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J Natl Cancer Inst Monogr ; 2024(63): 38-44, 2024 Jun 05.
Artigo em Inglês | MEDLINE | ID: mdl-38836529

RESUMO

Persons with HIV-associated Kaposi's sarcoma (KS) experience three co-existing stigmatizing health conditions: skin disease, HIV, and cancer, which contribute to a complex experience of stigmatization and to delays in diagnosis and treatment. Despite the importance of stigma among these patients, there are few proven stigma-reduction strategies for HIV-associated malignancies. Using qualitative methods, we explore how people with HIV-associated KS in western Kenya between August 2022 and 2023 describe changes in their stigma experience after participation in a multicomponent navigation strategy, which included 1) physical navigation and care coordination, 2) video-based education with motivational survivor stories, 3) travel stipend, 4) health insurance enrollment assistance, 5) health insurance stipend, and 6) peer mentorship. A purposive sample of persons at different stages of chemotherapy treatment were invited to participate. Participants described how a multicomponent navigation strategy contributed to increased knowledge and awareness, a sense of belonging, hope to survive, encouragement, and social support, which served as stigma mitigators, likely counteracting the major drivers of intersectional stigma in HIV-associated KS.


Assuntos
Infecções por HIV , Pesquisa Qualitativa , Sarcoma de Kaposi , Estigma Social , Humanos , Sarcoma de Kaposi/psicologia , Sarcoma de Kaposi/terapia , Sarcoma de Kaposi/etiologia , Sarcoma de Kaposi/epidemiologia , Infecções por HIV/psicologia , Infecções por HIV/complicações , Quênia/epidemiologia , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Navegação de Pacientes
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