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1.
Scand J Gastroenterol ; 54(9): 1124-1131, 2019 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31491354

RESUMEN

Background: The Enhanced Recovery After Surgery (ERAS) pathway is widely applied in the perioperative period of stomach and colorectal surgery, and can decrease the length of hospital stay of the patients without compromising the safety of the patients. However, some patients are removed from this pathway for various reasons. Here we found some factors that taking the patients out from the procedures. Methods: A retrospective analysis of collected data of 550 patients over a 3-year period was conducted, with 292 in the ERAS group and 258 in the conventional care group. Then various basic elements were analyzed to explore the reasons for the failure to complete the ERAS program. Results: Total length of hospital stay after surgery was significantly shorter in the ERAS group, and a similar incidence of complication rates were observed in the two groups. In this study, the significant factors that associated with complications were advanced age (OR 2.18; p = .031), history of abdominal surgery (OR 2.03; p = .04), incomplete gastrointestinal obstruction (OR 3.42; p < .001), laparoscopic surgery (OR 0.39; p = .004) and intraoperative neostomy (OR 2.37; p = .006). Conclusions: We found that advanced age (>80 years old), history of abdominal surgery, gastrointestinal obstruction and stoma formation were the risk factors. We anticipated to design a risk assessment system upon the high-risk patients from the present ERAS pathway, and make a modified ERAS pathway for those patients.


Asunto(s)
Cirugía Colorrectal/rehabilitación , Recuperación Mejorada Después de la Cirugía , Gastrostomía/rehabilitación , Laparoscopía/rehabilitación , Adulto , Factores de Edad , Anciano , Anciano de 80 o más Años , China , Femenino , Humanos , Tiempo de Internación/estadística & datos numéricos , Modelos Logísticos , Masculino , Persona de Mediana Edad , Recuperación de la Función , Estudios Retrospectivos , Factores de Riesgo , Insuficiencia del Tratamiento
2.
Dysphagia ; 31(6): 730-736, 2016 12.
Artículo en Inglés | MEDLINE | ID: mdl-27384435

RESUMEN

The objective of this study was to investigate the outcomes of rehabilitation (with swallowing therapy) after percutaneous endoscopic gastrostomy (PEG) in patients with neurogenic dysphagia. Forty-seven patients (29 males and 18 females) who were transferred to the rehabilitation ward of our hospital after receiving PEG tube placements during a 5-year period were enrolled in this study. Patients' demographic data, comorbidities, nutritional statuses, and laboratory biomarkers before the PEG procedure were collected. Rehabilitation (with swallowing therapy) outcomes such as changes in Functional Independence Measure (FIM) and dysphagia grade (using Fujishima's classification) were evaluated. Significant improvements in FIM scores and dysphagia grades after rehabilitation therapy were observed. Twenty-seven patients (57.4 %) were discharged with some oral intake and 10 patients (21.3%) were discharged PEG-free (defined as the PEG tube not being used or removed). Factors associated with being discharged with some oral intake were increase in FIM score (adjusted OR 1.10, 95 % CI 1.02-1.19) and higher baseline dysphagia grade (adjusted OR 1.88, 95 % CI 1.04-3.39). Factors associated with being discharged PEG-free were longer rehabilitation period (OR 1.03, 95 % CI 1.01-1.04), absence of respiratory disorders (OR 0.12, 95 % CI 0.03-0.35), and increase in FIM score (OR 1.17, 95 % CI 1.08-1.28). Changes in dysphagia grade were significantly correlated with changes in FIM score (r 2 = 0.46, p < 0.0001), indicating that improvement of FIM scores through general rehabilitation therapy may play an important role in the treatment of dysphagia.


