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1.
Fam Process ; 62(4): 1592-1607, 2023 12.
Artigo em Inglês | MEDLINE | ID: mdl-36375391

RESUMO

The coronavirus disease 2019 (COVID-19) pandemic is a worldwide event that has caused significant changes in the daily lives of individuals and families. The combined effect of the pandemic and the stress associated with major life cycle changes, such as the transition to parenthood, is yet to be understood. The aim of the current study was to validate the Portuguese version of the recently developed COVID-19 Household Environment Scale (CHES) and examine its psychometric properties in a sample of mothers who had given birth during the pandemic. The CHES is a self-report measure assessing the consequences of the COVID-19 pandemic in household cohesion and conflict and includes two sections. Section 1 contains 25 descriptive items pertaining to sociodemographic and household characteristics and COVID-19 stressors. Section 2 encompasses household cohesion and conflict, assessing any change in household experiences and activities following the onset of social distancing. The participants consisted of 342 mothers, aged between 19 and 50 years (M = 31.43; SD = 4.38). A confirmatory factor analysis supported the original CHES bifactor structure of household cohesion and conflict, which obtained an acceptable fit (CFI = 0.900, RMSEA = 0.065). Correlations between household cohesion and conflict and family cohesion and dyadic coping contributed to developing the construct validity of this scale. Furthermore, both CHES subscales demonstrated very good internal consistency. Further research is warranted to assess the CHES in other cultural contexts. This is a useful tool to assess change in family households due to the unprecedented adverse pandemic experience.


Assuntos
COVID-19 , Feminino , Humanos , Adulto Jovem , Adulto , Pessoa de Meia-Idade , Pandemias , Portugal , Mães , Psicometria , Reprodutibilidade dos Testes , Inquéritos e Questionários
2.
Fam Process ; 2023 Apr 11.
Artigo em Inglês | MEDLINE | ID: mdl-37039329

RESUMO

Young people and their families around the world are especially vulnerable to macroeconomic hard times. This study sought to provide a more comprehensive view on how families with emerging adult children can successfully overcome economic distress. Specifically, we examined the links between economic strain-that is, the subjective perceptions of one's current and future financial situation-family ritual meaning, family problem-solving communication, and quality of life, as reported by emerging adults and their parents. Data were collected from 1017 individuals nested in 334 families living in Portugal in 2016/2017. Results from multilevel modeling provided evidence for a negative impact of economic strain on family members' quality of life (ß = -0.30, p < 0.001); and for the role of family ritual meaning (ß = 0.01, p = 0.022), but not family problem-solving communication, as a buffer against the negative effect of economic strain on quality of life. Findings also suggested that the subjective evaluations that family members formulated about their financial situations played a greater role than objective economic conditions (e.g., income) in establishing a deeper understanding on the impact of economic demands on individuals and families' lives in today's complex financial world. This study provides a significant contribution to family economic stress research, advancing family ritual meaning as a key family dynamic contributing to positive adaptation to economic distress. The implications of these findings for clinical interventions include the potential benefits of symbolic forms of family communication in the work carried out with economically stressed family members.

3.
J Happiness Stud ; 24(3): 991-1012, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-36776722

RESUMO

Young adulthood (18-30 years old) is a crucial period due to its developmental tasks such as career establishment and financial independence. However, young adults' relative lack of resources makes them vulnerable to employment disruptions (job loss and income loss), which may have both immediate and long-term effects on their financial wellbeing and mental health. The economic impact of COVID-19 restrictions resulted in an increase in unemployment and a decrease in income worldwide, especially for young adults. This study examined to what extent and how job loss and income loss due to the pandemic influenced young adults' perception of their present financial wellbeing, future financial wellbeing, and psychological wellbeing by using cross-sectional survey data collected from six countries (China, Italy, Lithuania, Portugal, Slovenia, and the United States). Results showed that the impact of income loss and job loss on all three types of wellbeing were mediated by young adults' negative perception of the COVID-19 lockdown restriction (i.e., perceived as a misfortune). Cross-country differences existed in the key variables. The association between employment disruptions, young adults' perception of the COVID-19 lockdown restriction, and wellbeing were equivalent across countries except China. Implications for policy and practice are discussed.

