica , Terapia Conductista/métodos
16.
Support Care Cancer ; 32(2): 90, 2024 Jan 08.
Artículo en Inglés | MEDLINE | ID: mdl-38190000

RESUMEN

There is a growing focus on exploring dyadic interactions and outcomes between couples undergoing cervical cancer (CC). The purpose of this cross-sectional study was to figure out how dyadic communication influences both CC patients' and spouses' coping abilities. A sample of 286 CC dyads completed questionnaires assessing dyadic communication and dyadic coping. The actor-partner interdependence model was used to analyze the interaction effect between the dyads. Dyadic communication among cervical cancer (CC) patients has a predictive effect on their own negative dyadic coping (ß = - 0.141, P = 0.034) and on their spouses' delegated dyadic coping (ß = 0.133, P = 0.044). In contrast, dyadic communication among CC spouses is negatively associated with their own supportive dyadic coping (ß = - 0.237, P < 0.001), delegated dyadic coping (ß = - 0.156, P = 0.018), common dyadic coping (ß = - 0.148, P = 0.026) and also with CC patients' supportive dyadic coping (ß = - 0.153, P = 0.022). Dyadic communication between CC patients and their spouses affect their own and each other's dyadic coping. Exploring interventions focused on the CC couples' communication strategies to enhance their positive dyadic coping should be considered.


Asunto(s)
Neoplasias del Cuello Uterino , Humanos , Femenino , Estudios Transversales , Esposos , Comunicación , Habilidades de Afrontamiento
17.
Support Care Cancer ; 32(4): 263, 2024 Apr 02.
Artículo en Inglés | MEDLINE | ID: mdl-38564042

RESUMEN

PURPOSE: Spouses are often the front-line caregivers for colon cancer patients. Providing this support requires a particular set of coping skills. Our objective was to identify key skills that healthcare and medico-social sector professionals could assess in routine practice that would allow them to propose appropriate support to spouses who are accompanying colon cancer patients in their care pathway. METHODS: An online two-round Delphi study was conducted among French colon cancer patients, spouses and professionals. The content of the Delphi study was developed from a previously published qualitative study. RESULTS: In the first round of the study, 63% of the participants were professionals (n = 40), 19% spouses (n = 12) and 17% patients (n = 11). In the second round, they were respectively 55% (n = 22), 22% (n = 9) and 22% (n = 9). Twenty-seven of the 75 proposed skills were consensually identified as key skills. Nine were related to emotional and psychological well-being, six to social relations, four to organisation, five to health and three to domestic domains. The three most consensual skills (≥ 90% agreement) for spouses were (1) helping the tired patient in everyday life, (2) stimulating the patient to prevent him/her from giving up and (3) limiting one's amount of personal time to care for the patient. CONCLUSION: The study identified the key skills needed by spouses of patients being treated for colon cancer. Better awareness of these skills among professionals would enable them to offer tailored support to help patients and spouses maintain their physical and emotional well-being.


Asunto(s)
Cuidadores , Neoplasias del Colon , Humanos , Femenino , Masculino , Técnica Delphi , Esposos , Neoplasias del Colon/terapia , Habilidades de Afrontamiento
18.
Support Care Cancer ; 32(6): 384, 2024 May 27.
Artículo en Inglés | MEDLINE | ID: mdl-38801526

RESUMEN

PURPOSE: When a pregnant woman is diagnosed with cancer, she faces complex and unique challenges while navigating both obstetric and oncological care. Despite often being the primary support for women diagnosed with cancer during pregnancy (CDP), little is known about the experiences of their partners. We undertook an in-depth exploration of the experiences of partners of women diagnosed with CDP in Australia. METHODS: Semi-structured interviews were conducted with partners of women diagnosed with CDP treated in Australia. Interviews explored partners' inclusion in decision making and communication with health professionals and their own coping experiences. Data were analysed thematically. RESULTS: Data from interviews with 12 male partners (N = 12) of women diagnosed with CDP were analysed. Two unique themes relevant to partners were identified: 'Partners require support to adjust to changing roles and additional burdens' and 'Treating the couple as a team facilitates agency and coping, but partners' needs are placed second by all'. CONCLUSION: Partners of women diagnosed with CDP commonly experience unique stressors and a substantial shift in previously established roles across multiple domains including medical advocacy, household coordination and parenting. Partners' coping is interlinked with how the woman diagnosed with CDP is coping. Inclusion of partners in treatment decisions and communications, and considering partners' wellbeing alongside that of the woman with CDP, is likely to be supportive for partners. In turn, this is likely to enhance the quality of support that women diagnosed with CDP receive from their partners.