Asunto(s)
Trastornos de Deglución/rehabilitación , Endoscopía del Sistema Digestivo , Gastrostomía/rehabilitación , Recuperación de la Función , Adulto , Anciano , Anciano de 80 o más Años , Deglución , Trastornos de Deglución/fisiopatología , Trastornos de Deglución/cirugía , Nutrición Enteral/métodos , Femenino , Gastrostomía/métodos , Humanos , Masculino , Persona de Mediana Edad , Resultado del Tratamiento , Adulto Joven
3.
Isr Med Assoc J ; 18(6): 331-5, 2016 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-27468525

RESUMEN

BACKGROUND: Children dependent on gastrostomy tube feeding and those with extremely selective eating comprise the most challenging groups of early childhood eating disorders. We established, for the first time in Israel, a 3 week intensive weaning and treatment program for these patients based on the "Graz model." OBJECTIVES: To investigate the Graz model for tube weaning and for treating severe selective eating disorders in one center in Israel. METHODS: Pre-program assessment of patients' suitability to participate was performed 3 months prior to the study, and a treatment goal was set for each patient. The program included a multidisciplinary outpatient or inpatient 3 week treatment course. The major outcome measures were achievement of the target goal of complete or partial tube weaning for those with tube dependency, and expansion of the child's nutritional diversity for those with selective eating. RESULTS: Thirty-four children, 28 with tube dependency and 6 with selective eating, participated in four programs conducted over 24 months. Their mean age was 4.3 ± 0.37 years. Of all patients, 29 (85%) achieved the target goal (24 who were tube-dependent and 5 selective eaters). One patient was excluded due to aspiration pneumonia. After 6 months follow-up, 24 of 26 available patients (92%) maintained their target or improved. CONCLUSIONS: This intensive 3 week program was highly effective in weaning children with gastrostomy tube dependency and ameliorating severe selective eating. Preliminary evaluation of the family is necessary for completion of the program and achieving the child's personal goal, as are an experienced multidisciplinary team and the appropriate hospital setup, i.e., inpatient or outpatient.


Asunto(s)
Remoción de Dispositivos , Ingestión de Alimentos , Nutrición Enteral , Gastrostomía , Neumonía por Aspiración , Complicaciones Posoperatorias/prevención & control , Apoyo Social , Destete , Preescolar , Terapia Combinada , Remoción de Dispositivos/efectos adversos , Remoción de Dispositivos/métodos , Remoción de Dispositivos/rehabilitación , Ingestión de Alimentos/fisiología , Ingestión de Alimentos/psicología , Nutrición Enteral/métodos , Nutrición Enteral/psicología , Trastornos de Alimentación y de la Ingestión de Alimentos/diagnóstico , Trastornos de Alimentación y de la Ingestión de Alimentos/fisiopatología , Trastornos de Alimentación y de la Ingestión de Alimentos/psicología , Trastornos de Alimentación y de la Ingestión de Alimentos/terapia , Femenino , Gastrostomía/instrumentación , Gastrostomía/métodos , Gastrostomía/rehabilitación , Humanos , Israel , Masculino , Grupo de Atención al Paciente/organización & administración , Neumonía por Aspiración/etiología , Neumonía por Aspiración/prevención & control , Evaluación de Programas y Proyectos de Salud , Estudios Retrospectivos
4.
J Pediatr Gastroenterol Nutr ; 60(1): 131-41, 2015 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-25023584

RESUMEN

OBJECTIVES: This European Society for Pediatric Gastroenterology, Hepatology, and Nutrition (ESPGHAN) position statement provides a comprehensive guide for health care providers to manage percutaneous endoscopic gastrostomy tubes in a safe, effective, and appropriate way. METHODS: Relevant literature from searches of PubMed, CINAHL, and recent guidelines was reviewed. In the absence of evidence, recommendations reflect the expert opinion of the authors. Final consensus was obtained by multiple e-mail exchange and during 3 face-to-face meetings of the gastroenterology committee of the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition. RESULTS: Endoscopically placed gastrostomy devices are essential in the management of children with feeding and nutritional problems. The article focuses on practical issues such as indications and contraindications. CONCLUSIONS: The decision to place an endoscopic gastrostomy has to be made by an appropriate multidisciplinary team, which then provides active follow-up and care for the child and the device.