4.
Curr Psychol ; : 1-13, 2022 Oct 10.
Artigo em Inglês | MEDLINE | ID: mdl-36248216

RESUMO

Although emerging adults (i.e., individuals aged 18-29 years old) may be at a lesser risk of COVID-19 severe illness and mortality, studies have found that the negative impact of COVID-19 on mental health and well-being is higher among emerging adults when compared to other age groups. The current study aimed to identify profile(s) based on resilience resources, which could help emerging adults in managing the disruptions to their lives following the pandemic. A cross-national sample of 1,768 emerging adults from China, Italy, Lithuania, Portugal, Slovenia, and the US was utilized to identify profiles based on different resilience dimensions (ego-resiliency, positivity, religiosity, socioeconomic status, family support, peer support). Results of the Latent Profile Analysis suggest the presence of four different profiles: no resources, only peer, only family, and well-equipped. The association of these profiles with demographic variables, adulthood markers, self-perceived COVID-19 impact, present well-being, and future life perception was investigated. Implications for resilience theory as well as for future interventions are discussed. Supplementary Information: The online version contains supplementary material available at 10.1007/s12144-022-03658-y.

5.
Pediatr Hematol Oncol ; 38(2): 147-153, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-33000978

RESUMO

Childhood cancer is a traumatic experience for survivors and their families. The experience of this disease affects survivors' and families' quality of life, even years after it occurs. The purpose of the present study was to assess if the caregivers' posttraumatic stress symptoms mediated the associations between survivors' posttraumatic stress symptoms and caregivers' quality of life, in a sample of 46 dyads of caregivers and childhood cancer survivors. Survivors and caregivers completed the PCL-5, and caregivers completed the WHOQOL-bref. Results showed that survivors' and caregivers' posttraumatic stress symptoms scores and caregivers' quality of life were associated. The caregivers' posttraumatic stress symptoms mediated the relationship between survivors' posttraumatic stress symptoms and caregivers' quality of life. Knowing posttraumatic stress symptoms direct and indirect effects on caregivers' quality of life contributes to understand their experience and to develop intervention strategies with this population.


Assuntos
Sobreviventes de Câncer/psicologia , Cuidadores/psicologia , Qualidade de Vida/psicologia , Transtornos de Estresse Pós-Traumáticos/epidemiologia , Adolescente , Adulto , Criança , Feminino , Humanos , Masculino , Transtornos de Estresse Pós-Traumáticos/psicologia , Adulto Jovem
6.
Support Care Cancer ; 28(3): 1059-1067, 2020 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-31177389

RESUMO

PURPOSE: This study aimed to describe parents' preferences regarding their role in treatment decision-making when a child has cancer and examines whether their preferences were related to parents sociodemographic characteristics (sex and education level), patients' characteristics (age group and treatment status), and healthcare context features (parents' perception of family-centered care). METHODS: Two hundred and twenty-eight parents of children/adolescents with cancer were recruited from two Portuguese pediatric oncology wards. Participants provided sociodemographic and clinical information. The Control Preferences Scale for Pediatrics was used to assess the parents' preferred role in treatment decision-making. The Measure of Process of Care assessed the parents' perception of family-centered care (family-centered services and providing general information subscales). RESULTS: Results showed that parents preferred a passive-collaborative role (45.2%), followed by collaborative (27.2%), passive (21.0%), and active-collaborative (6.6%). None preferred an active role. Chi-square test showed that the group of parents preferring a passive role had a lower proportion of more-educated parents, compared to those preferring active-collaborative or collaborative roles. Additionally, groups did not proportionally differ according to the parents' sex, patients' age, and treatment status. A multivariate analysis of variance showed that parents preferring an active-collaborative role reported lower mean scores on family-centered services compared to those preferring passive-collaborative and passive roles. Finally, no significant differences were found concerning providing general information. CONCLUSIONS: This study's findings may guide professionals in identifying parents' preferences regarding their participation in treatment decision-making process. Mapping their preferences may support professionals in promoting desirable levels of parental involvement in decisions in pediatric oncology context.