Asunto(s)
Adaptación Psicológica , Investigación Cualitativa , Esposos , Humanos , Femenino , Embarazo , Adulto , Masculino , Esposos/psicología , Australia , Complicaciones Neoplásicas del Embarazo/psicología , Complicaciones Neoplásicas del Embarazo/terapia , Neoplasias/psicología , Entrevistas como Asunto , Toma de Decisiones , Apoyo Social
19.
Support Care Cancer ; 32(2): 112, 2024 Jan 18.
Artículo en Inglés | MEDLINE | ID: mdl-38236480

RESUMEN

PURPOSE: Nigeria has the highest burden of breast cancer (BC) in Africa. While the survival rates for BC are over 90% in many high-income countries; low-and middle-income countries like Nigeria have 40% BC survival rates. Prior studies show that the burden and poor BC survival rates are exacerbated by both health system and individual level factors, yet there is a paucity of literature on the experiences of BC survivors in Nigeria. Hence, this study explored the divergent and convergent experiences of BC survivors in accessing, navigating, and coping with treatment. METHODS: Participants (N = 24, aged 35 to 73 years) were recruited and engaged in focus group discussions (group 1, n = 11; group 2, n = 13 participants). Transcripts were transcribed verbatim and analyzed with inductive thematic analysis. RESULTS: Four themes were identified: "I am carrying this [breast cancer] alone," "Living my life," "'God' helped me," and "A very painful journey." Participants described how they concealed their BC diagnosis from family and significant others while accessing and navigating BC treatment. Also, they adopted spiritual beliefs as a coping mechanism while sticking to their treatment and acknowledging the burden of BC on their well-being. CONCLUSIONS: Our findings explored the emotional burden of BC diagnosis and treatment and the willingness of the BC survivors to find meaning in their diagnosis. Treatment for BC survivors should integrate supportive care and innovative BC access tools to reduce pain and mitigate the burdens of BC. IMPLICATIONS FOR CANCER SURVIVORS: The integration of innovative technologies for venous access and other treatment needs of BC is crucial and will improve survivorship. Non-disclosure of BC diagnosis is personal and complicated; hence, BC survivors need to be supported at various levels of care and treatment to make meaningful decisions. To improve survivorship, patient engagement is crucial in shared decision-making, collaboration, and active participation in care.


Asunto(s)
Neoplasias de la Mama , Supervivientes de Cáncer , Humanos , Femenino , Neoplasias de la Mama/terapia , Esposos , Sobrevivientes , Supervivencia , Dolor
20.
Support Care Cancer ; 32(8): 531, 2024 Jul 20.
Artículo en Inglés | MEDLINE | ID: mdl-39031298

RESUMEN

PURPOSE: Experiencing sexual dysfunction (SD) alongside a breast cancer (BC) diagnosis has significant consequences, not only for wives but also for their husbands. Therefore, we explored husbands' perspectives on sexuality and their encounters in dealing with wives' SD following a BC diagnosis. METHODS: This qualitative study, conducted within the phenomenological framework, focused on sexually active husbands whose wives faced SD after being diagnosed with BC in Kelantan. Husbands with an International Index of Erectile Function (IIEF-5) score above 11, indicating the absence of erectile dysfunction, were invited to participate in in-depth interviews conducted between September 2019 and March 2021. The interviews were recorded and transcribed verbatim, and the transcriptions were then managed and analyzed using the NVivo® analytic computer software. Thematic analyses were performed, taking into account the meaning-making theory. RESULTS: To grasp husbands' experiences, three themes emerged. "Sex, a calming act," delves into their understanding of sexuality and its impact severity. "Distressing sequelae yet provide better tolerance" underscores that husbands experienced adverse consequences due to their wives' imperfections and sexual challenges, but they exhibited improved tolerance in dealing with these difficulties. Lastly, "Improving lives with multiple strategies" highlights how husbands sought alternative activities in response. CONCLUSION: This study illuminates the experiences of husbands coping with their wives' SD following a BC diagnosis. Husbands had to reconsider their understanding of sexuality and sexual needs and employed various response and coping strategies. These strategies included emphasizing influences of culture (husbands' roles and rights), religious beliefs, and self-distraction, redirecting the focus to health concerns, and engaging in alternative activities.


Asunto(s)
Neoplasias de la Mama , Supervivientes de Cáncer , Investigación Cualitativa , Esposos , Humanos , Malasia , Esposos/psicología , Masculino , Femenino , Neoplasias de la Mama/psicología , Neoplasias de la Mama/complicaciones , Persona de Mediana Edad , Supervivientes de Cáncer/psicología , Adulto , Disfunciones Sexuales Fisiológicas/etiología , Disfunciones Sexuales Fisiológicas/psicología , Entrevistas como Asunto , Adaptación Psicológica , Disfunciones Sexuales Psicológicas/etiología , Disfunciones Sexuales Psicológicas/psicología , Anciano
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