Asunto(s)
Fenómenos Fisiológicos Nutricionales de los Adolescentes , Fenómenos Fisiológicos Nutricionales Infantiles , Nutrición Enteral , Medicina Basada en la Evidencia , Gastrostomía/rehabilitación , Adolescente , Niño , Europa (Continente) , Gastrostomía/efectos adversos , Humanos , Lactante , Fenómenos Fisiológicos Nutricionales del Lactante , Comunicación Interdisciplinaria , Complicaciones Posoperatorias/prevención & control , Complicaciones Posoperatorias/terapia , Sociedades Científicas
5.
J Pediatr Gastroenterol Nutr ; 57(5): 668-72, 2013 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-23783012

RESUMEN

OBJECTIVES: Limited published data describe the long-term effects of behavioral strategies to wean children from gastrostomy tube (GT) feeding dependence. This study presents data relating to nutritional and psychosocial outcomes observed during a 1-year period in medically complex GT feeding-dependent patients who completed an inpatient behavioral-based tube weaning protocol. METHODS: This was a retrospective study of prospectively and retrospectively collected data associated with a clinical cohort of 77 children diagnosed as having a feeding disorder, GT feeding dependence (>1 year), and an inability to maintain acceptable growth via oral feeding completing an inpatient tube weaning protocol. Nutritional data (percentage of ideal body weight, and oral energy intake as percent ofenergy goal) and psychosocial data (mealtime behavior problems, quality of caregiver and child interactions, and parenting stress) were assessed pre- and post-hospitalization. Nutritional data were also monitored longitudinally at 1, 3, 6, and 12 months postreatment. Data were grouped for retrospective analysis. RESULTS: Mealtime environment and feeding behaviors significantly improved, and all of the patients demonstrated reductions in tube dependence aside from 1 treatment failure. Fifty-one percent of patients were fully weaned from tube feeding after 2 weeks and an additional 12% completed weaning in the outpatient follow-up clinic within 1 year. Patients maintained nutritional stability at the 1-year posttreatment follow-up appointment. CONCLUSIONS: Inpatient behavioral interventions are highly effective and safe for transitioning long-term tube feeding children to oral feeding.


Asunto(s)
Terapia Conductista , Fenómenos Fisiológicos Nutricionales Infantiles , Conducta Alimentaria , Trastornos de Ingestión y Alimentación en la Niñez/terapia , Gastrostomía/rehabilitación , Estado Nutricional , Relaciones Padres-Hijo , Niño , Conducta Infantil , Desarrollo Infantil , Preescolar , Estudios de Cohortes , Femenino , Gastrostomía/efectos adversos , Hospitales Pediátricos , Humanos , Estudios Longitudinales , Masculino , Estudios Retrospectivos , Encuestas y Cuestionarios , Wisconsin
6.
Rev Bras Enferm ; 73(3): e20190108, 2020.
Artículo en Inglés, Portugués | MEDLINE | ID: mdl-32321143

RESUMEN

OBJECTIVES: to describe the process of construction and validation of an educational booklet on care for children with gastrostomy, directed to caregivers. METHODS: a methodological study developed in five stages: bibliographic survey; situational diagnosis; illustration, layout, design and text construction; expert validation and Flesch-Kincaid Readability calculation; validation with the target audience. Content Validity Index and Suitability Assessment of Materials were applied for expert analysis. RESULTS: the Content Validity Index obtained overall score of 0.93. In the Suitability Assessment of Materials score, the booklet scored 85.2%. It presented a satisfactory readability percentage, with an overall score of 72%, and was consistent with caregivers' assessment in the validation with the target audience, considering the explanatory technology, important and adequate. CONCLUSIONS: the developed educational booklet was considered valid for use by caregivers, thus contributing to the maintenance of best practices in care for children with gastrostomy.


