Epidermolysis Bullosa in Spain: A Qualitative Analysis of Its Social Impact on Families With Diagnosed Minors.

BACKGROUND: Epidermolysis bullosa (EB) comprises a group of rare types of genodermatoses characterized by extreme mucocutaneous fragility, leading to blistering and/or erosions, even with minimal trauma. Continuous care through wound management is an integral part of daily life for the families and individuals affected. The aim of this study was to assess the social reality and impacts on families of having minor members diagnosed with EB in Spain. METHODS: A qualitative methodology was employed, utilizing four focus groups entailing participation by 24 parents (19 mothers and five fathers) of minors diagnosed with EB in Spain. RESULTS: Negative impacts on the family nucleus were evident in four priority areas of analysis: sociorelational, economic-labour, physical and psychoemotional, with significant differences observed based on the severity of the symptoms. CONCLUSION: Impacts on the family nucleus are noticeable from birth, influencing all other daily life routines and complicating family planning and organization. There is an imperative need to enhance the availability of sociohealth resources and to adopt an interdisciplinary approach to address their biopsychosocial needs. PATIENT OR PUBLIC CONTRIBUTION: The active participation of relatives of minors diagnosed with Epidermolysis Bullosa (EB) is invaluable to sociohealth professionals, legislators and researchers. A team member conducts their professional activities at DEBRA España (national patient association dedicated to enhancing the quality of life for individuals with EB and their families), actively engaging in all study phases.

Cyber-dating abuse in young adult couples: Relations with sexist attitudes and violence justification, smartphone usage and impulsivity.

Technologies have become important for interaction in couples. However, in some cases, controlling and aggressive behaviors can occur in the context of virtual interactions in couples; this is known as cyber-dating abuse (CDA). Identifying factors linked to CDA, as perpetrator and victim, are relevant for its prevention; therefore, more research is needed in this novel field of study. To contribute to the literature, our first goal was to analyze the associations among certain risk factors for CDA perpetration and victimization of, i.e., sexist attitudes and violence justification, problematic smartphone usage and impulsivity; sex and age were also considered. The second goal was to study whether there were differences in direct aggression and control, from the perpetrator and victim perspectives, with consideration of the above-mentioned risk factors. Third, differences in the diverse range of control behaviors and direct aggression between women and men were explored. To this end, 697 young adults (aged between 18 and 35 years; 548 women) completed self-report questionnaires that allowed assessment of the above-mentioned variables. The results showed that, among the wide range of CDA behaviors, indirect ones such as control behaviors were the most common. The highest level of control was strongly associated with the inability to manage behaviors under certain emotional states, especially negative ones, along with problematic smartphone usage. Sex differences were also observed: men displayed more sexist attitudes and violence justification, and perceived that they were more controlled by their partners. Regarding CDA behaviors, men and women showed differences in control (e.g. men considered themselves to be more controlled in terms of location and status updates), and direct aggression (e.g. men used more insults and humiliations than women). The results were discussed in terms of the importance of better understanding these risk factors to attenuate the increasing prevalence of CDA in relationships.

EDAS-18: validación de la versión corta de la escala de dependencia y adicción al smartphone / EDAS-18: validation of the dependency and addiction to smartphone scale short-form

Resumen: La Escala de Dependencia y Adicción al Smartphone-EDAS, publicada en 2017, es uno de los instrumentos más recientes validados en población adulta para el estudio de las conductas adictivas derivadas del uso del smartphone. El objetivo del estudio fue la validación de la versión corta del instrumento, implicando la revisión de las propiedades psicométricas de los ítems y su dimensionalidad. Se contó con una muestra de 606 participantes jóvenes y adultos (de 18 a 48 años). Tras el ajuste psicométrico de los ítems y el análisis factorial exploratorio y confirmatorio, los 40 reactivos iniciales se redujeron a 18, quedando agrupados en un solo factor. El instrumento fue renombrado como EDAS-18, alcanzando una consistencia interna de α = .88 y diversas evidencias de validez. Los resultados replican los hallazgos previos sobre las diferencias en el uso del smartphone en función del sexo y la edad.

Abstract: The Dependency and addiction to Smartphone Scale ("Escala de Dependencia y Adicción al Smartphone"-EDAS), published in 2017, is one of the most recent instruments validated in adult population. It allows to study addictive behaviors derived from the use of the Smartphone. The purpose of this study was to develop and validate a shorter version of the EDAS, involving the review of the psychometric properties of the items and their dimensionality. A total of 606 young and adult people participated (18 to 48 years old). After the psychometric adjustment of the items and the exploratory and confirmatory factor analysis, the initial 40 items were reduced to 18, being grouped into a single factor. The instrument was renamed EDAS-18, reaching an internal consistency of α = .88 and various evidences of validity. The results replicate the previous research findings on the sex and age differences in the Smartphone use.

"No sin mi Smartphone": elaboración y validación de la Escala de Dependencia y Adicción al Smartphone (EDAS) / "Not without my Smartphone": development and validation of the Dependency and Addiction to Smartphone Scale (EDAS)

En los últimos años asistimos a la extensión de los Smartphones, cuya funcionalidad y versatilidad los convierten en una herramienta que impacta sobremanera en la vida diaria y las relaciones de sus usuarios. Pese a sus incuestionables ventajas, se observan problemas asociados a su uso problemático, que puede provocar adicción y dependencia. Esto justifica nuestro estudio, cuyo objetivo es la elaboración y validación de una escala que evalúe el uso problemático de las aplicaciones asociadas a los Smartphone, adaptada a la realidad actual, creada y validada en lengua hispana y destinada a población adulta. En la investigación participaron 820 personas, en su mayoría estudiantes de la Universidad de Jaén (España). El rango de edad oscilaba de 18 a 40 años (M = 22,38, Dt = 4,53), siendo un 69,3% mujeres y un 30,7% hombres. Los análisis estadísticos dieron lugar a una herramienta final constituída por 40 ítems y tres componentes.

In recent years, we are witnessing the spread of Smartphones, whose functionality and versatility make them a tool with a noticeable impact in users' daily life and social relatinships. Despite its unquestionable advantages, some problems connected to their problematic use (which can lead to addition and dependence) are observed. Due to it, we decided to undertake the present research, whose main aim is the development and validation of a scale to measure the problematic use of Spartphones applications, adapted to the current reality, created and validated in Spanish language and directed to adults. The study included 820 people, mostly students from the University of Jaén (Spain). The ages ranged from 18 to 40 years (M = 22,38, Dt = 4,53). Regarding gender, 69,3% were women, and the remaining 30,7% were men. Statistical analysis resulted in a final tool comprised of 40 items and three components.