Assuntos
Tomada de Decisões , Neoplasias/terapia , Participação do Paciente , Adolescente , Adulto , Criança , Feminino , Humanos , Masculino , Oncologia , Pessoa de Meia-Idade , Pais , Portugal
7.
Proc Biol Sci ; 286(1914): 20191576, 2019 11 06.
Artigo em Inglês | MEDLINE | ID: mdl-31662082

RESUMO

Pathogens represent a significant threat to human health leading to the emergence of strategies designed to help manage their negative impact. We examined how spiritual beliefs developed to explain and predict the devastating effects of pathogens and spread of infectious disease. Analysis of existing data in studies 1 and 2 suggests that moral vitalism (beliefs about spiritual forces of evil) is higher in geographical regions characterized by historical higher levels of pathogens. Furthermore, drawing on a sample of 3140 participants from 28 countries in study 3, we found that historical higher levels of pathogens were associated with stronger endorsement of moral vitalistic beliefs. Furthermore, endorsement of moral vitalistic beliefs statistically mediated the previously reported relationship between pathogen prevalence and conservative ideologies, suggesting these beliefs reinforce behavioural strategies which function to prevent infection. We conclude that moral vitalism may be adaptive: by emphasizing concerns over contagion, it provided an explanatory model that enabled human groups to reduce rates of contagious disease.


Assuntos
Doenças Transmissíveis , Princípios Morais , Vitalismo , Evolução Biológica , Humanos , Prevalência , Religião
8.
Psychooncology ; 28(5): 1080-1087, 2019 05.
Artigo em Inglês | MEDLINE | ID: mdl-30861257

RESUMO

OBJECTIVE: The aim of this study was to examine the contribution of individual (positive reappraisal) and family factors (parenting satisfaction, couple relationship quality, and family life difficulty) to the psychological well-being (PWB) of parents of children/adolescents diagnosed with cancer. METHODS: This cross-sectional study was conducted at two pediatric oncology wards in Portugal. Two-hundred and five parents of pediatric patients with cancer completed self-report questionnaires assessing the use of positive reappraisal as a coping strategy, parenting satisfaction, relationship quality, family life difficulty, and PWB. Sociodemographic and clinical data were also assessed. RESULTS: Standard multiple regression analysis showed a significant contribution of both individual- and family-level factors to parents' PWB. Specifically, the use of positive reappraisal as a coping strategy, parenting satisfaction, and relationship quality were associated with higher PWB; conversely, family life difficulty was linked to lower PWB. Sociodemographic (child's age and family's socioeconomic status) and clinical variables (time since diagnosis and treatment status) were not associated with PWB. CONCLUSIONS: The present study identified potential resources for parents' adaptation to this stressful situation, contributing with insightful conclusions for both research and clinical practice. Screening and addressing both individual- and family-level aspects may be crucial to foster parents' well-being when a child is diagnosed with cancer.


Assuntos
Saúde Mental , Neoplasias , Poder Familiar/psicologia , Pais/psicologia , Adaptação Psicológica , Adolescente , Adulto , Criança , Pré-Escolar , Estudos Transversais , Relações Familiares , Feminino , Humanos , Lactente , Masculino , Pessoa de Meia-Idade , Satisfação Pessoal , Portugal , Análise de Regressão , Autorrelato , Estresse Psicológico/psicologia , Inquéritos e Questionários
9.
Fam Process ; 58(3): 761-777, 2019 09.
Artigo em Inglês | MEDLINE | ID: mdl-30063085

RESUMO

Research has long acknowledged the disruptions posed by pediatric cancer diagnosis and treatment to family life. Nonetheless, the mechanisms through which the family response influences parents' mental health in this adverse context are not fully understood. The main goal of the present study was to examine the direct and indirect links, via parenting satisfaction, between family condition management and psychological distress of parents of children with cancer. Participants were 201 parents (86.6% mothers) of children/adolescents diagnosed with cancer who completed self-report questionnaires assessing family condition management (family life difficulty and parental mutuality), parenting satisfaction, and psychological distress (anxiety and depression). Structural equation modeling was used to test the proposed mediation model. The results showed that parenting satisfaction mediated the association between both the family condition management dimensions (family life difficulty and parental mutuality) and depression. Specifically, greater family life difficulties and lower parental mutuality were associated with lower parenting satisfaction, which, in turn, was associated with higher levels of depression. Additionally, greater family life difficulties and lower parental mutuality were directly linked to higher levels of anxiety. Multigroup analyses suggested that the model was valid across patient age groups (children vs. adolescents) and treatment status (on vs. off-treatment). These findings reinforce the need for family- and parent-based interventions in the pediatric oncology field. Interventions that target families' difficulties and promote their resources are likely to foster parenting satisfaction and psychological adjustment.