Asunto(s)
Gastrostomía/enfermería , Gastrostomía/rehabilitación , Folletos , Educación del Paciente como Asunto/métodos , Cuidadores/educación , Cuidadores/psicología , Comprensión , Humanos , Pediatría/métodos , Pediatría/normas , Encuestas y Cuestionarios
8.
Nihon Ronen Igakkai Zasshi ; 43(6): 726-9, 2006 Nov.
Artículo en Japonés | MEDLINE | ID: mdl-17233454

RESUMEN

A multidisciplinary team for bed sores consisted of 10 members including 3 dermatologists, 3 nurses, 1 physical therapist (PT), 1 pharmacist, 1 dietician, and 1 medical clerk. The incidence of new bed sores after admission was significantly decreased from 3.31% in 2003 to 1.04% in 2005 (P < 0.01). A total of 324 percutaneous endoscopic gastrostomy (PEG) procedures were performed from 2001 to January 2006. Among those, the survival of 172 elderly patient (aged 65 years or older at the time of PEG) was calculated by the Kaplan-Meier method. The 30-day mortality rates was 11%, and the 1-year, and 5-year survival rates were 61.2%, and 34.4% respectively. After discharge, 40 patients were followed up at the PEG clinic in our hospital whose staff consisted of 1 expert surgeon, 5 nurses and 1 dietician. When compared with 67 patients transferred to other hospitals or nursing homes, the patients in the PEG clinic showed a significantly longer survival (P < 0.01, 44 versus 29 months). A full-time integrated treatment (FIT) program for stroke rehabilitation was developed in the Nanakuri-Sanatorium of our university in 2000. Eighty-one stroke patients were on the FIT program during their hospital stay and achieved significantly higher activities of daily living (ADL) scores (P < 0.01) at discharge assessed by functional independence measure (FIM) compared to 41 patients on previous rehabilitation program. In addition, their ADL scores were maintained significantly higher (P < 0.05) even at 18 month after discharge, which might help them to stay home independently or with less care burden. These results suggest the important role of multidisciplinary approach for geriatric care and rehabilitation.


Asunto(s)
Enfermedad Crónica/rehabilitación , Geriatría , Grupo de Atención al Paciente/normas , Úlcera por Presión/rehabilitación , Rehabilitación de Accidente Cerebrovascular , Actividades Cotidianas , Anciano , Femenino , Gastroscopía , Gastrostomía/rehabilitación , Humanos , Tiempo de Internación , Masculino , Persona de Mediana Edad , Alta del Paciente , Centros de Rehabilitación
9.
Nutrition ; 21(11-12): 1071-7, 2005.
Artículo en Inglés | MEDLINE | ID: mdl-16308129

RESUMEN

OBJECTIVES: We assessed the economic and clinical implications of systematic long-term nutrition team follow-up of patients after percutaneous endoscopic gastrostomy. METHODS: We designed a prospective, randomized, controlled, single-blind trial in a large district hospital and its catchment area. All adult patients referred for a gastrostomy were eligible and randomized into two groups. The intervention group had regular follow-up by the nutrition team (weekly in hospital, monthly after discharge) with appropriate support and advice for patient, carer, and primary care professionals. The control group had no specific nutrition team input (as is often current practice). Endpoints to the study were 12 mo, elective removal of tube, or death. The primary outcome was total health care costs. Secondary outcomes were complications, length of stay, readmissions, nutritional status, and quality of life. RESULTS: One hundred twelve patients were recruited. Eleven died before the start of the trial, leaving 47 in the intervention group and 54 in the control group. They were well matched for age, sex, and underlying diagnosis. Overall, the health care costs were 13,330 sterlings per patient in the intervention group compared with 16,858 pound sterlings in the control group (two-tailed, P = 0.27), a saving of 21% per patient. The intervention group had shorter lengths of stay, fewer and briefer readmissions, earlier removal of gastrostomy (where appropriate), shorter duration of feeding, and less demand for general practitioners and district nurse inputs. Nutritional status and quality of life were similar. CONCLUSIONS: Regular systematic nutrition team follow-up for gastrostomy-fed patients does not increase costs and may improve quality of care.


