Detalhe da pesquisa
1.
The Spinal Muscular Atrophy Health Index: A novel outcome for measuring how a patient feels and functions.
Muscle Nerve
; 63(6): 837-844, 2021 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33711174
2.
Patient Reported Impact of Symptoms in Spinal Muscular Atrophy (PRISM-SMA).
Neurology
; 91(13): e1206-e1214, 2018 09 25.
Artigo
em Inglês
| MEDLINE | ID: mdl-30143566
3.
Mapping the differences in care for 5,000 spinal muscular atrophy patients, a survey of 24 national registries in North America, Australasia and Europe.
J Neurol
; 261(1): 152-63, 2014 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-24162038