Desde hace tiempo, las investigaciones han reconocido las dificultades que plantea el diagnóstico de cáncer infantil y el tratamiento para la vida familiar. No obstante, los mecanismos a través de los cuales la respuesta de la familia influye en la salud mental de los padres en este contexto adverso no se comprenden totalmente. El objetivo principal del presente estudio fue analizar los vínculos directos e indirectos, mediante la satisfacción con la crianza, entre el manejo de la enfermedad por parte de la familia y el distrés psicológico de los padres de niños con cáncer. Los participantes fueron 201 padres (86.6% madres) de niños/adolescentes diagnosticados con cáncer quienes contestaron cuestionarios de autoinforme que evaluaban el manejo de la enfermedad por parte de la familia (la dificultad para la vida familiar y la reciprocidad parental), la satisfacción con la crianza y el distrés psicológico (ansiedad y depresión). Se utilizó el modelo de ecuaciones estructurales para evaluar el modelo de mediación propuesto. Los resultados demostraron que la satisfacción con la crianza medió la asociación entre las dimensiones de manejo de la enfermedad por parte de la familia (la dificultad para la vida familiar y la reciprocidad parental) y la depresión. Específicamente, una mayor dificultad para la vida familiar y una menor reciprocidad parental estuvieron asociadas con una menor satisfacción con la crianza, la cual, a su vez, estuvo asociada con niveles más altos de depresión. Además, una mayor dificultad para la vida familiar y una menor reciprocidad parental estuvieron asociadas directamente con niveles más altos de ansiedad. Los análisis multigrupo sugirieron que el modelo era válido entre los grupos etarios de pacientes (niños frente a adolescentes) y el estado del tratamiento (en tratamiento frente a sin tratamiento). Estos hallazgos reafirman la necesidad de realizar intervenciones para la familia y los padres en el ámbito de la oncología pediátrica. Probablemente, las intervenciones que se ocupen de las dificultades de las familias y promuevan sus recursos fomentarán la satisfacción con la crianza y la adaptación psicológica.


Assuntos
Família/psicologia , Neoplasias/psicologia , Poder Familiar/psicologia , Estresse Psicológico/etiologia , Adolescente , Adulto , Criança , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Modelos Psicológicos , Pais/psicologia , Satisfação Pessoal , Inquéritos e Questionários
10.
MMWR Morb Mortal Wkly Rep ; 67(31): 858-867, 2018 Aug 10.
Artigo em Inglês | MEDLINE | ID: mdl-30091967

RESUMO

INTRODUCTION: Zika virus infection during pregnancy causes serious birth defects and might be associated with neurodevelopmental abnormalities in children. Early identification of and intervention for neurodevelopmental problems can improve cognitive, social, and behavioral functioning. METHODS: Pregnancies with laboratory evidence of confirmed or possible Zika virus infection and infants resulting from these pregnancies are included in the U.S. Zika Pregnancy and Infant Registry (USZPIR) and followed through active surveillance methods. This report includes data on children aged ≥1 year born in U.S. territories and freely associated states. Receipt of reported follow-up care was assessed, and data were reviewed to identify Zika-associated birth defects and neurodevelopmental abnormalities possibly associated with congenital Zika virus infection. RESULTS: Among 1,450 children of mothers with laboratory evidence of confirmed or possible Zika virus infection during pregnancy and with reported follow-up care, 76% had developmental screening or evaluation, 60% had postnatal neuroimaging, 48% had automated auditory brainstem response-based hearing screen or evaluation, and 36% had an ophthalmologic evaluation. Among evaluated children, 6% had at least one Zika-associated birth defect identified, 9% had at least one neurodevelopmental abnormality possibly associated with congenital Zika virus infection identified, and 1% had both. CONCLUSION: One in seven evaluated children had a Zika-associated birth defect, a neurodevelopmental abnormality possibly associated with congenital Zika virus infection, or both reported to the USZPIR. Given that most children did not have evidence of all recommended evaluations, additional anomalies might not have been identified. Careful monitoring and evaluation of children born to mothers with evidence of Zika virus infection during pregnancy is essential for ensuring early detection of possible disabilities and early referral to intervention services.