Asunto(s)
Continuidad de la Atención al Paciente , Nutrición Enteral , Gastrostomía/economía , Grupo de Atención al Paciente , Calidad de la Atención de Salud , Anciano , Continuidad de la Atención al Paciente/economía , Continuidad de la Atención al Paciente/estadística & datos numéricos , Femenino , Gastrostomía/rehabilitación , Costos de la Atención en Salud , Humanos , Tiempo de Internación , Masculino , Estado Nutricional , Grupo de Atención al Paciente/economía , Readmisión del Paciente , Estudios Prospectivos , Calidad de Vida , Método Simple Ciego
10.
West J Nurs Res ; 20(2): 145-59, discussion 159-65, 1998 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-9550928

RESUMEN

Long-term gastrostomy is a predictable intervention to ameliorate the effects of feeding and swallowing difficulties among children with severe spastic cerebral palsy. The evidence evaluating the efficacy and implications of the available gastrostomy devices in common use has focused primarily on the operative phase, ignoring the long-term effects that may be critical from a nurse's or family caregiver's point of view. In this study, the authors describe a sample of children with gastrostomy, comparing skin-level and tube devices on measures of nutritional outcome, complications, and caregiver satisfaction. In contrast to manufacturer's claims about the superiority of skin-level devices, the results presented here reveal few differences between the devices. The authors conclude, therefore, that device selection should be determined by individualized comprehensive assessment of the child and family circumstances.


Asunto(s)
Nutrición Enteral/instrumentación , Gastrostomía/rehabilitación , Atención Domiciliaria de Salud , Adolescente , Niño , Preescolar , Comportamiento del Consumidor , Nutrición Enteral/efectos adversos , Nutrición Enteral/enfermería , Femenino , Gastrostomía/enfermería , Humanos , Lactante , Masculino , Fenómenos Fisiológicos de la Nutrición , Complicaciones Posoperatorias
11.
No Shinkei Geka ; 28(10): 873-7, 2000 Oct.
Artículo en Japonés | MEDLINE | ID: mdl-11070907

RESUMEN

This report concerns percutaneous endoscopic gastrostomy (PEG) administered in the neurosurgical care unit to a patient with dysphasia. This reliable nutrition route has the major advantage of minimal surgical invasion and can be expected to become a standard nutritional method. Since patients with neurological disorders account for the majority of those who need PEG, neurosurgeons need to be aware of the importance of PEG.


Asunto(s)
Trastornos de Deglución/cirugía , Nutrición Enteral , Gastroscopía , Gastrostomía/métodos , Anciano , Anciano de 80 o más Años , Lesiones Encefálicas/complicaciones , Hemorragia Cerebral/complicaciones , Infarto Cerebral/complicaciones , Trastornos de Deglución/etiología , Femenino , Gastrostomía/rehabilitación , Humanos , Masculino , Persona de Mediana Edad , Apoyo Nutricional , Nutrición Parenteral
12.
Vestn Khir Im I I Grek ; 133(12): 19-21, 1984 Dec.
Artículo en Ruso | MEDLINE | ID: mdl-6528430

RESUMEN

On the basis of observation of the ulcer disease of the stomach and duodenum in 970 patients given the restorative treatment in rehabilitation hospitals after being discharged from the surgical hospital the authors recommend the earlier rehabilitative treatment since it gives more rapid reestablishment of their working capacity.


Asunto(s)
Úlcera Péptica/rehabilitación , Adolescente , Adulto , Anciano , Femenino , Gastrectomía/rehabilitación , Gastrostomía/rehabilitación , Humanos , Masculino , Persona de Mediana Edad , Úlcera Péptica/complicaciones , Úlcera Péptica Perforada/rehabilitación , Cuidados Posoperatorios , Factores de Tiempo , Vagotomía/rehabilitación
13.
Int J Surg ; 12(9): 1005-9, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-25014648

RESUMEN

INTRODUCTION: Fast track programmes have been introduced in pancreatic surgery, but the data are sparse. The aim of this prospective study was to analyse the feasibility of implementing fast track rehabilitation protocol in PD with pancreaticogastrostomy, using historical control for comparison. MATERIALS AND METHODS: Between April 2012 and December 2012, twenty patients who underwent PD (with pancreaticogastrostomy) were managed by a fast-track rehabilitation protocol. These patients were compared with an equal number of historical controls treated according to the traditional protocol. RESULTS: Patients in the fast track group were able to tolerate liquid (p = 0.0005) and solid diet (p = 0.0001) earlier, and they passed stools earlier (p = 0.02). Delayed gastric emptying (DGE) was significantly reduced in the fast track group (p = 0.02). There was no difference in the rates of pancreatic fistula (PF), post pancreatectomy haemorrhage (PPH) and mortality between the two groups. Length of hospital stay was reduced in the fast track group (median 14 vs 18.5, p = 0.007). CONCLUSION: Fast track programme appears to be feasible in PD, even with pancreatico-gastric anastomosis. It is associated with early recovery, reduced DGE and reduced hospital stay.


Asunto(s)
Protocolos Clínicos , Gastrostomía/rehabilitación , Páncreas/cirugía , Pancreaticoduodenectomía/rehabilitación , Adulto , Anciano , Estudios de Factibilidad , Femenino , Vaciamiento Gástrico , Gastrostomía/métodos , Humanos , Tiempo de Internación , Masculino , Persona de Mediana Edad , Fístula Pancreática/epidemiología , Pancreaticoduodenectomía/métodos , Pancreaticoduodenectomía/mortalidad , Proyectos Piloto , Cuidados Posoperatorios/métodos , Hemorragia Posoperatoria/epidemiología , Estudios Prospectivos , Factores de Riesgo
14.
Head Neck ; 35(3): 420-5, 2013 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-22505332

RESUMEN

BACKGROUND: We evaluated factors associated with long-term dependence on percutaneous endoscopic gastrostomy (PEG) tubes. METHODS: One hundred fifty-four patients receiving treatment at the University of Alabama at Birmingham between 2002 and 2004 who underwent PEG tube placement were identified through retrospective review of medical records. Using binary logistic regression, we evaluated the association of various factors on long-term dependence on PEG tubes. RESULTS: A total of 25.3% of survivors remained PEG tube-dependent at 12 months. The odds of long-term PEG tube-dependence were greater for those who did not have partners compared with those who had partners (odds ratio [OR], 3.33; p = .004), for patients who received radiation therapy (OR, 6.21; p = .018), and for those who had a tracheotomy in place for longer than 30 days (OR, 4.328; p = .035). CONCLUSION: Data suggest that interventions targeted at reducing long-term dependence on PEG tubes take into account not only treatment-related factors, but also the important role that social support plays.


Asunto(s)
Gastrostomía/rehabilitación , Neoplasias de Cabeza y Cuello/mortalidad , Neoplasias de Cabeza y Cuello/cirugía , Adulto , Anciano , Anciano de 80 o más Años , Estudios de Cohortes , Femenino , Humanos , Intubación Gastrointestinal , Modelos Logísticos , Masculino , Persona de Mediana Edad , Complicaciones Posoperatorias/etiología , Estudios Retrospectivos , Apoyo Social , Sobrevivientes
15.
Eur J Phys Rehabil Med ; 47(1): 49-51, 2011 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-20935606

RESUMEN

Percutaneous endoscopic gastrostomy (PEG) has recently become a usual procedure for patients with prolonged disorders of consciousness after brain injuries. Despite a high rate of success and a very low procedure-related mortality, morbidity associated to PEG placement reaches 9.4% in a recent large meta-analysis. This case report describes an uncommon complication of PEG placement in a patient with vegetative state after traumatic brain injury: the development of prolonged duodenal paralysis. This patient was treated by placement of a transient jejunostomy until recovery of duodenal functional activity, to permit adequate nutrition. This procedure-related complication is previously unreported in scientific literature.


Asunto(s)
Lesiones Encefálicas/complicaciones , Lesiones Encefálicas/rehabilitación , Duodeno/fisiopatología , Gastrostomía/efectos adversos , Gastrostomía/métodos , Gastrostomía/rehabilitación , Humanos , Italia , Masculino , Parálisis/etiología , Adulto Joven
16.
Rev. eletrônica enferm ; 17(2): 212-222, 20150431. ilus
Artículo en Inglés, Portugués | LILACS, BDENF - enfermagem (Brasil) | ID: biblio-832455