Assuntos
Anormalidades Congênitas/virologia , Transtornos do Neurodesenvolvimento/virologia , Vigilância da População , Complicações Infecciosas na Gravidez/virologia , Infecção por Zika virus/congênito , Samoa Americana/epidemiologia , Pré-Escolar , Anormalidades Congênitas/epidemiologia , District of Columbia/epidemiologia , Feminino , Humanos , Lactente , Recém-Nascido , Microcefalia/epidemiologia , Microcefalia/virologia , Micronésia/epidemiologia , Transtornos do Neurodesenvolvimento/epidemiologia , Gravidez , Porto Rico/epidemiologia , Sistema de Registros , Estados Unidos/epidemiologia , Ilhas Virgens Americanas/epidemiologia , Zika virus/isolamento & purificação
11.
J Clin Psychol Med Settings ; 25(1): 93-103, 2018 03.
Artigo em Inglês | MEDLINE | ID: mdl-29453505

RESUMO

This study aimed to examine the direct and indirect effects of hope on health-related quality of life (HRQoL) via anxiety of children/adolescents with cancer. We proposed to test if the mediation model was moderated by the child/adolescent's treatment status. The participants were 211 children/adolescents diagnosed with cancer, divided into two clinical groups according to treatment status: 97 patients on-treatment and 114 off-treatment. Self-reported questionnaires measured the youths' hope, anxiety, and HRQoL perceptions. The results revealed that children/adolescents on- and off-treatment only differed in levels of HRQoL, with a more compromised HRQoL found for the on-treatment group. Hope was positively associated with HRQoL, directly and indirectly via anxiety reduction. Moreover, only the association between anxiety and HRQoL was moderated by clinical group, revealing stronger associations for on-treatment patients. Findings highlight the importance of hope as a decisive resource in pediatric cancer adaptation, which may be strategically targeted in psycho-oncological interventions.


Assuntos
Ansiedade/complicações , Ansiedade/psicologia , Esperança , Neoplasias/complicações , Neoplasias/psicologia , Qualidade de Vida/psicologia , Autorrelato , Adaptação Psicológica , Adolescente , Adulto , Atitude Frente a Saúde , Criança , Feminino , Humanos , Masculino , Portugal , Inquéritos e Questionários , Adulto Jovem
12.
Epilepsy Behav ; 75: 42-49, 2017 10.
Artigo em Inglês | MEDLINE | ID: mdl-28826008

RESUMO

Parents play a key role in how children deal with epilepsy. When diagnosed with health conditions, people seek comparison information from fellow patients and families, and this information has consequences for how they evaluate their situation. This study examined the moderating role of parents' social comparison orientation in the associations between family management (parental perceptions of family life difficulties and child's daily life) and adaptation outcomes of children with epilepsy (HRQoL and perceived stigma). Participants included 201 dyads of children with epilepsy and either their mother or father. The results showed that when parents perceived higher difficulties managing their child's epilepsy and/or reported that their child was more affected by this condition, children reported higher perceived stigma and worse HRQoL only when parents had a higher social comparison orientation. Our results are innovative in showing that when parents have a higher social comparison orientation, their children may be at increased risk of poorer outcomes.


Assuntos
Adaptação Psicológica , Atitude Frente a Saúde , Epilepsia/psicologia , Família/psicologia , Qualidade de Vida/psicologia , Percepção Social , Estigma Social , Adolescente , Adulto , Criança , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Adulto Jovem
13.
J Pediatr Psychol ; 42(1): 114-124, 2017 01 01.
Artigo em Inglês | MEDLINE | ID: mdl-28173184

RESUMO

Objective: Family functioning is associated with adaptation in pediatric illness. This study examines the role of parents' relationships (specifically romantic attachment) as a predictor of family ritual meaning and family cohesion for parents and their children with cancer. Methods: The dyads, 58 partnered Portuguese parents and their children in treatment, reported on family ritual meaning and family cohesion at Time 1 (T1) and after 6 months (T2). Parents also completed the questionnaire assessing romantic attachment at T1. Results: Parents' avoidant attachment, but not anxious attachment, predicted lower family ritual meaning and family cohesion after 6 months. T2 family ritual meaning mediated the relationship between T1 avoidant attachment and T2 family cohesion. Conclusions: Parents' avoidant attachment may have a negative effect on family functioning in parents and children. Clinical intervention to address avoidant attachment or/and to promote family ritual meaning may help strengthen family ties.


Assuntos
Comportamento Ritualístico , Relações Familiares/psicologia , Neoplasias/psicologia , Pais/psicologia , Adolescente , Adulto , Ansiedade , Criança , Feminino , Humanos , Masculino , Cônjuges/psicologia , Inquéritos e Questionários
14.
J Pediatr Psychol ; 42(6): 689-699, 2017 07 01.
Artigo em Inglês | MEDLINE | ID: mdl-28137993

RESUMO

Objective: To examine the mediating role of stigma on the links between family cohesion and quality of life (QoL) in children with epilepsy and their parents. Participants were 192 families attending three Portuguese public hospitals. Children and parents completed self-report measures of family cohesion, stigma, QoL, and health-related QoL (HRQoL). Neurologists assessed clinical variables. Structural equation modeling within the framework of the actor-partner interdependence model was used. The final model showed a good fit to the data, explaining 43% and 35% of the QoL outcomes of children and parents, respectively. Family cohesion was positively linked to QoL outcomes, directly for children and parents, and indirectly for children only, by way of negative links with perceived stigma. At the dyadic level, parents' perceptions of family cohesion were positively associated with children's HRQoL. A routine screening of those patients experiencing poorer HRQoL should include the assessment of family relationships and stigma.


Assuntos
Epilepsia/psicologia , Relações Familiares/psicologia , Qualidade de Vida/psicologia , Estigma Social , Adolescente , Adulto , Criança , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Modelos Psicológicos , Pais/psicologia , Portugal , Autorrelato
15.
Health Qual Life Outcomes ; 14: 20, 2016 Feb 13.
Artigo em Inglês | MEDLINE | ID: mdl-26872726

RESUMO

BACKGROUND: Health-related quality of life (HRQoL) is an important outcome to assess the impact of cancer. This article examines the psychometric properties of the European Portuguese self-report version of the Pediatric Quality of Life Inventory™ Cancer Module (PedsQL™ 3.0 Cancer Module) in children and adolescents with cancer. METHODS: The participants, 332 children/adolescents diagnosed with cancer (8-18 years old), completed measures to assess HRQoL (PedsQL™ 3.0 Cancer Module and DISABKIDS Chronic Generic Measure; DCGM-12) and anxiety (Revised Children's Manifest Anxiety Scale - second edition; RCMAS-2). A subsample (n = 52) completed the PedsQL™ 3.0 Cancer Module a second time following one-week. The pediatric oncologists completed the Intensity of Treatment Rating Scale 3.0 (ITR 3.0). RESULTS: For the whole sample, the PedsQL™ 3.0 Cancer Module demonstrated good item discrimination (rs = .30 to .54). The confirmatory factor analysis testing the presence of eight first-order factors loading significantly in a second-order factor revealed an acceptable fit (CFI = .91; RMSEA = .05). The correlation of PedsQL™ 3.0 Cancer Module with DCGM-12 (rs = .17 to .58), and with RCMAS-2 (rs = -.16 to-.51) attested convergent validity. This inventory demonstrated minimally acceptable to very good internal consistency (αs = .65 to .87) and temporal stability (ICCs = .61 to .81). CONCLUSIONS: These findings demonstrate that the European Portuguese self-report version of the PedsQL™ 3.0 Cancer Module is a valid and reliable instrument for assessing HRQoL in pediatric cancer.