RESUMEN

O estudo objetivou conhecer a estrutura, funcionamento e desenvolvimento da família, identificar redes de apoio social no cuidado à criança e ao adolescente gastrostomizado, e descrever dificuldades e facilidades enfrentadas nessa experiência. Utilizou-se o Modelo Calgary de Avaliação Familiar, como referencial teórico, tendo sido acrescido da entrevista semiestruturada como instrumento de pesquisa; a Análise de Narrativa foi o método seguido. O uso do dispositivo tecnológico afeta os cuidadores e sua rotina, e estabelece relacionamento de renúncia e doação para com o gastrostomizado. Existe dificuldade em aceitar que os filhos não se alimentam normalmente. Os principais contratempos foram referentes à falta de conhecimento e treinamento para os cuidados específicos no domicílio. Os apoios são limitados. Este estudo possibilitou compreender melhor a experiência dessas famílias e evidenciou que o uso de um dispositivo tecnológico traz melhoras à saúde da criança, porém é um processo difícil de ser aceito inicialmente.


The study aimed to understand the structure, operation and development families, to identify social support networks for the care of the child and adolescent submitted to gastrostomy, and to describe difficulties and facilities faced in this experience. We used the Calgary Family Assessment Model as theoretical reference, we added it to the semi-structured interview as research instrument; and we used Narrative Analysis as method. The uses of the technological device affect caregivers and their routines, and establish a relationship of renounce and donation with the gastrectomy patient. Difficulty was found to accept that their children are not fed normally. The main setbacks referred to the lack of knowledge and training for specific homecare. Support is limited. This study allowed better comprehension of experiences from families and showed that the use of a technological device brings benefits to the child's health, thus, it is a difficult process to be accepted at first.


Asunto(s)
Humanos , Niño , Adolescente , Familia , Gastrostomía/enfermería , Gastrostomía/psicología , Gastrostomía/rehabilitación
18.
PM R ; 1(12): 1091-7, 2009 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-20006316

RESUMEN

Rehabilitation care is provided by interdisciplinary teams including physicians, nurses, therapists, social workers, psychologists, and others. When there is disagreement or miscommunication among team members, progress toward patient goals can be thwarted. This paper will discuss differing models by which teams function, and what happens when a nonphysician member of the team disagrees with the plan of care. An analysis of the ethical issues embedded in two cases will be presented, and suggestions for resolution of team disagreement will be recommended.


Asunto(s)
Relaciones Interprofesionales , Grupo de Atención al Paciente , Rehabilitación/organización & administración , Adulto , Anciano , Discusiones Bioéticas , Conflicto Psicológico , Femenino , Gastrostomía/rehabilitación , Guías como Asunto , Humanos , Consentimiento Informado , Liderazgo , Masculino , Competencia Mental , Negociación , Grupo de Atención al Paciente/ética , Grupo de Atención al Paciente/organización & administración , Rol del Médico , Negativa al Tratamiento , Rehabilitación/ética , Terapia Respiratoria , Patología del Habla y Lenguaje , Traqueostomía/rehabilitación
19.
Rio de Janeiro; s.n; 2015. 147 p. il..
Tesis en Portugués | BDENF - enfermagem (Brasil) | ID: biblio-906528

RESUMEN

O desenvolvimento tecnológico permitiu o aumento da expectativa de vida de crianças com necessidades especiais de saúde. Neste contexto, a gastrostomia vem sendo utilizada com maior frequência em crianças que apresentam dificuldades e risco para se alimentar por via oral. O cuidado a crianças com gastrostomia exige demandas de cuidados peculiares e imprescindíveis à sobrevida que serão realizados pelos familiares cuidadores no domicílio. Neste sentido, esse estudo teve como objeto de investigação,o cuidado do familiar cuidador à criança com gastrostomia no contexto domiciliar. Como objetivos: conhecer como o familiar cuidador realiza os cuidados à criança com gastrostomia no cenário domiciliar; desvelar os desafios enfrentados pelo familiar cuidador na prática de cuidar da criança com gastrostomia no domicílio; e analisar as estratégias que mediaram às práticas de cuidar do familiar cuidador com crianças gastrostomia no domicílio. Os alicerces teóricos estiveram pautados nas concepções de cuidado de Collière e na educação problematizadora de Paulo Freire. Metodologia: pesquisa qualitativa desenvolvida por meio do método criativo sensível, com a implementação da dinâmica Corpo Saber no domicílio de crianças com gastrostomia com 16 familiares cuidadores. Para a análise dos resultados, utilizou-se a análise de discurso em sua corrente francesa. Os discursos dos familiares no processo de alimentar a criança com gastrostomia revelaram a necessidade de triturar os alimentos de modo a torná-lo mais liquefeito e assim administrá-lo com maior facilidade pela sonda, a preocupação com valor nutricional e o volume do alimentoa ser administrado. Acerca da administração dos medicamentos, apontaram a necessidade de triturar os medicamentos sólidos, a preocupação comos horários e a forma de administrá-los. Quanto aos cuidados com higienização abordaram questões relacionadas aos utensílios, dispositivo e à pele periestomal.