Assuntos
Neoplasias/psicologia , Psicometria/instrumentação , Qualidade de Vida/psicologia , Adolescente , Criança , Análise Fatorial , Feminino , Humanos , Masculino , Portugal , Reprodutibilidade dos Testes , Autorrelato , Índice de Gravidade de Doença
16.
J Pediatr Psychol ; 40(7): 664-71, 2015 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-25775914

RESUMO

OBJECTIVE: Family rituals are associated with adaptive functioning in pediatric illness, including quality of life (QoL). This article explores the role of family cohesion and hope as mediators of this association in children with cancer and their parents. METHODS: Portuguese children with cancer (N = 389), on- and off-treatment, and one of their parents completed self-report measures. Structural equation modeling was used to examine direct and indirect links between family rituals and QoL. RESULTS: When children and parents reported higher levels of family rituals, they also reported more family cohesion and hope, which were linked to better QoL. At the dyadic level, children's QoL was related to parents' family rituals through the child's family cohesion. This model was valid across child's age-group, treatment status, and socioeconomic status. CONCLUSIONS: Family rituals are important in promoting QoL in pediatric cancer via family cohesion and hope individually and via family cohesion in terms of parent-child interactions.


Assuntos
Família/psicologia , Esperança/fisiologia , Neoplasias/psicologia , Qualidade de Vida/psicologia , Adolescente , Adulto , Idoso , Criança , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pais/psicologia , Adulto Jovem
17.
J Asthma ; 51(6): 645-51, 2014 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-24447285

RESUMO

BACKGROUND: The KIDSCREEN and DISABKIDS questionnaires constitute a modular system for assessing the health-related quality of life (HrQoL) of children/adolescents. OBJECTIVE: This study was aimed at examining the factorial structure of the Portuguese patient- and parent-reported versions of the DISABKIDS-Asthma Module (AsM) and its invariance across age groups and informants, as well as to examine their reliability and construct validity. METHODS: The sample included 140 children/adolescents aged 8-18 years, who were diagnosed with asthma, and one of their parents. Both family members assessed HrQoL at the generic (KIDSCREEN-10), chronic-generic (DISABKIDS-12) and asthma-specific (DISABKIDS-AsM) levels. Asthma severity was classified by physicians using Global Initiative for Asthma (GINA) guidelines. RESULTS: Confirmatory factor analysis attested the factorial validity of the correlated two-factor model of the DISABKIDS-AsM, but the low average variance extracted by each factor (Impact and Worry) suggested that a one-factor structure would better fit the Portuguese data. The one-factor model had an acceptable fit (χ(2)/df = 1.97; comparative fit index = 0.94; root mean square error of approximation = 0.08) and was invariant between age groups (children vs. adolescents) and informants (patient-reports vs. parent-reports). The resulting global index of asthma-specific HrQoL presented good reliability and convergent validity with the generic and chronic-generic measures. The DISABKIDS instruments also detected significant differences in HrQoL regarding asthma severity groups. CONCLUSIONS: The DISABKIDS-AsM may be regarded as a specific one-dimensional questionnaire, which, besides suiting pediatric patients in different developmental stages and enabling reliable proxy-reports, is sensitive to asthma clinical characteristics and is cross-culturally comparable, thus representing a valuable tool for assessing asthma-specific HrQoL as a primary health outcome in clinical practice and research contexts.


Assuntos
Asma/psicologia , Pais/psicologia , Qualidade de Vida , Inquéritos e Questionários , Adolescente , Fatores Etários , Criança , Feminino , Humanos , Masculino , Portugal/epidemiologia , Reprodutibilidade dos Testes , Índice de Gravidade de Doença , Fatores Sexuais , Fatores Socioeconômicos , Fatores de Tempo
18.
J Clin Psychol Med Settings ; 21(4): 320-8, 2014 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-25228103

RESUMO

The aim of this study was to analyze the direct and indirect effects, via parents' behavioral disengagement coping, of caregiving burden on the quality of life (QL) of parents and their children with neurodevelopmental conditions. Self-completion questionnaires on the target variables were administered to a sample of 156 parents who had a child with a neurodevelopmental condition, namely epilepsy (n = 65) and cerebral palsy (n = 91). Structural equation modeling was used to test a mediation model and ascertain direct and indirect effects among study variables. Significant direct effects of caregiving burden on parents' and their children's QL were found. Additionally, caregiving burden had a significant indirect effect on parents' QL, via behavioral disengagement, but not on their children's QL. Finally, this model was found to be invariant across conditions and patients' age groups. Caregiving burden may be elected as a strategic intervention target to improve parent-child QL outcomes in neuropediatric settings. Parents should be encouraged to avoid or reduce behavioral disengagement coping in relation to their caregiving stress, and alternatively adopt active coping strategies that may positively affect their children's QL and impede or attenuate the deleterious effects of caregiving burden on their own QL.


Assuntos
Adaptação Psicológica , Cuidadores/psicologia , Deficiências do Desenvolvimento/psicologia , Relações Pais-Filho , Pais/psicologia , Estresse Psicológico/psicologia , Adulto , Cuidadores/estatística & dados numéricos , Efeitos Psicossociais da Doença , Estudos Transversais , Feminino , Humanos , Masculino , Qualidade de Vida , Inquéritos e Questionários
19.
Int J Infect Dis ; 143: 107034, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38561041

RESUMO

OBJECTIVES: The aim of this study was to analyze the viral load (VL) using cycle threshold (Ct) in patients infected with influenza A (H3N2). METHODS: This prospective study was conducted during the 2022-2023 influenza season in sentinel, non-sentinel, and hospitalized patients of Castilla y León (Spain). Respiratory samples were obtained from nasopharyngeal swabs and analyzed by quantitative reverse transcription-polymerase chain reaction specific for influenza A (H3N2) to obtain the Ct value. RESULTS: A total of 1047 individuals were enrolled (174 [16.6%] sentinel, 200 [19.1%] non-sentinel, 673 [64.3%] hospitalized). The mean Ct value was lower in infants, young children, and in the elderly, with a sharp increase in the last from 65 years until 90 years. In addition, the lower Ct values were observed in non-sentinel patients and then in hospitalized patients, probably because non-sentinel are outpatients in the acute phase of the influenza infection. CONCLUSIONS: A higher VL (lower Ct value) is related to the extreme ages of life: children and the elderly. Furthermore, a higher VL is related with the care setting, being probably higher in outpatients because they are in the acute phase of the disease and slightly lower in hospitalized patients because they are attended during the post-acute phase.


Assuntos
Vírus da Influenza A Subtipo H3N2 , Influenza Humana , Carga Viral , Humanos , Influenza Humana/epidemiologia , Influenza Humana/virologia , Vírus da Influenza A Subtipo H3N2/isolamento & purificação , Vírus da Influenza A Subtipo H3N2/genética , Espanha/epidemiologia , Estudos Prospectivos , Pré-Escolar , Lactente , Criança , Masculino , Feminino , Idoso , Idoso de 80 Anos ou mais , Adolescente , Adulto , Pessoa de Meia-Idade , Adulto Jovem , Estações do Ano , Fatores Etários , Hospitalização , Recém-Nascido , Nasofaringe/virologia
20.
J Adolesc ; 36(5): 993-1002, 2013 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-24011115

RESUMO

The present study investigated the role of connectedness to the family and school contexts on future orientation of New Zealand adolescents. Participants were 1774 young people (51.9% female) aged between 9 and 16 years at time 1 of the study, who reported their connectedness to family and school and their perceptions of future orientation at three times of measurement one year apart. Structural equation modelling was used to test the combined role of family and school connectedness on future orientation over time. Findings supported a multiple mediation model in that adolescents' connectedness to family and school predicted more positive perceptions of future orientation both directly and indirectly via the effect of the context variables on each other.


Assuntos
Desenvolvimento do Adolescente , Relações Familiares , Apego ao Objeto , Instituições Acadêmicas , Autoimagem , Adolescente , Criança , Feminino , Humanos , Estudos Longitudinais , Masculino , Nova Zelândia , Inquéritos e Questionários
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