Technological development has led to an increase in life expectancy of children with special health care needs. Therefore, the gastrostomy has been used most often in children who have difficulties and risk to feed orally. The care for children with gastrostomy requires peculiar care demands essential to survival that will be carried out by family caregivers at home. Therefore, this study had as subject the care of caregivers to children with gastrostomy in the home context. Objectives: To know how the family caregiver performs the care of children with gastrostomy in a home scenario, reveal the challenges faced by family caregivers while taking care of children with gastrostomy at home and analyze strategies for that. The theoretical foundations were guided in the Colliére care concepts and the problem-based education of Paulo Freire. Methodology: qualitative research developed through the sensitive creative method, with the implementation of the dynamic "Corpo Saber" in the domicile, of children with gastrostomy, with 16 family caregivers. To analyze the results we used the speech analysis in its French chain. The speeches of the family in the process of feeding the children with gastrostomy revealed the need to grind food in order to make it more liquid and thus manage it more easily by the probe, the concern about nutritional value and food volume to be administered. About the drug administration identified the need to grind the solid drug, the concern about schedules and how to manage them. Thus, in caring for hygiene, discussed issues related to tools, device and the peristomal skin.


Asunto(s)
Humanos , Masculino , Femenino , Niño , Cuidadores , Cuidado del Niño/métodos , Gastrostomía/enfermería , Gastrostomía/rehabilitación , Atención Domiciliaria de Salud , Personas Imposibilitadas , Enfermería Pediátrica , Brasil
20.
Clin Rehabil ; 16(2): 215-20, 2002 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-11911520

RESUMEN

OBJECTIVES: To examine gender, diagnosis, age, reasons for feeding, nutritional status, complications, outcome and duration of feeding in patients who have required a percutaneous endoscopic gastrostomy (PEG) for nutritional support at a district rehabilitation unit in the six years since the service was established. To identify potential for improvements in the management of future patients. DESIGN: Retrospective case note review of cases from 1992 to 1998. SETTING: District rehabilitation service for ages 16-64 serving the population of Fife, Scotland (population circa 350 000). SUBJECTS: All patients (n = 42) who had been fed via a PEG feeding tube in the previous six years. RESULTS: Forty-four PEG tube insertions had been conducted for 43 episodes of feeding in 42 patients. Five episodes of feeding were because of persistent vegetative state or low awareness state and 38 because of neurological swallowing impairment. Twenty-six (60%) patients were nutritionally depleted when PEG feeding was commenced. Twenty-seven (64%) patients experienced minor complications and 15 (34%) had no complications. At three months post procedure four (9.5%) patients had died and 21 (50%) had been discharged home. The mean duration of feeding on 31 October 1998 of the 20 patients (48%) who continued feeding at that date was 3.19+/-1.89 (mean +/- SD) years. CONCLUSIONS: Patients requiring PEG feeding in a district rehabilitation service have a range of diagnoses and the main indication for intervention is neurological swallowing impairment. The majority of patients were nutritionally depleted when feeding commenced and the reasons for this require further investigation.


Asunto(s)
Nutrición Enteral , Gastrostomía , Intubación Gastrointestinal , Femenino , Gastrostomía/rehabilitación , Humanos , Masculino , Persona de Mediana Edad , Factores de Tiempo
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